#foxg1syndrome

[myfoxgirl]

Friday! Already?! Yuna made a walking record this week!! She walked 300 feet on her walker. 😃🥳🥳 Her physical therapist and teacher were so proud of Yuna, and both bragged about Yuna’s achievements 😁 Go, Yuna! Go, Team Yuna 👏👏. #MyFoxGirl #GoYuna #sweetYuna #TeamYuna #FOXG1 #FOXG1syndrome #HappyFriday https://www.instagram.com/p/CSg5WlynVTN/?utm_medium=tumblr

[thecaregiverspace]

this kid. he gets me. . . . . . . . . . . . #family #brother #littlebrother #brotherbear #different #unique #faith #strength #strong #brave #smiles #epilepsy #georgia #porchswing #siblings #siblinglove #foxg1syndrome #foxg1 #sunshine #love #specialneeds #specialneedssiblings #specialneedssister #facesofcare #specialneedsfamily 📷: @libbyclare https://ift.tt/2H0ukrN

[myfoxgirl]

Weekends are Daddy's yummy pancake day! Josep rose 🌹 and New Dawn rose 🌹 from our garden are today's special guests at our breakfast table. Yuna enjoyed a long sleep into the late morning 😀 and joined us later with lots of appetites🤣. We wish you all a peaceful weekend.❤️❤️ #MyFoxGirl #Pancake #MyFoxFamily #theBestDaddyEver #Rose #FOXG1 #FOXG1syndrome https://www.instagram.com/p/CSkhUKmHo9I/?utm_medium=tumblr

[myfoxgirl]

Daddy wears many hats for Yuna. Every morning, daddy becomes Yuna’s hairstylist 👧👩‍🦱👩. Thank you Daddy ❤️ #MyFoxGirl #SweetYuna #theBestDadEver #GoodMorning #FOXG1 #FOXG1syndrome
https://www.instagram.com/p/CSdTka5Njyw/?utm_medium=tumblr

[myfoxgirl]

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A post shared by My Fox Girl (@myfoxgirl)

Happy Yuna! #myfoxgirl #여우네집 #FoxG1 #FOXG1syndrome #theBestDaddy https://www.instagram.com/p/CS4gTEMnyT7/?utm_medium=tumblr

[myfoxgirl]

Yuna likes 1) listening and watching BOOK on a screen, and 2) spending time with her beloved brother Joon. Of course, Yuna is happiest when she reads BOOK with Joon! #MyFoxGirl #FoxG1 #FOXG1syndrome #GoYuna #theBestBrotherEver #Vooks https://www.instagram.com/p/CSZwepOn77F/?utm_medium=tumblr

[myfoxgirl]

It is a hot day, isn't it, Yuna? Yuna cannot control her body temperature readily. So hot or cold days can be difficult for Yuna. Yuna was more tired today, according to her teacher, but she came home safe and happy. Now Yuna is drinking Sikhye, a traditional sweet Korean rice beverage, specially prepared for Yuna by her caregiver aunt! Love is everywhere, even in her drinks. #MyFoxGirl #FoxG1 #FOXG1syndrome #GoYuna #Sikhye #theBestDrink https://www.instagram.com/p/CSXdPnDHC3m/?utm_medium=tumblr

[myfoxgirl]

Daddy wants to take a delicious weekend nap, but Yuna has other ideas. The world is full of surprises and Yuna intends to explore it. No time to nap! 😁 #MyFoxGirl #foxg1syndrome #FOXG1 #GoYuna https://www.instagram.com/p/CSU7AK0n99M/?utm_medium=tumblr

[myfoxgirl]

Weekend mornings bring us the world's best pancakes, Daddy's pancake!! So delicious and so beautiful too. Yuna quickly finished off pancakes mixed with avocados and blueberries. 👍😃 #MyFoxGirl #GoodMorning #theBestDadEver #MyFoxHome #Pancake #FOXG1 #FOXG1syndrome https://www.instagram.com/p/CSR3_YdHU2a/?utm_medium=tumblr

[myfoxgirl]

Yuna, heading to school on the last school day of the week. It was a fantastic week for Yuna. Eating and exercising all A++++ Thank you Yuna and have a wonderful day! #MyFoxGirl #FoxG1 #FOXG1syndrome https://www.instagram.com/p/CSPTSkxHEKE/?utm_medium=tumblr

[myfoxgirl]

A happy message from Yuna's school! Of course, that's why Yuna wears the bib saying, "I ❤️ Avocado" 😘😘🥑🥑 #MyFoxGirl #SweetYuna #FOXG1 #FOXG1syndrome https://www.instagram.com/p/CSKpCKinGUB/?utm_medium=tumblr

[myfoxgirl]

Yuna is heading to school at 7:10 AM every morning. Have a wonderful day, our sweet Yuna! #GoodMorning #MyFoxGirl #SweetYuna #FOXG1 #FOXG1syndrome https://www.instagram.com/p/CSKE5RXH3z-/?utm_medium=tumblr

[myfoxgirl]

Yuna just came back from school, happy and smiling 😁 This is the 4th week since Yuna resumed her in-person class. So proud of Yuna! 💕 #MyFoxGirl #FoxG1syndrome https://www.instagram.com/p/CSH95LOncBM/?utm_medium=tumblr

[myfoxgirl]

We’re renovating our garage to set up a wheelchair lift for Yuna. Today was the first day for this exciting project. Looking pretty good! #MyFoxGirl #MyFoxProject #MyFoxHome #FoxG1syndrome https://www.instagram.com/p/CSFonFRnLWi/?utm_medium=tumblr

[myfoxgirl]

Dive into the world of FOXG1! Every day is one day closer to the cure for the FOXG1 syndrome. So excited to start another day. #FOXG1 #FOXG1syndrome #FOXG1research #MyFoxGirl https://www.instagram.com/p/CGC69sFHOtY/?igshid=156j7skzby8q0

[myfoxgirl]

Yuna's story appeared on the front page of the New York Times today! https://nyti.ms/2qU3Yia Reading this beautifully written article brought me so much emotion, and I could not sleep last night thinking about Yuna and the kindness that people showed to Yuna and our family. I can't thank enough to friends, colleagues, and everyone who sent me kind wishes and cheering messages. #MyFoxGirl #MyFoxFamily #FOXG1 #FOXG1syndrome #FOXG1research (at Oregon Health & Science University (OHSU))