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ME/CFS - Myalgic Encephalomyelitis/Chronic Fatigue SyndromeA very real disease with real sufferers. Here on this blog I’ll do my best to spread awareness so that the stigma around our illness can end.
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POV: you are physically disabled
#PSA please dont do this#i promise you any amount of effort you’re giving is enough#but this is how i made myself sicker#and it’s a hard habit to break but you are doing enough#disability#chronic illness
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#i think it’s so common because we are never taught how bodies really work#kids are always blamed for things in subtle ways#bad grades they must not care#sleeping in they must be lazy#instead of understanding the fundamental differences and effects our physiology has#so we are raised to believe any weakness is a behavior problem#that can be fixed if we just push through#it villifies our bodies and romanticizes self sacrifice#sorry for the rant i just have many thoughts about this#chronic illness#disability#chronic pain
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A reminder that no matter what anyone (and yes, that means anyone) says, you are not worthless because you are sick. You are just as important as anybody else, no matter your limitations. People who say otherwise can't see the forest for the trees, and are not worth the time/energy.
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#please#we are not having a fun vacation#i am not always miserable but dont be fooled#if i could choose to get healthier i 10000% would#chronic illness#chronic pain#disability
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#i will always reblog this#it’s important more people know that Graded Exercise is incredibly harmful#myalgic encephalomyelitis#me/cfs#disability#chronic pain#chronic illness
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breaking news disabled people aren't using their disabilities as an excuse because it turns out it isn't an excuse it's a state of fucking existence
and existence is everywhere all the time no matter what even if you wish it wasn't
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#me waiting for life changing surgery#we’re a year in now#with no sign of it coming anytime soon#love ittt /sarcasm#chronic illness#chronic pain#disability
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What a lot of abled people don't understand is that when you get more sick as someone who was already physically disabled/chronically ill, you don't get the sympathy, you don't get people sending you cards and coming to visit and help you with things. Everyone just kind of assumes that you can handle it, that it's not *really* anything new. Maybe people might acknowledge it for a week or two, but then to them it's just normal. You were already sick, so why would being a little more sick be disruptive to you, right?
#it’s just sad honestly#they expect you can take it so why are you so upset?#aren’t you sick all the time?#yes but I’d prefer to not get worse thanks#disability#me/cfs#chronic illness#chronic pain
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#please dont say this#even if you mean the best#it doesnt make people feel good about themselves#fibromyalgia#chronic illness#chronic pain#disability
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Being chronically ill is like
“It’s fine”
“It’s fine”
“It’s fine”
*complete mental breakdown because you can’t do this anymore*
“It’s fine”
#honestly#im good for a while and then suddenly BOOM#smacked upside the head with grief and sadness#i lose the ability to manage my emotions#me/cfs#fibromyalgia#chronic illness#disability
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#it really really is#you’ll just get hit with a hammer of pain#and then suddenly it’s gone#chronic illness#chronic pain#disability
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Please feel free to reblog to explain your answer! Results will be posted once the poll has ended.
*for specifics, this poll is for what medication you are currently taking
#doing this because im in disagreement with my gp#and i want to see the raw data from fellow fibro patients#polls#fibromyalgia#chronic illness#chronic pain#disability
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#great resource#hate costochrondritis#the fact it mimics a heart attack but can last for hours is just cruel#fibromyalgia#costochondritis#fibromyalgia awareness#chronic illness#chronic pain
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#the fact that me is compared to all these horrible illnesses#and i still get told ‘you’re just lazy have you tried exercising??’#what is happening in the medical system#invisible illnesses are only invisible to the outside world#but they’re all too real for us#myalgic encephalomyelitis#me/cfs#chronic illness#disability
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