#thank you for asking this giant list is also me using this momentum to brainstorm an outline

[bellshazes]

@nydescynt replied to your post “Ive known this for a while but after an 11 hour in...”:

Is the topic/function to provide a guide to actual existing systems of care, a more theoretical/skills oriented guide for generally receiving/providing help regardless of system, or.. a third topic I'm not thinking of? That sounds. Really helpful, but also an insane amount of work

​it would be somewhat modeled after my art made easy series - a series of ???? posts ????? or whatever medium with the intent of enabling anyone who comes across it to begin to identify components of the system of care, social determinants of health etc. in their own communities. in order to do this, I'd need broad and specific expertise across all core areas, which off the top of my head are:

education, k-12 and university/technical/secondary systems - emphasis on educational rights of students and families

judicial systems - juvenile and adult, courts, judges, bar associations, etc.

residential treatment centers - psychiatric, group home, foster, physical health inpatient, nursing homes, specialty placements (e.g. ED treatment centers, which there are few of in the US lmao)

non-residential mental health institutions - outpatient treatment centers,

medicare, medicaid, and commercial health insurance - benefits, how to know what to get, how you qualify, age restrictions, VABs, case management, inquiry coordinators, incentive programs, what is HEDIS/NCQA/quality metrics

actually quality improvement, PIPs, and other metrics should get their own thing but that's like 201

evidence based and best practice modalities AND their limitations in the context of systems-level thinking

advocacy - both self-advocacy programs, independent living, historical context AND collective advocacy organizations, how to evaluate nonprofits and for-profit community organizations, common types of orgs, how to locate them, national-level resources with state chapters (e.g. Kids Count, CASA, so on)

critical pedagogy and dialectical approaches to collaboration, emphasis on co-learning and sustainable ground-up coalition building

policymaking and lobbying

specific conditions from the perspective of SDOH/health equity - not primers on NAS/SEI or SUD or autism or whatever but how to know your blind spots and what blind spots are critical in different contexts

child welfare entities including state departments, especially the difference between CPS and what in my state we call DCBS (who actually administer placements, foster caregivers, adoption)

types of family placements

the fact that 64% of removals in the US (>130k) as of 2020 were due to neglect, the most preventable of conditions; the need to eliminate statutes that allow removal of children from families due to poverty or homelessness in every single state or at the federal level

medical provider payment structures that can incentivize whole-person quality of care and why that's so fucking hard to make happen especially within medicaid

there's like twelve more but that's the freshest ones. and that's more for me to know better than i currently do; the framing would likely start very simply around something like:

How to consciously identify system of care and SDOH components in your own life

How to identify causes or areas in your own community you care most about

How to find and join up with existing efforts in the causes near and dear to you

Follow up on how to live collective action if directly working with existing orgs isn't an option - example, what people in your life are doing good work and how can you support them?

Highlighting very small-team, high-impact groups like Beargrass Thunder's alley gallery projects here in Louisville that take (in the grand scale of things) very little to do transformative work

Language primers

That alone is a tall order, but I think I could do it. And crucially I (feel like I ethically and professionally) need to know everything about every state, but not necessarily all at once. It will be the work of a lifetime, but I don't know that I can not do it, you know?