#mbcgrief

[nohalfmeasuresamj]

10 years ago tomorrow, this amazing little boy was born. It was a scheduled C-section bc he’d been frank breech for weeks before his due date. This is the tired smile and disheveled hair of a momma who’d been up for too many hours learning how to nurse and care for a tiny tyrant. He’s still keeping us on our toes, a day shy of a decade later. And we’re still savoring each moment. #boymom #bcsm #metastaticbreastcancer #mbcgrief (at Baldwin Park) https://www.instagram.com/p/Cp8jBQBODUn/?igshid=NGJjMDIxMWI=

[nohalfmeasuresamj]

Spent the entire day today at my kiddos’ school for field day. Thankful for the ability to be there with them, cheer them on, and get to know the other kiddos in their classes, their teachers and the other parents. Lost another dear friend to #mbc today and it makes me even more thankful for these times of stability when like proceeds a little more “normally” for all of us. PET scan is tomorrow so also on pins and needles for those results. Basically, I’m a hot emotional mess, just a liable to cry or laugh or whatever. But thankful. So freaking thankful. #bcsm #thisismbc #mbcgrief #boymom #metastaticbreastcancer (at Baldwin Park) https://www.instagram.com/p/Cplbykwu6hK/?igshid=NGJjMDIxMWI=

[nohalfmeasuresamj]

Just a perfect “winter” evening! Elliot is the perfect coach for these amazing boys. Patient, precise, and never patronizing. It’s super fun to watch and listen!! #bcsm #metastaticbreastcancer #boymom #mbcgrief (at Baldwin Park) https://www.instagram.com/p/CpOW8JOu1RN/?igshid=NGJjMDIxMWI=

[nohalfmeasuresamj]

When I got pregnant with my boys, I never contemplated staying home with them for long. But when I was diagnosed with stage IV metastatic breast cancer (MBC), I had no choice but to leave my career. Today, I got to help chaperone the 4th grade field trip to St Augustine. While my feet hurt and the hand foot syndrome is flaring, my heart is full. Getting to experience this life with my boys is just priceless and the most important way to spend the time I’ve been given. #bcsm #metastaticbreastcancer #thisismbc #boymom #mbcgrief (at Castillo de San Marcos National Monument) https://www.instagram.com/p/Co8dKkEOG4V/?igshid=NGJjMDIxMWI=

[nohalfmeasuresamj]

Merry Christmas Eve from the Johnstons and these goofballs!! #bcsm #metastaticbreastcancer #boymom #mbcgrief #mbc #thisismbc #stage4cancer #stage4needsmore #dontignorestageiv (at Baldwin Park) https://www.instagram.com/p/Cmjusf0OBzP/?igshid=NGJjMDIxMWI=

[nohalfmeasuresamj]

Hanging with @vgoldbergmbc was a highlight of my day!! #mbc #thisismbc #mbcfamily #mbcgrief #sabcs22 #metastaticbreastcancer (at San Antonio, Texas) https://www.instagram.com/p/Cl5huu8u04I/?igshid=NGJjMDIxMWI=

[nohalfmeasuresamj]

The last week has been full of a lot of family time. We’ve made memories and discovered quite a bit about our growing boys. Thankful for all of it. Thankful for so many things and so very very aware of what could and might go wrong. This combination can be paralyzing at times. As we enter December and all of the things that go along with the holiday season, I’m reminded yet again to take time for quiet, for family, for just being. Because we are all worth what feeds our souls. #thisismbc #mbc #metastaticbreastcancer #boymom #mbcgrief #thoughtsofametastaticmom (at Baldwin Park) https://www.instagram.com/p/CleJR-puTVo/?igshid=NGJjMDIxMWI=

[nohalfmeasuresamj]

Today and every day, I am thankful for my husband, Elliot, and our two amazing boys. They keep me grounded, keep me awake, keep me laughing, and keep me going each and every day. Happy Thanksgiving, everyone!! #bcsm #metastaticbreastcancer #boymom #thankful #thisismbc #mbcgrief #family (at Baldwin Park) https://www.instagram.com/p/ClWWfUxOITu/?igshid=NGJjMDIxMWI=

[nohalfmeasuresamj]

Still enthralled with these pictures @simplyshelbypic took of the boys! These smiles are on regular display around here with school being out. The holiday season is upon us and while we are making fun memories, those intrusive thoughts about this being the last holidays I have with them creep in all too often. It can be a lot to carry in the midst of all the things that a holiday requires of us moms. #bcsm #thoughtsofametastaticmom #thisismbc #boymom #metastaticbreastcancer #mbc #mbcgrief (at Baldwin Park) https://www.instagram.com/p/ClTjYNxu_CT/?igshid=NGJjMDIxMWI=

[nohalfmeasuresamj]

Fun with these kiddos the last few days … a visit to the @orlandocatcafe and to @iconparkorlando for pets, purrs, a hall of mirrors and lots of arcade games. Never a dull moment with these two!! #bcsm #metastaticbreastcancer #boymom #thoughtsofametastaticmom #thisismbc #mbcgrief (at Baldwin Park) https://www.instagram.com/p/ClRlDjUpOJs/?igshid=NGJjMDIxMWI=

[nohalfmeasuresamj]

Still just overwhelmed with the amazing pictures from @simplyshelbypic!! #bcsm #metastaticbreastcancer #mbcgrief #boymom #mbc #thisismbc (at Baldwin Park) https://www.instagram.com/p/ClJaMHhu_vu/?igshid=NGJjMDIxMWI=

[nohalfmeasuresamj]

Back at the infusion center for fluids! My appointment should have been yesterday but the hurricane disrupted treatments again. Thankful for my team keeping a close eye on me and looking forward to hanging with @warriormegsie tomorrow!! #bcsm #mbc #thisismbc #mbcgrief #metastaticbreastcancer (at Orlando Regional Medical Center) https://www.instagram.com/p/Ck1Awy0u6NS/?igshid=NGJjMDIxMWI=

[nohalfmeasuresamj]

Back for fluids and electrolytes!! Hate being tethered to the cancer center for maintenance and hoping for good scans this week. Scanxiety is definitely rearing it’s ugly head on this Halloween. #bcsm #scanxiety #thisismbc #mbc #metastaticbreastcancer #mbcgrief (at Orlando Regional Medical Center) https://www.instagram.com/p/CkYfKGTOujf/?igshid=NGJjMDIxMWI=

[nohalfmeasuresamj]

From chaperoning the book character parade @baldwinparkpta to fluids and prep for endoscopy/colonoscopy tomorrow. What a morning! #bcsm #metastaticbreastcancer #mbc #thisismbc #boymom #mbcgrief (at Orlando Regional Medical Center) https://www.instagram.com/p/CkOIdWYAizY/?igshid=NGJjMDIxMWI=

[nohalfmeasuresamj]

Fluids again today! Thankful my blood work from Monday (after TPA to get my port working) is showing some positive movement. Still feeling yucky but marginally less yucky. #bcsm #bcam #thisismbc #mbc #metastaticbreastcancer #mbcgrief (at Orlando Health Orlando Regional Medical Center-ER) https://www.instagram.com/p/Cj79PE1Lrui/?igshid=NGJjMDIxMWI=

[nohalfmeasuresamj]

Now scheduled to get fluids twice a week and getting bloodwork. Glad my oncologist is keeping a close eye on me while whatever I have gets out of my system. Still on antibiotics and now taking more meds to manage the symptoms. This has been pretty miserable but looking forward to hanging a little with @araffenaud, @hakelsilke, @janicetnbcmets and Beth tomorrow. Have to make time for the activities and people that fill my soul. #mbc #thisismbc #metastaticbreastcancer #mbcgrief (at Orlando Regional Medical Center) https://www.instagram.com/p/Cj0kOiJOCsI/?igshid=NGJjMDIxMWI=