#first time in a few years i haven't had to wfh over these few days and i'm getting weird with it

[tiredeg]

writing fanfiction in my childhood bedroom over christmas like yeah these posters saw 15 year old me doing this and will continue to witness this every year apparently

[drdemonprince]

Can we really expand our window of tolerance as autistic people? I’ve been working on that kind of thing for so long and I can’t tell if I’ve made any genuine progress or if I’ve just unconsciously doubled down on masking :(

We can! But our expanded distress tolerance can't come out of nowhere. Something has to give. So for example, for me, I have way fewer sensory issues these days than I used to have, by a wide margin, and I have significantly less social anxiety and don't need much social recharge time on the level that I used to. I have more distress tolerance for sensory input and for social stressors now than I ever have before -- but this has required lifestyle changes and unmasking in order to get there. Let me break down both these improvements and how they happened:

Even as recently as a year ago, I would have terrible sensory meltdowns on a regular basis. But I haven't had a single sensory meltdown in months, maybe not even a single one for the entirety of 2023 so far? And that's because I have a) cut out caffeine, dramatically reducing my physiological stress levels, b) cut back on some workplace stress by reducing my commitments, c) stopped taking on additional projects outside of work that I didn't want to do and that only caused me stress (workshops and talks), and d) began working from home far more consistently, and made myself a wfh office that is more comfortable.

Now I operate from a really solid base of sensory comfort most days and I'm not overloaded with information or overwhelmed with obligations. This means I am far more tolerant of screaming people on the bus, the upstairs toddler slamming her feet on the floor, ambulances blaring by, noisy concerts, people bumping into me at the bar, etc.

I also am, for the first time in my life, clear-headed enough to recognize when I am starting to experience sensory distress, and can intentionally put on sunglasses or pop in ear plugs or remove myself from an upsetting situation more quickly. I had to experience what being relaxed and not overstimulated felt like, and get accustomed to living that way, in order to recognize subtler signs that I was feeling shitty and take steps to address those small annoyances before they exploded. I can handle a lot "more" in an intentional way now because I built my life to allow "less." My overall distress tolerance has still expanded -- but it's because I stopped masking and began attending to my sensory and stress regulation needs.

For the social piece, my distress tolerance has also gone up due to unmasking. If I was still motivated by passing as NT or being socially acceptable all the time, I'd be so overwhelmed being around people and worn down by every interaction. I also wouldnt be able to advocate for myself. But in the past few years I've become more and more openly weird and outspoken in my needs and true feelings, and I've recognized that the right people actually love me more when I do so and show up for me, and so being honest or even difficult to deal with is not really a threat.

This means I just don't experience much distress being honest or difficult to deal with anymore. I really can tolerate the discomfort of telling someone they're wrong or that I'm hurt without freaking out about being hurt or abandoned, because I've had a lot of good experiences with it and because I enjoy being unmasked so deeply that I just can't put my personality back in a bottle.

Masking lowers distress tolerance because it frays your nerves with stress and wears you out and bars you from ever getting to attend to and regulate your discomfort when there are signs of it happening. In order to increase your distress tolerance, you actually have to learn to better honor your discomfort early, and preventatively, so that you don't bubble over into a meltdown after days or weeks of ignoring your needs.

I think some people think distress tolerance is about becoming more tough, but it's quite the opposite. We become more resilient by getting better at recognizing and attending to our hurts.