#the one that seems to fit my symptoms most word-wise doesn't seem to visually (unless there's dysmorphia kicking me in the head abt bodily
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bruh I know it's a severely understudied group of disorders but I really wish the language for differentiating between the types of eds was clearer
#blah blah there's no reason to explore the complexities of presentations when there's genetic testing to find out what kind it is#well hEDS doesn't (yet) have an associated gene and lots of us can't afford the testing#so I'm stuck guessing#the one that seems to fit my symptoms most word-wise doesn't seem to visually (unless there's dysmorphia kicking me in the head abt bodily#perceptions)#idk like. I don't have scoliosis or kyphosis but I do have small stature and the limb-to-torso proportions#for spondylodysplastic but idk abt much of the facial stuff & how much of thee childhood symptoms were ignored & pushed through#exercise-wise bc of My Mom Being Like That#like how much did my body change from how it would normally have developed bc I was forced 2 do strengthening & stabilization @ an early age#that someone who was listening to their body. would not have Pushed Through#like. I'll probably never figure it out so I oscillate wildly between 'yea it's probably the more severe form bc of these mf dislocations'#and 'well I probably don't even have hEDS' (which is by and large the most mild form)
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