disableddyke

[disableddyke]

disabled people are worth whatever cost or resources is needed to keep them alive. disabled people are worth it even if they don't live long. they're worth it even if they will need extra support and resources for every day of their life. they're worth it even if they spend all they life indoors. none of it is wasted. none of it is in vain. time, effort, money, resources spent on a life are not wasted. these things have served their purpose. the joy of someone's existence is not undermined by not lasting forever. there's no meaningful point, some threshold where you can say "okay this is enough. after that it's not worth it." it's always worth it.

[disableddyke]

professors hate her! she’s disabled and wants accommodation

[disableddyke]

There's a difference between "disabled" and "legally recognized as disabled," and I just want to give a shout-out to all the other disabled people who don't have formal diagnoses, who don't have access to benefits of any kind, who don't have the ability to use even the shittiest and least-helpful resources, because the process of getting legal recognition for disability sucks ass.

And another shout-out to all the disabled people who purposely avoid getting diagnosed, because official diagnoses can be used against you, and you're unable or unwilling to risk it.

[disableddyke]

ID: a tweet by @/sicc_bitch that says,

patient: hello, i am in a lot of pain all the time.

doctor: hmm. are you just saying that to get attention?

patient: yes. medical attention

end ID.

[disableddyke]

any other chronically ill people constantly feel like they have the flu? ie nausea, chills, GI cramping and discomfort, headache, malaise, etc. i had an endoscopy and colonoscopy (+ biopsy) done a few years ago but results were inconclusive

[disableddyke]

doctors hate her! This woman is experiencing symptoms that might point to a health problem and wants doctors to do something about it

[disableddyke]

[disableddyke]

i’ve said it before but i’ll say it again, if your “accessible” bathroom requires going to a different floor to get to, it’s not accessible

[disableddyke]

just a kind reminder to please be kind to the people you know with gastrointestinal disorders/conditions! they're embarassing, often very painful - sometimes debilitating - and very hard to talk about without oversharing a lot more than most are comfortable with.

if someone you know:

- spends a lot/long time in the restroom

- has a colostomy bag

- requires diapers or similar implements

- experiences a lot of gas and/or bloating

- requires tube feeding or other alternative methods of nutrition

- has food restrictions (e.g. cannot handle a lot of spices, certain proteins, etc.)

- eats a lot, or only a little

or other similar factors of their life...

please be patient and understanding, it's hard having guts that really like disagreeing with you!

[disableddyke]

Being too disabled to work is not a “rich person thing.” People who are not allowed to have more than 2k in their bank accounts are not rich lazy upper class people lol. And if you try to argue that “well if you aren’t rich how do you expect to survive without working” I’d like to remind you that lots of disabled people who can’t work don’t actually survive.

[disableddyke]

*doctor voice* hmmmm…..have you tried this revolutionary method called painmaxxxing? it is where you do not bother me and adjust to being in agony all the time and we do nothing to resolve the root cause or treat the symptoms. you don’t wish to try painmaxxxing? you’re being non-compliant with the treatment plan I have just provided you?

[disableddyke]

able bodied people will freak out when they see an ambulatory mobility aid user not using their aids but won't question it when a hiker only uses a walking stick or trekking poles when they're hiking. they're the same thing.

[disableddyke]

maybe harsh take. but. shitting on people who can't care about selves. who live with parents. who rely on partners in 'basic' tasks. (yes even body care tasks). who got chores done for them. who don't work. is ableist. even if clarify 'this specific person isn't disabled.' it still perpetuates stigma. it still ableist.

say exactly what wrong. have they overstepped someone's boundaries? have they pressured someone into care? have they manipulated abused etc.? something else? point wrong behavior. n critique this behavior.

'they're 30 n live with parents' not bad behavior. 'their parent cut their nails' not bad behavior. 'they don't work' not bad behavior.

'but they're abled!' 1) you don't know for sure. can't know for sure. undiagnosed n invisible disabilities exist. not every undiagnosed individual able to take care of self. recognize undiagnosed n invisible disabilities existence not only when they look 'nice' for you. 2) it still contributes to stigma around needing care. disabled people often not seen as disabled. even if visibly disabled. every individual presumed abled because ableism. so disabled individuals will be shitted on because need care. because presumed abled.

to destigmatize needing care. have to destigmatize getting care. even if not see as 'reasonable' n 'justified.' can't destigmatize needing care if say 'getting care depending on others living with parents etc. is bad but disabled is exception.' because still stigmatize process of getting cared.

people don't need allowance n approval of society to get care.

(not say not call out bad behavior. ask call out bad behavior specifically. not stigmatized neutral things).

[disableddyke]

me, looking back on it all:

[disableddyke]

absence of a diagnosis does not guarantee the absence of an illness

[disableddyke]

life is not an episode of grey’s anatomy. doctors will hear about your rare disease/ disability and be like “idk what that is ok good luck bye”

[disableddyke]

symptom journal quilt by Nicole Jones Studio