#fibrous dysplasia

[soongtypehuman]

Update on Things

It’s been almost 4 months since the craniotomy that removed the tumor that was crushing my brain. The hope was that the surgery would cure the mild to moderate cognitive issues I was dealing with, or at least stop them from progressing. I’m sorry to say that wasn’t the case, and many of the problems have gotten dramatically worse.

I don’t want to go into too much detail, least of all because it’s boring. My short-term memory, ability to read and write, as well as speak fluidly, have all been affected negatively. I’ve just had another EEG to see if the seizures are continuing, and will have another MRI this week to assess the amount of damage to my brain from the tumor that had been affecting it for years and any damage caused by the surgery, and to check for a stroke. It’s a lot of fuckery I don’t have all the answers for yet. Once I have answers, then I can begin a more exacting treatment for the problem(s).

Unfortunately, as I said above, the problems are affecting my ability to write.

Planning and outlining have always been the backbone of my writing process, but even more so now. Everything is slower and requires a lot more concerted effort and lots of revision.

In short, I’m not able to create as quickly as I once could, although I’m hoping that will change eventually with enough rehab and figuring out new ways to work around my setbacks.

Ideally, I’d like to continue posting every Sunday, just as I have for over a year, but I might have to accept the idea that, as far as things go at the moment, I might not be able to use my writing time for both a weekly ficlet while also finding the time, energy, and focus to work on longer fics. For the time being at least, I might have to switch to posting every other week so I can allot more time and attention to the longer fics.

I just don’t know yet and can’t set anything in stone either way.

But I did want to say something about all of this because I was worried people might see me posting less frequently or posting work that isn’t as long as it used to be and think that I’ve gotten lazy or lost interest. That couldn’t be further from the truth. If anything, my love of this series is one of the few things in my life that brings me joy and that I can count on (my most beloved @monotremer being the main source of that), and one of my biggest motivators in rehab is trying to return to being focused and prolific where my writing is concerned. But I also have to accept that some things may never return to the way they were.

In any event, I hope to keep posting work regularly, but hope everyone understands if I’m not always able to do that.

Updates on what’s coming:

I was working on a longer fic to post to the Data/Lore collection today, but didn’t finish it, so there’s a shorter ficlet in the non-explicit Positronic Rivalry collection instead. The D/L fic should be ready to post next Sunday (fingers crossed). And while all that’s happening, I’m still working on the multi-chapter in the main series that got much bigger than I originally intended. It’s slow going, but it’s going, and my hope is that it’ll be ready to post in July.

[dr-sameerdesai]

Big care for little patients! Dr. Sameer Desai provides expert pediatric services for injuries, infections, genetic conditions, organ diseases, developmental delays, behavioral issues, and functional disabilities.

[dangerouspastadeputybanana]

Ignore the frame of the ring doorbell, But...

I'm not looking Too overweight anymore, not noticeable gut or even boobs going on.

Weight isn't a bad thing do not get me wrong, I've struggled with it for my life, drastically underweight growing up and now in adult hood stress eating and then discovery of having polyostotic fibrous dysplasia mccune-albright syndrome means that weight itself is a risk of bone breakage for me 🤷‍♂️

It's a werid feeling atm

[regale--tress]

Hey I'm late to the lore how does the pain feel? My mom had a similar experience with Fibrous Dysplasia if I remember correctly

She describes her bones as Swiss cheese btw

holy shit this is crazy im actually being taken seriously by the doctors at the hospital and they're trying to actually diagnose my chronic pain

[supriyapuram]

Bone Disorders Notes And Short Essays

[ptmasterguide]

Fibrous Dysplasia: A Rare Bone Disorder

Fibrous Dysplasia Fibrous dysplasia is a rare bone disease that causes abnormal bone growth. It occurs when normal bone tissue is replaced by fibrous tissue, which is a type of connective tissue. This can cause bones to become weak and prone to fractures. It can affect any bone in the body, but it most commonly affects the bones of the legs, arms, ribs, skull, and pelvis. The condition can be…

[strangeartificer]

Easy test for if something is or isn't body horror:

Is the change in the body from violence or was the character born with the disability/disfigurement? PROBABLY NOT BODY HORROR!!!!

Examples of body horror: Brundlefly from David Cronenberg's The Fly, The Thing from John Carpenter's The Thing, zombies are one of those things that can be considered an overlap between gore and body horror.

NOT examples of body horror: Shelley in American Horror Story Asylum, anything in any of the Saw movies, The Scene With The Ear (you know which) in M3gan, The Human Centipede (that's Medical Horror more than anything).

AND ABSOLUTELY FUCKING NOT: Anything that would be considered as a disability you might come across in day to day life like amputees, cleft palates, limb or facial deformations that the character had from birth or developed from a regular medical condition (e.g Lymphatic filariasis or Fibrous dysplasia).

Why does that matter?

Well, for one someone might be able to handle regular gore like you'd come across in slasher movies, but not body horror (that might be just because of a general dislike or because your body turning on you by changing into something 'monstrous' might be a trigger for people) or the other way around (which I guess is rarer, but hey, I'm not judging).

And much more importantly: Disabilities are not a horror movie. Labelling them with a horror trope says some very, very shitty things about how you view visibly disabled people and if you can't tell what those things are, you gotta unpack that shit cause YIKES.

I am begging, begging y’all to understand the difference between gore and body horror please.

Body horror is transformation/monstrous sort of things like a mouth where you shouldn’t have one or like, the shifting bones and whatnot in werewolf transformations. It is where something horrific is happening within the body itself.

It is not a bloody nose, cuts, wounds, injuries ect. That is gore. It is not scars, limb differences, or visual disabilities either.

For fuck’s sake please learn this stuff because the next time I see someone tagging a scarred or disabled character as “body horror” I am gonna lose it.

[neogenhomehealth]

Palliative Care at Home in Trivandrum

Palliative Care at Home in Trivandrum

Understanding Bone Cancer: Types, Symptoms, and Treatments

Bone cancer originates from normal cells within a bone. While it can start in any bone, it most commonly affects the long bones of the legs, particularly the thigh bone. It’s important to understand that “bone cancer” does not include cancers that start in other parts of the body and then spread to the bones. These are named after their original site. For instance, cancer that begins in the lungs and spreads to the bones is referred to as lung cancer with bone metastasis.

What is Bone Cancer?

Bone cancer is relatively rare, and different types affect people differently based on age. Some types are more prevalent in children, while others occur primarily in adults. The rarity and complexity of bone cancer make it essential to be informed about its types, symptoms, causes, and treatment options.

Types of Bone Cancer

Bone cancers are classified primarily based on the type of cell where the cancer originates. The most common types include:

Osteosarcoma: This is the most common type of bone cancer, originating in the cells that form bones. Osteosarcoma typically affects teenagers and young adults, though it can also occur in younger children and older adults. It frequently appears in the long bones of the legs and occasionally in the arms. Rarely, it can develop in soft tissues outside the bones.

Chondrosarcoma: Chondrosarcoma usually begins in the bones but can sometimes start in the soft tissues. This type of cancer is most common in middle-aged and older adults and typically affects the pelvis, hip, and shoulder.

Ewing Sarcoma: Ewing sarcoma can start in both the bones and the surrounding soft tissue. It often affects children and teenagers but can occur at any age. This cancer most frequently begins in the leg bones and pelvis, though it can appear in any bone.

Symptoms of Bone Cancer

Bone ache: This is frequently the first symptom, and it can be persistent or come and pass. The pain may worsen at night time or in the course of bodily activity.

Swelling and tenderness: Swelling close to the affected location can arise, frequently along with tenderness to touch.

Weakened bones: Bones might also grow to be fragile, mainly to fractures from minor accidents.

Fatigue: A well known feeling of tiredness that doesn’t improve with relaxation.

Unexplained weight reduction: Losing weight without trying also can be a sign of bone cancer.

When to See a Doctor

If you revel in any of the above symptoms, it’s crucial to consult a healthcare professional right away. Early analysis can considerably affect treatment consequences. Make an appointment with a medical doctor when you have continual bone ache, swelling, or every other concerning signs and symptoms.

Risk elements for bone cancer include:

Inherited genetic syndromes: Certain rare genetic conditions, such as Li-Fraumeni syndrome and hereditary retinoblastoma, can increase the risk of developing bone cancer.

Other bone conditions: Diseases like Paget’s disease of bone and fibrous dysplasia may also elevate the risk.

Previous cancer treatments: Radiation therapy and specific chemotherapy drugs used to treat other cancers can increase the risk of bone cancer later in life.

Diagnosis and Treatment

Diagnosing bone cancer normally entails a combination of imaging tests (like X-rays, CT scans, and MRIs) and biopsies, in which a pattern of the tumor is examined underneath a microscope. Blood assessments will also be performed to test for markers associated with bone most cancers.

Treatment options depend on the type of bone cancer, its location, and its stage. Common treatments include:

Surgery: The goal is to remove the entire tumor. This may sometimes involve reconstructive surgery to repair the bone.

Radiation Therapy: High-energy rays are used to kill cancer cells. This treatment is often used before surgery to shrink the tumor or after surgery to destroy any remaining cancer cells.

Chemotherapy: This involves using drugs to kill cancer cells. Chemotherapy is frequently used for cancers that have spread or are at high risk of spreading.

Coping with Bone Cancer

Facing a bone, most cancers analysis can be overwhelming. It’s important to have an aid system in place that can encompass family, buddies, aid companies, and healthcare experts. Managing aspect effects, keeping a wholesome lifestyle, and staying knowledgeable approximately your condition also can assist in managing the sickness.

Conclusion

Understanding bone most cancers, its types, signs and symptoms, and remedy options is vital for early detection and effective management. While bone cancer is uncommon, consciousness and prompt medical interest could make a sizable distinction in effects. If you or someone you realize is experiencing signs, do not hesitate to try to find a medical recommendation.

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[soongtypehuman]

Boo-hoo update

I’m sorry to say I have an update I was hoping to not ever have to make. Some of you already know that I have some serious health issues, but I've been pretty quiet about the extent of what I'm dealing with.

The gist of it is that I have a rare bone disease called fibrous dysplasia that turned certain bones in my skull into tumors and then those tumors grew inward and started crushing my brain, so I had a craniotomy last year to remove as much as was safe and got a cool new titanium implant in my head to replace the removed bone/tumor. The unfortunate result was encephalomalacia, which is the end stage of liquifying necrosis, and now part of my brain is liquid instead of solid (it’s dead, in a nutshell). Most people don’t survive encephalomalacia, much less remain able to function, and most who survive the initial stage don’t survive the three year mark. Even when you do survive it, it often continues spreading. The last MRI showed it had already taken over about 1/3 of my brain. But I’m a stubborn asshole and am still hanging on.

Unfortunately, things aren’t getting better.

I have to have constant MRIs, EEGs, physical and cognitive therapies, and have been on more meds than I’d like to be in order to control seizures and various cognitive issues. I didn’t mention this before, but I had to go through a series of speech therapies just to learn to talk properly again. And the most unfortunate part of this is that my ability to write has been affected. Since the surgery over a year ago, I’ve only made 10 new posts in the Positronic Rivalry series, totaling around 87k words. For reference, I posted over 200k words in 2022. I’ve posted even less this year, and it’s not improving.

With that said, I have to take a step back. I’m not quitting and I’m not walking away from the fandom. I’d like to think I’ll still be able to post here and there. I just don’t know when and under what circumstances that will happen. I most certainly can’t handle the longer multi-chapter fics I once could. Maybe one day, but not this day. Since I started posting on AO3 back at the end of 2021, I’ve posted every Sunday more often than not. I’m sorry to say I can’t make that happen right now, and can’t say when I’ll post again or what it will be. I won't be able to continue with season 4.

But I’m most definitely not leaving the fandom and the people and the characters I love so much. I’ll still be here interacting and posting when I’m able. This fandom and the people in it are incredible and mean a lot to me. Data and Lore and Star Trek in general are integral to my life and general enjoyment.

But!! I’ve nearly completed compiling seasons 1-3 of Positronic Rivalry as well as 2022/23 Kinktobers into files that will be ready to print in physical book format (completely free, obviously), which I’ll make available for everyone to download in various print sizes, complete with covers, which you can then have printed at various POD sites if you’re so inclined. Digital versions will also be available (you can already download various formats from AO3, but they’re not compiled into seasons, don’t have covers, etc.).

I’m also continuing with the Trek-themed crossword puzzles because those are fun and my therapist thinks making them is good for my cognitive rehab.

This update is a massive bummer for me, but I felt it was better to just admit my limitations instead of constantly trying to convince myself that I could continue the way I had been pre-surgery and beating myself up when I couldn’t.

Lastly, I’ve finally taken the suggestion I’ve gotten repeatedly and set up a KoFi. If you’d like to buy me a coffee or toss a coin to your android porn witcher, you can do so right here and I’d be giggling and kicking my feet in gratitude.

Anyhow, I want to thank all of you for being amazing and coming along on this ride with me for as long as you have, and for as long as it might continue in whatever form it takes.

[underestimated-heroine]

Finally, have a fun Fibrous Dysplasia Friday to my beloved tumblrinas! Farewell, and goodnight!

this one, I had to look up, so good job raising awareness my whimsical mutual!

my god, but what a week it has been. farewell and till next time, traveler.

[dr-sameerdesai]

Activities That Promote Greater Mobility and Strength in Children with Cerebral Palsy

1. Joint Exercises

Joint exercises are crucial for maintaining and improving the range of motion. Regular movement of the joints can prevent stiffness and increase flexibility. Simple activities like gentle bending and straightening of the arms and legs can help your child keep their joints mobile. These exercises also help with coordination and muscle engagement, ensuring better overall joint health.

2. Muscle Exercises

Strengthening muscles is essential for children with CP. Muscle exercises help build strength, improve posture, and reduce muscle spasticity. Simple activities like leg raises, arm curls, and resistance band exercises can help target specific muscle groups. These exercises aim to strengthen both large and small muscles, improving overall muscle control and stability.

3. Stretching Exercises

Stretching exercises are important to improve flexibility and reduce muscle tightness, which is common in children with CP. Focus on stretching the hamstrings, calf muscles, back, and shoulders. These exercises prevent muscle contractions and promote better posture and movement. Gentle, guided stretching will help your child stay comfortable and mobile, reducing the risk of stiffness and discomfort.

4. Balancing Exercises

Balancing exercises help improve posture and stability, which are essential for daily movement. Activities like standing on one foot, using a balance ball, or practicing walking with support can significantly improve balance. These exercises enhance your child’s ability to move independently and perform everyday tasks with greater ease. Balance exercises also help improve coordination and prevent falls.

5. Swimming Exercise

Swimming is a great low-impact exercise for children with CP. The buoyancy of the water reduces the strain on muscles and joints, making it easier for your child to perform movements that might be difficult on land. Swimming helps with muscle strengthening, improves flexibility, and enhances overall coordination. Water-based therapy can also be a fun and engaging way for children with CP to stay active while improving their physical abilities.

6. Wrist & Knee Exercises

Wrist and knee exercises can target specific areas of the body that may be impacted by cerebral palsy. Wrist exercises such as wrist curls or holding objects can help improve grip strength, which is often affected in children with CP. Knee exercises like leg extensions or using a balance board can assist in strengthening the legs and improving stability while walking.

Conclusion

While cerebral palsy can present unique challenges, incorporating regular exercises into your child’s routine can make a significant difference in their physical development and overall well-being. These exercises help with muscle strength, flexibility, coordination, and mobility, ultimately improving your child’s ability to perform daily activities. Working with a skilled physical therapist and involving Dr. Sameer Desai in Pune can help create a personalized exercise plan tailored to your child’s needs, ensuring they receive the best care and support possible. Through dedication and consistency, your child can experience greater independence and an improved quality of life.

[vasanthasworld]

Bone Disorders Notes and Short Essays