#hungryhungryholly

[lilbsadventures]

Happy Nurses Day to our lifesaving, life giving, life affirming NICU primary nurses!!! Our family wouldn’t be the same without you. All the nurses we know- you change lives every day; you bring light and laughter to the darkness for so many. Thank you for all you do!!! #hungryhungryholly #nursesweek #nursesday #nicunurses

[lilbsadventures]

Holly and me with our heroes!!!!! @karlamintus #hungryhungryholly #24weekermicropreemie #prematurityawarenessmonth #marchofdimes #signaturechefsCLE

[lilbsadventures]

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A post shared by Heather Law (@heatherlawblog)

November is Prematurity Awareness Month, but it’s also the month we tend to look back at what we are grateful and thankful for. I’m going to follow @addie.belle ‘s lead and post this month about things I was grateful for in the NICU. My first- Hollys voice. I didn’t get to hear her beautiful voice until she was 8 weeks old- not a single peep because she was intubated the entire time before that. We were actually afraid that she had paralysis of her vocal chords, and we didn’t know if she’d make any noise at all. The first time I heard her cry was the day they successfully extubated her, and I was in her room with my mom. I heard this TINY noise coming from her isolette. I didn’t even know what it was, but as I got closer I realized it was her cry!!! We cried and hugged, and I was, once again, in awe if my little warrior. Now she yells, laughs, cries, and says Mama. I am grateful for her voice. A NICU moment I will remember, and be thankful for, forever. #hungryhungryholly #marchofdimes #nicumiracle #nicuwarrior #24weekermicropreemie #prematurityawarenessmonth

[lilbsadventures]

Baby's first Franks sausage. She literally ate HALF of my sausage and sauerkraut. #hungryhungryholly #hungryhungryholly #hungryhungryholly (at Cleveland Oktoberfest)

[lilbsadventures]

HAPPY HOLLY DAY!!!!

One year ago today Holly completed her 138 day hospital stay and came home!!! In the past year, she has: -grown 13 inches -gained 13 pounds -had 93 appointments -1 ER visit -graduated from all her specialty doctors- nephrology, ophthalmology, cardiology, physical therapy and ENT -favorite foods: pulled pork, pickles, hummus, bananas, grapes -is taking steps and starting to say a few words, including mama, dada, nana -is in the 50% for weight and 75% for height in the REGULAR growth charts

So, she’s basically rocking the shit out of being a baby, and exceeding every expectation doctors had for her. We miss our Hillcrest NICU crew, but have met new and amazing doctors and therapists that have helped us along the way. We’re SO incredibly proud of her!!!!!

#hungryhungryholly #24weekermicropreemie #preemiepower #nicubaby #nicumiracle

[lilbsadventures]

Happy Fathers Day to my pops!! Holly loved her first Fathers Day Car Show!! #hungryhungryholly #happyfathersday #grandpa (at Stan Hywet Hall & Gardens)

[lilbsadventures]

Happy Fathers Day to Hollys amazing Dad!!! She is the luckiest girl to have you looking out for her, and we are so thankful everyday for you!!! Happy Fathers Day, Nick!!! #happyfathersday #hungryhungryholly

[lilbsadventures]

My girl! Today we saw the eye doc for our 6 month follow up- he took one look and declared, 'well THIS girl doesn't need glasses.' She's got someone important looking out for her, I know that for sure. #24weekermicropreemie #preemiepower #hungryhungryholly #ROP

[lilbsadventures]

So our little family is going to be on the news at 11, talking about our favorite cause, @marchofdimes ! Tune into channel 3 to see an adorable baby, stay for the manic mom #preemiepower #marchforbabies #whyiwalk #hungryhungryholly

[lilbsadventures]

See my vest, see my vest, made of real gorilla chest See my sweater nothing better than authentic Irish setter

[lilbsadventures]

“My little underdog is growing up to be the champion I’ve always waited for.” Nick wrote this amazing piece about his love of Cleveland sports and his love of Holly. . ⛓ in bio! . #clevelandindians #cavs #clevelandcavaliers #clevelandbrowns #clevelandsports #nicudad #nicumiracle #24weekermicropreemie #hungryhungryholly @projectpreemiecle @indians @cavs @clevelandbrowns @nicubeard https://www.instagram.com/p/BpFP-gxgAiB/?utm_source=ig_tumblr_share&igshid=wciy4nta52lz

https://www.projectpreemie.com/pppconnect/2018/10/18/more-than-a-game?fbclid=IwAR2-V0MmEveP5-MBIVLSxoW9lP-sCO6U6SeVpTj69-o_5Yd4rVXaaizJUHA

[lilbsadventures]

HAPPY HOLLY DAY!!!! Two years ago today our sweet Holly cam home from the hospital after 138 days!!! Since last Holly Day, our girl has: Grown 12” (25” since birth) Gained 15 lbs (28 since birth) Has all her teeth Had 30 doc/therapy appointments (down from 95 last year!) NO ER visits!! Graduated from the NICU follow up clinic Still in 50% for weight and 75% for height on the regular growth charts Is 22x bigger than her birth weight!!! . Holly loves laughing, kissing, ‘bubba and wawa’, swinging, running, climbing, ELMO, pictures of ‘nana and baby’. Her favorite foods are pickles, pizza, milk, spaghetti, crunchies (basically any cereal) and blueberries! . We desperately wish we could@visit Hillcrest today to thank her amazing caregivers, but Holly has the sniffles and we wouldn’t dare bring those up there. . Since last Holly Day, our family has been the March of Dimes Signature Chefs Family, been on the news@for MoD many times, I have joined the Family Advisory Council with Hillcrest Hospital NICU, helped out with the Full Circle NICU support group, and now I will be sitting on the Board of Directors for @projectpreemiecle !!! Holly has opened our eyes to a world we knew nothing about, but are glad to be a part of. We are so proud of our little miracle and love sharing her with the world!! . #hungryhungryholly #nicumiracle #24weekermicropreemie #hillcresthospital #clevelandclinic #projectpreemie #nicuawarenessmonth #forevergrateful (at Hillcrest Hospital) https://www.instagram.com/p/Bn6334wAmmh/?utm_source=ig_tumblr_share&igshid=1lsvq00illhgk

[lilbsadventures]

The artist at work #hungryhungryholly

[lilbsadventures]

Holly doesn’t have Instagram yet, but here’s her Happy Fathers Day to you, Nick- who also doesn’t have IG but I know will check this anyways because he loves to see my pictures of holly. She thinks you hung the moon. We love you and we’re proud of you!!! Happy Fathers Day, Nick!!! #hungryhungryholly #happyfathersday

[lilbsadventures]

Today marks a very special occasion for our family- today Holly has (finally!) been home longer than she was in the hospital- 138 days in, 139 days out. Time crawled when she was in the NICU but it has just flown since she's been home. It's amazing to see the wheels turning in her little head while she figures everything out. Love our little family, and so happy she's home where she belongs. #hungryhungryholly #24weekermicropreemie #5monthscorrected #9monthsold

[lilbsadventures]

Exhibit #245 that Holly is indeed my daughter- here she is drinking Pizzazz salad dressing through a straw. #hungryhungryholly #pizzazzpizza #nomnomnom (at Pizzazz Pizzeria)