#everyone say thank you crohns disease for ruining my life!!!!! | Explore Tumblr Posts and Blogs

aliceellablog · 7 years

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Holiyay?

*08/10/17*

Sorry I haven’t posted for so long... ironic when you’re not well enough to write your blog about your illness aint it!?!

Anyway, I’m gonna cut right to the chase. Instagram vs real life is such an issue for me. One I probably need to get over…. It’s so hard I don’t know wether I should try and only post positive fun photos and make it look like I’m having a right old great fucking time or to keep it more ‘real’? But then no-one wants to see pics of an ill sad girl and it’ll probably just look like I’m trying to get attention.

I guess this blog is my outlet for now…

I have people who are close to me who tell me that if I post about being ill all the time I’ll never get booked for work or gigs, but then when it comes to my (failing) career as an artist I want to be real. I want to be honest and build a genuine following of people who care enough to join me on the real journey??Answers on a postcard please thanks.

So if you’ve seen the recent Insta posts you will have seen that I managed to go on holiday with my besets friends - genuine yay!I’ve never been away with friends before and could not wait to get ma body in the sun!! Oh that sweet sweet vitamin D!

But maybe I underestimated how tiring travelling was and how hard it would be…

Don’t get me wrong I don’t regret going and there were some really genuinely lovely times - that and I feel so much closer to my friends, but I’ve been back home now for three weeks and I’m just about making it to the supermarket or doing small tasks around the house each day. BIG FAT MEH.

I know I say it a lot but M.E. is so fucking frustrating!!! Because the more you push through and try and go for it the worse you get, so you physically can’t just get on with things- and the pay back is hell.

So on the way there we had the biggest nightmare…. I met Katie, Grace, Tilly, and Nicki at the airport and all was chill- I was feeling pretty shit but not too terrible. We had a bit of food at the Wetherspoons - keeping it classy - and then all went off to get out bits and bobs from Boots, WHSmiths etc - classic airport essentials!! - now… I’ll spare you the details… but I also have Crohns disease, and was not tooooo well!! It seemed that all of a sudden our gate was called… and I was… erm… busy…

I was as quick as I could be (awks), but there is no rushing somethings man!!! We were all panicking on the WhatsApp group and I told the gals I would meet them at the gate… Grace (bless her heart) said she would wait for me - she went to the information desk and told them my situation and asked if we could get a wheelchair or one of those buggy things to assist us to the gate - which of course was the furthest one away!!!

Do you know what they said to her??

‘You have four minutes until the gate closes and you won’t get there in time. You have to go now and leave your friend’ Grace being Grace said no, and waited for me. She tried to explain but they said to her ‘If she’s ill she shouldn’t be travelling’ - THANKS GATWICK - REAL BIG HELP THERE!!

Anyway… I came out of the toilets (why oh why am I selling you all this hahahaha) and found Grace - we had less than 4 minutes to do like a good 10 minute walk.

I don’t think I’ve moved so fast in a long time!! We were proper power walking through the airport and Grace would break into a jog at some points. I was fast trailing behind her shouting ‘just go!’ ‘Go on without me!’ Which of course she didn’t….

Stress levels were ridiculous, and I almost collapsed on an escalator - I sat and G rubbed my back…. After what seemed like a marathon we got to the gate… where everyone was sat chilling and they hadn’t even stared boarding yet. cool. whatever… Then Tilly comes walking up behind us as my body is shaking and I start to cry from all the adrenaline- ‘oh hey guys! you got here quick!’ - yea Tilly… real quick….LOL

By that time my legs were utter jelly and I thought I was going to pass out - very pleasant- but we all got on the plane and were laughing so hard at the messages of sheer panic in the WhatsApp group! We were all SO RELIEVED that we had made it!! I literally thought I had ruined everyone’s holiday!! - oops!! Never eating before a flight again! ;)

So we got to Spain and yet again the airport staff were assholes - I was as you can imagine feeling awful and there was a huge queue to get through passport control- I had my disabled parking badge with me as way of proof (people look at me and just don’t get it) and so Kaite and I asked if there was any where I could sit to wait for the queue to go down or any way we could go to the front. After they’d asked ‘where is the disabled girl?’ looking straight past me, and told me no, we’d had enough and just walked straight through while they shouted ‘Policia’ at us etc…. Luckily the police did not come and we went straight through!

What is it with these people?? Like even if I was a healthy girl who became ill on the plane they should WANT to help someone who is asking for assistance??

They can all get in the bin. End of.

So next was the drive (thank you Nicki for driving on the other side of the road for us all!!) to the villa and then we were there! Bloody exhausting.

The gals all then went out for dinner and I went to bed and ate a gluten free pot noodle I had packed in ma suitcase. Living the dream I tell ya!

The next day I was feeling pretty awful and chilled all day by the pool - now of course I am not complaining as I am so lucky to have been able to go on holiday at all, but that day, and most of the time actually, it was just a massive head fuck.

How was I was sat by the pool, surrounded by palm trees in the gorgeous sun, yet all I felt like doing was crying. I couldn’t shake it.

I didn’t want to be with my friends and I didn’t have the energy to make conversation, but kept trying and didn’t want to ruin everyone else’s holiday or be a downer.

Some of the time it just felt I was like having salt rubbed in my wounds right in my face. I was surrounded by four other healthy girls doing what I wished I could be.

I guess at home where I can escape to my room, and the fact that they are all at work everyday, it’s a little easier to cope.

But watching them all have fun and go out without me, and drink wine every night etc. was just a bit rubbish I guess.

I’m sure I sound ridiculous but you can’t help what you feel, and that’s what I felt.

The second night I went for dinner with them all but got so unwell I was in tears at the dinner table and got a cab home and left them to it. Fuck sake. (Sorry for all the swearing… just feel strongly lol)

I did improve a bit as the holiday went on, and my god they were all SO helpful and caring - always carrying the sun lounger out to the pool for me, and making me food when I was super tired (great omelette’s Nix!!), taking my suitcase for me at the airport, all that kinda stuff - and for that I thank them all, I must have been such a burden always having to be ‘looked after’ and I hated that. But they were beyond wonderful. Love you all SO MUCH!!

Then Emily arrived for the last few days which was awesome as we don’t get to see her as much now she’s moved out- so that was cool and we had a really lovely day at the beach which I genuinely enjoyed and did feel a little better - oh and I got duck pancakes that day too… nuff said!! :)

On the Saturday we had decided to have our one ‘night out’ -it was really nice to all get dolled up and as most of us are single now there was a lot of banter with the bar staff etc!

But again I was there drinking a Diet Coke and they were there making bloody boomerangs of them cheersing with their champagne glasses and getting drunk. God I am bitter!! hahaha

How do I always end up writing about my long to get drunk on this blog haha…. I just really miss it I guess… It’s hard cos my personality is so full of get up and go and lets go get drunk and dance!!! But instead I get to a club, can’t drink and all I think about is where can I sit down and what time shall I get a cab home on my own.

Wow… I really can complain huh!!!

On a positive note- I did have a dance that night!! Ok it was for maybe like 2 songs and it was more of a side step LOL but it felt really good! … and again…. Bar staff were on fleeek - for a laugh Nicki and I went up and she dared me to ask for his number… which I did…he was like the most gorgeous man I had ever seen!! But he had to get a woman over to translate as he didn’t understand a word I was saying and then when he did give me his number he asked if I spoke Spanish… to which I said no…. Most pointless exchange ever but Nicki and I were dying laughing and then just kinda ran away! I felt 13 again!

Then Grace did a high kick on the dance floor and fell flat on her face - and got glass in her hand. Doh! Oh Grace- your dance moves make me so happy- man I wish I could do crying laughing emojis on here!!!

-Don’t worry, Grace got looked after! After being told she would need stitches by the bar staff, she ended up in A&E but came home a mere plaster

Anyway I am rambling now -

After that night again I felt terrible and didn’t make it out to dinner with the gals but was glad I had made it out in the first place. I sat and ate chocolate watching the sunset instead. All good ;)

Then the journey home of course was pretty rubbish - British Airways you suck balls. - We pre booked assistance on the way home after our first ordeal! But this then meant waiting on the (very cold) plane for another half an hour, then being wheeled to a dark hallway and being left sat there alone (no staff anywhere) for about 45 minutes. We got so fed up that Katie found a few wheelchairs and stole one- I mean if they’re not gonna help we will help ourselves… it was at that moment that the buggy arrived and faffed about for a long time and then took us through passport control etc. LONG. Would have probably been less tiring to walk but then you never know how far it is!

After hitting my head at the train station I arrived home to Sussex where my mum picked me up.

Then HOME!! Oh the joy!! Bed with my cat! YAAAASSSS!!!

Unfortunately the next day I had hospital in the morning but it was to see a consultant I’ve been waiting forever to see who is giving me a trail of some new medication.

I don’t want to get my hopes up so am trying not to think about it but my god I am PRAYING that it might just help! - I’ll let ya know ;)

So now that I am back in London I am back to trying to do small realistic tasks each day and build back up from there. It’s depressing. It’s frustrating. It’s lonely. But it has to be done.

Much love for anyone who has actually read that!!! Means so much and am just trying to turn a negative into a positive - I enjoy writing this and hope that someone in a similar situation might be able to relate, and that someone who has never heard of M.E. might gain a little understanding.

Please get in touch if you wanna chat :)

My website: www.aliceella.com

Insta: @aliceellagram

MWAH x

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