ME/CFS - Myalgic Encephalomyelitis/Chronic Fatigue SyndromeA very real disease with real sufferers. Here on this blog I’ll do my best to spread awareness so that the stigma around our illness can end.
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Statistics
We looked inside some of the posts by chronically-persistent and here's what we found interesting.
Average Info
Notes Per Post
21K
Likes Per Post
14K
Reblog Per Post
7K
Reply Per Post
38
Time Between Posts
7 days ago
Number of Posts By Type
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17
Last Seen Tumblr Blogs
Fun Fact
The “We are the 99%” Tumblr blog became the slogan for the Occupy Wall Street movement.
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I hate being sick. That’s probably not surprising to most people but to some I’m sure my life looks idyllic. I don’t work 9/5, I don’t pay bills, I don’t cook for myself most of the time, I sleep 12 hours a night. Yet, they don’t see what goes on under my skin, feeling like a part of me is dying every day. When I’m too exhausted to move or even breathe, when I feel my muscles seize up and stop working. When I can barely eat and become paralyzed with pain.
Being chronically ill is being imprisoned in your own skin. Yearning for more and being chained to an intangible wall. I always try to spread positivity here but sometimes it’s hard to ignore the weight of our circumstances. This is a reminder that grief comes and goes in waves, and you should never be made to feel bad for feeling bad.
We’re going through it every day, and it isn’t always sunshine. But I’m glad you’re here.
#chronic illness#disability#me/cfs#chronic pain#fibromyalgia#feeling some kind of way today#i have periods of grief followed by blissful ignorance#this months been one of those griefs
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"Weary and Wary"
The "lessons to share regarding how you do what’s right for you regarding your illness" of one person with moderate ME
I also liked their previous blog post, "Riddles, Relationships and Alterations", describing the early period after being diagnosed where she lost touch with some people & people didn't realise how ill she was
The author is a published writer
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One way to know if you’re ableist:
You base someone’s worth on their productivity and what they can offer to capitalism.
#and this is a mentality that can be unlearned!#but you have to question everything we’ve been told#in youth and what continues being spewed around#disabled#chronic illness
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POV: you are physically disabled
#PSA please dont do this#i promise you any amount of effort you’re giving is enough#but this is how i made myself sicker#and it’s a hard habit to break but you are doing enough#disability#chronic illness
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#i think it’s so common because we are never taught how bodies really work#kids are always blamed for things in subtle ways#bad grades they must not care#sleeping in they must be lazy#instead of understanding the fundamental differences and effects our physiology has#so we are raised to believe any weakness is a behavior problem#that can be fixed if we just push through#it villifies our bodies and romanticizes self sacrifice#sorry for the rant i just have many thoughts about this#chronic illness#disability#chronic pain
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A reminder that no matter what anyone (and yes, that means anyone) says, you are not worthless because you are sick. You are just as important as anybody else, no matter your limitations. People who say otherwise can't see the forest for the trees, and are not worth the time/energy.
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#please#we are not having a fun vacation#i am not always miserable but dont be fooled#if i could choose to get healthier i 10000% would#chronic illness#chronic pain#disability
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#i will always reblog this#it’s important more people know that Graded Exercise is incredibly harmful#myalgic encephalomyelitis#me/cfs#disability#chronic pain#chronic illness
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breaking news disabled people aren't using their disabilities as an excuse because it turns out it isn't an excuse it's a state of fucking existence
and existence is everywhere all the time no matter what even if you wish it wasn't
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#me waiting for life changing surgery#we’re a year in now#with no sign of it coming anytime soon#love ittt /sarcasm#chronic illness#chronic pain#disability
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What a lot of abled people don't understand is that when you get more sick as someone who was already physically disabled/chronically ill, you don't get the sympathy, you don't get people sending you cards and coming to visit and help you with things. Everyone just kind of assumes that you can handle it, that it's not *really* anything new. Maybe people might acknowledge it for a week or two, but then to them it's just normal. You were already sick, so why would being a little more sick be disruptive to you, right?
#it’s just sad honestly#they expect you can take it so why are you so upset?#aren’t you sick all the time?#yes but I’d prefer to not get worse thanks#disability#me/cfs#chronic illness#chronic pain
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#please dont say this#even if you mean the best#it doesnt make people feel good about themselves#fibromyalgia#chronic illness#chronic pain#disability
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Being chronically ill is like
“It’s fine”
“It’s fine”
“It’s fine”
*complete mental breakdown because you can’t do this anymore*
“It’s fine”
#honestly#im good for a while and then suddenly BOOM#smacked upside the head with grief and sadness#i lose the ability to manage my emotions#me/cfs#fibromyalgia#chronic illness#disability
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#it really really is#you’ll just get hit with a hammer of pain#and then suddenly it’s gone#chronic illness#chronic pain#disability
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Please feel free to reblog to explain your answer! Results will be posted once the poll has ended.
*for specifics, this poll is for what medication you are currently taking
#doing this because im in disagreement with my gp#and i want to see the raw data from fellow fibro patients#polls#fibromyalgia#chronic illness#chronic pain#disability
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