#shinelikeshanann

[sarahhuntthrives]

Even after she passed, her team kept sharing the Thrive Experience. She hit 200K on New Year’s Eve! Her family continues to benefit from her dream, her passion, and her desire to change lives even after her death! #shinelikeshanann #letyourweirdlittlelightshinebig #dreams #legacy #health #wellness #financialfreedom #believebigger #hustleforjoy #bittersweet #2019istheyearofus #thrivewithdawayneandsarahin2019 #T22B #livelovethelvthrivelife https://www.instagram.com/p/BsIeFgkFOKa/?utm_source=ig_tumblr_share&igshid=px327hc5x3xp

[stacyspoonley]

My Sjögrens causes my nosebleeds even AFTER I've had to #cauterize both side's #veins #raredisease #zebrastrong #nonbinary #intactivist ready to raise #piawareness and sporting my usual #zebrafashion #IVIG #hypogammaglobulinemia #hyperIgE #anaphylaxis #PIAWARENESS #PRIMARYIMMUNODEFICIENCY #systemicmastocytosis #EHLERSDANLOS #gastroparesis #ShineLikeShanann #sjögrens #SLE #Dysautonomia #wearejaquiestrong #myedschallenge https://www.instagram.com/p/Bw98_6dgC2d/?igshid=89roaqij9g4c

[stacyspoonley]

#ehlersdanlos #wpiaw #raredisease #zebrastrong #zebrafashion #IVIG #hypogammaglobulinemia #hyperIgE #anaphylaxis #immunodeficiency #PIAWARENESS #PRIMARYIMMUNODEFICIENCY #systemicmastocytosis #gastroparesis #ShineLikeShanann #sjögrens #SLE #Dysautonomia #wearejaquiestrong (at Stacy Face's) https://www.instagram.com/p/Bw90wtjhpxl/?igshid=qzj6xstlugwl

[stacyspoonley]

I have endless #flair #zebrafashion SAFE AND HAPPY #disability #PRIDE #zebrastrong #spoonies keep hydrated, have an extra #inhaler and #epipen (#PRIMARYIMMUNODEFICIENCY) #allergy and #emergency #PIawareness #cards HAVE SOME #DISABLEDJOY! #PIEntry #futureisaccessible #fragilebutunbreakable #PIctureAwareness #raredisease #anaphylaxis #systemicmastocytosis #EHLERSDANLOS #gastroparesis #ShineLikeShanann #sjögrens #Dysautonomia #wearejaquiestrong #myedschallenge #mycrazylife #myhsdchallenge #chronicillness #myeds #EDS #MCTD #CIDP #POTS #crps @ehlers.danlos @idfcommunity @mastocytosis.awareness @dysautonomiaintl @tztheidfzebra (at New York, New York) https://www.instagram.com/p/BlRgXwvlfwa/?igshid=yl6fxhpdyjtc