mentallych-ill

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sending love out tonight to everyone who is progressively losing their abilities, whether that's movement, ability to walk, eyesight, or hearing.

it's hard to come to terms with the fact that you can't do things that you used to be able to do. I'll be honest, it feels like you're losing control of your life. it can feel very isolating and hopeless. its scary and overwhelming, and it's so hard to deal with.

you are not less than just because you can do less. im proud of you for still being here, and i wish you ease with adjusting to new ways of life. please take care of yourself, i love you.

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i stress about stress before there’s even stress to stress about

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i love you friend, i wish i could still hear you slammin’ on that banjo from gay heaven

this is one one of my most favorite songs by my dykey sweet friend who died 2 weeks ago, I miss her so much. Rest in Power, Ianthe.

lyrics:

my dog's a better anarchist than me

i always tell him what to do and make him get out of the street

i aint nothin but his yellow vested protest peace police

i wish that i could just let him roam free

and my cat's a better anarchist than me

he always breaks my shit and riots when he wants some more to eat

ive always envied how he never cared what i could think

i just hope one day i could be that free

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“litany in which you are still here” by kiki nicole

(Forward Together)

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Just something I really want to share on here because it’s important.

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You know you're a spoonie when

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View this post on Instagram

A post shared by Revel Rosemary (@slut_soop) on Jun 26, 2020 at 6:50pm PDT

hey y’all please share widely, donate, and do what you can to support my friend ocean find housing and stability in trying times! Any black safe housing reccomendations or openings in and around the “portland” area are also appreciated <3

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me: pls talk to me pls !!pls pls!!!

me: *can’t hold a conversation*

me: *has nothing interesting to say*

me: *is bad at replying*

me: pls :) talkto me

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a small explanation from the corner of my sketchbook yesterday. Vulnerability!!! Am I right!!

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“You can’t prepare for a sudden impact. You can’t brace yourself. It just hits you, out of no where, and suddenly, the life you knew before, is over.”

— Meredith Grey, Grey’s Anatomy

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you think you want me to shut up? i have to listen to myself even when im not talking

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How to behave yourself when you’re around a wheelchair user because for some reason abled people don’t know how to act when they meet a disabled person 101

- Don’t touch their wheelchair without their explicit permission

- Don’t push their wheelchair without their explicit permission

- Don’t move their wheelchair without their explicit permission even if they’re not in their wheelchair at that time 

THIS MEANS

- Don’t lean on their chair

- Don’t put bags or jackets on the back of their chair because you don’t wanna carry your stuff 

- Don’t sit in their chair if they’re not in it

- Don’t mess with their brakes, push handles, straps, wheels, or any other part of their chair

Here’s why not messing with people’s wheelchairs is important: 

- Most wheelchair users consider their chairs to be a part of themselves. My chair is my legs. If you touch my wheelchair, whether I’m in it or not, you’re touching a part of me. You don’t touch someone without their consent. 

- Just pushing us somewhere without our permission is like picking up an ambulatory person, carrying them somewhere, and putting them wherever you want. 

- You don’t know what kind of medical issues they have. Messing with the wheelchair of someone with spasticity or neuropathic pain or other issues can worsen them. Even if it seems like nothing to you, it could be an issue for us. 

- If I’m out of my chair and you move it away from where I left it, I am stuck there until someone brings it back. 

- A lot of wheelchair users transfer without thinking about it much, so if I go to grab my chair to transfer and it’s not there because you’ve moved it, I will lose my balance and fall. We get used to our chairs being where we left them. 

- Many custom manual chairs are very tippy. That’s intentional, it makes them very maneuverable. But adding even a few extra pounds on the back of the chair can flip someone over. You could cause them to have a head injury. 

You could save wheelchair users a lot of trouble and pain if you respect our boundaries. Our boundaries aren’t very different from an able-bodied person’s, if you recognize that our wheelchairs are part of our bodies and should be respected as such. 

TL;DR- don’t touch my goddamn chair without asking.

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That moment you realize you forgot all your morning meds

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My issue with 90%+ of doctors is they seem to “forget” that someone doesn’t have to be in danger of dying in the next 2.5 minutes to save their life

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Me: I have a chronic illness

Person: I hope you recover soon

Me: Someone find me a dictionary STAT

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“It must be nice not having to work.”

Hey, hi, hello, “not having to work” and “not being able to work” are not the same thing.

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When I’m Nauseous From Not Eating, And Then I Eat And Get Nauseous Because Of Said Eating