#ihaveepilepsy
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the-twitchy-life · 3 years ago
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Hi Anon who wrote me about what sounds like some shame around epilepsy.
I'm sorry you're feeling so much yuck right now.
I know it's easy to say, "It's okay to ask for help, you don't need to be ashamed of being a human with human needs," but harder to actually do.
That said, It's okay to ask for help. The first time is really hard. It's scary to go to your employer/HR and say "this is what I need to be healthy and sane, and it's different from other folks because (deeeeep inhale) ihaveepilepsy!"
But you know that stress is a trigger for pretty much everyone. And after that scary first time, it gets progressively easier. And HR's not allowed to tell anyone anything but "Nonny has access to the nap room when needed."
And telling HR doesn't mean you have to tell your friends, or anyone else you'd rather not know. If you feel the need to explain yourself, you can always "I have migraines" your way out of it. Which is only half a lie- they're our less-dramatic, more painful cousins.
I hope you can get what you need, and treat yourself with kindness. It's okay to be a human with human needs, and since you're an epileptic human, you have epileptic human needs. I have no doubt you'll feel ten pounds lighter once you've let someone in. Secrets are very heavy.
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obsessedwithepilepsy-blog · 7 years ago
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Caution I have Epilepsy And I Don't Care What You Think! I am not afraid to say I Have Epilepsy. #ihaveepilepsy #Epilepsy #EpilepsyAwareness #ObsessedwithEpilepsy
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sophiesvoiceblog · 8 years ago
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Day 18 of the March Instagram challenge - 'daily' I have epilepsy. Every day I take a cocktail of medicines to control the seizures. They work and I can now drive and live a relatively peaceful life...except, with epilepsy, you can never take your health for granted. My prescription now affects my digestion and I have to counteract that with another pill. Epilepsy caused occasional bouts of aphasia too. Losing your words is inconvenient for a writer. And my senses of smell and taste can change giving foods a metallic edge. However, that is nothing in comparison to the dulling of my brain that I can sense all the time. The drugs are designed to slow the extra electrical impulses that my brain produces. Sadly that spark is gone and it sometimes feels like the light has gone out too. #fmsphotoaday #fmspad #fmsmarch #fms_daily #daily #quotidien #lequotidien #epilepsy #ihaveepilepsy #electricalimpulses #frontallobe #temporallobe #SophiesVoiceBlog #sophiesvoice
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robgray1972 · 9 years ago
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#epilepsyawareness #epilepsy #ihaveepilepsy #epilepsyawarenessmonth #epilepsywarrior (at London, United Kingdom)
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Hello Everyone. I am looking for volunteers to be in a small documentary about #epilepsy if you live or can get to the West Sussex area (UK) then please get in touch with me ([email protected]) and I can tell you more information. I am looking for all ages will all types of epilepsy who will be will to discuss there condition. November is epilepsy awareness month let's raise awareness @youngepilepsy #epilespyawareness #epilepsywarrior #epilepsyproblems #epilepsyaction #epilepsyadvocate #epilepsydocumentary #unistudent #ihaveepilepsy
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paulafal · 10 years ago
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#hmmmm#iwonder#idoubtit#nooneseesmenow##noonewillevennoticethispost#ihaveEpilepsy#imalreadyinvisible#nobodycares
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jodycampbell · 11 years ago
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@charlestrippy is my hero. He had a seizure the other day and then went out on stage and finished it up with @wethekings #myhero #ihaveepilepsy
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