#sasza

[opia-png]

oc-tober day eight: here i go again

[cripplecharacters]

How to Support People with Facial Differences - the Face Equality Week 2024 Special

[large text: How to Support People with Facial Differences - the Face Equality Week 2024 Special]

Today is the 13th of May, which means that the Face Equality Week has just started. This year's theme is “My Face is a Masterpiece” which is probably my favorite sentence ever said about having a facial difference. Huge fan, should be used way more often in my opinion.

Because of this occasion, I would like to share some thoughts about Face Equality that I think are rather entry-level, i.e. you don't need to know much to execute these, but you can still support us.

Stop the stare.

I know it's fun to stare - or so I guess, at least - but maybe you shouldn't. Next time you see someone who has a scar or who's face does not move the same way as yours, just mind your business. We can tell when you're “discreetly” looking.

Don't call us deformed. 

Knowing how the people you're trying to support actually call themselves should be an absolute first step, but most people still fail here. Most of us don't appreciate being called “deformed”. I certainly don't. Say “facial difference”, or “disfigurement” if you must. It's 2024. Leave “deformed” to medical reports from the 70s.

No more “What happened?!”s.

If you aren't a doctor, there's a high-to-100% chance that it's none of your business. It's cool that you're curious - keep it to yourself.

Stop insinuating that we are ugly.

“Support people who are ugly!” isn't very supportive. I would say, not in the slightest. Say “people who don't fit the current beauty standards” if that's what you mean. 

Or, to go with this year's theme, “people whose faces are masterpieces” : )

Use critical thinking online.

Is the reaction photo actually funny, or is it just a person with a craniofacial condition? Is the meme actually a meme, or is it just making fun of a person with a facial disfigurement? Is body-shaming suddenly hilarious to you when the person shamed has strabismus? 

If the entire punchline is “lol they have a disability xd”, it's ableism. Plain and simple.

To go with the point above - your joke is probably not funny.

We get it! You can't help telling us how "you're going to hell for laughing" (which yeah, probably) and how we remind you of the ugliest character you have ever seen. I guarantee you that we heard it, and that you are behaving like an edgy middle schooler who hasn't "found out" yet. It's boring and annoying. Also ableist, but you're aware of that already if you're saying that you're going to hell.

Stop with the goddamn trigger warnings. 

We aren't “body horror”, we aren't “gore”, we aren't something that you need to advise your viewers to use their discretion over. Every “graphic footage: child with neurofibromatosis” and “#tw burn scar” is a sign of ableism and disfiguremisia. People with facial differences deserve to be seen. Ableds can survive seeing a person without a nose.

Do a basic reading on what disfiguremisia is.

New word! And an important one. It's a brand of ableism that intersects with more or less everything, and it means discrimination and hatred of people with facial differences/disfigurements. The bullying, harassment, endless name-calling, and microaggressions are all results of disfiguremisia. The ways in which everything is harder for us isn't some unchangeable rule of how the world works, it's just an extremely prevalent type of discrimination.

Understand that we are people.

I know, revolutionary - and yet impossible for so many people to get. We can be a visual representation of evil when it's necessary, we can be a feel-good inspirational story on a morning talk-show, but not much else, it seems. In reality, we are complex, we have our own lives, we can be happy and sad and have the same exact joys and worries that you have.

Hey, artists - facial differences don't make you evil.

Title stolen from a great essay by Lise Deguire (link). When's the last time you saw a positive character with a facial difference that wasn't inspiration porn? I mean a character that's not edgy, full of angst, a murderer, or a villain. Based on what you see in the media, you'd think that having a scar renders you evil on the spot, but in reality it just makes you loathe how artists apparently think you are like. It's boring, it's overdone, it's ableism. Stop doing this, and start noticing when it's being done. Point it out if your friend is writing their new villain to be an evil burn survivor. This kind of portrayal needed to stop ages ago, but tomorrow will be a great time as well.

Before you reply with “I've never seen this” - Darth Vader, Lion King’s Scar (subtle name, great thing to teach kids!), Freddy Krueger, Voldemort, we could be here forever. You're just not paying attention.

Pay attention to where we are not included.

As discussed, there are some places where you see us all the time. But where do you not see us?

Advertisements (unless it's for a scar-removal cream, of course). Fashion shows. Magazine covers. Romance movies where we are the main character.

We deserve to see ourselves in what's around us in the same way able-bodied people do. Trying to make it seem like we don't exist - that's deliberate. 

Interact with our art.

We draw, write, sing, act in movies, we do everything. Support us in the most tangible way - leave us a nice comment, read our books, listen to our songs. Watch movies where actual people with facial differences star, not pseudoinspirational stories about how “being disfigured is ok” where they shove an able-bodied actor into a full face prosthetic just to not have an actor with a disfigurement on set.

Include us.

As this year's Face Equality Week calls for, include us. In art, in movies, in books, in your life. Show us as positive people who are valuable, who are a part of your community - I guarantee that we are in every one that's out there. The world is hostile and unwelcoming to people with facial differences - be the change, wherever you are.

I know that it is different from the usual posts I make, but I hope it was somewhat educational. I just like to use every occasion that I can to force Face Equality into people's heads. To make this at least a bit about writing to keep the blog's theme, I will say that if you want to write about us, you need to care about us in real life as well. Otherwise, it's pointless and, as representation, genuinely worthless.

Below the readmore are some links/resources that you can click to educate yourself further. A lot of them lead to Face Equality International because they have just about everything you should know. If you want to be a better ally to people with facial differences, I heavily recommend them.

#MyFaceIsAMasterpiece

mod Sasza

https://faceequalityinternational.org/the-harmful-trope-of-facial-differences-in-film-villains/

https://faceequalityinternational.org/why-i-will-not-hide/

https://www.psychologytoday.com/gb/blog/disability-is-diversity/202111/hidden-community-the-movement-face-equality

https://faceequalityinternational.org/facial-differences-in-the-media/

https://faceequalityinternational.org/advertising-excludes-women-with-faces-like-mine/

https://www.phoenix-society.org/resources/burn-community-bookshelf

https://faceequalityinternational.org/about-fei/international-face-equality-week/

https://faceequalityinternational.org/hidden-from-view-women-with-facial-differences-in-the-media

https://www.phoenix-society.org/resources/i-dont-see-your-scars

Thanks for actually clicking the readmore

[ladzwriting]

Volume 2 is largely about Sasza processing the fact that he is murders georg; an outlier who shouldn't be counted

Thank you @ghostpoetics for the prompt

the fealty of monsters volume 1 is out now in ebook or paperback

[kyshkaszyszka]

Im in the middle of reading metro 2034, so here is Hunter with Sasha aka let me go with you I can fix him 🤨 bruh

[rotdecaydraw]

trying to boop back everyone who boops me, but when a lot of people send boops at the same time tumblr doesn’t let me boop from my notifs & i must go to your blog to boop, which registers the send from my main

tldr; i’m booping yall it just might send from my main instead of here 🐾

[kocikikut]

sketchbook stuff

[cripplecharacters]

Image description: illustration of a person in a cave leaving a handprint on the wall. They are a below the knee amputee and are a holding a long stick as a cane in their other hand. End ID.

Oldest medical amputation on record was performed on a Stone Age child in Borneo 31,000 years ago

About 31,000 years ago, a skilled prehistoric surgeon cut off the lower leg of a child hunter-gatherer in Borneo. Now, archaeologists have concluded that this ancient surgery is the earliest medical amputation on record.

The skill of the Stone Age surgeon was admirable; the patient went on to live an additional six to nine years after the surgery, a radiocarbon dating performed by researchers of the individual’s tooth enamel revealed, according to a study published online Wednesday (Sept. 7) in the journal Nature.

“It was a huge surprise that this ancient forager survived a very serious and life-threatening childhood operation, that the wound healed to form a stump and that they then lived for years in mountainous terrain with altered mobility,” study co-author Melandri Vlok, a bioarchaeologist and postdoctoral research associate at the University of Sydney,“ said in a statement. ”[This suggests] a high degree of community care.“ Read more.

[opia-png]

oc-tober day two! it's sasza!

[cripplecharacters]

Where to Start Your Research When Writing a Disabled Character

[large text: Where to Start Your Research When Writing a Disabled Character]

So you have decided that you want to make a disabled character! Awesome. But what's next? What information should you decide on at the early phrase of making the character?

This post will only talk about the disability part of the character creation process. Obviously, a disabled character needs a personality, interests, and backstory as every other one. But by including their disability early in the process, you can actually get it to have a deeper effect on the character - disability shouldn't be their whole life, but it should impact it. That's what disabilities do.

If you don't know what disability you would want to give them in the first place;

[large text: If you don't know what disability you would want to give them in the first place;]

Start broad. Is it sensory, mobility related, cognitive, developmental, autoimmune, neurodegenerative; maybe multiple of these, or maybe something else completely? Pick one and see what disabilities it encompasses; see if anything works for your character. Or...

If you have a specific symptom or aid in mind, see what could cause them. Don't assume or guess; not every wheelchair user is vaguely paralyzed below the waist with no other symptoms, not everyone with extensive scarring got it via physical trauma. Or...

Consider which disabilities are common in real life. Cerebral palsy, muscular dystrophy, stroke, cataracts, diabetes, intellectual disability, neuropathy, multiple sclerosis, epilepsy, thyroid disorders, autism, dwarfism, arthritis, cancers, brain damage, just to name a few.

Decide what specific type of condition they will have. If you're thinking about them having albinism, will it be ocular, oculocutaneous, or one of the rare syndrome-types? If you want to give them spinal muscular atrophy, which of the many possible onsets will they have? If they have Ehlers-Danlos Syndrome, which one out of the 13 different types do they have? Is their amputation below, or above the knee (it's a major difference)? Not all conditions will have subtypes, but it's worth looking into to not be surprised later. This will help you with further research.

If you're really struggling with figuring out what exact disability would make sense for your character, you can send an ask. Just make sure that you have tried the above and put actual specifics in your ask to give us something to work with. You can also check out our "disabled character ideas" tag.

Here are some ideas for a character using crutches.

Here are some ideas for a character with a facial difference (obligatory link: what is a facial difference?).

If you already know what disability your character is going to have;

[large text: If you already know what disability your character is going to have;]

Start by reading about the onset and cause of the condition. It could be acquired, congenital, progressive, potentially multiple of these. They could be caused by an illness, trauma, or something else entirely. Is your character a congenital amputee, or is it acquired? If acquired - how recently? Has it been a week, or 10 years? What caused them to become disabled - did they have meningitis, or was it an accident? Again, check what your options are - there are going to be more diverse than you expect.

Read about the symptoms. Do not assume or guess what they are. You will almost definitely discover something new. Example: a lot of people making a character with albinism don't realize that it has other symptoms than just lack of melanin, like nystagmus, visual impairment, and photophobia. Decide what your character experiences, to what degree, how frequently, and what do they do (or don't do) to deal with it.

Don't give your character only the most "acceptable" symptoms of their disability and ignore everything else. Example: many writers will omit the topic of incontinence in their para- and tetraplegic characters, even though it's extremely common. Don't shy away from aspects of disability that aren't romanticized.

Don't just... make them abled "because magic". If they're Deaf, don't give them some ability that will make them into an essentially hearing person. Don't give your blind character some "cheat" so that they can see, give them a cane. Don't give an amputee prosthetics that work better than meat limbs. To have a disabled character you need to have a character that's actually disabled. There's no way around it.

Think about complications your character could experience within the story. If your character wears their prosthetic a lot, they might start to experience skin breakdown or pain. Someone who uses a wheelchair a lot has a risk of pressure sores. Glowing and Flickering Fantasy Item might cause problems for someone photophobic or photosensitive. What do they do when that happens, or how do they prevent that from happening?

Look out for comorbidities. It's rare for disabled people to only have one medical condition and nothing else. Disabilities like to show up in pairs. Or dozens.

If relevant, consider mobility aids, assistive devices, and disability aids. Wheelchairs, canes, rollators, braces, AAC, walkers, nasal cannulas, crutches, white canes, feeding tubes, braillers, ostomy bags, insulin pumps, service dogs, trach tubes, hearing aids, orthoses, splints... the list is basically endless, and there's a lot of everyday things that might count as a disability aid as well - even just a hat could be one for someone whose disability requires them to stay out of the sun. Make sure that it's actually based on symptoms, not just your assumptions - most blind people don't wear sunglasses, not all people with SCI use a wheelchair, upper limb prosthetics aren't nearly as useful as you think. Decide which ones your character could have, how often they would use them, and if they switch between different aids.

Basically all of the above aids will have subtypes or variants. There is a lot of options. Does your character use an active manual wheelchair, a powerchair, or a generic hospital wheelchair? Are they using high-, or low-tech AAC? What would be available to them? Does it change over the course of their story, or their life in general?

If relevant, think about what treatment your character might receive. Do they need medication? Physical therapy? Occupational therapy? Orientation and mobility training? Speech therapy? Do they have access to it, and why or why not?

What is your character's support system? Do they have a carer; if yes, then what do they help your character with and what kind of relationship do they have? Is your character happy about it or not at all?

How did their life change after becoming disabled? If your character goes from being an extreme athlete to suddenly being a full-time wheelchair user, it will have an effect - are they going to stop doing sports at all, are they going to just do extreme wheelchair sports now, or are they going to try out wheelchair table tennis instead? Do they know and respect their new limitations? Did they have to get a different job or had to make their house accessible? Do they have support in this transition, or are they on their own - do they wish they had that support?

What about *other* characters? Your character isn't going to be the only disabled person in existence. Do they know other disabled people? Do they have a community? If your character manages their disability with something that's only available to them, what about all the other people with the same disability?

What is the society that your character lives in like? Is the architecture accessible? How do they treat disabled people? Are abled characters knowledgeable about disabilities? How many people speak the local sign language(s)? Are accessible bathrooms common, or does your character have to go home every few hours? Is there access to prosthetists and ocularists, or what do they do when their prosthetic leg or eye requires the routine check-up?

Know the tropes. If a burn survivor character is an evil mask-wearer, if a powerchair user is a constantly rude and ungrateful to everyone villain, if an amputee is a genius mechanic who fixes their own prosthetics, you have A Trope. Not all tropes are made equal; some are actively harmful to real people, while others are just annoying or boring by the nature of having been done to death. During the character creation process, research what tropes might apply and just try to trace your logic. Does your blind character see the future because it's a common superpower in their world, or are you doing the ancient "Blind Seer" trope?

Remember, that not all of the above questions will come up in your writing, but to know which ones won't you need to know the answers to them first. Even if you don't decide to explicitly name your character's condition, you will be aware of what they might function like. You will be able to add more depth to your character if you decide that they have T6 spina bifida, rather than if you made them into an ambiguous wheelchair user with ambiguous symptoms and ambiguous needs. Embrace research as part of your process and your characters will be better representation, sure, but they will also make more sense and seem more like actual people; same with the world that they are a part of.

This post exists to help you establish the basics of your character's disability so that you can do research on your own and answer some of the most common ("what are symptoms of x?") questions by yourself. If you have these things already established, it will also be easier for us to answer any possible questions you might have - e.g. "what would a character with complete high-level paraplegia do in a world where the modern kind of wheelchair has not been invented yet?" is more concise than just "how do I write a character with paralysis?" - I think it's more helpful for askers as well; a vague answer won't be of much help.

I hope that this post is helpful,

mod Sasza

[ladzwriting]

This is one of my favorite smaller moments in Volume 2, in which Sasza shares his food with a fox in the woods like he's a Disney princess covered in gore.

Thank you @ghostpoetics for the prompt

the fealty of monsters volume 1 is out now in ebook or paperback

[psychologeek]

Thank you thank you thank you.

I have my MC have a baby and I considered some features. Just like. Thanks for always bring things so KINDLY.

And people to inspire and just.

Idk. I just.

Thank you.

Tutorial for drawing characters with Down syndrome!

DISCLAIMER... Please keep in mind that this is an introductory drawing tutorial and has some generalizations in it, so not every “X is Z” statement will be true for Actual People. It's more of an overview of features that are common in people with Down syndrome, not meaning to imply that every person with DS has all of them 👍 thanks.

If you draw any characters using this feel free to tag me!

[kyshkaszyszka]

Sasha from metro 2034

[kocikikut]

sasza and kacper

[opia-png]

oc-tober day fourteen: two birds on a wire

[cripplecharacters]

would y'all happen to know of any databases/collections of photos or art references of people with facial differences? maybe in the vein of FatPhotoRef (a website with self-submitted pose references with fat models)?

I'm a learning visual artist and I've found one of the best ways for me to hone some aspect of drawing is to do timed sketches from photo references. I'm going to focus on facial expression soonish and want to cover people with various facial differences as well as the typically non-facial-difference-having models on mainstream reference sites. Any resources would be appreciated--even just non-art-focused websites with lots of neutral/positive photos of people with facial differences that I can sketch!

Thanks for all the work you do!

Hello!

The closest one to what you describe is probably Positive Exposure, which aims to photograph and portray all kinds of disabled people (not just visibly disabled) in a less medicalized/dehumanizing way. If you know which conditions cause facial differences then you can go through their albums and pick some of them out - there's a ton of them. The one I linked goes to their ichthyosis shoot.

Here are some other photo resources I do know of, but just be aware they might be underwhelming for what you're looking for;

Portrait Positive - focuses on women with facial and bodily differences;

HOW DO YOU C ME NOW? - focuses on people with large birthmarks;

Here I Am - focuses on adults and seniors with Down Syndrome;

About Face - focuses on people with various kinds of facial paralysis, mostly Bell's palsy

Classic Stock Photo Website - exactly what it says.

These are video resources, obviously less convenient, but you can try screenshotting and redrawing a shot that you like;

#FearNoFace

I Am More Than Just Your Villain

AboutFace's Awareness Videos (unrelated to the other link named similarly)

Outside these you can always try looking for models/actors with facial differences. Some you can look up include Adam Pearson, Catrin Pugh, Austin Halls, Justin Stewart, Alison Midstokke, Loide Ndemueda, or Turia Pitt.

I hope this helps! Good luck drawing

mod Sasza

[ladzwriting]

If there's one thing I'm good, it's describing magic, especially in THE INSTITUTE OF MANNERS, in case anyone forgets that this is still a fantasy series

Thank you @ghostpoetics for the prompt

the fealty of monsters volume 1 is out now in ebook or paperback