#rarediseasefears

[valkyrie1031]

2 years ago, on a rainy March weekend, Lauren, her sister, and I went to #zionnationalpark for the day. It was cold and drizzled the whole time....and it was wonderful. For a #sundayselfie, here's a pic we took while hiking up to #weepingrock. It's time for another day like this, but I don't know where to go. I'm afraid to take Lauren too far away from good medical centers. #sunday #raredisease #LaurensJourney #ACureforLauren #avmawareness #AVM #arteriovenousmalformation #sisters #daughters #marchweather #momsofgirls #rarediseasefears (at Henderson, Nevada)