#i havent rly done any crafting lately bc 1) too insane to find any comfort in it n 2) i think ive actually found migraine meds that work ? | Explore Tumblr posts and blogs

milkweedman · 2 years ago

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I want to apologise in case you already tried it. But I've seen many people with ehler danlos say that shapewear helps. Do you think it's something you could use?

Ive tried pretty much every otc method of keeping my joints in place including shapewear, with the execption of like 1 or 2 that has slightly too many steps for me to muscle thru the executive dysfunction and do (ring splints -_-). I dont actually know if there is a way to keep my joints from subluxating or dislocating with almost every movement but if there is its gonna have to be like. Complete imobilization except in the direction that said joints are actually supposed to move.

#compression (which is part of what shapewear does right ?) helps a ton for my wrists specifically but not for anything else #i remember reading something written by a wheelchair user with eds as a teenager right before it all went to shit for me #they were talking about how technically they could get up and walk its just that their hips literally dislocated with every step #which was agonizing and painful #and i remember thinking holy shit that person lost the universal lottery to an insane degree #:/#indeed.#indeed they did.#eds #chronically ill #sorry ive not posted on here lately #i havent rly done any crafting lately bc 1) too insane to find any comfort in it n 2) i think ive actually found migraine meds that work ?#trying not to get my hopes up because if i go back to 25 migraines a month i will die from despair but i havent had a single one in WEEKS #and thus have been playing minecraft nonstop #sorry guys. havent dumped you for minecraft i just really missed being able to play it without my brain eating itself alive #cherrynika

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