#the autism is winning. the asthma is winning. the allergies are winning. the hypermobility is winning. apparently its not just funny that
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Every moment that ggf doesnt blow up is a blessing I think. Like I'm like damn I wish for some virality! And less than a second later im like no that would be a terrible idea. This might sound like that fox who want the grapes but bc its outta reach he says its green but do remember my accounts are very hackable and I gptta do smth about that before the internet gets its grippers on me
#my passwords are dumb#i still use my first ever email#and like. the more I think about it the less i care about popularity. im not even on socmed#the only reason why i want virality is bc i want money. i wanna be rich. i want to move out and spend money on so fucking much therapy#i like going to the dentist#ill get all my weird symptoms checked out at the doctors#i want money. i want money!!!!!! i wanna buy houses for my besties#got distracted. anyway it sounds great but virality doesnt always equal to money thats the problem hence im like. ehhh.. nah#like. ill be happy to be viral in 5 years when my shits more together but rn im a weak frail shrimp im like a small victorian boy#ive been eating orzo in veggie broth#the internet will instantly kill me#im still gonna get my symptoms checked out at the doctors mind you. i am rich co#my parents are. and theyre in their guilty 50s stage where they look at me sadly and say shit like 'i dont remember that' when i tell them#they neglected me#so ill still get to go to my doctors. its just a matter of gettin there. but i reaaaaaally hate going out#growing up is learnin tjat no money or fame can fix u#the autism is winning. the asthma is winning. the allergies are winning. the hypermobility is winning. apparently its not just funny that#i cant hold up frying pans and choppin stuff hurts my wrist. its a runnin joke that im super weak but now im like. is this normal#my feet hurt all the time. is that normal. i get a desperate need to lie down after i do anything. 'i love being horizontal'#thats my irl catchphrase. and like. my nose are always clogged. i only recently started visiting the dentist bc they booked me in for#regular visits after comin to them to look at my wisdom tooth. and they say they can tell im a mouthbreather from my teeth#and im like girl what. i didnt know theres consequences to breathing through my mouth. and ive been thinking about the fact that im#congested 95% of the time and im like. maybeeeeee... thats not normal....... its been liek this for most of my life jsyk. is that why my#ears pop and ring all the time. apparently sinus problems can lead to ear problems. like i can sorta tell bc my nose gets completely blocked#and i gotta 'stretch' my jaw to relief the pressure on my ears every once in a while. but i thought that was just normal#i joke that im allergic to joy bc my asthma flares up when i laugh. which is kinda funny#i kinda have warmed up to like. the idea. of me bein disabled. bc im autistic and im regressing as i relearn how to actually do stuff in#a sustainable way. but man. i didnt consider my many bodily failures to be a part of it. but like with becoming more intuned with my body#and my fatigue..... its like yeah. not being able to breath is kinda tiring. i dont sleep very well either. maybe thats why i sleep so much#this is also why i shouldnt ever be known i talk too much
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Hi everyone. I'm going by KT at the moment so that's what we'll call me.
I'm 26 years of age and from North East England and I started this page because I feel people got sick of me constantly moaning on my personal facebook :')
I have 1. HSD, 2. Fibro, 3. Asthma, 4. IBSD, 5. Overactive Bladder, 6. BPD, 7. DID, 8. Anxiety, 9. Dysthymia, 10. Autism Spectrum Disorder, 11. allergies to lots of things (mcas???), 12. Trichotillomania/Dermatillomania, 13. Plantar Fasciitis and 14. Costochodritis.
All of my conditions vary, a LOT, day to day. One day I'm fine and I go out with just my stick, the next day I could be sleeping for 19 hours and reliant on my wheelchair.
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To find out about my conditions, please read the below descriptions (in basic terms!):
1. HSD/JHS (Joint Hypermobility Syndrome) means my collagen is a bit faulty and all my joints are a bit more bendy than they should be. I'm more at risk of dislocations and subluxations due to this, it also means my joints are weak so I wear a lot of supports because without them I sprain really easily.
2. Fibromyalgia: This is effectively pain in all my fibrous tissue (muscles etc). Basically, my brain has gone a bit funny and now sends off pain signals all over the place telling me I'm in pain all the time when I shouldn't be. It can be related to trauma (god knows I've had that in my teenage years) or can come on suddenly after an accident or injury. It also makes me tired, confused, affects my sleep, makes my IBS worse, affects my bladder and gives me migraines. It means I'm really sensitive to stimuli too like loud noises, temperatures and sensations.
3. Asthma: It ain't easy been' wheezy!
4. IBS: MY body hates food basically. No matter what I eat I always end up with a stomach upset. Could be indigestion, heartburn, reflux, diahorrea or constipation. Because of my hyper mobility, I'm at risk of a compacted bowel too. YAY.
5. OB: I need to pee. ALL. THE. TIME.
6. BPD: I prefer the term EUPD (Emotionally Unstable Personality Disorder). This means I have mood swings ALL DAY ERRYDAY and I also get psychosis symptoms such as paranoia and delusions. I also get auditory hallucinations. Scary shit! I have bad coping mechanisms, I'm angry a lot of the time, I feel empty and lost and I fear being abandoned so I push them away. Why? BPD logic!
7. DID: This is my newest diagnosis. I'm a bit confused by it. It used to be called Multiple Personality Disorder, but it's been renamed. I pretty much just stop being me. It's weird when it happens, like if there was a control panel in my head with a tiny me sitting at it, it's like she leaves to go to the toilet or something and I'm functioning but I'm not myself. Dissociation is my coping technique but according to the crisis team, I now need a coping mechanism for my coping mechanism hahaha.
8. Anxiety is awful. I have Emetophobia as part of it and it rules my life. When I'm anxious, my Trich is worse too. I have panic attacks and sometimes can't be alone.
9. Dysthymia is persistent low mood without the symptoms of Major Depressive Disorder. So aye, I'm a Negative Nancy.
10. Autism: Well, this is also new. I don't really know how to explain this because it is who I am. Things I do can and have been diagnosed and it's weird to me. I have trouble understanding others, I need complete instructions, I'm obsessed/fixated on certain things/interests, I'm not good at reading facial expressions,i get distracted and scared in large groups etc. I'm impulsive... Yeah. It's basically all of who I am.
11. I'm allergic to lots of things. Hayfever, animals, dust, flowers, tomatoes, etc.
12. Trichotillomania/Dermatillomania means I constantly subconsciously pull out my hair or pick my skin until it scabs or bleeds. I don't realise I'm doing it unless someone points it out to me. To keep this at bay, I have no eyebrows or hair on my head but now I have no eyelashes anymore. You win some, you lose some.
13. Plantar Fasciitis is a pain in the bottom of my heel. Sort of like I've stepped on a plug or a drawing pin but it Neve goes away. I have it in both feet so standing for a while is a no no to me, as is walking around barefoot.
AND FINALLY
14. Costochondritis is an inflammation of the cartilage and ligaments and stuff in your ribs. It affects me on my left side and on my breastbone. A lot of people with it feel like they're having a heart attack which is totally understandable. I get it mostly if I sit hunched for too long.
GRAT/S IF YOU READ ALL OF THAT.
#fibromyalgia#hypermobility#ehlers danlos syndrome#ehlers danlos type 3#asthma#ibs#ibd#ob#costochondritis#plantar fasciitis#trichotillomania#dermatillomania#bald girl#chronic illness#chronic pain#hsd#heds#jhs#bpd#did#ambulatory wheelchair user
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