#measuring the mountain
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The Riveting and the mundane: stories shaping lives across Wales
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Measuring The Mountain is a project that aims to record people’s experiences with health and social care across Wales. As Welsh Government launches its new health and social care plan, Katie Cooke, Measuring The Mountain Coordinator and Interlink RCT, takes a look at how the project has gone so far and how you can get involved.
Measuring the Mountain is now well underway with stories being submitted from across Wales. As we build a picture of how social care feels for those that are involved, a fascinating variety of experiences are being shared. We’re hearing those stories that we all wish were not people’s experiences, but we’re also hearing about amazing services, and incredible people who are going the extra mile every day for the people they support.
I have been privileged to have people share their stories with me - I’ve been told about excellent end-of-life care, about the financial burdens people face and the paradoxical nature of funding for carers; I’ve been told about broken down wheelchairs, amazing physiotherapists and the challenges of limited transport options.
Beyond all of this though, I have been told about the power of communities, about the inalienable strength that comes from knowing that you’re not the only one who’s going through this, and about the resilience and creativity that arises from being surrounded by people who understand you, listen to you and accept, unconditionally, the truth of your experience.
As MtM progresses, I’m excited to see more of people’s experiences and stories. When I embarked on this project I had no idea what to expect – I’d assumed we would hear some awful things, and I hoped we’d hear some really positive things, but it is in everything that lies between where I now think we will make our most inspiring discoveries.
We need to know about the experiences that should never have happened, and we need to know about the exemplar services, and the best practice that is absolutely taking place across Wales. But we also need to know about the mundane: the day-to-day stuff that someone might assume we already knew, or wasn’t interesting enough for the project, or didn’t really amount to an experience because you’ve already nearly forgotten about it.
We want to know about the flat battery on the wheelchair, the neighbour who watered your plants that time you didn’t feel very well, the service that won’t let you email them even though you can’t use a phone, the lunch club that serves the best lasagne you’ve ever had, the physio who always takes an extra two minutes to really ask how you are or the stairs in your home that are a bit too steep but you don’t really want a stair lift for.
The more we know about people’s experiences of receiving care, of being a carer and of the activities you undertake to minimise the need for statutory services, the more compelling a picture we can build. And the more compelling it is, the easier it will be to effect change, and the easier it will be for Welsh Government, service providers and organisations and people across to Wales, to make more of the amazing experiences, and fewer of the less amazing ones.
To share your story or find out more about the project please visit www.mtm.wales.
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Y Cyfareddol a’r Cyffredin: straeon sy’n siapio bywydau ledled Cymru
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Mae prosiect Mesur y Mynydd yn bwriadu cofnodi profiadau pobl o iechyd a gofal cymdeithasol yng Nghymru. Wrth i Lywodraeth Cymru lansio ei gynllun iechyd a gofal cymdeithasol newydd, mae Katie Cooke, Cydlynydd Mesur y Mynydd ac Interlink RCT, yn cymryd golwg ar sut mae’r prosiect wedi mynd hyd yn hyn a sut gallwch gymryd rhan.
Mae Mesur y Mynydd wedi hen gychwyn gyda straeon yn cael eu cyflwyno ledled Cymru. Wrth i ni greu darlun o sut mae gofal cymdeithasol yn teimlo i’r rhai sydd ynghlwm ag ef, mae amryw o straeon diddorol iawn yn cael eu rhannu. Rydym yn clywed am y straeon hynny yr ydym oll yn gobeithio na sy’n brofiadau gan bobl, ond rydym hefyd yn clywed am y gwasanaethau gwych, a’r bobl anghredadwy sy’n mynd gam ymhellach bob diwrnod ar gyfer y bobl y maent yn eu cefnogi.
Rwyf wedi cael y fraint o gael pobl yn rhannu eu straeon gyda mi – rwyf wedi clywed am ofal diwedd bywyd gwych, am feichiau ariannol mae pobl yn wynebu a natur baradocsaidd o ariannu gofalwyr; rwyf wedi clywed am gadeiriau olwyn wedi’u torri, ffisiotherapyddion gwych a’r heriau o opsiynau trafnidiaeth gyfyngedig.
Tu hwnt i hyn oll, yr wyf wedi clywed am y pŵer o gymunedau, am y cryfder anaralladwy sy’n dod o wybod nad chi yw’r unig un sy’n profi hyn, ac am wydnwch a chreadigrwydd sy’n codi o gael eich amgylchynnu gan bobl sy’n eich deall yn gwrando arnoch ac yn derbyn, yn ddiamod, y gwirionedd am eich profiad.
Wrth i Fesur y Mynydd fynd yn ei flaen, rwy’n gyffrous i gael clywed profiadau a straeon mwy o bobl. Pan ddechreuais y prosiect hwn nid oedd gen i syniad beth i’w ddisgwyl – yr oeddwn wedi tybio y byddem yn clywed am bethau ofnadwy, ac yr oeddwn wedi gobeithio y byddem yn clywed am bethau positif ofnadwy, ond nawr rwy’n credu mai’r pethau sy’n disgyn rhwng y ddau beth fydd ein darganfyddiadau fwyaf ysbyrdoledig.
Mae angen i ni gael gwybod am y profiadau na ddylai ddigwydd, a mae angen i ni gael gwybod am y gwasanaethau sy’n esiampl, a’r arfer gorau sy’n digwydd ledled Cymru. Ond mae hefyd angen i ni gael gwybod am y cyffredin: y pethau o dydd i ddydd y byddai rhywun yn tybio ein bod yn gwybod amdanynt yn barod, neu nad oedd yn ddigon diddorol ar gyfer y prosiect, neu na wnaeth gyfrif fel profiad oherwydd eich bod wedi anghofio amdano yn barod bron.
Yr ydym eisiau gwybod am y batri fflat yn y gadair olwyn, y cymydog wnaeth ddyfrio eich planigion yr amser hwnnw nad oeddech yn teimlo’n dda iawn, y gwasanaeth na sy’n gadael i chi e-bostio hwy er nad ydych yn gallu defnyddio ffôn, y clwb cinio sy’n gweini’r lasania gorau yr ydych erioed wedi ei gael, y ffysio sy’n wastad yn cymryd dau funud i ofyn sut ydych mewn gwirionedd neu’r grisiau yn eich cartref sydd ychydig yn rhy serth ond nad ydych eisiau lifft grisiau ar ei gyfer.
Y mwyaf y byddwn yn ei wybod am brofiadau pobl sy’n derbyn gofal, sy’n ofalwyr a’r gweithgareddau yr ydych yn ei gwneud er mwyn lleihau gwasanaethau statudol, mwyaf cymhellol fydd y darlun y byddwn yn ei greu. A’r mwyaf cymhellol y bydd, yr hawsaf y bydd hi i weithredu’r newid, a’r hawsaf y bydd i Lywodraeth Cymru, darparwyr gwasanaeth a mudiadau a phobl ledled Cymru, i wneud mwy o’r profiadau anhygoel, a gwneud llai o’r rhai na sydd mor anghygoel.
I rannu eich stori ac i wybod mwy am y prosiect ewch ar www.mtm.wales.
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