#darn u chronic pain
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good morning!!! comfy cozy, wearing a bunnyhopz, and coloring!!! is a good day so far!!
#back hurts a lil but it is what it is!#darn u chronic pain#i want breakfast#but my family is still snoozin n i dont wanna wake em up#i want toast!!!!#and ramen maybe#anyway!! mornin!#agere#padded agere#riley barks
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Whelp, I don't know what happened, but more than one person is trying to bully me today.
I'm DEAF, not RETARDED.
Got told: "Out of my way.", When I froze instead because WHO THE FUCK IN THEIR RIGHT MIND SAYS THAT TO A STRANGER: HE GAVE ME A NASTY, F U L L, U P - D O W N,
"YOU STUPID, BITCH."
LIKE, WTF.
YOU SAY THAT TO MY FACE, THREATEN ME TO MY FACE AGAIN, I WILL PUNCH YOU IN THE THROAT.
TELL THE ER NURSE YOU THREATED A STRANGER.
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Maine says that they don't have my birth certificate, even though I was born in Alna.
I tried to get help from different sites, ancestry.com pulled up my grandfather's full name when I was looking for my dad: that rocked.
I was told he got knighted by Queen Elizabeth at some point, so Sir Edgar Jonathan Blackwell, (my dad changed his last name so no you can't find me from this), I want to say his actual name because a couple ladies here hate my family and I've just been ignoring it.
A lady named Rachal super hates me for "being a fucking Blackwell", and we still watch each other's stuff sometimes so our phones don't get stolen.
My IPhone got stolen OUT OF A BAG THAT NEVER LEFT MY SIGHT: you gotta watch it.
Bless WalMart, my new Motorola cost 35$, refurbished and on sale, and they didn't charge me to ship it straight to the shelter I stay at.
The local fire department paid for my phone, and my case manager here helped, there's a gift card limit to use online.
....the fire department offered 5$ WalMart gift cards every week for taking a covid-19 test, make sure you don't have it, and, I went every week.
They gave me 40$, I was there every week.
The "My Husband is Dead, I am a Widow." ( Not my exact sign, same message.) Is actually REALLY DANGEROUS 😃.
IT'S DARN SCARY. 🙃
I've gone maybe seven or eight times in two years that I've been here to "fly sign", I got maybe 30$ total, but it's WAY BETTER TO NOT DO THAT: A FEW EX MILITARY HERE GOT ATTACKED FOR "GETTIN' MUNEY", ONE GENTLEMAN, HAD BOTH OF HIS LEGS BROKEN BY CRAZY PEOPLE HERE, "ON THE TRAIL": THAT WAS; HE ESCAPED.
PEOPLE TRIED TO KILL HIM FOR ABOUT $12.50.
"WHAT HE "EARNED", THAT DAY." - THIS WAS MAYBE TWO HOURS AND ---W A S--- A GOOD DAY, BEFORE THAT.
THIS VETERAN HAS A SPINAL INJURY; HE WAS HAVING A " GOOD" CHRONIC PAIN DAY.
HE ALSO SAID THAT'S WHY HE ALMOST COULDN'T GET AWAY.
HE HAD FELT OKAY SO HE HAD STAYED "OUT" (away from the shelter), LONGER.
THIS IS NOT OKAY.
HE DRUG HIMSELF HOME, OUTRUNNING THEM, LIKE 15 MILES: THEY FOLLOWED HIM TO KILL HIM.
HE DIDN'T WANT TO WAIT FOR THE BUS WITH THEM THERE.
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On my phone rn, I don't have capslock.
There are security guards here, and they were able to "chase them off", but they weren't able to catch any of these guys.
It's not safe or good here.
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please tell me ALL about your ocs!!! 💕
I am Crying thank u so much thank u for Finally asking abt my ocs I have so many of them and I love them all so much so I’ll just sum up my few main ones and favorites (buckle up and also this whole story takes place in london as of now bc I’m uncreative):
Beckett (full name Beckett James Montgomery) is a happy little man who’s full of love and also a lot of chronic illnesses and other conditions. He just has really rough luck but he’s still pretty content with things. He’s working hard to overcome his shyness to set boundaries with others and he’s becoming a lot more confident in himself!! Of course losing a large portion of your childhood to illness and injury is pretty traumatic but he has a really solid support system. He loves his friends and is also very passionate about horticulture. And some other facts abt Beckett:
his favorite colour is pink (which is why his hair is pink throughout his teens and into his 20s but it’s naturally a mousy brown!)
he’s big gay
he’s a manlet (5'6")
he goes on to open up a plant nursery
he plays piano
his entire life is like 1/8th of a plan and 7/8ths of a prayer
Cherry Nova Griffin is a cool girl who’s super smart and just the raddest ever. She’s the older sister friend despite being the baby of her family bc she really really cares abt her friends and wants the best for them. She’s no square so she’s not gonna harsh anyone’s vibe but she is very sensible so u won’t go fucking yourself up on her watch bc she’s your voice of reason. This doesn’t mean she doesn’t partake in her friends foolishness, she just makes sure the foolishness goes smoothly. She’s super smart and very interested in science. She’s also pretty much always dressed to the nines (heavily influenced by her sister Azalea who’s a fashion icon). And some more facts abt Cherry:
her favorite colour is purple
her and elfie are the co-Just Dance™ wii champions of their friend group
she comes out as a lesbian in her 20s because that Internalized Home Of Phobia Tho
she’s 5 foot nothing she’s Small (she looks nothing like her two tall, rake thin older siblings)
her and Beckett are childhood friends, meeting when Beckett joined her class at school when they were both 7 or so
she’s always trying to prove herself to others but she has enough people around her that know how cool she is
Elfie Pepper (or Elfie Kiyoko Takemago-Pepper) is a fun, spritely Irish girl (her mom and biological father are Japanese but she was born in Ireland and raised there by her mom and now-stepdad). She’s super funny and very much the life of the party like she will always get u to chuckle. She can make any situation better just by being there bc she’s hilarious and rad. Her girlfriend is a super butch buff athlete but Elfie’s more often than not found eating lucky charms straight out of the box on her couch. She does like to skateboard tho and she’s pretty darn good at it. She’s the friend who makes all the playlists for driving/partying/chilling bc her music taste is universally liked (without her everyone would be fighting to play their own tunes she’s the peacemaker). Basically everyone likes Elfie. Now for The Facts:
she’s probably the rowdiest of the bunch. she’s like permanently cranked up to 100
Elfie is Big Lesbian
she’s a decent base player
her mom wanted to name her Kiyoko but let her hippie boyfriend pick the name Elfie for her
she moved to England when she was 12 and joined Beckett and Cherry’s squad then
She’s like 5'3" their whole squad is Tiny
Eleanor Lucille Atwin is the only one tall one in their squad. She’s 5'11" and the definite mom friend of Elfie, Cherry, and Beckett. She’s always got snacks and extra sweaters and pain medication and makeup wipes on her. She’s patient and caring and will have your back no matter what. You could indefinitely count on her in a crisis. Eleanor is also trans and has really been through it and still sometimes struggles with loving herself (not to mention dealing with transphobia) but she receives endless love and support from her friends. She’s good at painting and is always lookin super pretty. And some Eleanor facts:
she’s 20
she was born in Yukon, Canada
she joined the main group when she was 15
she’s prefers painting with watercolours
she marries her high school sweetheart (a ginger soccer/football player who’s like the only cishet guy involved in this story)
she goes on to become an interior designer bc she’s got rly good taste
Kimmo Alric Seppänen (23) is kind of a bitch, but he’s been through a Lot so it’s kind of expected. He had a really rough childhood where he was neglected severely by his parents before he was taken out of their house and placed with his adoptive parents who treated him super well and loved him a lot. He struggled a lot with fitting in and became really edgy in high school where he started dating Fredrik on and off. Then after school he had problems with addiction and did a lot of unhealthy shit but he eventually sorted it out. Now he’s living with Fredrik in London and they play in a band together (he still smokes like a pack a day). Kimmo is grumpy, and prone to lashing out, but he’s also a talented musician, wise beyond his years, and very dryly funny. He’s hard to get through to, but oddly lovable when you get to know him. And some Kimmo facts:
he was born and raised in Jyväskylä, Finland
he’s a killer guitarist and an adequate singer
he has a total of 12 piercings, most of which he got in his teens
he was diagnosed with Klinefelter’s syndrome in his early teens
he uses he/they pronouns and hes bi
his nose is crooked as shit from being broken several times
Fredrik Jeremiias Harmaajärvi is beefy and dumb. He’s the second oldest of 4 brothers. He’s like a big stupid golden retriever: cute and overall friendly, but kinda air-headed. He drinks too much (though he has captain america-level alcohol tolerance) and doesn’t notice many emotional cues from others, especially his emotionally unstable boyfriend Kimmo. When he was 21, he formed a band with some friends and Kimmo (his then ex-boyfriend whom he had newly reunited with). Kimmo and Fredrik moved to London after the band lost its two original members. Fredrik is easygoing and fun, but he has literally no brain cells. Some facts:
he’s a killer singer and an adequate guitar player
He’s also from Jyväskylä
His whole family is absolutely disgustingly beautiful (to his kinda ugly bfs dismay)
pure, unconcentrated himbo
His band is primarily punk/garage rock but Fredrik loves pop music
he’s also pretty into fitness and maintaining his image so he frequently goes to the gym (this is why he’s a big muscly Viking man)
Phoenix Delphinus Griffin is Cherry’s oldest sibling and he’s also a gem and a treasure. He’s a professional dancer and dance instructor. He’s 6'5" and all lanky, wirey muscle. He’s a laid-back, sociable guy who easily builds relationships with others. He acts super chill on the outside but he does struggle with pretty bad anxiety. He’s very fit and health conscious and is always up early to go to the gym or go for a run or drink a smoothie or whatever healthy people do. He has a number of large friend groups and is probably the most “popular” of all my ocs. And some facts abt him:
Phoenix has a phobia of drowning and is very uncomfortable with swimming in large bodies of water
he prefers contemporary ballet, but he’s trained in classical ballet and tap as well
he was once in a local production of cats the musical (he played macavity and plato due to his height and lack of singing required for the roles) and his friends won’t let him live it down
he’s bi
he dated the bassist in kimmo and fredrik’s band for a few months
he’s just a way friendly dude everyone loves him
I seriously needed motivation to make a post like this of all of them so thank u again!!!!!!!!
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Among U.S. States, New York’s Suicide Rate Is The Lowest. How’s That?
“I just snapped” is how Jessica Lioy describes her attempt in April to kill herself.
After a tough year in which she’d moved back to her parents’ Syracuse, N.Y., home and changed colleges, the crumbling of her relationship with her boyfriend pushed the 22-year-old over the edge. She impulsively swallowed a handful of sleeping pills. Her mom happened to walk into her bedroom, saw the pills scattered on the floor and called 911.
In 2017, 1.4 million adults attempted suicide, while more than 47,000 others did kill themselves, making suicide the 10th-leading cause of death in the United States, according to the federal Centers for Disease Control and Prevention. And the rate has been rising for 20 years.
New York’s efforts to prevent suicides include testing a brief intervention program for people who have attempted suicide — because they are at risk for trying again. “They steal you for an hour from the universe and make you focus on the worst thing in your life and then coach you through it,” Jessica Lioy says.(Courtesy of Jessica Lioy)
Like other states, Jessica Lioy’s home state of New York has seen its rate increase. But New York has consistently reported rates well below those of the U.S. overall. Compared with the national rate of 14 suicides per 100,000 people in 2017, New York’s was just 8.1, the lowest suicide rate in the nation.
What gives? At first glance, the state doesn’t seem like an obvious candidate for the lowest rank. There’s New York City, all hustle and stress, tiny apartments and crowds of strangers. And upstate New York, often portrayed as bleak and cold, is famously disparaged in the Broadway musical “A Chorus Line” with the comment that “to commit suicide in Buffalo is redundant.”
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Experts say there’s no easy explanation for the state’s lowest-in-the-nation rate. “I can’t tell you why,” said Dr. Jay Carruthers, a psychiatrist who is the director of suicide prevention at the New York State Office of Mental Health.
Guns And Urbanization Are Likely Factors
There’s no single answer, but a number of factors probably play a role, according to Carruthers and other experts on suicide.
Low rates of gun ownership are likely key. Guns are used in about half of suicide deaths, and having access to a gun triples the risk that someone will die by suicide, according to a study in the Annals of Internal Medicine. Because guns are so deadly, someone who attempts suicide with a gun will succeed about 85% of the time, compared with a 2% fatality rate if someone opts for pills, according to a study by researchers at the Harvard Injury Control Research Center.
“The scientific evidence is pretty darn good that having easy access to guns makes the difference whether a suicidal crisis ends up being a fatal or a nonfatal event,” said Catherine Barber, who co-authored the study and is a senior researcher at the Harvard center.
New York has some of the strongest gun laws in the country. In 2013 — after the mass shooting at Sandy Hook Elementary School in Newtown, Conn. — the state broadened its ban on assault weapons, required recertification of pistols and assault weapons every five years, closed a private sale loophole on background checks and increased criminal penalties for the use of illegal guns.
This year, the state enacted laws that, among other things, established a 30-day waiting period for gun purchases for people who don’t immediately pass a background check, and prevented people who show signs of being a threat to themselves or others from buying guns, sometimes referred to as a “red flag” or “extreme risk” law.
The population is also heavily concentrated in urban areas, including more than 8 million people living in New York City. According to the Census Bureau, nearly 88% of the state’s population lived in urban areas in the 2010 census, while the national figure is about 81%.
Suicide rates are typically lower in cities. In 2017, the suicide rate nationwide for the most rural counties — 20 per 100,000 people — was almost twice as high as the 11.1 rate for the most urban counties, according to the CDC. The trend is accelerating. While the suicide rate in the most urban counties increased by 16% from 1999 to 2017, it grew by a whopping 53% in the most rural counties.
Loneliness, isolation and access to lethal weapons can be a potent combination that leads to suicide, said Jerry Reed, who directs the suicide, violence and injury prevention efforts at the Education Development Center. The center runs the federally funded Suicide Prevention Resource Center, among other suicide prevention projects.
People in rural areas may live many miles from the nearest mental health facility, therapist or even their own neighbors.
“If your spouse passes away or you come down with a chronic condition and no one is checking on you and you have access to firearms,” Reed said, “life may not seem like worth living.”
Intervention Helps ‘Force You’ To Move Forward
New York’s efforts to prevent suicides include conducting a randomized controlled trial to test the effectiveness of a brief intervention program developed in Switzerland for people who have attempted suicide — because they are at risk for trying again.
The trial has yet to get underway, but clinicians at the Hutchings Psychiatric Center in Syracuse were trained in the Attempted Suicide Short Intervention Program, as it’s called. They began testing it with some patients last year.
Jessica Lioy was one of them. After her suicide attempt, she spent a week at the inpatient psychiatric unit at Upstate University Hospital in Syracuse. A social worker approached her about signing up for that outpatient therapy program.
The program is simple. It has just four elements:
In the first session, patients sit down with a therapist for an hourlong videotaped discussion about why they tried to kill themselves.
At their second meeting, they watch the video to reconstruct how the patient moved from experiencing something painful to attempting suicide.
During the third session, the therapist helps the patient list long-term goals, warning signs and safety strategies, along with the phone numbers of people to call during a crisis. The patient carries the information with them at all times.
Finally, during the next two years, the therapist writes periodic “caring letters” to the patient to check in and remind them about their risks and safety strategies.
In the Swiss trial, about 27% of the patients in the control group attempted suicide again during the next two years. Only 8% of those who went through the intervention program re-attempted suicide during that time.
“The difference with ASSIP is the patient involvement. It’s very patient-centered,” said Dr. Seetha Ramanathan, the Hutchings psychiatrist overseeing the program. It’s also very focused on the suicide attempt, not on other issues like depression or PTSD, she said.
Lioy said that, at the beginning, she didn’t have high hopes for the program. She had already told her story to many doctors and mental health therapists. But this felt different, she recalled.
“They steal you for an hour from the universe and make you focus on the worst thing in your life and then coach you through it,” Lioy said. “They force you to feel something, and they force you to just reflect on that one situation and how to move forward to not end up back in that place. It’s very immediate.”
It hasn’t all been smooth sailing. Shortly after returning home, Lioy felt depressed and couldn’t get out of bed. But she had learned the importance of asking for help, and she reached out to her parents.
“I was able to talk with them, and it felt amazing,” she said. “I’d never done that before.”
There have been other changes. Since returning home, Lioy finished her bachelor’s degree in molecular genetics and is working as a pharmacy technician. She’s applying to doctoral programs and she has a new boyfriend, although she said she no longer needs a boyfriend to feel OK about herself.
“It’s been a really big journey,” Lioy said.
If you or someone you know may be considering suicide, contact the National Suicide Prevention Lifeline at 1-800-273-8255 (en español: 1-888-628-9454; deaf and hard of hearing: 1-800-799-4889) or the Crisis Text Line by texting HOME to 741741.
from Updates By Dina https://khn.org/news/among-u-s-states-new-yorks-suicide-rate-is-the-lowest-hows-that/
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4 Myths About Probiotics
Probiotics have become so popular, there’s certainly no shortage of probiotic supplements being sold in stores. But do you really know what you are doing when it comes to taking probiotics? First, you need to understand how probiotics really work. Now I want to debunk 4 myths about probiotics and how to get the most of of them when you do decide to take one for yourself.
1. My doctor told me I need to start taking probiotics- I’ll just eat yogurt every day then, that should be good enough, right?
Wrong. Well, mostly. Yes, yogurt does in fact contain live bacteria- the bacteria that’s necessary to turn the initial milk product into the final yogurt product. However, this bacteria is typically not useful to human health, as the strains of bacteria used during this process are only useful for turning milk to yogurty goodness, and not so much for improving your gut health.
There are a few yogurts on the market that have actual therapeutic strains of bacteria added however: Nancy’s Organic Probiotic Greek Yogurt, for instance, has added Bifidobacterium lactis Bb12 (plus Lactobacillus Acidophilus La5), which is clinically shown to be useful to treat chronic fatigue syndrome, traveler’s diarrhea, and intestinal dysbiosis, among many other conditions.
However, this is not the “rule” but the exception- the majority of yogurts on the market contain no useful bacteria inside, plus the addition of harmful added sugars and dyes. So overall, eating yogurt is not a good alternative to taking an excellent quality probiotic supplement.
2. I should take my probiotic supplement on an empty stomach to get the best benefit.
It is often times thought that taking a probiotic on an empty stomach should increase the potential of that bacteria surviving past the stomach (and stomach acid) to make their way healthy and happy into the intestine where they belong.
The thought behind this is that no food in the stomach suggests that there would be less stomach acid present too, and less of a possibility for the probiotic bacteria to be killed off before they can actually work to improve your health.
Turns out, this is actually furthest from the truth, as the highest number of bacteria to survive into the colon result from taking the non-enterically coated probiotic 30 minutes prior to or directly with a meal (Tompkins, Mainville, & Arcand, 2011).
Believe it or not, when you take a probiotic supplement with a meal vs. on an empty stomach, the added food helps to buffer the stomach acid, or neutralize it to an extent. Even more interesting, eating a meal that is higher in fat further increases the numbers of bacteria that survive their short stent in the stomach so that more good guys can make it to work in your small and large intestine.
Long story short: don’t take probiotics on an empty stomach. Pop ‘em with a meal, especially those that contain some good fats, to get the best results.
3. I can take any probiotic on the market and it’ll improve my digestion issues.
FALSE! Nothing could be furthest from the truth, actually. There have been decades of research demonstrating just how incredibly important not only specific Genus classifications of bacterium are (ie. Bifidobacterium, Lactobacillus, etc.), but even more importantly, how different Strains of bacterium within the same Genus and even Species (ie. Bifidobacterium lactis HN019, Bifidobacterium lactis Bb12) produce different benefits to human health.
Take a look at this quick chart showing just how diverse the benefits are for differing probiotic strains, and the importance of taking the right one for you.
Something else often misunderstood by most is that probiotics are also useful for many other chronic conditions not directly related to digestion symptoms. Take a look at these other probiotic super stars:
My main point is- I would never want to take a probiotic that’s been useful to improve constipation if I suffer from severe diarrhea, or one that’s been shown to improve Metabolic Syndrome when I really needed it to help decrease the duration of my Respiratory Tract Infection. Not all probiotics are made equal, and not all strains will be useful to you. Choose your probiotic wisely.
4. I can’t take a probiotic supplement while taking a prescribed antibiotic.
That’s where you’re wrong. An antibiotic is meant to kill bacteria in the body and a probiotic is meant to introduce bacteria into the body. The two shouldn’t seem to mix. But in reality, literature has BUSTED this widely believed myth wide open! With the wide use of antibiotics today come a typically unwelcome guest- antibiotic-induced diarrhea, typically caused by a opportunistic clostridium difficile (c. diff) infection, increasing the potential for death, and hiking health care costs and lengthening hospital stays.
With this being said, a meta-analysis of 63 randomized controlled trials was conducted to look at the effects of taking many different probiotic species with an array of antibiotics, both singularly and in combination with other pharmaceutical antibiotics, and not only found no significant decrease in risk (so the probiotics didn’t mess with the antibiotic’s ability to do it’s thing), but taking probiotics while taking a round of antibiotics has actually been shown to prevent and treat antibiotic-induced diarrhea (Rodgers, Kirley, & Mounsey, 2013). This means that taking a probiotic along with your prescribed antibiotic is actually better for your health than taking the antibiotic alone!
In all, there are so many things we have still yet to learn about the miracle of the gut, and the use and benefit of good quality probiotics. Just do me a few favors on your personal health journey: question everything, do your darn research, and find a practitioner to help you understand what’s really going on in that incredible body of yours.
SCHEDULE A COMPLIMENTARY, NO-OBLIGATION DISCOVERY CALL WITH SARA. WE’LL USE THIS TIME TO MAKE SURE WE’RE THE RIGHT FIT BEFORE COMMITTING TO WORK TOGETHER.
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Written by: Paula Cole, MD, NDTR
Master’s of Science in Human Nutrition and Functional Medicine
Health fanatic, paleo enthusiast, and lover of Functional Medicine
Sources:
Bennett, R. G., Gorbach, S. L., Goldin, B. R., Chang, T., Laughon, B. E., Greenough, W. B., & Bartlett, J. G. (1996). Treatment of Relapsing Clostridium difficile Diarrhea with Lactobacillus GG. Nutrition Today,31(Supplement 1). doi:10.1097/00017285-199611001-00011
Bernini, L. J., Simão, A. N., Alfieri, D. F., Lozovoy, M. A., Mari, N. L., Souza, C. H., . . . Costa, G. N. (2016). Beneficial effects of Bifidobacterium lactis on lipid profile and cytokines in patients with metabolic syndrome: A randomized trial. Effects of probiotics on metabolic syndrome. Nutrition,32(6), 716-719. doi:10.1016/j.nut.2015.11.001
Cox, A. J., Pyne, D. B., Saunders, P. U., & Fricker, P. A. (2010). Oral administration of the probiotic Lactobacillus fermentum VRI-003 and mucosal immunity in endurance athletes. British Journal of Sports Medicine,44(4), 222-226. doi:10.1136/bjsm.2007.044628
Eskesen, D., Jespersen, L., Michelsen, B., Whorwell, P. J., Müller-Lissner, S., & Morberg, C. M. (2015). Effect of the probiotic strain Bifidobacterium animalissubsp. lactis, BB-12®, on defecation frequency in healthy subjects with low defecation frequency and abdominal discomfort: a randomised, double-blind, placebo-controlled, parallel-group trial. The British Journal of Nutrition, 114(10), 1638–1646. https://ift.tt/2NyfiwQ
Hun, L. (2009). Original Research:Bacillus coagulansSignificantly Improved Abdominal Pain and Bloating in Patients with IBS. Postgraduate Medicine,121(2), 119-124. doi:10.3810/pgm.2009.03.1984
Ouwehand, A. C., Nermes, M., Collado, M. C., Rautonen, N., Salminen, S., & Isolauri, E. (2009). Specific probiotics alleviate allergic rhinitis during the birch pollen season. World Journal of Gastroenterology : WJG, 15(26), 3261–3268. https://ift.tt/2O6pN7n
Rodgers, B., Kirley, K., & Mounsey, A. (2013). Prescribing an antibiotic? Pair it with probiotics. The Journal of Family Practice, 62(3), 148–150.
Tompkins, T., Mainville, I., & Arcand, Y. (2011). The impact of meals on a probiotic during transit through a model of the human upper gastrointestinal tract. Beneficial Microbes, 2(4), 295-303. doi:10.3920/bm2011.0022
The post 4 Myths About Probiotics appeared first on The Organic Dietitian.
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4 Myths About Probiotics
Probiotics have become so popular, there’s certainly no shortage of probiotic supplements being sold in stores. But do you really know what you are doing when it comes to taking probiotics? First, you need to understand how probiotics really work. Now I want to debunk 4 myths about probiotics and how to get the most of of them when you do decide to take one for yourself.
1. My doctor told me I need to start taking probiotics- I’ll just eat yogurt every day then, that should be good enough, right?
Wrong. Well, mostly. Yes, yogurt does in fact contain live bacteria- the bacteria that’s necessary to turn the initial milk product into the final yogurt product. However, this bacteria is typically not useful to human health, as the strains of bacteria used during this process are only useful for turning milk to yogurty goodness, and not so much for improving your gut health.
There are a few yogurts on the market that have actual therapeutic strains of bacteria added however: Nancy’s Organic Probiotic Greek Yogurt, for instance, has added Bifidobacterium lactis Bb12 (plus Lactobacillus Acidophilus La5), which is clinically shown to be useful to treat chronic fatigue syndrome, traveler’s diarrhea, and intestinal dysbiosis, among many other conditions.
However, this is not the “rule” but the exception- the majority of yogurts on the market contain no useful bacteria inside, plus the addition of harmful added sugars and dyes. So overall, eating yogurt is not a good alternative to taking an excellent quality probiotic supplement.
2. I should take my probiotic supplement on an empty stomach to get the best benefit.
It is often times thought that taking a probiotic on an empty stomach should increase the potential of that bacteria surviving past the stomach (and stomach acid) to make their way healthy and happy into the intestine where they belong.
The thought behind this is that no food in the stomach suggests that there would be less stomach acid present too, and less of a possibility for the probiotic bacteria to be killed off before they can actually work to improve your health.
Turns out, this is actually furthest from the truth, as the highest number of bacteria to survive into the colon result from taking the non-enterically coated probiotic 30 minutes prior to or directly with a meal (Tompkins, Mainville, & Arcand, 2011).
Believe it or not, when you take a probiotic supplement with a meal vs. on an empty stomach, the added food helps to buffer the stomach acid, or neutralize it to an extent. Even more interesting, eating a meal that is higher in fat further increases the numbers of bacteria that survive their short stent in the stomach so that more good guys can make it to work in your small and large intestine.
Long story short: don’t take probiotics on an empty stomach. Pop ‘em with a meal, especially those that contain some good fats, to get the best results.
3. I can take any probiotic on the market and it’ll improve my digestion issues.
FALSE! Nothing could be furthest from the truth, actually. There have been decades of research demonstrating just how incredibly important not only specific Genus classifications of bacterium are (ie. Bifidobacterium, Lactobacillus, etc.), but even more importantly, how different Strains of bacterium within the same Genus and even Species (ie. Bifidobacterium lactis HN019, Bifidobacterium lactis Bb12) produce different benefits to human health.
Take a look at this quick chart showing just how diverse the benefits are for differing probiotic strains, and the importance of taking the right one for you.
Something else often misunderstood by most is that probiotics are also useful for many other chronic conditions not directly related to digestion symptoms. Take a look at these other probiotic super stars:
My main point is- I would never want to take a probiotic that’s been useful to improve constipation if I suffer from severe diarrhea, or one that’s been shown to improve Metabolic Syndrome when I really needed it to help decrease the duration of my Respiratory Tract Infection. Not all probiotics are made equal, and not all strains will be useful to you. Choose your probiotic wisely.
4. I can’t take a probiotic supplement while taking a prescribed antibiotic.
That’s where you’re wrong. An antibiotic is meant to kill bacteria in the body and a probiotic is meant to introduce bacteria into the body. The two shouldn’t seem to mix. But in reality, literature has BUSTED this widely believed myth wide open! With the wide use of antibiotics today come a typically unwelcome guest- antibiotic-induced diarrhea, typically caused by a opportunistic clostridium difficile (c. diff) infection, increasing the potential for death, and hiking health care costs and lengthening hospital stays.
With this being said, a meta-analysis of 63 randomized controlled trials was conducted to look at the effects of taking many different probiotic species with an array of antibiotics, both singularly and in combination with other pharmaceutical antibiotics, and not only found no significant decrease in risk (so the probiotics didn’t mess with the antibiotic’s ability to do it’s thing), but taking probiotics while taking a round of antibiotics has actually been shown to prevent and treat antibiotic-induced diarrhea (Rodgers, Kirley, & Mounsey, 2013). This means that taking a probiotic along with your prescribed antibiotic is actually better for your health than taking the antibiotic alone!
In all, there are so many things we have still yet to learn about the miracle of the gut, and the use and benefit of good quality probiotics. Just do me a few favors on your personal health journey: question everything, do your darn research, and find a practitioner to help you understand what’s really going on in that incredible body of yours.
SCHEDULE A COMPLIMENTARY, NO-OBLIGATION DISCOVERY CALL WITH SARA. WE’LL USE THIS TIME TO MAKE SURE WE’RE THE RIGHT FIT BEFORE COMMITTING TO WORK TOGETHER.
Schedule Your FREE 30 Minute Discovery Call
Written by: Paula Cole, MD, NDTR
Master’s of Science in Human Nutrition and Functional Medicine
Health fanatic, paleo enthusiast, and lover of Functional Medicine
Sources:
Bennett, R. G., Gorbach, S. L., Goldin, B. R., Chang, T., Laughon, B. E., Greenough, W. B., & Bartlett, J. G. (1996). Treatment of Relapsing Clostridium difficile Diarrhea with Lactobacillus GG. Nutrition Today,31(Supplement 1). doi:10.1097/00017285-199611001-00011
Bernini, L. J., Simão, A. N., Alfieri, D. F., Lozovoy, M. A., Mari, N. L., Souza, C. H., . . . Costa, G. N. (2016). Beneficial effects of Bifidobacterium lactis on lipid profile and cytokines in patients with metabolic syndrome: A randomized trial. Effects of probiotics on metabolic syndrome. Nutrition,32(6), 716-719. doi:10.1016/j.nut.2015.11.001
Cox, A. J., Pyne, D. B., Saunders, P. U., & Fricker, P. A. (2010). Oral administration of the probiotic Lactobacillus fermentum VRI-003 and mucosal immunity in endurance athletes. British Journal of Sports Medicine,44(4), 222-226. doi:10.1136/bjsm.2007.044628
Eskesen, D., Jespersen, L., Michelsen, B., Whorwell, P. J., Müller-Lissner, S., & Morberg, C. M. (2015). Effect of the probiotic strain Bifidobacterium animalissubsp. lactis, BB-12®, on defecation frequency in healthy subjects with low defecation frequency and abdominal discomfort: a randomised, double-blind, placebo-controlled, parallel-group trial. The British Journal of Nutrition, 114(10), 1638–1646. https://ift.tt/2NyfiwQ
Hun, L. (2009). Original Research:Bacillus coagulansSignificantly Improved Abdominal Pain and Bloating in Patients with IBS. Postgraduate Medicine,121(2), 119-124. doi:10.3810/pgm.2009.03.1984
Ouwehand, A. C., Nermes, M., Collado, M. C., Rautonen, N., Salminen, S., & Isolauri, E. (2009). Specific probiotics alleviate allergic rhinitis during the birch pollen season. World Journal of Gastroenterology : WJG, 15(26), 3261–3268. https://ift.tt/2O6pN7n
Rodgers, B., Kirley, K., & Mounsey, A. (2013). Prescribing an antibiotic? Pair it with probiotics. The Journal of Family Practice, 62(3), 148–150.
Tompkins, T., Mainville, I., & Arcand, Y. (2011). The impact of meals on a probiotic during transit through a model of the human upper gastrointestinal tract. Beneficial Microbes, 2(4), 295-303. doi:10.3920/bm2011.0022
The post 4 Myths About Probiotics appeared first on The Organic Dietitian.
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4 Myths About Probiotics
Probiotics have become so popular, there’s certainly no shortage of probiotic supplements being sold in stores. But do you really know what you are doing when it comes to taking probiotics? First, you need to understand how probiotics really work. Now I want to debunk 4 myths about probiotics and how to get the most of of them when you do decide to take one for yourself.
1. My doctor told me I need to start taking probiotics- I’ll just eat yogurt every day then, that should be good enough, right?
Wrong. Well, mostly. Yes, yogurt does in fact contain live bacteria- the bacteria that’s necessary to turn the initial milk product into the final yogurt product. However, this bacteria is typically not useful to human health, as the strains of bacteria used during this process are only useful for turning milk to yogurty goodness, and not so much for improving your gut health.
There are a few yogurts on the market that have actual therapeutic strains of bacteria added however: Nancy’s Organic Probiotic Greek Yogurt, for instance, has added Bifidobacterium lactis Bb12 (plus Lactobacillus Acidophilus La5), which is clinically shown to be useful to treat chronic fatigue syndrome, traveler’s diarrhea, and intestinal dysbiosis, among many other conditions.
However, this is not the “rule” but the exception- the majority of yogurts on the market contain no useful bacteria inside, plus the addition of harmful added sugars and dyes. So overall, eating yogurt is not a good alternative to taking an excellent quality probiotic supplement.
2. I should take my probiotic supplement on an empty stomach to get the best benefit.
It is often times thought that taking a probiotic on an empty stomach should increase the potential of that bacteria surviving past the stomach (and stomach acid) to make their way healthy and happy into the intestine where they belong.
The thought behind this is that no food in the stomach suggests that there would be less stomach acid present too, and less of a possibility for the probiotic bacteria to be killed off before they can actually work to improve your health.
Turns out, this is actually furthest from the truth, as the highest number of bacteria to survive into the colon result from taking the non-enterically coated probiotic 30 minutes prior to or directly with a meal (Tompkins, Mainville, & Arcand, 2011).
Believe it or not, when you take a probiotic supplement with a meal vs. on an empty stomach, the added food helps to buffer the stomach acid, or neutralize it to an extent. Even more interesting, eating a meal that is higher in fat further increases the numbers of bacteria that survive their short stent in the stomach so that more good guys can make it to work in your small and large intestine.
Long story short: don’t take probiotics on an empty stomach. Pop ‘em with a meal, especially those that contain some good fats, to get the best results.
3. I can take any probiotic on the market and it’ll improve my digestion issues.
FALSE! Nothing could be furthest from the truth, actually. There have been decades of research demonstrating just how incredibly important not only specific Genus classifications of bacterium are (ie. Bifidobacterium, Lactobacillus, etc.), but even more importantly, how different Strains of bacterium within the same Genus and even Species (ie. Bifidobacterium lactis HN019, Bifidobacterium lactis Bb12) produce different benefits to human health.
Take a look at this quick chart showing just how diverse the benefits are for differing probiotic strains, and the importance of taking the right one for you.
Something else often misunderstood by most is that probiotics are also useful for many other chronic conditions not directly related to digestion symptoms. Take a look at these other probiotic super stars:
My main point is- I would never want to take a probiotic that’s been useful to improve constipation if I suffer from severe diarrhea, or one that’s been shown to improve Metabolic Syndrome when I really needed it to help decrease the duration of my Respiratory Tract Infection. Not all probiotics are made equal, and not all strains will be useful to you. Choose your probiotic wisely.
4. I can’t take a probiotic supplement while taking a prescribed antibiotic.
That’s where you’re wrong. An antibiotic is meant to kill bacteria in the body and a probiotic is meant to introduce bacteria into the body. The two shouldn’t seem to mix. But in reality, literature has BUSTED this widely believed myth wide open! With the wide use of antibiotics today come a typically unwelcome guest- antibiotic-induced diarrhea, typically caused by a opportunistic clostridium difficile (c. diff) infection, increasing the potential for death, and hiking health care costs and lengthening hospital stays.
With this being said, a meta-analysis of 63 randomized controlled trials was conducted to look at the effects of taking many different probiotic species with an array of antibiotics, both singularly and in combination with other pharmaceutical antibiotics, and not only found no significant decrease in risk (so the probiotics didn’t mess with the antibiotic’s ability to do it’s thing), but taking probiotics while taking a round of antibiotics has actually been shown to prevent and treat antibiotic-induced diarrhea (Rodgers, Kirley, & Mounsey, 2013). This means that taking a probiotic along with your prescribed antibiotic is actually better for your health than taking the antibiotic alone!
In all, there are so many things we have still yet to learn about the miracle of the gut, and the use and benefit of good quality probiotics. Just do me a few favors on your personal health journey: question everything, do your darn research, and find a practitioner to help you understand what’s really going on in that incredible body of yours.
SCHEDULE A COMPLIMENTARY, NO-OBLIGATION DISCOVERY CALL WITH SARA. WE’LL USE THIS TIME TO MAKE SURE WE’RE THE RIGHT FIT BEFORE COMMITTING TO WORK TOGETHER.
Schedule Your FREE 30 Minute Discovery Call
Written by: Paula Cole, MD, NDTR
Master’s of Science in Human Nutrition and Functional Medicine
Health fanatic, paleo enthusiast, and lover of Functional Medicine
Sources:
Bennett, R. G., Gorbach, S. L., Goldin, B. R., Chang, T., Laughon, B. E., Greenough, W. B., & Bartlett, J. G. (1996). Treatment of Relapsing Clostridium difficile Diarrhea with Lactobacillus GG. Nutrition Today,31(Supplement 1). doi:10.1097/00017285-199611001-00011
Bernini, L. J., Simão, A. N., Alfieri, D. F., Lozovoy, M. A., Mari, N. L., Souza, C. H., . . . Costa, G. N. (2016). Beneficial effects of Bifidobacterium lactis on lipid profile and cytokines in patients with metabolic syndrome: A randomized trial. Effects of probiotics on metabolic syndrome. Nutrition,32(6), 716-719. doi:10.1016/j.nut.2015.11.001
Cox, A. J., Pyne, D. B., Saunders, P. U., & Fricker, P. A. (2010). Oral administration of the probiotic Lactobacillus fermentum VRI-003 and mucosal immunity in endurance athletes. British Journal of Sports Medicine,44(4), 222-226. doi:10.1136/bjsm.2007.044628
Eskesen, D., Jespersen, L., Michelsen, B., Whorwell, P. J., Müller-Lissner, S., & Morberg, C. M. (2015). Effect of the probiotic strain Bifidobacterium animalissubsp. lactis, BB-12®, on defecation frequency in healthy subjects with low defecation frequency and abdominal discomfort: a randomised, double-blind, placebo-controlled, parallel-group trial. The British Journal of Nutrition, 114(10), 1638–1646. https://ift.tt/2NyfiwQ
Hun, L. (2009). Original Research:Bacillus coagulansSignificantly Improved Abdominal Pain and Bloating in Patients with IBS. Postgraduate Medicine,121(2), 119-124. doi:10.3810/pgm.2009.03.1984
Ouwehand, A. C., Nermes, M., Collado, M. C., Rautonen, N., Salminen, S., & Isolauri, E. (2009). Specific probiotics alleviate allergic rhinitis during the birch pollen season. World Journal of Gastroenterology : WJG, 15(26), 3261–3268. https://ift.tt/2O6pN7n
Rodgers, B., Kirley, K., & Mounsey, A. (2013). Prescribing an antibiotic? Pair it with probiotics. The Journal of Family Practice, 62(3), 148–150.
Tompkins, T., Mainville, I., & Arcand, Y. (2011). The impact of meals on a probiotic during transit through a model of the human upper gastrointestinal tract. Beneficial Microbes, 2(4), 295-303. doi:10.3920/bm2011.0022
The post 4 Myths About Probiotics appeared first on The Organic Dietitian.
0 notes
Text
4 Myths About Probiotics
Probiotics have become so popular, there’s certainly no shortage of probiotic supplements being sold in stores. But do you really know what you are doing when it comes to taking probiotics? First, you need to understand how probiotics really work. Now I want to debunk 4 myths about probiotics and how to get the most of of them when you do decide to take one for yourself.
1. My doctor told me I need to start taking probiotics- I’ll just eat yogurt every day then, that should be good enough, right?
Wrong. Well, mostly. Yes, yogurt does in fact contain live bacteria- the bacteria that’s necessary to turn the initial milk product into the final yogurt product. However, this bacteria is typically not useful to human health, as the strains of bacteria used during this process are only useful for turning milk to yogurty goodness, and not so much for improving your gut health.
There are a few yogurts on the market that have actual therapeutic strains of bacteria added however: Nancy’s Organic Probiotic Greek Yogurt, for instance, has added Bifidobacterium lactis Bb12 (plus Lactobacillus Acidophilus La5), which is clinically shown to be useful to treat chronic fatigue syndrome, traveler’s diarrhea, and intestinal dysbiosis, among many other conditions.
However, this is not the “rule” but the exception- the majority of yogurts on the market contain no useful bacteria inside, plus the addition of harmful added sugars and dyes. So overall, eating yogurt is not a good alternative to taking an excellent quality probiotic supplement.
2. I should take my probiotic supplement on an empty stomach to get the best benefit.
It is often times thought that taking a probiotic on an empty stomach should increase the potential of that bacteria surviving past the stomach (and stomach acid) to make their way healthy and happy into the intestine where they belong.
The thought behind this is that no food in the stomach suggests that there would be less stomach acid present too, and less of a possibility for the probiotic bacteria to be killed off before they can actually work to improve your health.
Turns out, this is actually furthest from the truth, as the highest number of bacteria to survive into the colon result from taking the non-enterically coated probiotic 30 minutes prior to or directly with a meal (Tompkins, Mainville, & Arcand, 2011).
Believe it or not, when you take a probiotic supplement with a meal vs. on an empty stomach, the added food helps to buffer the stomach acid, or neutralize it to an extent. Even more interesting, eating a meal that is higher in fat further increases the numbers of bacteria that survive their short stent in the stomach so that more good guys can make it to work in your small and large intestine.
Long story short: don’t take probiotics on an empty stomach. Pop ‘em with a meal, especially those that contain some good fats, to get the best results.
3. I can take any probiotic on the market and it’ll improve my digestion issues.
FALSE! Nothing could be furthest from the truth, actually. There have been decades of research demonstrating just how incredibly important not only specific Genus classifications of bacterium are (ie. Bifidobacterium, Lactobacillus, etc.), but even more importantly, how different Strains of bacterium within the same Genus and even Species (ie. Bifidobacterium lactis HN019, Bifidobacterium lactis Bb12) produce different benefits to human health.
Take a look at this quick chart showing just how diverse the benefits are for differing probiotic strains, and the importance of taking the right one for you.
Something else often misunderstood by most is that probiotics are also useful for many other chronic conditions not directly related to digestion symptoms. Take a look at these other probiotic super stars:
My main point is- I would never want to take a probiotic that’s been useful to improve constipation if I suffer from severe diarrhea, or one that’s been shown to improve Metabolic Syndrome when I really needed it to help decrease the duration of my Respiratory Tract Infection. Not all probiotics are made equal, and not all strains will be useful to you. Choose your probiotic wisely.
4. I can’t take a probiotic supplement while taking a prescribed antibiotic.
That’s where you’re wrong. An antibiotic is meant to kill bacteria in the body and a probiotic is meant to introduce bacteria into the body. The two shouldn’t seem to mix. But in reality, literature has BUSTED this widely believed myth wide open! With the wide use of antibiotics today come a typically unwelcome guest- antibiotic-induced diarrhea, typically caused by a opportunistic clostridium difficile (c. diff) infection, increasing the potential for death, and hiking health care costs and lengthening hospital stays.
With this being said, a meta-analysis of 63 randomized controlled trials was conducted to look at the effects of taking many different probiotic species with an array of antibiotics, both singularly and in combination with other pharmaceutical antibiotics, and not only found no significant decrease in risk (so the probiotics didn’t mess with the antibiotic’s ability to do it’s thing), but taking probiotics while taking a round of antibiotics has actually been shown to prevent and treat antibiotic-induced diarrhea (Rodgers, Kirley, & Mounsey, 2013). This means that taking a probiotic along with your prescribed antibiotic is actually better for your health than taking the antibiotic alone!
In all, there are so many things we have still yet to learn about the miracle of the gut, and the use and benefit of good quality probiotics. Just do me a few favors on your personal health journey: question everything, do your darn research, and find a practitioner to help you understand what’s really going on in that incredible body of yours.
SCHEDULE A COMPLIMENTARY, NO-OBLIGATION DISCOVERY CALL WITH SARA. WE’LL USE THIS TIME TO MAKE SURE WE’RE THE RIGHT FIT BEFORE COMMITTING TO WORK TOGETHER.
Schedule Your FREE 30 Minute Discovery Call
Written by: Paula Cole, MD, NDTR
Master’s of Science in Human Nutrition and Functional Medicine
Health fanatic, paleo enthusiast, and lover of Functional Medicine
Sources:
Bennett, R. G., Gorbach, S. L., Goldin, B. R., Chang, T., Laughon, B. E., Greenough, W. B., & Bartlett, J. G. (1996). Treatment of Relapsing Clostridium difficile Diarrhea with Lactobacillus GG. Nutrition Today,31(Supplement 1). doi:10.1097/00017285-199611001-00011
Bernini, L. J., Simão, A. N., Alfieri, D. F., Lozovoy, M. A., Mari, N. L., Souza, C. H., . . . Costa, G. N. (2016). Beneficial effects of Bifidobacterium lactis on lipid profile and cytokines in patients with metabolic syndrome: A randomized trial. Effects of probiotics on metabolic syndrome. Nutrition,32(6), 716-719. doi:10.1016/j.nut.2015.11.001
Cox, A. J., Pyne, D. B., Saunders, P. U., & Fricker, P. A. (2010). Oral administration of the probiotic Lactobacillus fermentum VRI-003 and mucosal immunity in endurance athletes. British Journal of Sports Medicine,44(4), 222-226. doi:10.1136/bjsm.2007.044628
Eskesen, D., Jespersen, L., Michelsen, B., Whorwell, P. J., Müller-Lissner, S., & Morberg, C. M. (2015). Effect of the probiotic strain Bifidobacterium animalissubsp. lactis, BB-12®, on defecation frequency in healthy subjects with low defecation frequency and abdominal discomfort: a randomised, double-blind, placebo-controlled, parallel-group trial. The British Journal of Nutrition, 114(10), 1638–1646. https://ift.tt/2NyfiwQ
Hun, L. (2009). Original Research:Bacillus coagulansSignificantly Improved Abdominal Pain and Bloating in Patients with IBS. Postgraduate Medicine,121(2), 119-124. doi:10.3810/pgm.2009.03.1984
Ouwehand, A. C., Nermes, M., Collado, M. C., Rautonen, N., Salminen, S., & Isolauri, E. (2009). Specific probiotics alleviate allergic rhinitis during the birch pollen season. World Journal of Gastroenterology : WJG, 15(26), 3261–3268. https://ift.tt/2O6pN7n
Rodgers, B., Kirley, K., & Mounsey, A. (2013). Prescribing an antibiotic? Pair it with probiotics. The Journal of Family Practice, 62(3), 148–150.
Tompkins, T., Mainville, I., & Arcand, Y. (2011). The impact of meals on a probiotic during transit through a model of the human upper gastrointestinal tract. Beneficial Microbes, 2(4), 295-303. doi:10.3920/bm2011.0022
The post 4 Myths About Probiotics appeared first on The Organic Dietitian.
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Mike & I on vacation with his family in Rhode Island.
Hi! I wanted to pop in and provide a few updates as I've not done so for some time, and there are —excitingly enough—things on which to update.
I have been on a new regimen for over a month now, and it seems to be *doing something* (cue ALL of the emojis). When I look back at my daily symptom chart, and compare it to my calendar, I can see that while no one symptom is more than marginally better, a couple of symptoms are improved enough that when combined I have been able to overall increase my activity level.
Whereas before a “good” day meant I had about an hour to play with, a “good” day lately could include a few hours of being out of bed and might even mean tomorrow could be a “good” day, too. It’s been really, really nice, guys!
My sister Cayla and I enjoying live music and those blissful first summer rays at a local beer garden.
Of course this isn’t without compromise. Being more immunocompromised than usual means I get extra walloped by bugs others get over pretty easily. Which is certainly saying something considering lupus does a good job of this on its own. (I hope no one else gets that awful parainfluenza virus that’s going around! It is a doozy, and today is the first day in the last ten that I am really back on my feet.)
My “not-explained-by-lupus” diagnoses are still separate issues that I have to monitor and tend to as always, and the disease as a whole is hardly better to the extent I still do not know which days will be “good” days, but I’ll take what I can get.
Mike & I escaped to hang with friends in St. Petersburg, FL in May-- a much needed respite after a long, dreary winter.
The new combination of therapies is not without its side effects, either, of course. One of my weekly injections makes me feel pretty darn hung over, with nausea and malaise for a solid 36 hours. The other makes me achier, dizzier, and SO much itchier that it (and the antihistamine I must take with it) is a bit debilitating for a couple of days post administration. Both shots make my symptoms—particularly the pain— worse at first, and cause pretty intense swelling, too. But once the initial side effects – and the Benadryl/hydroxyzine haze—wear off, I’m left with a body that has a slightly easier time passing as a healthier one. Hurray!
It’s funny to think how low I have set the bar, but I think most with a chronic illness have learned to adjust and temper expectations. Energy becomes a commodity, and we are constantly running through equations for cost effectiveness. Every conscious moment begs the question, “is this a good return on my investment?” as we brush our teeth, consider making a meal, decide whether or not we can see a friend. “Well” moments are prioritized. “Okay” bursts are offered first to Absolutely Have to Get Done. Remaining energy is then used on Moderately Important Needs, and if there is any juice left over (which there rarely ever is) Stuff You Can Survive Without Doing gets some love.
Mike's littlest nephew and I at the beach.
Most of us can do a lot with very little. It’s a super power, in my opinion. At my last appointment, one of my rheumatologists was telling me how committed he is to getting me feeling better, that his failure to do so up to this point keeps him up at night. I told him I’m not asking for much; a 15% improvement would be awesome. I’ve crunched the numbers and that’s the minimum required in order to ascertain some kind of normalcy. He countered that he’d shoot for 50% (giving my Mama and her severe/not-receptive-to-medication-RA the other 50%), and that he was planning to relieve my dysautonomia symptoms before my cardiology team does— a challenge of sorts, which I found pretty amusing).
I joke that the only thing I spend money on is medicine and plants. I'm not lying! Gardening, like baking, is good for the s-o-u-l.
I would love to see 50% improvement, but I know better than to expect it. With my current combo, maybe five symptoms are conservatively estimated as 1% better, but 5% is a decent margin as far as the chronically ill are concerned. That number means life is 5% less challenging. I’ll take it!
Per my physicians’ suggestions I’ll increase one of the meds over the next few doses and see if I notice more relief, and maybe I’ll be able to push that percentage of improvement closer to ten. Time will tell, and my fingers are crossed as I enjoy this newly found and much enjoyed freedom.
In other exciting news, you may have noticed a new feature on this site. A couple of weeks ago I added Match, a tool that takes the tedium out of finding research trials you are eligible for recruiting near you. Today I am excited to share with you that I have partnered with Antidote to help fellow lupies connect with enrolling trials, in the hopes others can find therapies that help them feel 5, 10, 15, 50, or even 100% better, while helping our shared fight for finding a cure for lupus.
A lupus trial near you is now enrolling.
Currently, Biogen is testing a monoclonal antibody which may control lupus symptoms and/or disease activity— including skin manifestations of the disease. If you are interested in learning more about the trial, or determining if you are eligible, click here.
As I’ve said before and will continue to say for the rest of eternity, clinical trials aren’t for everyone. How a person goes about caring for themselves post diagnosis is entirely and 100% Their Own Business And No One Else’s. My belief is simply that the best patient and/or advocate is an informed one. I think the trickiest part is that staying up to date is no small feat, particularly when brain fog is a component of your illness, and this is precisely why I am excited to offer as many advocacy shortcuts for others in similar shoes as possible.
If you're having skin problems related to lupus, you may qualify.
I already post about studies and research results with their respective implications. I love the idea of being some small part of furthering research, especially because it's hard to keep up with all that's going on when lupus is knockin' ya down.
I can appreciate that others like me want to be involved in research and advocacy for a variety of reasons, but lack the access to do so because of their disease. That’s a real and often insurmountable hurtle. My hope is endeavors like this one help fold the map and make the distance between You and You Feeling A Little Better that much shorter. Because while hope may be an entity in short supply for the chronically ill, it’s important we never completely lose the ability to dream.
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