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Hey! I just saw your post in the hysterectomy tag and just wanted to reach out to you! If you need somebody to talk to or bounce ideas off of, feel free to message me!
I'm 31 and had my hysterectomy a little over a year and a half ago (a couple months before turning 30). I never wanted kids, and have wanted a hysterectomy since the shitshow with my periods started at age 11/12...so I totally sympathize with you. <3
My periods were abnormally heavy and extremely irregular from almost the start. I was still having extremely heavy periods on the placebo days on a birth control pill that's supposed to dwindle the flow of of your bleeding to very light during that week. I was able to have a reprieve for 5 or so years when my gynecologists said that I could just take the pill continuously...but then the pill just stopped working.
My heavy period started up again in the beginning of March of 2017 and it got worse and worse and at the end of the month I ended up in the ER severely anemic, needing blood transfusions and an emergency D&C and short hospital stay. Medicine-wise I was changed over to Depo, but the dose wasn't enough so it didn't do much for my uterine lining and another D&C two months later. I kept using the Depo for a year but the Depo made me crazier than I already am and the BC pill actually helped with my mental health issues and actually worked when I used it continuously (until it didn't). I was hoping that by not having used it for a year, maybe it would work again and my new gynecologists at this point agreed for me to take it again. It worked for about 6-ish months. I ended up in the ER again at the beginning of March 2019 after I started bleeding again a week and a half before. Two nights before I ended up there, the bleeding got so much worse and heavier then it ever had been. At the ER, I was bleeding so badly that the severe anemia I had looked more reminiscent of anemia you would see in trauma patients then somebody having their period! The nurses had never seen anything like it, but I had to wait until the next afternoon to have my surgery, another D&C. Turns out, though, the doctor had to come in early to perform the surgery early because I went unresponsive during the night and the rapid response team on the floor told him he better get his ass in gear and do the procedure. XD
After I made it out of the hospital that time, I told this gynecologist yet again that I wanted a hysterectomy, and he refused. I had to get an IUD and at that point after all the shit I had been through over the past two years I knew I had to find another doctor to help me get what I want. I knew there had to be somebody who was willing to help me - it's not normal for somebody to be bleeding to death twice and their doctor not even listen to what their patient wants. So I saved up a whole list of gynecologists near me, ready to go to a lot of different ones if I had to. Thankfully, the first doctor I chose was perfect. Once she heard all that I had been through, she totally understood and was willing to do the procedure. I had the surgery a month and a half after first meeting her!
Unsurprisingly, pathology showed that I had adenomyosis, which explains the long, heavy periods and huge clots.
One bit of advice, though: At our age, it's going to be very hard to find a doctor to take your ovaries out because an oopherectomy (removal of the ovaries) would put you right into menopause. Unless there was an actual medical problem with your ovaries, of course. (Honestly idk if the PCOS would count as that...that would definitely be something to talk with your doctor about!) With our ovaries still in, we'll still get a technical cycle, just not all the messy bleeding and uterine cramps and shit like that. I kept mine in, but everything else, uterus/cervix and fallopian tubes are all out - in medical terms a total hysterectomy with salpingectomy.
Sorry for the novel, but, again, I just wanted to reach out and be an ear if you need/want someone to talk to about this stuff. :) Feel free to message me on here or at my main @lizziethelizzard.
Seriously looking into a hysterectomy. have had multiple miscarriages, am 31, have a higher than average sex life and haven't been pregnant since 2015 so likelihood of me being infertile is extremely high. I have PCOS and Endometriosis, blod clots the size of baseballs every month, I'm damaging internal organs taking as many painkillers that I do trying to find relief, throw up, I'm bedridden for most of the week, bleed through an ultra tampon within an hour on my heaviest days, sometimes bleed and hurt in the middle of my cycle, and I'm fucking exhausted. I'm so sick of experiencing this every month and it's been like this since I was 12. I was just told it was normal. I was born prematurely and had a hernia when I was little and the scar is very close to where my uterus sits so I'm wondering if this was done to me medically or if my body is just designed this way. It does run in my family, but only my grandmother that I'm aware of, so who the fuck knows. No, this isn't fucking normal and I shouldn't have had to suffer over half of my life over it and I'm absolutely done with having a uterus that exists solely to debilitate me every month. sick of paying for tampons, ruining my clothing and bedding, being unable to enjoy sex with a hormonal imbalance causing me to go haywire but bleeding and cramping to the point of it being not very enjoyable, sick of being asked when or if I'm having kids because I can't and don't want them anyways because I have severe mental illnesses and my uterus malfunctions so I'm fucking done with it as a whole. And no, fuck birth control, fuck tubal ligation, fuck a partial hysterectomy, fuck medications, I mean I am absolutely through with having a uterus and ovaries.
Get the fuck out of me.
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