spoonful-of-fibro
spoonful-of-fibro
with a dash of POTS and a sprinkle of CFS
549 posts
everything hurts and I'm dying, no thriving, no dying, no...
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spoonful-of-fibro · 3 months ago
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I wish it was possible to celebrate literally any achievement by a disabled person without 300 abled people using it to go "see?? If this person could do it then NO ONE has an excuse not to and if you don't do it too that just means you're LAZY!!!"
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spoonful-of-fibro · 3 months ago
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"Well, luckily, what you're dealing with is life altering, not life threatening."
Yeah that sounds good on paper until you're spending every single fucking day in pain with no way out.
I know this is controversial in the chronic illness community, but I'd genuinely rather have something that either goes into remission through treatment or it ends up being terminal.
Because those outcomes either improve your quality of life or put an end to your suffering, not the more evil third option of spending every single day in pain and suffering where your body feels like it's dying but won't.
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spoonful-of-fibro · 3 months ago
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spoonful-of-fibro · 3 months ago
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My dad watched me pour myself a shot of soy sauce the other night. He was clearly baffled. I explained how I needed something salty to help feel better, but I wasn’t hungry enough for a salty snack, and I didn’t feel like eating a handful of straight salt. Thus, a shot glass full of soy sauce. He watched me down it, too, and was like “how was it?” And honestly? It’s not the worst shot I’ve ever had.
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spoonful-of-fibro · 3 months ago
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OMG ALL THE TIME
Anyone else with chronic pain ever get really absorbed in a project and dissociate from your body while you're working but then you finish and you come back to your body and you're just like AAAAAAAHHH! WHAT'S WRONG?? oh yeah. The horrors. Never mind
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spoonful-of-fibro · 4 months ago
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Source: Dear_Chronic_Pain on Insta
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spoonful-of-fibro · 4 months ago
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Free Spiritual Coaching Sessions
I am a student in a spiritual coaching certification program. As part of my certification, I am seeking 3 practice clients to receive spiritual coaching from me completely free of charge.
What is coaching?
Coaching is about helping people find their own answers and make changes in their present life. It is not about me imposing my views and values on you! It doesn't matter what your spiritual beliefs are or what mine are! My goal is to help you go from where you are to where you want to be, whatever that looks like! Coaching is best suited to challenges such as developing a more robust spiritual practice, developing your intuition, or applying spirituality in your daily life. I do not recommend coaching for topics that are better suited to traditional therapy, such as processing religious or childhood trauma.
What will you do as a client?
Commit to working with me via Zoom for 6 practice sessions to take place weekly or biweekly from May 2025 to August 2025. These practice sessions will last 30-60 minutes. We'll start with what we call a Discovery Session to get to know each other and talk about your current spiritual practices/experiences and where you'd like to get. In the next 5 sessions, we'll further develop goals and action plans to help you get there. As coaching is very client-led, I'll ask you to come to each session prepared with a topic to work on, even if it's super vague and you need help breaking it down.
What will I do as a coach?
I will guide you through the process by asking powerful questions and providing tools that have been used for 30+ years by successful life and spiritual coaches all over the world. These may include assessments, worksheets, or frameworks for goal-setting that will help you take action to achieve your goals. I will not tell you what to do; my job is to help you find the answers you already have within!
Who am I?
I'm a 43 year old, neurodivergent, LGBTQ+, married mom of two older children who wants to help people build new spiritual practices after they've discovered their old ones no longer serve them. As a trauma survivor, I have had to shed old belief systems a few times in my life to find new ways of experiencing connection to something greater than myself. My goal is to build a practice where I can help those who are in a time of spiritual transition to build new spiritual lives that better align with their changing perspectives and values.
Interested?
DM me here or send me an email at gdtriceratops at gmail dot com. I will be happy to answer any questions and send you a welcome packet with more information, including a coaching agreement to sign. When you're ready to commit to the 6 free sessions, we'll schedule our first time and get started!
I hope to hear from you soon!
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spoonful-of-fibro · 4 months ago
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spoonful-of-fibro · 4 months ago
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spoonful-of-fibro · 4 months ago
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spoonful-of-fibro · 4 months ago
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what abled ppl think is a massive problem for disabled folks: 13 year old on the internet faking something
what is actually a massive problem for disabled folks: "well you don't LOOK disabled, are you sure you're not faking? I'm not giving you accommodations until you PROVE you're not faking. Please give me, a stranger, your medical info and explain your condition to me in detail so I know you're not faking and only then will I respect or take you seriously"
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spoonful-of-fibro · 4 months ago
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spoonful-of-fibro · 4 months ago
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spoonful-of-fibro · 7 months ago
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spoonful-of-fibro · 7 months ago
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I feel like when I first became chronically ill and it was medically recognized that I was suffering from pain, people were so much more willing to listen and empathize with me
Like, for example, after the initial diagnosis a lot of people were willing to listen to me complain and get upset and tried as hard as they could to accomodate
But after maybe like 2 weeks, it got kind of old for people, I guess? Maybe it just kind of became like the new normal to others. Nobody wanted to listen to me anymore, and most people were content with treating me like I was back to "normal" (previously my masking self)
It's just kind of disheartening to watch people move on with their lives and just ignore my disability and how it's affecting me just because I talk about it more often now and it isn't some new novel thing
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spoonful-of-fibro · 11 months ago
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There’s no such thing as work-life balance for neurodivergent & chronically ill people.
This is because everything in my life requires work:
maintaining friendships
keeping up with my hygiene
managing bills
making money
remembering my basic needs
sleeping regularly
outputting creatively
All requires some aspect of work for me.
And when everything in your life requires work, your balance goes out the window.
If you're neurodivergent and overwhelmed — I see you.
If you're chronically ill and overwhelmed — I see you.
You're not dysfunctional.
You're not incapable.
You're doing your best.
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spoonful-of-fibro · 11 months ago
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sometimes I forget standing up isn’t painful and difficult for most people so I’ll be watching something like game changer and see the people standing behind their podiums the whole episode and think ‘wow don’t they need to sit down. how can they still think coherent thoughts’ and then I’m like oh. yeah. I have a disease
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