Today my therapist introduced me to a concept surrounding disability that she called "hLep".
Which is when you - in this case, you are a disabled person - ask someone for help ("I can't drink almond milk so can you get me some whole milk?", or "Please call Donna and ask her to pick up the car for me."), and they say yes, and then they do something that is not what you asked for but is what they think you should have asked for ("I know you said you wanted whole, but I got you skim milk because it's better for you!", "I didn't want to ruin Donna's day by asking her that, so I spent your money on an expensive towing service!") And then if you get annoyed at them for ignoring what you actually asked for - and often it has already happened repeatedly - they get angry because they "were just helping you! You should be grateful!!"
And my therapist pointed out that this is not "help", it's "hLep".
Sure, it looks like help; it kind of sounds like help too; and if it was adjusted just a little bit, it could be help. But it's not help. It's hLep.
At its best, it is patronizing and makes a person feel unvalued and un-listened-to. Always, it reinforces the false idea that disabled people can't be trusted with our own care. And at its worst, it results in disabled people losing our freedom and control over our lives, and also being unable to actually access what we need to survive.
So please, when a disabled person asks you for help on something, don't be a hLeper, be a helper! In other words: they know better than you what they need, and the best way you can honor the trust they've put in you is to believe that!
Also, I want to be very clear that the "getting angry at a disabled person's attempts to point out harmful behavior" part of this makes the whole thing WAY worse. Like it'd be one thing if my roommate bought me some passive-aggressive skim milk, but then they heard what I had to say, and they apologized and did better in the future - our relationship could bounce back from that. But it is very much another thing to have a crying shouting match with someone who is furious at you for saying something they did was ableist. Like, Christ, Jessica, remind me to never ask for your support ever again! You make me feel like if I asked you to call 911, you'd order a pizza because you know I'll feel better once I eat something!!
Edit: crediting my therapist by name with her permission - this term was coined by Nahime Aguirre Mtanous!
Edit again: I made an optional follow-up to this post after seeing the responses. Might help somebody. CW for me frankly talking about how dangerous hLep really is.
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Have you ever vomited so hard you not only wrecked your throat but dislocated your collarbone?
How about a migraine so bad it triggers your mast cells into a pre-anaphylactic reaction and you start breaking out in hives all over your body?
Yeah. Me neither until 4 o’clock this morning.
New level of hell unlocked.
And the migraine is still ongoing. I’m just no longer blind and dry-heaving.
I hate this.
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he says i hate everyone except you and that is addictive and that is kind of romantic and beautiful because you're young and you're kind of a sarcastic asshole too and you don't like bad boys, per say, but you don't really like good ones either. and you like that you were the exception, it felt like winning.
except life is not a romance book, and he was kind of being honest. he doesn't learn to be nice to your friends. he only tolerates your family. you have to beg him to come with you to birthday parties, he complains the whole time. you want to go on a date but - people are often there, wherever you're going. he's just so angry. about everything, is the thing. in the romance book, doesn't he eventually soften? can't you teach him, through your own sense of whimsy and comfort?
at first - you know introverts often need smaller friend groups, and honestly, you're fine staying at home too. you like the small, tidy life you occupy. you're not going to punish him for his personality type.
except: he really does hate everyone but you. which means he doesn't get along with his therapist. which means he has no one to talk to except for you. which means you take care of him constantly, since he otherwise has no one. which means you sometimes have to apologize for him. which means he keeps you home from seeing your friends because he hates them. you're the single exception.
about a decade from this experience, you'll type into google: how to know if a relationship is codependent.
he wraps an arm around you. i hate everyone except you. these days, you're learning what he's actually confessing is i have very little practice being kind.
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idk. i have very little words and way too many emotions. my heart is absolutely broken for Daniel, he deserved none of this treatment.
he was the one who encouraged me to draw, and to keep going. he will forever be an inspiration, to me, to so many.
i hope this isn’t the end, but if it is, it won’t be without a fight
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i need help with vet bills (again).
hi. for those of you who remember, earlier this year i asked for donations to help me afford toos' vet bills, who we found out through your help had kidney failure, and again with your help we got her on medication for it. unfortunately it wasn't enough, and we lost her. and then shortly after, dexter began deteriorating, which we put down to his grief of losing toos - she kept him young, he followed her everywhere, he only played because of her, he only ate when she ate, etc. without her he just stopped. and then he started to have seizures and fits daily. we got him blood tests, but he was suffering so badly. we made the decision to put him down. i didn't ask for donations this time, because i was so deeply embarrassed to ask for help again. but we are still recovering financially from that, as well as the parts of toos bills that didn't get covered from donations. my mother hasn't worked for a very long time, she's disabled and very sick, and she receives PIP from the government that only covers her monthly medications that are not covered by the NHS. my father retired early to become her full time carer, and we are living off his pension. i am too disabled to work, but because my mother already receives PIP and i live with them, the government are resistent to giving me any help - so i have zero income, and rely entirely on my parents.
this is jenny. she's a 14 year old cairn terrier, who loves when we garden because she wants to help dig holes. she helped us bury dexter and toos, digging their graves for them with my dads help. she's an angel, and loves people so much she likes to escape under the fence and join other families for awhile. one time she got into someones back garden and asked to come in as they were eating lunch. she really hates flies, and will try to bite them out of the air (she has never succeeded but i believe she will one day). she will rub her face against you until you start stroking her, and will growl and even bark if you stop! we don't have the money to take jenny to the vets, for a checkup or for anything they may want to do. this has been an ongoing issue, but toos and dexter took priority, and it hasn't been a bother to her. she existed as normal for a long time, but that's since changed.
jenny has this lump in her mouth, it is larger than the picture shows, but she is a nightmare to force open her mouth since this got so big, i think it's uncomfortable or painful for her. she can't properly close her lips now, and it has pushed all her front teeth away, misshaping her mouth, and sometimes it bleeds profusely. eating has become difficult for her, she can't eat anything hard, and currently will only eat soft human foods like rice, scrambled egg chopped up so small she doesn't have to chew, and things like soups and gravy. she's lost a lot of weight, and i'm getting frightened. to add onto it, i've found lumps like this across her body. i've done as much research as i can, and i believe it to be an oral tumor, it fits, and it looks right, and it spreading across her body is called 'full staging'. and going by all i've read - they will want to remove them in surgery. according to my research, this will cost anywhere from £585 - £4,740 for just the lump in her mouth. that's not including any checkup/test costs, or the other lumps on her body.
she hasn't been to the vet yet, i don't have any secure goal or bills to share, just my assumptions and beliefs from researching myself online. my parents refuse to take her because we can't afford it. i want to save up money, have it in my bank, and show them that we can help her now, before it gets worse, or it's too late. as i said before, i don't have any income, so the only way i can do this is with help.
here's a link to my paypal.me
the icon is a little mouse, and the @ is rivellon
i struggled so badly posting the first post like this for toos. i felt so guilty and embarrassed and ashamed. but i have no choice again, i want to help jenny. i don't want her to suffer. and selfishly, i can't handle losing another dog so soon. this year has been waking nightmare, and i need your help to stop it getting even worse.
please reblog and share, even if you can't donate.
thank you for reading.
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