mylifeisafckingbodyhorror - Tumblr blog

[mylifeisafckingbodyhorror]

Noooo my leg felt better for a solid two-ish days but now there’s still some pain from the inflammation that just won’t go down. It’s sore right where the muscle is so moving just blows. Blegh

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Coping Strategies for Depression and HS

People who have persistent skin disorders such as hidradenitis suppurativa (HS) are more likely to develop depression.

Apathy, sad mood, hopelessness, impatience, and lack of desire are common symptoms of depression in patients with HS.

Coping with depression and HS is a continual journey, but there are measures you can do and people you may call out to for assistance.

Life with hidradenitis suppurativa, often known as acne inversa, is fraught with difficulties. Many persons with HS endure the psychological impacts of having a chronic skin condition that causes misery in their lives, in addition to painful physical symptoms. In fact, those with chronic illnesses are more likely to develop depression.

Depression in HS Patients

“Studies reveal that depression is really common in both pediatric and adult patient populations who have HS because of the effect it has on your mental health well-being,” he said. “In one study, more than 38% of participants with HS had depression, compared to only 2.4 percent of healthy non-HS control groups.” The pain, inflammation, and emotional stress associated with HS appear to play a significant influence in the occurrence of depression in this population, as well as many other chronic and long-term diseases.”

An analysis of ten studies discovered that depression and anxiety are widespread in patients with HS and advocated for greater research to assist identify and treat mental health issues. In another study, researchers in Denmark looked at over 7,000 persons who had been diagnosed with HS. Participants with the skin disease had higher rates of depression and suicide than those who did not.

Note: If you or someone you know needs help, you can contact the National Suicide Prevention Lifeline at 9152987821

Depression Symptoms in People With HS

Several signs may indicate that you are depressed as a result of your HS condition. These are the following list of possible indicators:

Apathy

Depressed state

Embarrassment

The fear of social stigma

Hopelessness

Irritability

Inadequate motivation

Concerns about sexual activity

According to the American Academy of Dermatology Association, feeling unhappy, hopeless, or apathetic for at least two weeks may suggest depression.

“People with HS often feel the need to self-isolate, they have mood disorders and low self-esteem, which correlate with depression, as well as physical limitations in day-to-day activities due to the very painful open sores and lesions on the skin that we know are part of having this condition.” When you have these feelings and symptoms, it is usually a sign that you should get help.”

How Depression Affects Life Quality

Because of feelings of self-consciousness, a negative body image, and low self-esteem, HS can be emotionally draining, especially if you experience chronic pain and flare-ups. It is also difficult to navigate social situations. According to a survey the physical and mental impacts of HS can have a substantial impact on quality of life.

Researchers from the University of Copenhagen interviewed 12 people and held focus groups to learn more about how HS affects quality of life. They discovered that living with HS had a substantial psychological and social impact on over 60% of the participants. Participants discussed emotional issues, self-worth, social stigma, intimacy, general dissatisfaction, and the desire for a community where they can securely communicate their concerns with individuals who understand what it’s like to live with HS. Some also cited difficulties taking time off from work and being worried of losing their employment as a result of having to obtain sick leave on multiple occasions.

“I was doing so well with so many things to help my body and mental health,” one of our patient said. Then I started thinking about all HS has and will continue to take from me. For a few weeks, I lost track of what I was eating, my stress level, and my mental health. So, I’m not going to let my HS continue to take stuff away from me. So I’m back to find my way.”

Obtaining Depression Treatment

If you are experiencing symptoms of depression, it is critical that you speak with someone who can assist you. While your primary care physician and dermatologist can assist in the treatment of physical symptoms of HS, you may also benefit from visiting with a counselor, psychologist, or other mental health specialist. Furthermore, support groups and networks can provide a secure and friendly environment in which you can openly share your experience.

“I’ve had this for 35 years,” one of our patients tells us. To varied degrees, we all experience physical and mental suffering. We understand how it feels to wonder, ‘Why me?’ I’m sure many of us have experienced losing friends and social contacts as a result of HS. You are NOT alone, and it is safe to express yourself here. Nobody will judge you for feeling down. “

In some cases, medicine might help alleviate depression. “This is a genuine question for your doctor.” “If you want to treat your depression with medication, talk to your doctor to see if it’s a viable option,” Yu added. “There are other ways to treat and cope with depression, including therapy, social support groups, exercise, meditation, and other homeopathic routes.”

Depression Coping Strategies

Finding techniques to cope with depression while living with HS is one of the most effective ways to enhance your quality of life. In addition to getting professional assistance as necessary, you could try daily rituals such as:

Contacting a loved one

Exercising

Going for a walk in the fresh air

Meditating

Speaking with family or a support group

Keeping a journal

“Whatever activities you choose, make the commitment and consistency to check in with your own mental health.” But, most importantly, schedule particular times during your workday, school day, and at home when you can prioritize yourself and give yourself the grace and kindness to exist with HS — and everything else going on in your daily life,” 

“For the longest time, I felt alone and still do,” our patient says. I hide my low self-esteem and despair from my family. Now that I’m in my 30s, I’m not going to let high school define me. Don’t give up hope. Get out of the house and do something entertaining if you start experiencing bad thoughts.”

We also recommend practicing mindfulness and repeating self-affirmations throughout the day: “You could say something positive to yourself, like ‘I am beautiful,’ ‘I am strong,’ or even ‘I have HS and I am fill-in-the-blank.'” To acknowledge your condition and the fact that you’re owning it, repeat the affirmation to yourself throughout the day and to your friends and family. You’re taking back control. You’re expressing your emotions. You recognize the societal stigma and challenge your negative ideas. ‘Yes, this is difficult,’ remind yourself. Yes, it might be painful at times, but you have control. You’re working your way through it day by day.”

Managing depression and HS is a never-ending process. The good news is that there are steps you can take and individuals you may contact for assistance. “If you have HS and depression, don’t be afraid to seek help. It does not imply that you are inferior or weak. You are not restricted to experiencing life in this manner. There are support groups available. There are family and friends to talk to, as well as customs to experience and try. “There is light at the end of the tunnel,” Yu explained.

Talk to People Who Understand

We also have a strong community of thousands of our ongoing and previous HS patients who ask questions, give advice, and share their stories with others who understand life with HS.

Do you suffer from depression as a result of your HS? Share your thoughts in the comments section below, or start a discussion on our community space.

While HS is still not fully understood, experts believe that emerging research will provide alleviation to those with HS in the future. “While there is still a lot we do not know about HS, there has been a lot of research in the last several years, fortunately, we have made several breakthroughs that have resulted in a wide range of treatment options for this condition.” We hope that more people become aware of this issue so that they can seek treatment sooner and lessen its impact on their quality of life.”

[mylifeisafckingbodyhorror]

At least we get to see Quinn win HOH tomorrow

[mylifeisafckingbodyhorror]

Thank god this flare finally opened bc I’ve been in so much pain. 🤧 it still hurts but that absence of pressure and the fever & chills cycle was awful today and yesterday.

I pretty much just slept. I only made it out of bed to make breakfast and then to eat dinner. Slept clean through lunch tho. Hopefully tomorrow is easier 💖 my cane finally comes so getting around with these leg and groin area flares will be so much easier. I’ve been using mom’s spare around the house and it’s been a life saver.

I also ordered a grabber tool thingy for when I can’t bend or move my arms much. If HS is gonna beat the shit out of my body I’m gonna accommodate myself.

[mylifeisafckingbodyhorror]

Tough day so far. The flare under my left arm stopped draining completely and filled back up so the hole the derm made closed. I’m exhausted and in pain and work hasn’t made it easy either. It’s like I’m having to push myself really hard when my body is at maybe 20%

Mentally I’m feeling a little better but it really took me 5 months of slowly declining to now where I’m trying to get force myself to be better and the mental gymnastics of that is exhausting. I just :/ I’m so tired and everything hurts. Because of my appointment last week I’m stuck making up the four hours I was out of the office and it made me realize that I’m not built for skipping lunches anymore. Not when I’m feeling like this..

My therapist is still out. It’s been two months now and I’m really worried about her. It must be super serious because they’ve assigned me to someone new while she’s out since they don’t have a return date yet. I’m not in a mental headspace to make a good first impression, which I’m nervous about. But I think maybe it’ll keep me from holding back.

[mylifeisafckingbodyhorror]

The "if we cant diagnose you we wont medicate you" policy doctors have seems particularly cruel considering doctors are too inept to diagnose anything more complicated then a broken bone

[mylifeisafckingbodyhorror]

chronic fatigue from mental illness and neurodivergency isn't something you can just will your way out of. your nervous system is part of your body. your brain is an organ. the fatigue is real. you're not lazy. so be kinder to yourself. be gentler with your bodymind.

[mylifeisafckingbodyhorror]

I finally had my first dermatologist appointment after going through 4 months of on and off flare ups. Right now I still have about 6 different spots oozing but they did manage to numb and drain the huge cyst under my right arm. Now that the numbing wore off it’s just super sore but I can move my arm a little bit better than I’ve been able to in the last month.

They put me on another antibiotic so this’ll be my fourth round in 5 months. I used to have a hard time with big pills but with how often I’m taking them now it’s getting way easier. Now that there’s finally some relief, I’m gonna make the trip to get some gauze and bandages that aren’t so tough on the wounds. My mom picked some up for me and week ago and they’ve been irritating my skin so much. The wound under my right arm opened up more and has been bleeding way more so I resorted back to toilet paper which is such a stupid hassle to clean up later 😔🔪

I think these past few months have been hard but it has lead me to getting more comfortable with just admitting that I’m sick. I’m being more vocal about when I can and can’t do something too which is hard because I’m so hard wired to be self reliant out of fear that I’m bothering anyone by asking for help.

[mylifeisafckingbodyhorror]

hidradenitis suppurativa keeps me humble

[mylifeisafckingbodyhorror]

Finally got a real diagnosis of HS. After years of stressing and wondering if it was HS or not & being skin tested several times with no results. I finally have the relief of knowing the truth. Even if it is a lifelong disease, its a lot better knowing & treating it than suffering in silence.

[mylifeisafckingbodyhorror]

[Text: This user is struggling with a Hidradenitis Suppurativa (HS) flare up.]

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[mylifeisafckingbodyhorror]

[Text: This user is not “dirty” or “unhygienic”. They have Hidradenitis Suppurativa (HS).]

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[mylifeisafckingbodyhorror]

[Text: This user is not contagious, they have Hidradenitis Suppurativa (HS).]

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[mylifeisafckingbodyhorror]

it’s cyst season y’all

[mylifeisafckingbodyhorror]

Being a female and having HS = constantly bleeding.

[mylifeisafckingbodyhorror]

HS feels like a curse.

[mylifeisafckingbodyhorror]

daily reminder to not romanticize mental illness or chronic pain 🥰 trust me, you don't actually want to experience either of those two! ✨