#palliativecarematters

[incurableoptimistest1994]

First day this week I’ve actually slept and not spent the night screaming in agony, plus I’m a bit more pink rather than grey 😂! Not being able to have my Botox in my bladder due to Covid-19 sucks, but there’s nothing we can do about it; I just have to live with it. I’m immensely grateful for the support of my palliative care team, who rang me back straight away yesterday when I rang to tell them I was really struggling, and have doubled my new bladder spasms drug that’s definitely helping. I know they’ll do everything they can to Jerome alive and give me the best quality of life. They are working so hard, but still finding time to help every patient 🙏🏻 I’m also grateful for my amazing family who’ve worked so hard to make me smile, and put up with me being grumpy af 😂!! Let’s hope today stays a better day and I get to enjoy it. I wish you all a happy Friday! #palliativecarewarrior #bladderspasmsareabitch #todaywillbeabetterday❤️ #palliativecarematters #mydristhebest #happyfridayeveryone https://www.instagram.com/p/B_W0DFIDRsJ/?igshid=1jkrc7cr9d0wo

[incurableoptimistest1994]

So despite being very hungover, only getting 3 hours sleep, having really bad bladder spasms, and going through a load of stress this morning over a hospital appointment and ambulance transport, I think I managed pretty well filming with this lovely gentleman, Gareth, for BBC Wales news tonight! It’s such a joy to see my story, to see Mei and Gwen’s story, to see my family and friend’s story, being honoured. I hope that this raises awareness, acceptance, and understanding (and funds!) for palliative care young adults. #imgonnabeonthenews #bbcwalesnews #wewonabafta #palliativecarematters #tellingmystory #tellingourstory https://www.instagram.com/p/B3mrcRhhLCg/?igshid=v7uk5ry2ymc8