#fuck MCAS
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Me, panicking about breaking the lease: Maybe the mold and air quality problems in the apartment weren’t as bad as I thought they were. Maybe it was all in my head. Maybe I was wrong to listen to my instincts and my body, and—
*panic interrupted by an asthma attack triggered by my picking up an item we had forgotten to decontaminate from the Mold Apartment *
Me: Ah. Nope, fleeing was actually the right choice. Never mind.
#about me#Jfc maybe one day I will stop unintentionally gaslighting myself#and will actually stop second guessing things#at least my inhaler works well!#fuck MCAS#Fuck our property management company#and the maintenance people who kept screwing us over#and fuck the contractors who cut corners and turned our new apartment building into a toxic hell hole
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Me, fretting over why I feel like absolute death today, worried I’m going into a rebound migraine, mast cell flare up: was I exposed to an allergen?? did I get glutened???? AM I ALLERGIC TO THESE IRON SUPPLEMENTS???
My period showing up early:
#chronic health tag#gif warning#tw flickering#god DAMMIT#stupid fucking allergic reaction to my own fucking hormones#aaaaaah#MCAS
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I just don't understand people who don't do a COVID test when they get sick
#like yes of course for some people thats not affordable#but for the vast majority money isnt the issue#i picked up a sore throat and congestion over the weekend and figured it was allergies#i was pretty damn sure but i coughed last night and thats unusual#so i bit the bullet and at 7 fucking am this morning i went and found a covid test before work#good thing too because by the time i got to work the test was positive#because of that im within the window for paxlovid#and i havent really exposed that many people#my brother in christ this shit kills people#its not the common cold#the responsible thing to do is to test when youre fucking sick#and isolate if you know its covid#i have no idea on what criteria i qualified for paxlovid but im guessing it was asthma#heres hoping my mcas doesnt throw a tantrum about this#its entirely possible i caught this from my coworker#who did not test at all and stopped wearing a mask after a day or two#they know about my health issues and i cant help but feel hurt about how little they cared about the possible consequences to me#i should be fine btw im not even feeling particularly sick#salt baby talks#disability#chronic illness
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If... if Drew's pants were torn up by the train crash... was he just pantless until he got through the schoolhouse???
Yes. Yes he was.
“The crash really tore my pants up, I did what I had to, man! At least I know how to sew.”
#“Ollie I’m trying to sneak through the Schoolhouse. But my pants are shredded and the clap of my asscheeks keeps alerting Miss Delight“#No Pants?#this made me laugh my ass of in class#thank you MCA#Drew’s pants are just Miss Delights skirt sewn to his shirt#phrart#character design#art#ask Drew#ask the three d’s#the three d’s#poppy playtime#poppy playtime oc#drew poppy playtime#better his pants then his legs(his legs still got considerably fucked up lmao)
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MCAS is going turn me into the Joker what the fuck do you mean I just went into anaphylaxis from provolone cheese, the temperature, and/or vitamin C be for fucking real!
#stupid fucking disease#MCAS#pointless fucking condition#dumb bitch histamine ailment#fucking SICK OF YOU
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sometimes i wish i could just sleep all day, because at least i don't have to deal with the annoyance of mcas when i'm asleep
#vent#differential diagnosis#i should call my allergist FUCK THEYRE CLOSED ON FRIDAYS#it's like......... goddammit right#mcas
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If one more person hears ‘I’m having a significant reaction to your [medical device], it’s impacting my sleep, my heart rate, and I have a condition that means the reaction will get worse if I tough it out’ and goes ‘well, if u can’t push through, it’s unfortunate….👀👀👀’ like wtf????
#y’all I’m just tired#everyone is like#oh haha yeah we don’t have a sensitive skin adhesive#guess you can’t get the testing done#hm#????? is this???? not a problem???? when a good chunk of the patients have MCAS#what the fuck
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so funny how i started developing random allergies to foods i used to enjoy n literally like the sun . and heat . in 2020/21 and i was blaming it on covid the whole time but i just now have come to the realisation it was probably the 3rd year architecture degree that acc drove my body to breakdown self annihilation mode . and until recently was planning on doing my masters too despite the trauma of it all wow im literally a fucking idiot donkey
#like girl it was uni the whole time .#anyway i think i have mcas 🎀 yayyyy my list of foods i cant eat is getting smaller n smaller btw#i literally also developed an allergy to my fucking laundry detergent and it was giving me asthma phlegmy cough every day for months#i love being chronically fatigued n breaking out in hives constantly its not pathetic at all
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I love when the state gives you a measure of material disability support and the instant it begins to positively impact your function they're like "well you've Graduated from this program, innit?" No mate that means your disability support is working and I need it to live
#Brother I have autism and epilepsy and familial hemiplegic migraine and MCAS and#Mystery Autoimmune Disease and cerebellar atrophy and suspected small fiber neuropathy and chronic kidney disease#And severe asthma and gasteoparesis and POTS and VT like can I get a fucking break lmfao
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so every time i go to pick up my meds i must stand in the Allergy Corridor, so named because everytime i stand there my hands and feet swell and itch So Much
and the last allergy corridor incident didn't seem to excite my immune system too much
but. this morning i got some baby hives from sticking my hand in my bracelet drawer?? and though they went down with allergy meds my throat started hurting? and my dinner, which is literally black beans, rice, salt, sugar, and coconut milk, has made my feet swell like crazy and my fingers ain't so hot either
and like. maybe i am sensitive to coconut? but i've never previously noticed that
(to add insult to injury the dinner (Vietnamese dessert inspired, because when i feel bad i want dessert for dinner) ISN'T EVEN THAT GOOD but is so filling i haven't finished it and don't want to eat anything else either)
it would be great if the allergy test i took, like, worked, or if the blood panel showed an allergy to anything, because as is i'm just floating in a haze of Sometimes Body Bad with no way to get out.
...oh also my eye thing is worse right now? can't tell if that's The Mucus from itchy eyes or inflammation related
ANYWAYS
stopped eating the food giving me a Reaction, offered leftovers to roommate (tho this meal was. extremely cheap), cleaned up after myself, gonna eat more allergy meds and maybe see if a shower makes the itching stop
#ghost speaks#definitely not allergies#<- new Probably MCAS But Fuck Me If I'll See A Doctor And I'm Not Dying (That's How They Fuck YOU) (definitely not PTSD talking) tag#also my voice sounds. not correct. god i am so lucky this only happens rarely 2 me but i wish it happened never to anyone actually
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"May contain wheat and dairy ingredients"
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[image id: the words "cromolyn sodium my beloved" in outlined hot pink font, on top of a background of transparent mast cells and images of the chemical formula for cromolyn, a cromolyn box, plastic ampules, and a foil packet of cromolyn. end id.]
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Okay for real this time, I get my first set of allergy shots on the 14th!!! No more of being allergic to air in a few years! I can pet my dog without suffocating and be around my birds without sniffling, I can be lazy bones and not dust for a couple of weeks instead of weekly— and maybe some of my hearing might come back???
Im so excited to breathe properly and not be itchy 24/7
#personal#cw blood#Fuck you grass and trees and bushes and dust and dander and and—#I’m gonna be able to breathe soooo good#allergy shots#chronic illness#disabled#ehlers danlos syndrome#chronically ill#mast cell activation syndrome#mcas
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allergy resident today was getting the medical history from me and at the end of it they just kinda sat back and were like "wow I feel kinda bad for you, you really just got like everything"
later asked my allergist if my MCAS was controlled and he just went "ha! no."
#love doctors with zero bedside manner#cut the bullshit nothing they told you in med school will help with this kind of thing#no placating or validating tone is gonna change the fact that i have a poorly contrllled deadly allergy disorder#and i will spend the rest of my life on boatloads of expensive meds#'oh that sucks'#thank you for the helpful remark#its so beyond the realm of most peoples understanding#that they dont know what to say and even when they try it lands nowhere near helpful#cromolyns got fucking hands today#also not thrilled about having to go on this med#my insurance wont cover the xolair without me trying pepcid and singulair first#fun fact in between now and when i last took it singulair has acquired a black box warning for causing depression#feel like that explains a lot about my childhood i was on it for like five years#not a very happy camper today#salt baby talks#ehlers danlos syndrome#chronic illness#postural orthostatic tachycardia syndrome#disability#mcas
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Shit. Another bad allergic reaction. 🥲 I can’t even tell which high potential MCAS trigger it was today.
#crossing my fingers not to end up in the ER#come on body#please give me a break#MCAS#personal#batwynn talks#it might have been the surprise sundried tomatoes#or the mold we found in my closet#or the mold we found around the waterheater that blew today#or the intense heat while we tried to find the switch to turn that off#or fucking anything really#fml#i’m so tired#I want to go to bed perminantly
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