#nor gonna talk about my sis's current experience where an untreated infection (not for lack of her trying to get it treated!) | Explore Tumblr posts and blogs

hirazuki · 5 months ago

Text

Hira's year in medical review:

Me, August 2023: *experiencing extreme fatigue, fainting spells, mood swings, sudden and drastic increase of suicidal thoughts, and intense hair loss*

P.A: let's do blood work

Me: ok!

Bloodwork: *normal except for prolactin*

Doctor: sometimes that's a fluke so let's retest

Me: ok

Bloodwork: *exactly the same*

Doctor: your values are higher than normal range, but not high enough to be in range for a pituitary gland tumor.

(P.A: go see an endocrinologist and get an MRI, that might be indicative of a pituitary gland tumor.) <- bless this person and only this person in particular

Endocrinologist, seen earliest available which was January 2024: *wants to retest blood work instead of ordering an MRI*

Me: ... ok

Bloodwork: *the same*

Me: can we please do an MRI now?

Endocrinologist: Well. Your values are above the normal limit, but it's highly unlikely that's it's a pituitary gland tumor because they are not high enough for that. Let's retest blood work in four months.

Me: ...................... ok

Bloodwork, May 2024: *THE SAME*

Endocrinologist: hmm, I recommend an MRI

Me: *gesturing angrily*

MRI, June 2024: 🎉 pituitary gland tumor 🎉

Doctor, when I went in for something else: I doubt your endocrinologist will want to treat that, we typically don't treat adenomas that small

Endocrinologist, who took 3 weeks to review my results: I recommend just monitoring. It's highly unlikely that this is causing your symptoms, it's too small for that.

Me, July 2024:

#like im sorry but 'highly unlikely' =/= 'impossible'#sure it might be rare but like thats not a reason not to check it out???#idk wtf is with this resistance to treat it #like SO WHAT if in the majority of people a microadenoma of that size doesnt cause symptoms?? all individuals are different #like y'all didnt even think i had one because it was atypical presentation so maybe that's the case with my symptoms too #what would it hurt to do meds for it?#if i do meds to shrink it and my symptoms resolve; great!#if i do meds and my symptoms dont resolve? thats also great! it means we've ruled one thing out #and can continue exploring why THE FUCK my body is acting the way it is #why wouldn't you want to rule things out if you can?????#the healthcare in this country is so fucking broken #its been almost a year since i went in for my symptoms and still no resolution #ive lost about 2/3 of my hair at this point. ill probably have to chop it off if it keeps going like this #not even gonna talk about the fatigue #nor gonna talk about my sis's current experience where an untreated infection (not for lack of her trying to get it treated!)#is potentially now developing into something more serious. like kidney stuff. 🙃#(and they apparently have no record of the labs she submitted 🙃🙃 so she's gotta go do it all over again otherwise they wont give her meds)#it's okay. its just nausea to the point she hasn't really eaten in days and constant pain and dizziness. difficulty standing #but its fine right lmao #ughhh #dont mind me im just frustrated beyond everything and need to yell into my little corner of the void #withoutwords

8 notes · View notes