#is this it. am i becoming a stp blog
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im not an artisti but this fuckin game is making me wanna try
call it a draft right now, might go in and edit
anyways
#slay the princess#is this it. am i becoming a stp blog#with a FNAF PFP are ya JOKING me#thats hilarious i should#for the fun of it#anyways this is shifty and longy#hm.m#not sure i like that nickname for him#anyways this too is lesbians. to me.#the long quiet hello my beautiful butch wife.#[points at couple] so which one of you is the concept of transformation change itself the ebb and flow containing the very concept of death#and which of you looks like mothman#the shifting mound#the long quiet#the slayer slay the princess#the princess#sorry for taggginngggg i dont even really want people to see this im just. trying to be brave#and a member of a community of course#soup shut up challenge#burntsoupart
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if you ever want to talk about your thoughts on joyce .. Peeks over the corner of your blog. i love talking and hearing ppls thoughts on joyce sooo much even if they're different from my own!! and your analysis and stuff is always so well thought out
i hope u dont mind if i answer this publicly to take advantage of th request nd get my ideas out ther (also tyvm im happy u like my insane takes on these idiots, iv ben thinking abt them for almost 10 years)
i said a lot here so gnna 'read more' it
iv ben building trans charlie n my head fr, like i said, nearly 10 years. i used to view him as cis bcuz i always try to take as much frm th source material as i can wen i craft my HCs nd i had v personal (stupid) hangups insofar as him explicitly referring to his junk multiple times nd bottom surgery simply not being on my radar as a naive littl trans idiot deep in th sauce tht transmen oftn fall into w phallo being viewed so so poorly
evn still i leaned towards transmasc charlie nd always lovd moments tht let me imagine, for a moment, it being true, like his discomfort w taking off his shirt [hundred dollar baby, charlie kelly: king of the rats, the gang exploits the mortgage crisis, young charlie and mac deleted scenes, etc etc etc], or bonnie yelling abt ppl stealing her "charlie-girl" [the waitress is getting married] which i lovd to see as her accidentally misgendering him while drunk off her ass.
having grown out of my phallo issues (nd if ur reading this and u still view phallo super poorly, please do some research and grow too), ive in recent years fully subscribed to transmasc/nb charlie, and view his timeline something like this:
baby -> elementary: charlie refers to himself as a boy, doesnt "come out," simply has no idea he's afab. bonnie lets him dress however he wants and refers to him as asked. when charlie gets confused about his genitals, bonnie says his dick will grow in later lol, makes charlie wear a dress in public restrooms and tells him its just a game
middle: puberty hits and charlie gets confused and scared. bonnie puts him on blockers w.o explaining them ("my mom used to vaccinate me like every month" [the gang gets quarantined]) charlie goes on content and oblivious. STP acquired because hes "a late bloomer" and his dicks still not growing in?? weird. confides this in mac once, but he doesn't understand.
high: charlie finally registers that he's trans after forgetting theres a health class 1 day and not being able to skip it. throws him for a loop a bit but he becomes actively invested in his goals. he gets to start T and wants to have surgeries. "what guy hasnt done some extensive research on his own genitalia?" [mac is a serial killer]
college (aged): able to surgically transition (ty medicare) and continues on with life as we kno him now
joyce, imo, fits neatly into these views.
as a transmasc nb who came out young nd prefers to be seen as just A Guy by strangers, i grew up v vehemently against anything girly that might get me misgendered, but th more i began to 'pass,' th more @ home n my body i felt, th more and more comfortable i am w femininity, th more i wdnt mind putting on a dress, as long as th general public wd see me as "a man in women's clothes." n my mind, i prescribe something not exactly th same but v similar to charlie.
i see charlie "i dont really identify" kelly as afab and nb. i see joyce as a "character" he originally created to distance himself from the dysphoria of putting on a dress as a young trans boy, but that became part of him as the hard lines he drew in the sand as a child became blurry with age and self acceptance. charlie's comfort with himself allows joyce to evolve into a more solid persona, one he enjoys embodying and allowing to become a permanent facet of who he is. he's ok with being referred to as either. they're both him.
so maybe joyce comes out a bit more outside of the bathroom now.
#ask#pariskim#charlie kelly#joyce kelly#ramblings#i hav lots of thoughts nd feelings nd smday ill draw out charlie's whole timeline th way iv ben meaning to#th same way charlie holds th gang togethr charlie holds my whole viewpoint of iasip togethr#i gave myself a headache writing this post i spent more time xplaining my years of tboy charlie thinking than joyce im sry lmao#but i do lov her
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Found this blog recently and I can't believe that there's someone who also thinks about a lawlight slay the princess au. I remembered thinking that princess/the shifting mound felt so similar to Light. With how she just becomes whatever people perceive her as, not unlike Light. Gosh I even made fanart that has just be rotting in my wip folder for months now. Maybe I should finish it one day.
HRNNNNNGH YES YES YES YOU GET IT YOU FUCKING GET IT!! AUGHH
I think I mentioned this in a post before but I first played stp while still knee-deep in my dn hyperfixation, so I Immediately thought of dn parallels as I was playing it (specifically between the shifting mound and Light as you mentioned. The second I heard the narrator say "She will lie, she will cheat, and she will do everything in her power to stop you from slaying her. Dont believe a word she says." my brain went "Oh! Light Yagami")
Also ofc my obsession with death note as a multiverse, the fact that there are so many versions of Light and L's personalities/relationship/dynamic, just like how theres are so many versions of The Long Quiet/Shifting Mound's relationship oughhhh you See the vision right
Also PLEASEEEEE IF YOU HAVE FANART YOU SHOULD FINISH IT (If you want!!) I NEED MORE STP/DN FANS TO SEE THE POTENTIAL I am actually guilty of having some lawlight stp sketches sitting in my computer as well, maybe I should clean them up a bit and post them sometime... This is genuinely one of my favorite things to think about ever with them but I haven't seen a lot of people who are fans of both dn/stp that have thought of this so I dont talk about it a lot.. oooh if you have any specific thoughts about them let me know I'm so interested to know your ideas 🔥🔥🔥
#asks#death note#lawlight#light yagami#l lawliet#stp#anon your brain is based and awesome#im so glad we see the same vision here thinking about lawlight stp au makes me so aughhhhh#they are doomed in every universe by their own nature. they are intrinsically linked and it is their one downfall etc#it just fits!!! it just works!!!!! trust#i hope you know that half the time i make a lawlight analysis post about a specific dn adaptation#i am always holding back from adding an stp lawlight reference/thought in the tags#it happens So Often but then i have to stop myself because that is Off Topic but oufh
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update: I am no longer in a safe position to mention Palestine blogs. until things become safe here I can no longer answer your asks. I'm sorry.
please do not follow me for donations and if you aren't interested in fandoms. I am uncomfortable with it.
free palestine. stop genocide
transphobia/ableism/discrimination/racism/sexism is completely unacceptable.
fandom stuff bellow
in stars and time(no spoilers please)
inscription(I know the lore)
dokie dokie literature club(I know the lore)
rain world
LITTLE NIGHTMARES:
stagnant static
SLAY THE PRINCESS AUS:
-slay the player (crimson designs)
-unwound tapestry
UNDERTALE AUs:
dustfell player (teal)
dusttale: slay the player (yes it's a stp cross over)
closure au (ask box)
bad influence (comic+ cross over)
dustgrave au (comic+character sheets)
wonderland au
dusttale ocean au/mer au
snake dust
angel au
mafia au
Coraline au
phoenix au
sci-fi au
inmate au
dusttale: speak no evil
dusttale: fiend or foe
symbiot au
monster hunter au
forgive me not
forget me not
otherposts:
music, animation, and...:
crimson hour (crimson's theme)
sans goes feral (shit post animation wip)
murder time trio (immediate murder professionals)
fanfics(romance related content)
LV triangle
forgive me not (dragon shipping au)
thorn bound souls (soul bond au)
bloody scalpel (spicy wip that will soon be up on ao3)
personal reason behind my obsession with time loops:
#lili aus#master post#I'm overthinking this#and no one can stop me#time loops#come at me ground hog day
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Greatest Songs Ever - Part 11 (Self Actualization)
self-actualization [self-ak-choo-uh-luh-zey-shuh]
the achievement of one's full potential through creativity, independence, spontaneity, and a grasp of the real world.
It's been 3 years since I’ve done a “Greatest Songs Ever” list. At that time I was trying to dip into retro music and find songs I connected with that were released before I was even born. That whole process was stressful, migraine-inducing and worst of all, it felt forced. For the next set of songs, I’ve chosen the theme of “Self Actualization”.
I am not able to properly formulate an opinion about music I wasn’t there for, I know this now. Instead, I’ll continue to pull songs I am intimately familiar with to create a quality product on this blog. That’s not me shitting on older generations of music, it's just me finally achieving my full potential when it comes to building a playlist. Let’s get started.
2006 “Tears Don’t Fall” - Bullet For My Valentine
If I were to list the genres of music I love, Metal would be number like 4 or 5. However, every once in a while a song peers it’s head out of the wreckage and catches my ear. From the first guitar chords “Tears Don’t Fall” grabbed me. I’m gonna call it a ballad because it feels like a song that should make me sad. Most screamy emo songs don’t carry the emotional weight they are designed to, but BFMV hits a nerve with “Tears Don’t Fall” that most bands aren’t even able to dream of. Hell, BFMV has yet to release a song that even scratches the surface of “Tears Don’t Falls’” guttural impact.
2006 “The Sharpest Lives” - My Chemical Romance
I know, I know, this nearly forgotten MCR track wasn’t even a stand out when the seminal The Black Parade album was released, but somehow it has stood the test of time in my library. No MCR song more perfectly encapsulates both the aggression and awkwardness of the band’s entire catalog. “If it looks like I’m laughing, I’m really just asking to leave” is just one of the dozen perfect MCR lyrics on this track. I love “Welcome to The Black Parade”, “This Is How I Disappear”, “Mama”, “Teenagers” and the rest of the 100% classic Black Parade, but “The Sharpest Lives” hits harder both sonically and emotionally than most of the songs released in its decade.
2006 “Stop This Train” - John Mayer
Ok, let’s slow it down a bit. This isn't this first time I’ve talked about John Mayer in this blog and not even the first time he’s made this list, but its a crime that “Stop This Train” has never been mentioned with the proper respect on it’s name. Written as a touching anthem about the existential nature of growing old, “Train” is the perfect John Mayer song. It combines his knack for simple and honest guitar parts with lightly metaphoric lyrics that cut directly into the segments of our psyche that make us human. The older I get the more this song makes me cry...and that can’t be unestimated.
2004 “All Downhill From Here” - New Found Glory
NFG has always been a stealthy favorite band of mine. “All Downhill From Here” is NFG at the height of their power. Once upon a time, I was ashamed to “like” any pop-punk outside of Green Day because of the perceived social implications. Jordan Pundik’s voice is just punky enough to turn most people off at first listen, but through the storm and the years, I’ve realized that NFG is kinda my spirit animal when it comes to pop-punk music. As for the song, it's endlessly singable and has a strong bridge, the two most important parts of any song I wish to immortalize on this dumb list.
2003 “How About You” - Staind
This is an admittedly weird one. As the forgotten 3rd single from Staind’s 4th album “How About You” is a song not many people know, however, when I dig into the archives it always floats to the top. Even with its vaguely religious lyrics and somewhat self-righteous delivery, “How About You” is sung with an earnestness not found in nu-metal. Sometimes when I listen to this song I wonder if Aaron Lewis realizes how unique it is to his chosen genre.
2002 “Harder to Breathe” - Maroon 5
This one is a softball. Everyone knows "Harder to Breathe”, everyone loves "Harder to Breathe”. Its become a go-to karaoke knock-out. So much so that people ask me to sing it all the time. Equal parts pure song-writing talent, and light cultural appropriation, “Harder to Breathe” is funky for white-people-music and that’s really all it needs to succeed. All of Maroon 5′s tracks following that first album have a self-aware calculated feel to them, but “Harder To Breathe” is the best that first album has to offer and is a talented first stab at making a name out of something.
2011 “Little Black Submarines” - The Black Keys
Most of The Black Keys tracks have an air of pretentiousness to them that’s hard to get past. I like tracks like “Lonely Boy” and “Howlin’ For You” but neither of them sound genuine. They sound like 2 dorky white dudes playing the part of ironic rock stars, which ultimately leads to them making songs for frat guys who are too cool to listen to typical frat guy music. “Little Balck Submarines” is a HUGE exception to your typical Black Keys song, and its the only time I’ve felt real emotion from the duo.
2007 “Watch Over You” - Alter Bridge
I’ve always liked this song, but it wasn’t until I saw Alter Bridge at the fair a few years ago that I LOVED this song. Alter Bridge gets a lot of shit for being the offspring of Creed, but it's really unwarranted. They are one of the only bands still around carrying the torch for normal-ass rock music. Some may turn their nose up at it, but Alter Bridge has some bangers. “Watch Over You” is your stereotypical, pull out your lighters, ballad, that’s written vaguely enough for it to cover several different relationship dynamics. Its real strength comes from Myles Kennedy’s vocals. He might be the best singer in rock music today.
1997 “My Own Summer (Shove It)” - Deftones
In 1997 I was transitioning from being a hard-core Garth Brooks fan, into rock music in a big way. Bands like Nirvana, STP, Pearl Jam, Bush, and Live had a back catalog that I was swimming in the deep end of. The Deftones, and more specifically “My Own Summer” represented a “cooler” and more edgy version of this new found love of Rock music. Chino Mareno’s vocals during the chorus singing “Shove It!” might have been the most aggressive vocals I had ever heard to that point. I still get the occasional goosebump when jamming this track. I can’t say I was ever cool enough to truly understand why the Deftones were great, but “My Own Summer” is a cornerstone of the musical taste of my formative years.
2015 “Here to Mars” - Coheed and Cambria
13 years and 7 albums in, I was sure I had heard the best Coheed and Cambria had to offer. “Gravemakers & Gunslingers” was even included in this dumb series of blogs. I wasn’t a huge fan of The Aftermath and I assumed C&C were on their way out creatively. Then they released The Color Before the Sun and I was impressed. That album was their first outside of the silly sci-fi narrative they’ve been weaving for 15 years now. Track 4, “Here To Mars” is a surprisingly straight forward love song that has grown into one of my favorite songs of this decade. Seriously, it’s probably a top 5 from the teens for me. It’s as big as older Coheed songs, but still carries a touching sentiment that I just don’t get from the rest of their library. Of all the songs on this list, I recommend this one the most.
Ok, that wasn’t so hard...maybe I’ll bang another one of these out soon. Who knows?
#here to mars#coheed and cambria#the deftones#my own summer#watch over you#alter bridge#john mayer#stop this train#the black keys#little black submarines#maroon 5#harder to breathe#staind#how about you#bullet for my valentine#tears don't fall#new found glory#all downhill from here#My chemical romance#the sharpest lives
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ETF 2.0 : Mega-Blockchains
Salutations dear reader from your ‘Suitcase Fund Analyst’, your humble observer of the periphery, the future and dysfunctions of asset management. As I travel far and wide to debate the prospect of ‘digital death’, recent events have taken me to Dubai and Hamburg. Yet no matter where I go, a common theme follows me – digitalisation, robotisation, artificial intelligence. The New Fund Order I wrote about in my book in 2015 is unfolding quickly, first in academia, then notable authors, then popular media, then event organisers, asset managers, distributors and eventually the common variety fund investor (ahem).
The very phrase ‘2.0’ has become synonymous with this period of change, the 4th industrial revolution, it is as prolific now as ‘hashtag’. Indeed my very own ‘#NewFundOrder 2.0’ was an attempt to capture the mood, moving beyond the dysfunctions of the Old Fund Order and focussing more on Fintech solutions that offer fund buyers a means for survival, indeed even resurrection.
Thanks to subsequent conversations I now even lecture on the impacts of artificial intelligence on funds and fund selection, digitalisation for me has taken on a very personal aspect in my working life. The fact I have seen well over 2000 fund managers in my time, like many, is rapidly becoming superfluous. My life is now split between Fintech and fund investing. Indeed as time goes on, in the space of only two years I may become more remembered as the guy who foretold the impact of digital on fund selection than being a fund selector for the best part of two decades. Whether I am talking about clones, drones or tombstones, Godzilla or the Orwellian Human condition, the digital frontier is not far away.
On the flight out to Dubai I watched again Trainspotting 2 or ‘T2’ for short. Irvine Welsh’s great contribution to modern culture and post pop, post Brexit, post Devolution Scottish vernacular. Euan McGregor’s character ‘Renton’ especially is the embodiment of post revolution dystopia, resistance giving in to resignation that the human condition is flawed but time is inescapable:
Choose Life: “Choose Facebook, Twitter, Snapchat, Instagram and a thousand others ways to spew your bile across people you’ve never met. Choose updating your profile, tell the world what you had for breakfast and hope that someone, somewhere cares. Choose looking up old flames, desperate to believe that you don’t look as bad as they do. Choose live-blogging, from your first wk ’til your last breath; human interaction reduced to nothing more than data.”
Welsh’s cynical futility of social media overlooks the significance to how we can interact, becoming ever more trusting of electronic social platforms over traditional sources of wisdom. Social media is only one part, the dematerialisation of everything into the blockchain coupled to advances in Artificial intelligence question not only capital models but human productivity itself. We head furlong into a Ridley Scott dark futurism of cybernetics and humans struggling to co-exist in 2049 or perhaps even becoming symbiotic ourselves, not human, not machine but a ‘Ghost in the Shell’. Do we want to be the blade-runners, the humans or the machines?
Having been heavily influenced in 2015 by Martin Ford’s book ‘Rise of the Robots’, Mrs JB bought me a new book ‘Life 3.0’ by Max Tegmark. The tagline ‘Being human in the age of Artificial Intelligence’ aptly describes the acceleration in the possible, as he notes: “Will AI help life flourish as never before, or will machines eventually outsmart us at all tasks, and even, perhaps, replace us altogether?”
So too then must our asset industry change. Moore’s Law is unwavering in this respect and no industry gets away Scot free. It has been in a stupor of old business models, commission, star manager culture, asset concentration, marketing, high costs, low transparency, lavish hospitality and poor fund selection. Asset management is beginning to detox from those heady party days. The party is over but for now the masses remain sedated on the methadone of vast market cap weighted Exchange Traded Funds (ETFs).
The reality is that ETFs also face issues, capable of so much more than how they are being used today, they have been held back by a simple presumption that pooled investing is about cramming masses into a single model yet somehow each trying to derive their own utility from it. Clearly it hasn’t worked, trust in asset management and active managers has never been lower, herding patterns are accelerating, as are the daily trading volumes of index products. The optical value of ETF has become a blunt question of only cost. A huge mistake but one being driven by the index manufacturers and misplaced academics and pundits. Perhaps in their minds they chose the lesser of evils. What started as disrupter is now supposed deliverer.
However concern turns to the asset concentration building among ETFs, as a result of using outdated index construction. In simple terms the pooling of vast uncontrolled open-ended structures, funnelled into controlled closed-ended securities, is a recipe for Minsky-like commodity bubbles. Earnings then do not drive price, the order book does, the equilibrium between buyers and sellers. This is an index anomaly and a missed opportunity for ETF. Before you may recall I have written about Tesla, how ETFs might evolve and take lessons from the Automotive industry and Electric Cars. I am now even more convinced that we are only at the beginning of ETF evolution. Fully dematerialised fund structures are the future, all others will become obsolete. It is no coincidence that active asset managers are rapidly buying ETF businesses, the potential for active intellectual property through ETFs is huge. This might be summarised as the move to ‘Smarter-Beta’ or codified Alpha.
However I believe ETFs will go much further in the future. I have already begun to structure and codify what ‘ETF 2.0’ might look like. It will form my next lecture at Fintech Circle Institute. A complete rethink of how ETFs operate, in 2.0 investors will have individual pathways, cross-matching assets for expected return, risk, time horizon and maturity, investors trade through Blockchain within the ETF, fully dematerialised, frictionless trading between investors. The key aspect here is the simultaneous checking of the asset pathway, individual pathway and block pathway – I call this your Asimov test. ETF 2.0 will allow;
• Manage individual investor pathways: for a large neural system, managing thousands of unique investors is achievable with bespoke journeys, targets, risk tolerances within one ETF,
• Combining automated client risk utility with asset allocation, algorithmic trading, and multi factor systematic investing attune to each investor,
• Statistical Arbitrage: identifying anomalies within the market, within and outside of the ETF and exploiting them continuously, such algos can also be used to monitor any behavioural anomalies between matches trades or investors within the ETF or the market,
• Restructuring the pooling of the ETF to assign stocks to match different investor time horizons and risk tolerance, moving us away from a one-basket-fits-all mentality that has underpinned ETFs to date,
• Investors may even be able to interact within the block, commingling wisdom of the crowd, the frameworks needed already exist in the likes of Crypto currencies and Differentiable Neural Computing like AlphaGo.
Tech is full of jargon but safe to say that Blockchain provides us the necessary infrastructure and AI the ability to manage it once created. The ETF becomes the centralised clearing agent for all of its investors and trades within the ETF allowing; instantaneous transparent straight-through-processing (STP) and delivery-versus-payment (DVP), investors still benefitting from novation, fully dematerialised fungible assets and economies of scale (as with current ETFs) but now investor trades are matched inside the ETF not simply pooled and traded outside on the market. It would make the investors within an ETF a complex adaptive community, trading as a block with the rest of the market. Meanwhile ETF 2.0 would communicate continuously with other ETFs, exchanges and trading platforms to ensure correct real time pricing. Everyone shares in the success of the ETF, assets and returns weighted to their individual pathway and maturity. The ETF provider deducts one disclosed cost to administer the algorithm, the trades and investors. While this may feel quasi-ponzi to some; this is no fugazi. The quandary left behind by Madoff (other than his conceit, deceit and fraudulent behaviour) was that the biggest failing of any ponzi is the incorrect estimation of cash flow and matching of assets over time. Eventually they run out of cash. The concept of cash matching individual investors is itself well supported by liability driven investing. The technology to match thousands of individuals has been beyond us, until now.
Once an ETF is repurposed for individual pathways; rather than aggregated pooled outcomes, then assets are coded for cost, time and risk-matched to investors who need them. ETF 2.0 can trade internally, frictionless through block-chain technology, within the ETF and then only traded externally with the market when in net surplus of cash or assets. In effect we can create mega-blocks of investors, providing efficiencies in turnover costs and accurate investor-matched, risk-targeted allocations. This re-design of mutual investing would require a complete re-think in how asset management is structured today: advisers, fund managers, fund investors, custodians, exchanges and clearing houses.
Digital frontier? Suddenly Passive becomes social, benchmarks become meaningless, replaced by block economies. In the GRID we can each view our own pathway to maturity in augmented reality from the comfort of our own home or on the move. Effectively we would create a different pooled model and we haven’t even begun to think about quantum computing and isotopic algorithms and a hundred other cool bits of jargon that few of us properly comprehend. Science fiction is rapidly becoming a near term indication of science fact, the lines are blurring. To some this may sound like the onset of techno-Marxism on asset management, for others its salvation. I will explore the concept in detail in my lecture and invite ETF innovators and coders to come together and create ETF 2.0.
As Jeff Bridges (Flynn) said in the film TRON Legacy, ‘Digital Jazz man…..
Go to Source
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A career in genetic/genomic counselling
Are you are studying a pure or applied science degree that contains genetics modules?
Would you prefer to work with people rather than test tubes?
If the answer is yes to both of these questions, then you might like to consider genetic counselling, or genomic counselling as it is now known, as a career.
I am a Freelance Careers Consultant but was a Genetic Counsellor for eight years from 1999 – 2007. I will attempt to describe some of the aspects of the job as well as the skills and the type of personality that would suit the role. Advice about training, entry requirements, pay etc. can be found on the Health Careers website.
A Genetic Counsellor supports families and individuals that are affected by, or at risk of, genetic disease. In the past, the role mainly focussed on families with single gene defects such as Huntington’s disease, Cystic Fibrosis and inherited cancers. However, as our knowledge of genetic disease increases, the future role will increasingly focus on supporting individuals and families affected by multigenic/multifactorial disease and disease susceptibility; hence the name genomic counselling.
The role involves an element of education e.g. explaining why the risk of having a child with Cystic Fibrosis (CF) is 1 in 4 to a couple that have both been found to carry the CF gene mutation. It also contains a significant amount of counselling e.g. helping a woman that has been found to carry a mutation in one of the breast cancer genes, to decide whether prophylactic mastectomy is the right option for her.
As a Genetic Counsellor, your role is not to advise people on the best option; it is to offer unbiased information, outline options and support individuals and families in their personal decision making. If you have strong opinions about issues such termination of pregnancy or prenatal testing, for example, genetic counselling might not suit you; you will need to withhold your own views in an attempt to support people making choices that will impact on their life. To help improve your skills in this area, you are taught a ‘non-directive counselling approach’ as part of the training.
An interest in medical ethics would be an advantage as a Genetic Counsellor is often faced with ethically complex scenarios. I once saw a family in which there were female, identical twins. One of the woman, who was 25, had decided to have a genetic test to see if she had a mutation in the breast cancer gene, BRCA2. She was found to carry a mutation and was, therefore, at a significantly increased risk of developing breast and ovarian cancer over her lifetime. She had become estranged from her twin sister and, being genetically identical, her news would have an impact on her twin and her future cancer risk. Unlike other areas of medicine, it is imperative to have the interests of the whole family in mind when dealing with inherited disease. With the interests of the family in mind, I discussed the implications of the BRCA2 result for both my patient and other family members, including her identical twin. Although my patient had become estranged from her twin, she felt that it was important that her sister knew about her risk and she decided to contact her, despite her reservations.
As a science graduate, you may feel more able to carry out the scientific component of the job but feel less sure about the social, ethical and emotional aspects of the role. To gain a place on the NHS Scientific Training Programme (STP) to do genomic counselling, you will need to show substantive experience of having worked in a caring capacity and/or have had some counselling experience. It is essential to know if you have the communication skills and resilience to be a Genetic Counsellor before you embark upon the training. You need to be emotionally resilient in order to deal with issues around termination of pregnancy, prophylactic mastectomy and predictive testing for neurodegenerative diseases such as Huntington’s disease. As an example, when you are carrying out predictive genetic testing for Huntington’s disease, you will be telling 50% of patients that they will, at some point, develop a neurodegenerative condition that will result in depression, severe movement problems such as chorea and rigidity and severe cognitive impairment, to name just a few symptoms. This type of news is extremely difficult to give and requires empathy and emotional resilience on the part of the news giver!
Relevant experience for Genetic Counselling can be gained in a number of ways:
Enrol upon a basic counselling course such as those listed here.
Volunteer and train with the Samaritans where you will learn how to talk to people that need support, some of whom can even be suicidal.
Volunteer at a Hospital in a role where you are talking and listening to patients e.g. volunteer at Barts Health.
Volunteer with St John Ambulance e.g. as an event first aider or a community responder.
If you need more information about genetic or genomic counselling, the following websites are a good starting point:
Association of Genetic Nurses and Counsellor – Training to be a Genetic Counsellor
Health Careers – Genomic Counselling
Tracy Bussoli, Freelance Careers Consultant
from QMUL Jobs Blog http://bit.ly/2joJ1bv via IFTTT
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