#thanks to my neurosurgery I can empty the dishwasher now | Explore Tumblr posts and blogs

bbcphile · 1 year ago

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Wow, the US medical system really doesn’t want me conscious or functional.

Brought to you by my sleep doctor’s still not having sent in the prescription for my narcolepsy meds even though my appointment was 12 days ago, and I’ve now been unmedicated for over a month, and am back to spending most of my time asleep, or if I’m very lucky, and suffer for it the next day, I can write meta or outline fics that I someday hope to write, but not actually write the fics themselves because I am too exhausted.

Brought to you also by my health insurance and the coupon program that makes my migraine meds affordable, since they are trying to force me to stop using the only medication that works on me.

Being disabled is exhausting and infuriating and a thankless, mandatory full-time job, and I hate it.

*screams loudly into the void *

#about me #disability #medical stuff #narcolepsy #I am so mad #8 years ago I was giving a fucking keynote talk at an academic conference #and now it’s a good day if I can go to PT and empty the dishwasher #yes this is still better than things were nine months ago #thanks to my neurosurgery I can empty the dishwasher now #and outline fic which is more than I could do for much of the previous 3 years #but for the fucking love of God this is ridiculous #I’m already being let down by my body every single day #it would be really great if the entire medical system didn’t perpetually fail me too #I want to drop kick the universe into the sun

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