#ncfpi

[cleftmomph]

Smile Dyip - Bulacan😊 Thank you Lord for today. 13 patients - 1 for operation, 2 new patients (1 of them nagcommute), the rest are for dental and follow up. Ngayon na lang ata napuno ang service after a year!:) Happy to see old and new faces:) sana ma-meet ko kayong lahat❤️ To God be the Glory! may God bless our cleft journey! #meaningfulmondays #cleftmomph #NCFPI *PHOTOS SHOULD NOT BE USED BY OTHERS WITHOUT PERMISSION* *PHOTOS ARE WATERMARKED SO IT WONT BE USED TO SOLICIT AND USE ANYONE IN THE PHOTO AND CLAIM ITS THEIRS OR THEY ARE IN THE PHOTO* Photo is owned by one of NCF's patients.

[caloyolano]

Smile Train Ambassadors and Miss Universe Queens Reunited to Continue Spreading Smiles in the Philippines

Smile Train Ambassadors and Miss Universe Queens Reunited to Continue Spreading Smiles in the Philippines

MANILA, PHILIPPINES- Before hosting the grand coronation night of the Miss Universe Philippines 2022 pageant, Miss Universe queens Pia Wurtzbach, Iris Mittenaere, and Demi-Leigh Tebow met Smile Train beneficiaries under the care of its partner, Noordhoff Craniofacial Foundation of the Philippines, Inc. (NCFPI). The queens reunited for this special gathering to bring awareness about clefts,…

[yuriwangfingermedia]

撕除異樣的標籤　12顱顏患者畫出家庭溫暖 【健康醫療網／記者林怡亭報導】家庭態度深深影響小孩的的自我價值感！尤其是顱顏的孩子，陪孩子練習不悲觀，是家長必要的功課；有自信心的孩子，不僅較不易被同儕的態度影響，家長溫柔的後盾，讓孩子更懂得人際關係處理。財團法人羅慧夫顱顏基金會日前舉辦2020年「Lovely Home」公益桌曆頒獎典禮暨首賣記者會，由12位亞洲顱顏患者用畫作道出家庭溫馨故事。 皮爾羅賓症險活不下　是愛讓他在風雨中挺立 台灣得獎人徐仁萱（11歲），患有皮爾羅賓症，媽媽在懷孕時，照超音波並無異樣，直到生產後才發現孩子患有罕見疾病。仁萱媽媽說，仁萱剛出生一個月時，都會吐奶，怎麼養都養不大，且睡覺的時候也必須注意是不是無法呼吸，因為過小的下顎會使舌頭擠在口腔後方，阻礙呼吸，有幾次因為呼吸困難整個臉都變成了紫色。為了照顧孩子，仁萱媽媽幾乎沒有休息，也不敢入睡，每天盡心盡力照顧，害怕有任何閃失；仁萱在充滿愛的環境下長大，成了一個溫暖善良的人，不只常常在朗讀、演講比賽中獲獎，學校成績也名列前芧，當選為模範生。 因唇顎裂飽受同儕霸凌　NCFPI讓他再次重生 來自菲律賓得獎人伽莉（Cherry Del C. Mariano22歲），雙側唇顎裂。當個普通人過著平凡的生活，是她的心願。伽莉說，高中時期，曾被無止盡的霸凌，我總是用一條頭巾，遮掩鼻子和嘴巴。唯有回到家，才不用遮遮掩掩。我沒有真正的朋友，因為發音不標準，大家聽不懂我說的話而排擠我。他們模仿我說話的方式，彷彿我的存在就是為了取悅他們。伽莉提到，是NCFPI(菲律賓羅慧夫顱顏基金會)，挽救了她地獄般的人生。不僅在基金會認識了一群很棒的朋友，最重要的是，基金會資助了所有的唇顎裂治療費用，動完唇鼻美容手術後，我擁有了從未有過的自信心。 藝人潘裕文任公益桌曆推廣大使　盈餘將全數幫助台灣顱顏患者 潘裕文連續8年無償擔任2020年公益桌曆推廣大使，即日起至10/28可於羅慧夫顱顏基金會網站上購買( 【延伸閱讀】 晚期乳癌治療不打折　CDK4/6抑制劑可降3成死亡率 異位性皮膚炎醒來滿床血　中重度患者盼新療法 老翁吃壯陽藥送醫　2019用藥安全日「看診好幫手｣上線來照護 資料來源：健康醫療網 游勝鈞;游胜钧;指動傳播科技;指动传播科技;指傳媒;指传媒;華民通訊社;华民通讯社;民生新聞網;民生新闻网,健康醫療網,資料來源：健康醫療網新聞

[style-yesnews]

撕除異樣的標籤　12顱顏患者畫出家庭溫暖

即日起至10/28可於羅慧夫顱顏基金會網站上購買。潘裕文為回饋購買者的愛心，簽名數量無上限，售完為止。

家庭態度深深影響小孩的的自我價值感！尤其是顱顏的孩子，陪孩子練習不悲觀，是家長必要的功課；有自信心的孩子，不僅較不易被同儕的態度影響，家長溫柔的後盾，讓孩子更懂得人際關係處理。財團法人羅慧夫顱顏基金會日前舉辦2020年「Lovely Home」公益桌曆頒獎典禮暨首賣記者會，由12位亞洲顱顏患者用畫作道出家庭溫馨故事。

皮爾羅賓症險活不下　是愛讓他在風雨中挺立

台灣得獎人徐仁萱（11歲），患有皮爾羅賓症，媽媽在懷孕時，照超音波並無異樣，直到生產後才發現孩子患有罕見疾病。仁萱媽媽說，仁萱剛出生一個月時，都會吐奶，怎麼養都養不大，且睡覺的時候也必須注意是不是無法呼吸，因為過小的下顎會使舌頭擠在口腔後方，阻礙呼吸，有幾次因為呼吸困難整個臉都變成了紫色。為了照顧孩子，仁萱媽媽幾乎沒有休息，也不敢入睡，每天盡心盡力照顧，害怕有任何閃失；仁萱在充滿愛的環境下長大，成了一個溫暖善良的人，不只常常在朗讀、演講比賽中獲獎，學校成績也名列前芧，當選為模範生。

因唇顎裂飽受同儕霸凌　NCFPI讓他再次重生

來自菲律賓得獎人伽莉（Cherry Del C. Mariano22歲），雙側唇顎裂。當個普通人過著平凡的生活，是她的心願。伽莉說，高中時期，曾被無止盡的霸凌，我總是用一條頭巾，遮掩鼻子和嘴巴。唯有回到家，才不用遮遮掩掩。我沒有真正的朋友，因為發音不標準，大家聽不懂我說的話而排擠我。他們模仿我說話的方式，彷彿我的存在就是為了取悅他們。伽莉提到，是NCFPI(菲律賓羅慧夫顱顏基金會)，挽救了她地獄般的人生。不僅在基金會認識了一群很棒的朋友，最重要的是，基金會資助了所有的唇顎裂治療費用，動完唇鼻美容手術後，我擁有了從未有過的自信心。

藝人潘裕文任公益桌曆推廣大使　盈餘將全數幫助台灣顱顏患者

潘裕文連續8年無償擔任2020年公益桌曆推廣大使，即日起至10/28可於羅慧夫顱顏基金會網站上購買(https://www.nncf.org/)。潘裕文為回饋購買者的愛心，簽名數量無上限，售完為止；扣除印製成本後盈餘將全數運用於「好好長大」募款計劃，幫助台灣顱顏患者得到全人醫療，涵蓋外科、矯正牙科、語言、聽力和心理。

加入【健康醫療網】，天天關注您健康！LINE＠ ID：@healthnews 訂閱【健康愛樂活】影音頻道，閱讀健康知識更輕鬆

健康資訊���熱新聞提供 原文連結: 撕除異樣的標籤　12顱顏患者畫出家庭溫暖 更多相關內容

「免驚」恐怖化學湯底喝下肚　食材登錄平台「一指通」

健康醫療網 健康醫療網是以健康新聞、治療新知為主的全方位健康媒體平台，致力於提供最專業、最即時、最樂活的多元化資訊。

[lopezjadee]

#heartofgold #gabbiesjourney #jadegabrielle #cleftmomandproud #diaryofacleftmom #cleftcutie #cleftstrongph #ncfpi #beyondblessed #Godismymight #noordhoffcraniofacialfoundation #cleftlipandpalate

[cleftmomph]

This is the fangirl in me posting!!!🙂

I loooove her! Aside from the fact that she’s been supporting NCF she is one talented actress. Au naturale. She made me cry countless times🤣🤣🤣 she will soar higher, I am sure of that. Her aura is so refreshing and light, pure of positive vibes❤️

Hihi Feeling high school ako when i watch candid vids of her with dj hihihi☺️

[cleftmomph]

Bulacan patients of NCFPI @ our lady of Peace with Ms. Mel, Maam Gina and Dr. Cabrera ☺️ plus me, jojo and ate neneth 😊 #cleftstrongph #ncfpi #smiledyip #smiledyipbulacan #cleftstrong #cleftcutie #diaryofacleftmom #cleftmomandproud (at Our Lady of Peace Hospital, Paranaque)

[cleftmomph]

Timeline of #GABBIESJOURNEY Photo: PRofessional fees are erased just to give respect to our doctors, if ever you need info pls message me personally or visit their clinics. You can see the total so may be that will give you a rough estimate. Additional info: hosp bill in total was 60k plus additional 10k that was given to our surgeon separately -she issued a receipt ☺). Its been one month since Gabbie's operation. And I've been meaning to write about our cleft team specially about dr. Glenda de villa. Fees and experiences. (yes 1 month meaning this was written around november 2015, so some of the infos here Are Already written on my other blog entry😂)


After we found out that our Gabbie will be extra extra special, I was very restless. People are telling me to look for a plastic surgeon, for a dentist, for an ENT doctor... And sa totoo lang hindi ako kampante sa mga sagot nila kahit some of those suggestions came from doctors din. So lalo akong naguluhan. I started reading and asking around. I started looking for the best surgeon. But where do you start? Really. I was clueless. So I just searched for cleft surgeon. All that would appear are foundations, and at that time, I would be honest, it was not one of our options. So what I did was look for the President of a foundation and consult with him/her. And so... I found Dr. Glenda De Villa under NCFPI's website. She is an oral & maxillofacial surgeon, and having a medical background, it sounds kind of reassuring. somehow it made me feel that THIS, this type of surgeon is what I was looking for. Checked her hospital affiliations and what do you know, may clinic sya sa asian!!! I was overjoyed!!!!!! That was a sign for me. My hands we're shaking as I call her office, her secretary was very kind and accommodating, she scheduled us a meeting with her and Dr. Janet Pandan :) 

We arranged our first meeting with Dr. Glenda De Villa and Dra. Janet Pandan weeks before giving birth. They discussed with us what's needed to be done. They introduced to us the NAM (nasoalveolar molding, w/c after some meetings we learned from their secretary that it was Dra. Glenda who brought the method of using NAM here in the Philippines). This is like a denture without the teeth with a stent for the nose. Its primary job is to help the gap become smaller w/c makes the surgery easier and outcome much better. They said it will act as gabbie's artificial palate for easier feeding, hence the weight gain she will need for her first surgery. andthe NAM also has the stent w/c raises the nose. They also told us that it will be used for the first 3 months of life. We agreed to use NAM, and decided to have it as early ad possible para makapag feed si gabbie ng maayos agad. it costs 30k inclusive of all the adjustments and check ups. 

Good thing their Pedia-Pulmo, dr. Arneil Suratos, who is part of their cleft team in Asian Hospital is also our Pediatrician. So it was very easy to communicate regarding our careplan after giving birth.

Days before I give birth, we found out Dr. Janet will be out of the country for a convention. I was supposed to have C-sectio before she leaves but my OB Gyne, Dr. Carmen Perez told me the later I give birth, the better. So we decided to schedule it April 27. I think that's exactly my 38th week. 

April 27, 2015
Finally our little angel arrived. The next day, she had her NAM fitting with Dr. Glenda De Villa. 

Her first NAM adjustment came a week after, we started the taping. The week after, the bulb/stent
Was placed. After that was a weekly adjustment till her third month. She was scheduled aug 25 but was cancelled. Lost count how many times her surgery was cancelled. Eventually got tired of the excitement and anxiousness. Hahaha so it was a come what may.. Bahala na si Lord attitude. 

September 30, 2015
Gabbie had her CBC and Xray in PCMC. We got the result for cbc that day, requested a STAT. For the xray, we borrowed the film but didn't wait for the final reading/result. Hahahaha which was a bad idea pala. Nasanay kasi kami sa pedia-pulmo namin from PCMC (dr. Cabanilla) who reads the xray right away and doesn't really depend on the final reading. I think Dr. Cabrera, the Pulmo-Pedia of Dr. De villa's team in Our Lady of Peace just wants a proof that Gabbie is healthy and is safe to go through the surgery. Which we really understand. Tinawagan namin ang PCMC at nakisuyo if we could get the reading the next day, as early as possible at salamat Lord, pumayag sila.. Usually, 2 working days bago ma release. The next day we got the final reading and her lungs are clear and normal. 

Praise the Lord!

October 1, 2015
Left bulacan after lunch and we arrived at our lady of peace in Paranaque around 8 PM. Haha! We got lost because of waze!!

We got to take the suite dahil wala ng ibang room. Gabbie was scheduled to have her surgery at 7 am. NPO (nothing per orem) started at 12midnight. It was a smooth pre-op. Hindi sya umiyak or nanghingi ng milk nung madaling araw. 
After she was given the aneasthesia, super bilis, groggy na sya agad. The surgery took an hour or so. Then recovery an hour :) she also had her ear piercing while she was still groggy with the anest. 

She was irritated. She didnt drink much milk for the first 12 hours. I think she just want to sleep. She had slight fever but thats expected cause she's in pain. We tried using the post op bottle but shes not satisfied with it. We used syringe instead 😊

October 2, 2015
We were discharge with medications and wound care from fr. Glenda. 

We paid around 70k. Super laki ng discount ng philhealth. (Will attach a photo)
_________________


Follow up came after 1 week @ asian to remove the sutures. She cried a little.
Then Follow up after a month for the scar massa😁ge.
Follow up for the scar (if we will use dermatix or not) *will edit and add info as gabbie's journey continue:) #gabbiesjourney #jadegabrielle #gabbieanamjourney #cleftstrong #cleftstrongph #cleftmomandproud #diaryofacleftmom

[cleftmomph]

http://cleftmomph.tumblr.com/post/157606536713/tothecleftmominme

To the cleft mom inside me

How are you? You know this letter is long overdue I know you’ve been expecting for so long now, But I know you’re afraid too About the things I might say you I know you have wounds Trapped and hasn’t healed I don’t want to scab it off and make you bleed

But I know you’re strong And I want you to know, You are doing good, No, you’re doing more than good, You’re doing more than enough, You’re doing more than your best. You don’t know how strong you are Don’t you? You don’t want to believe me?

Look at that tiny munchkin smiling at you Where do you think she got that smile? That will? That strength? That power to move and just go on Even everything looks like all hell is about to get loose Whose voice do you think she heard the first time? Telling her to be strong and that she’s not alone Telling her to be strong and that she’s more than wonderful Telling her to be strong and that she’s not just beautiful But beyond perfection Telling her to be strong and that her brothers are here waiting for her to be born Telling her to be strong and that her dad Can’t wait for the mini boss

Who’s voice told her everything will be alright? Now ask her why she is this strong You don’t still believe me? Look at how she stares at you Feel how she reaches for your hand And grasp it like telling you “mom, I know…” Touch her and you both know… There’s a long way to go But believe me this little girl As fragile as she might seem, your tiny munchkin… She is strong Just because she believes she’s not alone She knows, she got a mom so strong She got a cleft mom with a heart of gold.

#heartofgold #gabbiesjourney #jadegabrielle #cleftmomandproud #diaryofacleftmom #cleftcutie #cleftstrongph #ncfpi #beyondblessed #Godismymight #noordhoffcraniofacialfoundation #cleftlipandpalate

[cleftmomph]

To the cleft mom inside me How are you? You know this letter is long overdue I know you’ve been expecting for so long now, But I know you’re afraid too About the things I might say you I know you have wounds Trapped and hasn’t healed I don’t want to scab it off and make you bleed But I know you’re strong And I want you to know, You are doing good, No, you’re doing more than good, You’re doing more than enough, You’re doing more than your best. You don’t know how strong you are Don’t you? You don’t want to believe me? Look at that tiny munchkin smiling at you Where do you think she got that smile? That will? That strength? That power to move and just go on Even everything looks like all hell is about to get loose Whose voice do you think she heard the first time? Telling her to be strong and that she’s not alone Telling her to be strong and that she’s more than wonderful Telling her to be strong and that she’s not just beautiful But beyond perfection Telling her to be strong and that her brothers are here waiting for her to be born Telling her to be strong and that her dad Can’t wait for the mini boss Who’s voice told her everything will be alright? Now ask her why she is this strong You don’t still believe me? Look at how she stares at you Feel how she reaches for your hand And grasp it like telling you “mom, I know…” Touch her and you both know… There’s a long way to go But believe me this little girl As fragile as she might seem, your tiny munchkin… She is strong Just because she believes she’s not alone She knows, she got a mom so strong She got a cleft mom with a heart of gold. #heartofgold #gabbiesjourney #jadegabrielle #cleftmomandproud #diaryofacleftmom #cleftcutie #cleftstrongph #ncfpi #beyondblessed #Godismymight #noordhoffcraniofacialfoundation #cleftlipandpalate

[cleftmomph]

Proud to introduce Gabbie's Surgeon, Dr. Glenda De Villa (oral&maxilofacial surgeon) and Orthodontist, Dr. Janet Pandan.

I found Dr. Glenda through Noordhoff’s website. Ive seen Smile train, operation smile’s website, searched for private plastic surgeons, dentist, pediatric surgeons... but I was never satisfied with the results. my heart is still not at rest. In NCFPI’s website, Dr. Glenda was named President. Right now its Dr. Tansipek, not sure if their website is updated already. I kept coming back to NCFPI’s website because its the only foundation whose Professional volunteers are well stated and listed. the first idea was we have to look for the best, so my list will have to start with the president hehe so yes I googled and kinda stalked dr. Glenda’s works =)

imagine my happiness when I saw that Dr. Glenda has a clinic in Asian Hospital... Where I am about to give birth at that time. From there I have a feeling she’s the one. Shes an Oral and Maxillofacial Surgeon, you couldnt go wrong with that. I called her office and arranged a meeting.

We met with dr. glenda first and right, then and there, we knew we’re at the right place. her calmness.. like parang she’s saying madali lang yan, dont worry! plus what she said about teaching Gabbie that beauty is just superficial, that beauty comes from the heart (not exact words, but that’s that). then we met with dra. Janet, They introduced to us the NAM (nasoalveolar molding, w/c after some meetings we learned from their secretary that it was Dra. Glenda who brought the method of using NAM here in the Philippines). This is like a denture without the teeth with a stent for the nose. Sa pagkakaintindi ko these are the purpose of NAM

*Its primary job is to help the gap become smaller w/c makes the surgery easier and outcome much better.

* They said it will act as gabbie's artificial palate for easier feeding, hence the easier weight gain wc she will need for her first surgery.

*the NAM also has the stent w/c raises the nose.

Other information

They also told us that it will be used for the first 3 months of life. This is the time na ooperahan na ang baby. -- it is effective during this time, after that hindi na nya magagawa yung role nya na mag help liitan ang gap, ofcourse sa pagiging artificial palate andon parin yon. Gabbie was scheduled for surgery nung 3months sya pero laging nappostpone. Napansin namin na bumababa na ang nose nya kahit iadjust pa. Siguro dahil sa taping ko din, pero even with the correct taping bumababa sya. I am not sure if the NAM is not effective nadin around this time for her Nose, mga 4months na sya non. Kaya for me very important na pregnant pa lang makapag consult na or pagkapanganak pa lang... Para maaga magamit at mamaximize ang NAM.

We agreed to use NAM, and decided to have it as early ad possible para makapag feed si gabbie ng maayos agad. Gabbie started using NAM at 2 days old. I was able to breastfeed pero nagmixfeeding din kami pag dating nya ng 2weeks old. She got used to it agad, umiyak sya syempre nung fitting. After that wala na. During her weekly adjustments wala din naging problema si Dr. Pandan, nagugulat pa nga sya dahil hindi umiiyak si Gabbie hihi. Our only nemesis is the taping. Nightmare eh. The taping naman papractisin nya ang cheek muscles na maging malapit sa isat isa. Hiyangan talaga, there are different tapes that you could try. First stop, the micropore. Most common na ginagamit. there’s also the Steristrips - eto pinakaeffective kay gabbie. Duoderm + micropore. thers also what they call White transpore - i think this is a new kind of tape. Kasi nung nasa nursing school palang ako wala pang ganito. Haha! I read na waterproof din sya :) I think we all need to try para makita kung ano pinaka ok kaybaby :)

[cleftmomph]

Thank you for supporting this event loveyouuuu😘😘😘 #teamonlyinbulacan 's first run!😂 #liverunsmile is an wvent for the benefit of NCF's patients. All of us ran 5k haha except kai who ran 10k and jeff who braved the 21k 😂😂😂

[lopezjadee]

Thank you ate jhen ☺️ #cleftstrongph #cleftstrong #ncfpi #ncfvolunteer (at Our Lady of Peace Hospital, Paranaque)

[lopezjadee]

❤️ bawat pinoy, may ngiti. True enough❤️ #gabbieturns1 #diaryofacleftmom #cleftstrongph #cleftmomph #jadegabrielle #gabbiesjourney #ncfpi #cleftstrong (at Our Lady of Peace Hospital, Paranaque)

[lopezjadee]

Last april 18, At the foundation's conference room. Patients and kid volunteers doing origami with Dr. janet Pandan and her son. Some patients are doing their art work for #lovemakeswholepaintingcontest #lovemakeswhole #cleftmomph #cleftstrongph #diaryofacleftmom #ncfpi #latepost (at Our Lady of Peace Hospital, Paranaque)

[lopezjadee]

Kathryn sorrounded by patients, parents, volunteers of NCF. She brought copies of her book, 365 ways to be a teen queen and gave to the attendees 😊 Late post 😁 #ncfdaywithkathryn #ncfpi #cleftstrongph #cleftmomph #cleftstrong