#sorry this ask took forever for me to answer btw huhu...im always ded these days orz
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actualbird · 2 years ago
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woop i guess here i go− does it ever bother u how they don't really ever quite explain what's going on with luke's illness other than "aAAAH he'S sUDDENLY in PAIN!!1!1!" and some sort of nerve damage and what not... not that it doesn't make it any less sadder... BUT!!! sometime ago i looked up the symptoms of nerve damage and apparently it says stuffs like sharp pains (which we see happen often to luke through out) BUT ALSO numbness, tingling, loss of muscle strength, and suddenly dropping stuff??? so i'm just wondering if you have any headcanons on luke's illness? DO YOU THINK HE'S JUST IN CONSTANT STINGING PAIN, AND HIS PAIN KILLERS ARE SO STRONG IT JUST NUMBS HIS WHOLE BODY??? OR DO YOU THINK HE ALTERNATES BETWEEN FEELING NUMB AND SUDDEN SHARP PAINS??? this has been my personal hc ever since jfjsjd i'm sorry you could see i'm a luke stan cause all luke stans are angst enjoyers /hj i just wanted to share my brain rot to the world thank you
hi anon!!! first off, i deffo wanna say uve come to the right place both abt luke hcs (because im a luke enjoyer first, a human being second) AND thoughts about his illness
tho i wouldnt say im bothered by how they dont explain the symptoms of his illness much since narratively, i can see how this would be necessary to maintain a certain amount of suspense on the NXX drug
however, ur so right in bringing up those other symptoms, bc ive got a bunch of thoughts and feelings about this!!
for context, i also have a longtime undiagnosed-after-years-of-tests neurological condition, but it's not serious and more just a lifetime inconvenience. i experience muscle myoclonus, which means that at any time without warning, my legs, arms, or neck can suddenly jerk into movement and ive actually got a bunch of those symptoms u mention haha!
but enough about that! lemme go thruuuuu
some of my thoughts/hcs on luke's illness
wc: 1.7k
before i start, this is whole thing is going to be mixing fiction (tot's story) and fact (IRL information on certain illnesses, medications, etc). the fiction bit is important because while tot describes luke's condition and shows us its effects, does Not name what it is, and the whole thing is still shrouded in a lot of mystery. but the fact bit is important because there are real conditions out there that are similar to what luke has, based on what we know.
among them, Fibromyalgia seems like the closest real world condition to what luke has got, but since it's not outright stated in canon, i'll be making some stuff up. still, it's important to me to have like, a somewhat sensible system in making stuff up, which is why im laying down all this ground work jhvjdhsfd, and because in the hc portion of this post i'll be riffing off of some of my own experience
anyhoo, let's REALLY start with what we already Know
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what we know of luke's illness thus far from all the available story information from the global server
key words in that above title are "global server", because im aware that main story episode 9 in the cn server looks like it'll give us more info on this, but i dont like to or want to spoil myself for tot's future main story. so i'll be working within global server parameters!
so heres everything we know (...or rather, what i was able to remember in the course of me writing this response HAHA), as its been outright said and confirmed in canon:
luke's condition is currently diagnosed as terminal
luke's condition mostly manifests in sudden pain episodes that happen randomly and without warning. these pain episodes are not described to be coming from any specific body part, just that it's pain in general.
these pain episodes happen without any external trigger (i.e. luke doesnt have a pain episode when somebody bumps into him suddenly, but he can have a pain episode out of nowhere just doing something as passive as sitting or standing)
immediately after a pain episode, he takes his meds
these meds are analgesics (painkillers) and he was prescribed them by his previous doctor (the one who was handling luke and his condition before aaron)
even now that aaron has taken over as luke's primary physician, luke still takes painkillers immediately after any pain episode to manage the pain
luke's condition was caused by the NXX drug. after a mission where his team was attacked with toxic gas, he was the only survivor and the medicine he was given was somehow contaminated with the NXX substance
the NXX drug causes damage to the central nervous system, and luke's condition is confirmed to be related to his nervous system because in SSR Under The Milky Way, he describes his condition very specifically with the lines "[The contaminant] caused irreversible damage to my nervous system." and "[I] will constantly suffer from intermittent nerve pain."
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hcs on The Experience Of The Condition
the main physical symptom we see in canon is pretty clear: sudden and randomly occurring debilitating pain. i like to think it's of the stinging variety!! but dialed up to 10000000 because it's always shown to be intense enough that always luke reacts to the pain. and luke's pain tolerance is High. in personal story 4, he didnt even flinch when mc was stitching up his gash, but he did double over in pain, trembling and shaking, when he got hit with one of the pain episodes.
in addition to the pain though, i totally second the motion on the symptoms of numbness, tingling, loss of muscle strength (which then leads him to train more to compensate for any loss, because luke is a madman with low self worth and one of his skills is his physical strength so he needs to keep that up for as long as he can), and suddenly dropping stuff, the ones you mention. a
those are my thoughts on possible physical symptoms. but with a condition as heavy as this, there will be psychological/emotional ramifications too
because of how tot's canon shows luke experiencing the Pain Symptom, the pain itself is put front and center. but personally i also think that the fact this symptom occurs Randomly, Suddenly, and Without Warning is on the same level of "oh god why this" as the pain
in general, not being able to know when your body is going to start working against you really really sucks! you cant prevent it, you cant avoid it, and you cant see it coming. sure you Can prepare for its random eventuality through out the day, which is what luke does by carrying around his painkillers everywhere with him, but even then, that only alleviates the specific instance currently happening and not the overall trend of It'll Happen Again! When? Secret....
it's hugely frustrating. in my case with involuntary movement, eventually i tried to constantly and impossibly try to expect it so that when it does happen, i dont knock over glass to the floor or fall down the stairs
but always trying to expect something you cant predict causes tension and anxiety.
luke's condition is much more severe and painful than my quirk. so keeping a mental background program, so to speak, always running and looking out for a pain episode of his condition must suck bigtime.
because he'll basically always be bracing himself for pain, even when nothing is happening.
and on a metaphorical level, being constantly braced for pain even when things are fine is something luke does A Lot. luke is always worried and preparing for worst case scenarios, luke is always trying to think ahead to have various backup plans to ensure people's safety, and luke seems more used to pain and bad things than he is prepared for happiness and good things.
bracing himself for pain gives luke a semblance of control over something that is terrifyingly out of his control completely. at least if hes always thinking about its inevitability, he'll have things that can help mediate its effects. but the price for that control is a constant tension and dread building inside of him every second, because hes always waiting for the other shoe to drop
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my ideal hope for luke's story when a kind of treatment for his condition is found
i dont actually want for the condition to be completely cured. like, dont get me wrong, i obviously want the Terminal aspect of his condition treated because i love him and want him to live a long and happy life, but i dont want all of his symptoms gone. personally, i'd find it much more compelling narratively if his condition is treated and will no longer kill him in a few years, but still causes him pain that needs to be managed with meds and other treatments. and why i want this is because:
1 ) given the sheer struggle of his condition in the story thus far AND the fact that luke himself literally said the damage done to his nervous system is Irreversible, having a medical miracle like that happen feels a teensy bit like a deus ex machina to me. (sidenote: ofc, ur free to disagree with me! and feel free to disagree with this whole post in general, we've all got different opinions and thats chill)
2 ) in general with stories, i am less drawn to super neat resolutions and im more drawn to resolutions that are more like "and things werent perfect and they never will be, there will always be problems, but our characters will be okay and theyll keep getting better and better, and it's in this push and pull of struggle and learning and progress and getting through where their happiness lies"
ever since luke was a kid, even before he developed his condition, hes had the fear of being a burden to his loved ones. and when he does get his terminal condition, this fear is worsened and he starts to see his existence in other people's lives as a whole as a burden of pain and grief that isnt worth the trouble. and...i dunno, i just like the idea of him continuing to live but also continuing to have these problems that still spark fear inside of him and still take so much work to manage every day. and out of habit, he braces himself for pain, not just for the kind his condition gives him but from Life because Surely, His Loved Ones Will Get Tired Of All Of This, Of Him and The Problems He Comes With, Right?
but surprise surprise, they dont. because they care about him. because this should not and is not a dealbreaker for them continuing to care about him.
aaron creates treatment thats more on the preventative maintenance meds angle so luke doesnt have to just wait for a pain episode to pop up and then dry swallow painkillers every time. it's not infallible , but sometimes luke can have hours, even a whole a day sometimes where the pain hes bracing himself for doesnt come.
mc always reminds luke to take his meds whenever luke gets too busy or caught up in a case. he worries at first that it's an inconvenience to her for her to have to remember his routines for him just in case, but that worry becomes quieter as luke realizes she reminds him in the same tone as she says "good morning" or "have you had lunch yet? wanna join me?", just this casual and loving thing thats now integrated into both their lives
the team are always ready to help too in their own way. when luke gets a pain episode in hq, marius offers distraction in the form of idle chatter on (harmless) internal pax gossip while luke waits for his painkillers to dull down the stinging. when luke feels uncomfortable tingling crawling across his whole body while out with vyn, vyn subtly helps luke move from a crowded area to a quieter one where outside stimuli cant further overwhelm luke's senses. when it's a bad grip strength day and all luke wants to do is punch something and fuck his useless hands up even more, artem tells luke about custom silicone grips that exist for things like pens or knives or such and that they could look for some next time they go shopping.
it is not perfect. but luke's life, even with the pain, is still worth living. everybody is trying to help and eventually, luke learns how to start helping him self along with them too.
soooo yea theres my thoughts!! thanks for the ask, anon :D
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