#of all the ways i was expecting my endo appointment to go badly today

[dawnquafam]

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[clatterbane]

Back from another periodic diabetes check-in appointment today. This was my second time actually seeing the endocrinologist there, though I had to go back for a nurse appointment when they were setting me up with the CGM.

It was a bit of a mixed bag this morning, and I'm still not sure how to feel about things. The (same) endo did come across as fairly decent and competent again, but I got triggered pretty badly by some pushiness around further meds that I was clearly communicating that I do not want.

Don't really need to go off on that right now, partly for my own mental health. But, I am tentatively trying to interpret at least some of that as a communication mismatch. And of course there are very few faster ways to get my back up by now, than to even give off a whiff of trying to bulldoze me in a medical setting.

On the plus side? No numbers nitpicking, and nobody tried browbeating me about anything else. So, that's a huge improvement over basically anything I ran into connected to the diabetes back on Plague Island.

Anyway, OTOH? She also sent me over to a nurse on the way out, to get what looked like a good portion of my blood drawn for a whole slew of further testing. (Seriously though, it was like 6 small tubes plus another jumbo tube o' blood.) I don't know what all, but will hopefully be able to see through the portal once results come back.

One of the things she wanted to check for, though? MODY! Nobody has ever raised that possibly before, but apparently something set off her diabetologist Spidey sense that it might be a possibility. She specifically mentioned how unusually low my insulin needs have been, with surprisingly better blood sugar control overall than they're expecting to see.

(Yeah, pretty much the OPPOSITE of what you'd expect to see with that persistent T2 misdiagnosis. 😒)

They're apparently also running antibody and C-peptide tests, just to be safe. They didn't get any records whatsoever from Plague Island, and honestly I'm not sure that they ever did the appropriate testing there after my DKA crash. ¯\_(ツ)_/¯

The major practical difference there, if it is a form of MODY rather than the more common autoimmune kind? Evidently some treatment strategies can be different, and they'd know better what else to watch out for.

But yeah, talk about contrasts. Go from pennypinching refusals to order "unnecessary" antibody tests, to "Gee, it could possibly be this highly unusual thing, so let's just take All The Blood and try to figure out wtf is going on here!"

(Skåne University, which they're attached to, also turns out to be the place in Sweden where they are doing that genetic testing, which probably doesn't hurt at all. Major diabetes research center in general.)

I must say I'm way happier with that approach, all things considered.