disableddyke

[disableddyke]

Diabetes isnt the 'ate too many sweets disease'. It just fucking is not. It's your body slowly losing an integral function needed to nuture and energize it. Its your pancreas shutting down, its your blood cells rejecting your attempts to feed itself, its not enough insulin to go around. Its you slowly getting colder and weaker, gorging yourself with healthy food and getting next to no benefit, its being so exhausted you cant sleep. Diabetes used to kill, straight-up KILL. So no, I don't think I will be laughing at your diabetes joke.

[disableddyke]

*doctor voice* hmmmm…..have you tried this revolutionary method called painmaxxxing? it is where you do not bother me and adjust to being in agony all the time and we do nothing to resolve the root cause or treat the symptoms. you don’t wish to try painmaxxxing? you’re being non-compliant with the treatment plan I have just provided you?

[disableddyke]

In case anyone finds it helpful because mobility aids are horrifically expensive and inaccessible…

And for those people who have access to mobility devices but might benefit from a second chair they can abuse without risking expensive damage…

Erik Kondo has made a website, Open Source Innovations, that details plans for DIY wheelchairs. These wheelchairs can be made from common materials like wood, plastic, and pvc. They are lightweight and can be custom fit to the user allowing from the same degree of movement you would get from a custom chair. And they are durable and easily repairable. (he has been stress testing his latest design by dropping it down stairs, dropping it out of a car, launching it across a driveway, and throwing it off a deck). Its 12lbs and I think he said its was in the $200 ish range for parts.

He also is working on cheap, open source, accessible designs for beach chairs, off road chairs, motorized attachments (think smart drive), and so on. Plus he skateboards in his wheelchair. Cool dude, helpful info, pass it on.

[disableddyke]

Shout out to the autistic who’s abilities have regressed as they’ve gotten older.

“You didn’t used to be like this when you were a kid.” I know please don’t remind me

[disableddyke]

[disableddyke]

Well obviously I can’t have chronic fatigue, that’s a real problem for real disabled people that’s diagnosed by doctors probably. Clearly I just have some sort of perpetual exhaustion issue, that is also almost certainly my fault somehow

[disableddyke]

surely it's not just me who finds those fucking "be nice, I'm in charge of the pills" pins you sometimes see doctors and nurses wearing in pretty bad taste right? like the *point* is a stand against being mistreated by patients but like...yea you are in charge of the pills and can arbitrarily deny care to people, not really sure why that's something to gloat about? like the number of stories especially of black women being totally denied painkillers in hospital and stuff because the nurses were assholes it's like....maybe you can have your snarky pins when you're not in the position to medically torture someone? idk

like you get people rushing to defend it like "you don't know what it's like working in a hospital" but like...i do sure as hell know what it's like being mistreated by medical professionals. I'm not even getting paid to be here. it's kinda fucking evil when you think about it for more than a second.

[disableddyke]

We ask your questions anonymously so you don’t have to! Submissions are open on the 1st and 15th of the month.

[disableddyke]

"How am I supposed to tell the difference between an autistic child asking for clarification and a defiant child challenging my authority?"

You're not.

Wanting to be treated like an authority is inherently harmful to autistic people. And that's true no matter how many autism textbooks you read.

When you expect someone to obey you, you're naturally going to look for ways to interpret everything as disobedience.

And when you misinterpret something, no one is going to correct you. Your autistic child will not know how to explain things to you because their autism makes explaining things difficult, because they're a child who never had the chance to figure out how to do that, and because they'll be punished for arguing if they phrase something wrong. Other adults will most likely also be authoritarian and will agree with you. Other children will most likely be afraid they'll get in trouble too if they don't stay out of it. And when no one corrects you, you'll naturally use that as evidence that you're right.

[disableddyke]

Wishing all undiagnosed/partially diagnosed people a very doctors listening to you and providing you with more testing than a blood draw and even possibly providing treatment 2024

[disableddyke]

professors hate her! she’s disabled and wants accommodation

[disableddyke]

disabled people are worth whatever cost or resources is needed to keep them alive. disabled people are worth it even if they don't live long. they're worth it even if they will need extra support and resources for every day of their life. they're worth it even if they spend all they life indoors. none of it is wasted. none of it is in vain. time, effort, money, resources spent on a life are not wasted. these things have served their purpose. the joy of someone's existence is not undermined by not lasting forever. there's no meaningful point, some threshold where you can say "okay this is enough. after that it's not worth it." it's always worth it.

[disableddyke]

professors hate her! she’s disabled and wants accommodation

[disableddyke]

There's a difference between "disabled" and "legally recognized as disabled," and I just want to give a shout-out to all the other disabled people who don't have formal diagnoses, who don't have access to benefits of any kind, who don't have the ability to use even the shittiest and least-helpful resources, because the process of getting legal recognition for disability sucks ass.

And another shout-out to all the disabled people who purposely avoid getting diagnosed, because official diagnoses can be used against you, and you're unable or unwilling to risk it.

[disableddyke]

ID: a tweet by @/sicc_bitch that says,

patient: hello, i am in a lot of pain all the time.

doctor: hmm. are you just saying that to get attention?

patient: yes. medical attention

end ID.

[disableddyke]

any other chronically ill people constantly feel like they have the flu? ie nausea, chills, GI cramping and discomfort, headache, malaise, etc. i had an endoscopy and colonoscopy (+ biopsy) done a few years ago but results were inconclusive

[disableddyke]

doctors hate her! This woman is experiencing symptoms that might point to a health problem and wants doctors to do something about it