#in the field researching from a neurodivergent affirming perspective. who have told me they thought that til they met me
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faithfromanewperspective · 9 months ago
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My name is Ariel. I'm the first ever person to be recognised to have a PDA profile (of autism) without autism. And I've realised recently how much the random stuff I do on here, is what I want to be doing for the rest of my life.
So much of my existence has been spent masking, hiding who I really am. And how could I not? When there is no representation of a neurotype anything like mine. When there is no category for it in people's heads either, and so the way they perceive me--and I see it in the way they communicate with me, in their language and behaviour--tends to be a facet, a side, a view of the real me that never shows the whole picture. It's exhausting, never really being known. Existing in fragments of myself to accommodate for people who genuinely do want to know me, but I don't have the language to explain the extent of who I am to them and as a result, the first thing they see becomes everything, in their mind. After that's happened it's hard to explain how it's always not been the case. How I didn't mean to deceive them. I didn't ask to be this way.
I relate to late-diagnosed autistics in this, the confusion of people around them as they unmask. But they often will say they get to fully be themselves in autistic spaces. I don't experience that relief. I feel the kinship of being neurodivergent, and I share the experience of hyperfixations and overload in the ways they present for me. But it's like communicating with neurotypicals, only different. I don't feel a sense of home. I'm like you in some ways. In other ways, not so much. Just different ways. And it's exhausting living in fragments. But this weird partial dual citizenship has superfinetuned my communication skills. My empathy. My ability to understand brains and experiences which are wildly different--and when I'm taking in all of this information all of the time, feeling all this empathy, shifting gears in my brain for every neurotype of every person I lose myself in the experiences of a little--it gets overwhelming. I get overloaded, yes, from the volume of it, and I wish I could relate to empaths more on these things, that I didn't have to expose myself to problematic takes to try. But I also see patterns and trends. I'm hyperaware of authority structures and power and hierarchies as a PDAer. And so some of these patterns concern me. But who can I debrief what I'm seeing, what I'm exposed to every day I interact with people (and I always am interacting with people) with? No one sees it from the vantage point I do. And it's exhausting to have to explain it.
But a silver lining, I guess, is the sense of purpose it brings. The sense that maybe little by little, I can be a part of putting some of the things I see right. There are many areas I'm passionate about, and I talk a lot about them on this blog. It's good to have the outlet. There are many ways of addressing them that I can see, and imagine playing out from my unique perspective, predict how every stakeholder will interact with them. See whether they work, or it's time to return to the drawing board. I'm a PDAer, I'm a natural problem solver. And every effort I make takes a weight off my chest. I'm processing things and doing what I can for them. I can rest knowing I've done my part. I'm not ignoring the injustice, the elephant in the room or in my vision, the thing that when I'm involved with gives me sensory overload (or the closest thing to it) and I'm so empathetic to the people involved with at all times, I can get overloaded from feeling how it must be for them.
I have to look after myself. Manage my energy. But it's hard, because the accounting formulas we're given don't work for me. Even common profiles of neurodivergence--I'm energised by novelty. By connection. By creativity, not by routine. I need each of the carefully constructed tasks in my routine to regulate me in order to be able to do the next, which will regulate me for the next and so on. It's a hard system to put together. I don't know anyone else who has to do the same. And I know a lot of people.
I think my neurotype only assists me with my biggest form of art, the main thing I want to do with my life. I like to joke that every urban planner/designer who graduated from my high school is a PDAer. I don't have a large sample space for that observation. But I'm usually right. We see the big picture. We care about justice and we're good at finding it among fake claims of it. We're natural problem solvers. We're empathetic artists. We're practical at our core. We hyperfocus. And perhaps most of all, we're communicators.
I've heard the main thing an urban designer is is a communicator. No wonder. I shuffle through information and perspectives like a deck of cards I'm trying to sort by colour, number, and shape. I match up people's opposing perspectives and I unpack their fears in front of me. And then I draw. I write. I compose melodies--anything to get this constant stream of ideas out of me and doing something productive. So of course I'm going to be standing up against power abuses in religion, unpacking every way this infiltrates into our lives and all of its impacts. Of course I'm going to dissect colonialism and present ways we can do better. Face and push through the fear that has us trying to lord over others without realising. Of course I'm going to reach out to anyone even vaguely like me that they might not have to be alone in it. I might not have to be alone in it as well. And of course I'm going to understand them perfectly.
Is it a skill? Sure. Is it a neurotype? Absolutely. It's myself, the 'me' I never understood how to be until I understood everyone else. Is it a disability? It disrupts any ability I have to do anything else I or anyone else might want me to do with my days. It tires me out. It overloads me in ways there aren't really any normalised ways to explain and I can't say no to it when I feel compelled to do something. It impacts my mental health. It limits me. But it's who I am. Why would I want to try to be anything else?
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