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The Scariest Thing I’ve Ever Done
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Well, this is terrifying. Paralyzing almost. My hands are literally trembling as I try to punch the letters on my keyboard. When I allow myself to think about the people that might read this. People I know. People I work with. Students I teach. Students I’ve taught. My soon-to-be-in-laws. My exes. Their families (they’ll say, “I told you so!”). My friends. Their friends. My family. My children. All 836 of my Facebook “friends” are potential critics. And they’ll share it with even more people that might know me or will know me, that see me around and will avoid making eye contact with me in Walmart forevermore! When I allow myself to think about that – the people that might read this – every self-doubting, loathing, shaming, insecure demon inside me surfaces in protest. BUT… but. That’s the point, after all. For people to read this. To maybe help others claw their way out of the uncompromising, crippling, and degenerative grasp of the illness known as Bipolar Disorder (no, but seriously, this scares the shit out of me and I can’t breathe).
Here’s the thing though – I shouldn’t be ashamed of it. It isn’t fair we live in a society that shames people with mental illness into silence. That calls us “crazy”. We can’t just snap our fingers and make it go away (but, oh, if I could!). We can’t just act normal, act rational. It’s not something we can tame on command. And we didn’t choose this. Who would choose this?! Who would choose to leave behind a legacy of wreckage? Well, I don’t doubt there are some who’d choose that… As for me, when I think on all the destroyed relationships, the lost jobs, the unfinished projects and departed dreams, the reckless moments that would haunt me for years, the countless days stolen away by infinite darkness… the shame, the shame, the shame – I would never choose this. And yet, despite all the chaos and ruin and regret, it took me about twenty years to get help. Why? The simple answer is, I didn’t want to be Bipolar. I didn’t want people to think I was crazy (Ha! Like they didn’t already!). So, I refused to accept it. I refused to seek treatment. And it got worse. Much, much worse.
About seven months ago, after another life-is-amazing-and-I-don’t-need-to-sleep-and-I’ll-hyper-focus-and-finish-that-novel-and-train-for-that-marathon-and-FUCK!-you-better-stop-getting-in-my-way-or-I’ll-bite-your-damn-head-off-so-feed-yourself elevated state (Symptoms of a manic episode: increased activity, energy or agitation; decreased need for sleep; abnormally upbeat) followed inevitably by a crashing-into-bed-and-plotting-out-the-details-of-my-exit-because-I-just-can’t-live-in-this-world-anymore-and-I’m-worthless-and-horrible-and-you’d-all-be-better-off-without-me depressed state (Symptoms of a major depressive episode: feelings of sadness, emptiness, hopelessness; marked loss of interest in activities; fatigue; feelings of worthlessness or excessive or inappropriate guilt; thinking about, planning, or attempting suicide), I sought the help of a counselor. So, what changed, you might be wondering? What made me seek treatment at this point, after shunning it for so many years? Well, it used to be that I had normal periods of time between the depression and the elevation. It used to be fun and ambitious and productive (euphoric but always beguiling) to be elevated. It used to be the depression came maybe a couple times a year. The unwarranted distrust and insecurity and ultra-sensitivity was fleeting. The suicidal thoughts were daunting rather than soothing. That’s what used to be. It was easier to pretend I was normal then. I was just eccentric! I was special! Like some of the greatest artists and inventors and individuals that made history. I was a mad genius just like Salvador Dali, Vincent Van Gogh, Charlie Chaplin, Ben Franklin, Sir Isaac Newton, Michelangelo (Symptom: exaggerated sense of self). I was able to ride that train of twisted thought for a long long time, because I could finish what I started then, because I was younger then, and there was always another job, another lover, another place that would accept me. But around seven years ago, that all began to change. The depression seized more frequently. The elevation became less euphoric and more agitated, even rageful at times – lashing out at and rejecting the people I loved most. I started projects but never finished them. It became more and more difficult to go to work, and when I got there, I had to convince myself out of the car and into the classroom. In the classroom, I felt like an alien. I couldn’t stay on track, couldn’t focus my thoughts (Symptom: rapid and frenzied speaking, racing thoughts). I felt like I was disconnected from everything around me, like I wasn’t real (Symptom: dissociation). And then over the past year, the episodes seemed to be crashing right on top of each another with no reprieve in-between. It was relentless, crippling. One day of unbridled energy followed by two days of extreme irritability followed by one day of bed-ridden depression and then rinse, lather, repeat. Weeks, months, a year like this. The darkness that occasionally consumed my thoughts mutated to a pervasive utter blackness – leaving a void where hope and happiness used to visit. My fiancé pleading with me to get out of bed. My 10-year-old son asking me why I was so angry. My six-year-old daughter saying, “Mommy’s sick again.” I hated myself. I couldn’t pretend I was perfectly healthy – just eccentric – anymore. I was sick. Very sick.
You see, Bipolar Disorder is a degenerative illness, and by denying myself treatment, I had enabled a progression into periods of rapid cycling, meaning I was basically Bipolar on steroids – my depressive and manic moods shifting in a constant unpredictable shitstorm. This is the way it was explained to me by my counselor (in much more eloquent terms). She said that in the same way progressive diseases like Cancer will eventually cause organ failure if left untreated, Bipolar Disorder gradually diminishes brain function if left untreated. Oh, did I mention this conversation took place just a month ago? And, perhaps you remember that I went to see her the first time about seven months ago? No, it didn’t take that long to diagnose me. It took that long for me to commit. I honored my appointments only twice before I disappeared for another two months and then for another five months after that (I was still battling my desperate desire to be “normal”). During those initial appointments, I either purposefully omitted the symptoms of my elevated states, or honestly didn’t know they were elevated states. Hard to tell. On the one hand, for most of my life the elevated states were something to look forward to. They were a tremendous relief since they often followed a long period of depression, or, they were a welcome rush of intense energy and focus and ambition after a period of normal moods and routines. On the other hand, there was a part of me that hoped, if I had to be diagnosed with something, that it be depression and/or anxiety – just not Bipolar, please, not that! For some totally illogical reason, having depression and anxiety seemed more socially acceptable to me. People posted about their depression and anxiety on social media. My students openly discussed their struggles with them in class. Lot’s of people are depressed and anxious! Poor reasoning but, I convinced myself that my elevated states were just “normal” times when I wasn’t depressed. After all, I didn’t behave like someone that was manic. I was nothing like Bradley Cooper’s character in “Silver Linings Playbook”! I didn’t suddenly become totally irrational. I didn’t spend everything in my bank account in some obsessed frenzy. I didn’t abruptly start making good on all my wildest fantasies and desires. I didn’t incoherently speed-talk and jump around from one interest to another. No, it was never that pronounced. Or, was it? I’d certainly been called Bipolar enough in my lifetime – and not in a concerned or encouraging way. More like I was being called a “crazy bitch”. It was a bad word. And I did spend [a lot] more money than I should when I felt “good”. Like, when I bought that boat with a personal loan on a 50% interest rate. Or, when I financed that international trip while negative in my bank account. And on all that professional camera equipment when I decided to be a video editor, and on this website two years ago when I decided to be a blogger (Perhaps, now, I’ll finally make use of it?). And the hundreds of dollars I invested in gear when I was suddenly inspired to run a marathon (but I did follow through on that one, thank you very much!). Oh, right, I guess I do jump around from interest to interest when I’m feeling “inspired”. I’m going to be a motivational speaker, no, a novelist, no, a personal trainer, no, a corporate trainer, no, a filmmaker, no, an entrepreneur, no… the list goes on and on. But these things felt so good. Even though I had to clean up the wreckage whenever I smashed back down on the pavement. The rubble of estranged relationships, busted bank accounts, retired jobs. So yeah, I went with depression and anxiety, masking the symptoms of mania. And I refused medication (because all I really needed to do was get my shit together, not numb myself with zombie-making pills). Until the progression to rapid cycling imprisoned me and I sulked, defeated, back into therapy five weeks ago.
After years and years and years of heartbreak and rejection and confusion and self-loathing and denial and protest, I began taking a daily mood stabilizer and seeing my therapist once a week. It took a couple weeks before there was any discernable change, and after four weeks, the change in my behavior was nothing short of striking. At that point, I realized I hadn’t been swallowed by the black void in three full weeks – a record time in nearly a year. I hadn’t lashed out in rage at anyone either. And the most surprising thing? I wasn’t the living dead. I had heard these nightmare testimonies about people with Bipolar Disorder beginning medication and going numb, like they’d been lobotomized, and that panicked me. I didn’t want to stop feeling, I just wanted to experience my feelings in a regulatory fashion. And I was, for the first time in years. Now, I want to be very careful not to sound like the poster girl for medicating. My strong belief is that we over-medicate in this country (but that’s for another post). No miracle has occurred. I’m not “cured”. In fact, there is no known cure for Bipolar Disorder. It can be managed, with a combination of medication and psychotherapy. Some days are better than others. But every day, I still battle my demons and the life-long conditioning of patterns, emotional reactions, and behaviors. My recovery is a continuous journey where no arrival point exists. But I have hope today. I wake up motivated to get out of bed without needing the boost of mania. I carry out the responsibilities and routines of the day without fighting off panic or becoming despondent. I fall asleep without the “lulling” melody of my own death dancing around my thoughts. Yes, I still get anxious and angry and sad and overly eager. The difference is in the way I’ve responded to those feelings since starting treatment. My awareness of the condition and the symptoms that accompany it, along with my medication, has helped me acknowledge my feelings before acting on them.
I hope it’s not the honeymoon period. I hope it lasts.
It’s early yet.
But if this remarkable change is here to stay [with dedicated treatment], I can’t help but feel frustration with myself for not seeking help sooner. Just to think on all the chaos and anguish I could have spared myself and others… But I’m here now, and perhaps it’s exactly where I’m supposed to be – writing this blog so that you may read it and be inspired to act now. For yourself, or for someone you know, before it’s too late. Make no mistake, this disease does kill. The suicide rate for people with Bipolar Disorder is twenty times that of the general population, and nearly 30% will make a suicide attempt at least once in their lifetime.
Don’t pity me, and please don’t fear me. I’m not very different from you. I have a family, friends, a career, hopes and dreams and struggles and fears. For those of you that know me, I’m still Jen. Maybe I’m even a better Jen – my greater and more genuine self. As a society, we need to reframe the way we perceive and speak about mental illness. Help me promote a fair image for those individuals and families that are afflicted with it – so they won’t suffer in silence. So they get help.
My name is Jen Hogue, and I’m diagnosed Bipolar II. Today, I’m in treatment. I take my medication everyday and see my counselor every week. I have a sense of hope that I haven’t had in far too long. I still don’t know if I’ll be brave enough to publish this. But I hope I will. After all, it’s often in the greatest risks we take that we find our greatest triumphs, and our greatest gifts to one another.
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