chronically-j

[chronically-j]

just a little doodle I did! It’s not much but I wanted to do something before my migraine got too bad

[chronically-j]

hey guys if you wanna join an 18+ server for chronically ill/disabled people take a look at mine!

wandering into the trees...

˚꒦꒷🌱꒷．A Simple Forest~! (18+) ˚﹆

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Here in "A Simple Forest," we offer...

- Fun and active calls!

- Resources for Chronic Illnesses!

- A fun and understanding staff team, here to always listen and help you with your needs!

- opportunities to grow and meet others just like YOU! Yes, YOU, reading this~!

✩°𓏲⋆🌿. ⋆⸜ 🍵✮˚

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(my friend designed the ad!)

this isnt meant to be like those bigger servers with roles/channels for every illness and a huge focus on that, its more meant to be a place for anyone who is disabled/chronically ill to have a place filled with people who understand to an extent. i was tired of venting/talking about being sick around people who werent because i knew they didnt really understand and it sucked, and i knew when i talked about it too often they saw it as weird.

[chronically-j]

guys I’m scared the Reglan isn’t helping the way i hoped. I’m still super nauseous and eating still hurts but I’m eating a little more so that good at least

[chronically-j]

doesnt matter how bad my migraine is i can always watch svu (this is a lie however earplugs and sunglasses help so so much)

[chronically-j]

Just a little OOTD! It feels weird showing it in a picture lmao, just like it does when I post tiktoks, but I don’t want to hide it/never show it especially because I picked green because it’s my favorite color!

[chronically-j]

I’m trying to learn how to drive! Today I just wanted to get comfortable in my car because the idea of even getting my permit makes me really anxious, so I wanna start to get used to things! I’m also taking faux permit tests online to try to practice some!

My goal this year is to get my license and a job, so I’ve also been applying to local places! No luck so far but maybe that’ll change when I can drive!

I learn I cant fit my wheelchair in the front seat, it’s a bit too wide, but that alright! It still fits in the middle seats so it’s still accessible to me when I need it.

[chronically-j]

I went on another walk today!

I went this morning with my younger brother, it was super calming! I also went to the park today, but I really messed my hip up while I was there. I could barely lift it for awhile and it still hurts.

I think the Metoclopromide (idk how to spell it) is helping my food intake! I’m still not quite where I want to be at but it’s better than before!

[chronically-j]

thinking about how my EDS specialist looked at me at my first appointment and told me that if any one of my drs knew what eds was when i was growing up i wouldve been diagnosed bc my symptoms were so obvious. as i sit here with pain ive had since i was a young teen that could’ve been helped if id gotten treatment earlier instead of being told im “stressed”

[chronically-j]

i went on my first wheelchair walk outside yesterday! i went with my dad and brother, and it was amazing. i went so much further than if id just walked! my arms dont hurt, but my dad and brother had to push me occasionally bc the road is very un even and it makes it really hard to push in some areas

[chronically-j]

my dr put delayed gastric emptying in my chart and has started me on reglan (i think thats it) im asking about official testing but thats where im at rn. im hoping the medicine helps, he prescribed it in liquid form so i can tolerate it better since liquids are helping some. online says delayed gastric emptying is gastroparesis so j definitely wanna get an official test sooner rather than later but ive heard a lot of people say that the GES thing isnt super accurate, im hoping it is though idk, but i still obviously want to do it to figure things out

[chronically-j]

curly hair routines are not for the weak but thank gosh for a small bathroom bc i could lean on everything and sit down and it was so much better

[chronically-j]

i updated it

Introduction

Hi, I’m Jordan! I’m 22, nonbinary and I use any pronouns (i literally do not care what you use!), and I love baking, cooking, reading, writing, and many other things! I’m a huge taylor swift fan (like, huge, ask me about my collection if youre interested!). I love smosh and dropout and other channels too.

onto the medical stuff, since thats mainly what this blog is about.

last year i was diagnosed with POTS, EDS (subtype unknown but assuming hEDS due to symptoms until i can get genetic testing), suspected MCAS (my eds specialist suspects it and im on meds that are helping but im waiting on testing), and my dr is currently sending me for testing for MALS.

my biggest issues currently are my joint pain/instability and my GI issues. as of rn i am on a liquid only diet consisting of soup and nutritional shakes and some homemade smoothies. im vegetarian due to allergies and its chill but i do miss meat sometimes lol. im unfortunately losing weight a lot, which is both good and bad but im dealing with it and working with my dr to find a way to fix things.

i experience daily migraines and j have for quite awhile at this point, but im not medicated for them beyond tylenol yet bc medication scares me lol.

i use various mobility aides depending on what j need each day and i have a custom wheelchair arriving in just a few days!

i think thats it but who knows if ill remember something else later

[chronically-j]

i should probably update my pinned lol

[chronically-j]

just wanna eat my soup without nausea plssss like dont get me wrong! its better than when i was eating solids! but it still sucks that im getting nauseous and cramping !!

[chronically-j]

im realising that dude trying to call me a man (im afab lmao) has given me a surprising amount of gender euphoria so now ill be deciding for the next year if i wanna go back on T lmao rip

so funny when people try to be transphobic to me on tiktok bc like. baby im agender nonbinary you trying to”transvestigate” me is ONLY increasing my auphoria. you cant tell what i am? fuck yeah brother thanks for the compliment!

[chronically-j]

so funny when people try to be transphobic to me on tiktok bc like. baby im agender nonbinary you trying to”transvestigate” me is ONLY increasing my auphoria. you cant tell what i am? fuck yeah brother thanks for the compliment!

[chronically-j]

ate a ding ding and now my stomach hurts but it was so good, worth it