#chd warrior

[elvensworld]

Can’t believe how happy this boy is!!! I started making beaded jewelry because of him and now have my own etsy shop. A portion of all sales from November and December will be donated to the heart organization that helped him live!

[thatonefurryartist]

[cyberpsychotic-purgatory]

"Up The Tower"

Deep Inside Central District's Inclusion Zone.[A part of NC+] J i h z z y enjoys the view of a reclaimed wasteland while Mara enjoys a view of her own.

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I'll do my best to put up some more content regularly; however, I wanted to post this as a bit of an "excuse my likely absence" but for the near future.

My late Son's memorial is coming up this November 21st. It'll be the first one we experience, my wife and I. Our son, who's middle name is Atlas, (Keeping the full name private for obvious reason) , was a warrior of CHD. A grueling battle that takes a toll on everyone involved. I ask that you please excuse any lack of interaction that may occur as we're not really sure how we're going to handle this. We check our Tumblrs every day throughout the day and we love everything we see. (I'm way worse about not 'liking' things I should) Just know that all of your content is appreciated and not to take our lack of interaction as a sign of anything otherwise.

As a way for me, personally, to memorialize him, I use the "#Atlas Forever" tag. Something to keep an eye out for in my future work, as he has been an inspiration to so much for me. I remember him where I can. Feel free to use it whenever you feel loved, as anytime I feel loved, I think of him to share the moment. I hope it can become something of a happy trend for some people. I think that would be nice.

[teenmomcentral]

Happy 1 Year Heartiversary to my little warrior!💝🎉

I can’t believe it’s been 1 year since the craziest time of our lives. It all seems like a blur now, I remember last Christmas I was so scared I was going to not have my baby and just grateful that she got to experience her first. I was a wreck to say the least. This day has me very emotional because she really fought her way to be here, it was a hell of a fight too. I love you more than life my baby and I want you to always know from these photos how strong you are🙏🏻 Maya has not be in the hospital once since having this surgery you can really see the difference and how much it’s helped her from then to now.

And to the parents going through this or going to go through this, there’s a light at the end of the tunnel. They are resilient! They can get through the worst of times and be the happiest of kids! Maya is the happiest little baby with the biggest smile on her face all the time, she still terrorizes her sisters, she’s feisty and does everything any other child would! Hopefully for other parents of CHD babies you can take something away from us and give you some hope in whatever hard situations you’re in. I know I needed to see the positive with other stories and I found some in some other mothers posts of their children thriving. Maya is now one of those thriving children 🤍

[bonniebelleklyde]

The amount of absolute joy I had when I was scrolling through the loceit tag to see a lawyer au where Logan has a heart condition was astronomical. I have HCM, aka Hypertrophic cardiomyopathy (of the LEOPARD Syndrome type). And although I don't need annual surgeries, I am medicated for it and have restrictions (like I can't play any contact sports, I can only do a sport in general if it doesn't over exert my heart because I have a risk of it worsening because of it, etc.). (1 of ??)

I also need to go to my cardiologist on a yearly basis and I'm getting a referral to an even more specialized cardiologist who has dealt with my case before. I have to have like, an every other year holter monitor set up (usually 24 hours but last year, I wanted to educate my classmates on them and so he set it for 48 hours) and it can be a pain trying to make sure new meds won't effect the heart much and all that. Love that I just found an absolutely amazing au. Thank you for doing this (2/2)

Ahh yay another member of the heart warrior club! I’m so, so glad you stumbled across the lawyer au and that my giving Logan his heart condition brought you any kind of happiness. 

I’ve just seen severe heart conditions represented so rarely, and where I have seen them, it’s monopolized their entire character, which is just so invalidating. A lot of Logan’s experiences of CHD in the AU are me projecting my own experiences, and I don’t pretend to speak for all folks with heart conditions by any means, but I felt very strongly about putting it out there that, hey-- yes, these conditions are tough to deal with; no, it doesn’t prevent us from living full lives within our physical limitations. I think when I was younger, trying to wrap my head around what CHD meant for my life, I would’ve loved to see a character who owned their career and had a fulfilling life and also happened to have a heart condition. 

I would love to shed some more light on living with heart conditions generally through this AU, so if anyone at all has any questions about Logan’s experiences with his health issues and/or how that all fits into his life at large, please feel free to send them my way! And I’d love to hear from those of you who have experiences with various heart conditions yourselves! It’s so rare to meet other folks with similar health circumstances to my own, so that you guys are finding me through the AU is so wonderful :)

[thepracticalheartmom2]

Today my whole office wore red for CHD. I’m so thankful to work in a place that cares about me and my family.

[rawritsamehh]

HEY. When you're going through stuff, it's not 'complaining' to seek comfort and validation from those around you. You're clearly a strong person and I hope things get better for you and your family soon! Sending all of the good vibes. 💗✨

Thank you so much. I appreciate this more than I can say. 💖

I’m extremely bad about bottling things up, it’s something I’ve been working on for awhile.

[hamdun888]

Athletics and CHD - Live Event (Tori & Tom)

Athletics and CHD – Live Event (Tori & Tom)

Such an honor and blessing to collaborate with Tori Joy Geiger to support our CHD Warriors and in doing so all of our youth, our families, our communities and one another. From Tori … Athletics and CHD… What does that look like?? 🤔I commonly get questions from heart parents and warriors alike asking about this and what it looks like to compete at various levels.As an ex-college athlete…

[callhimdude]

Recent collaboration Unity Mantra Concert with Sati Kazanova . . . Makeup/Styling : @nuance_by_sandrina In frame (singer) : @satikazanova/@satiethnica Hair : @akshay_goteea x @callhimdude Designer : @fabienfauzou x @callhimdude Accessories : @pinkelephantaccesories Photographer : @stefanotiozxo . . . #Fashionhub #mauritius #russianTalent #russiawithlove #mantra #mantraconcert #fashiondesigner #dressmaker #callhimdude #chd #fabienfauzou #unique #diva #green #warrior #accessoriesDesigner #accessories #designers (at University of Mauritius) https://www.instagram.com/p/CNpnwAsAMl3/?igshid=1wvzdyh9w5z7s

[usashirtstoday]

I Never Dreamed Badass Cancer Kiching Warrior CHD Awareness Orange Ribbon Warrior T Shirt

Today is a day I have been working towards for 25 years and I have made it has been a long and sometime hard course but I stayed it and I am so happy!I Never Dreamed Badass Cancer Kiching Warrior CHD Awareness Orange Ribbon Warrior T ShirtI Never Dreamed Badass Cancer Kiching Warrior CHD Awareness Orange Ribbon Warrior T Shirt! My future is secure and now I am just working for the gravy. I press forward to the mark that will ensure I can continue to be and do and see and for it all I am thankful. I never dreamed that one day that Cynthia Nalls took me in her office and guided me on making a career for myself would be such a memorable journey and I can’t stop thanking my coworkers and friends for making it a good one happy today!

Buy it: I Never Dreamed Badass Cancer Kiching Warrior CHD Awareness Orange Ribbon Warrior T Shirt

From: https://nineliveapparel.info/

[omegas-chica04]

Nightly devotion...

After 2 am & I should be asleep now. I send out positive vibes for my hubs who got stuck on a 12-hour nightshift. And will probably pull into the driveway as I leave to take the kiddo to school. The wife of a CO Lieutenant isn’t glamourous. 

 Also sending out positive vibes to my AU hubs,(as if you didn’t know who it is, LOL), as he works in the studio creating wonderful music with his guitar and his beautiful voice. 

It may be silly but the life I lead, I do sometimes need to escape reality, if but just for a moment. In my dreamland, I shall be placed on a beach somewhere, being served a nice cold margarita and being fed grapes by the 2 men in my devotion

This is how my spirit is built.

[bonniebelleklyde]

I am a fellow heart warrior!!

I don't have the same heart condition that Logan (and you?) have. But I do have one!!!

I have an atrial septal defect (ASD) which is a really fancy way to say I have a hole between the two chambers of the heart. It doesn't really require surgeries for it, well... There is.. But that's only if I overwork it and the hole tears open. Then they have to seal it, but that has a high chance of complications.

I don't have this surgery, but I do go in for yearly heart checkups (which are the WORST. They put these annoying sticky pads on for 24 hours, and they are SO ANNOYING!!! Imagine looking like a bloody robot with 50 different wires on you-)

But because my heart will tear with over activity, I can't do things like P.E. (so no running. No sports. Yadda yadda yadda) and I also can't control my temperature very well, so I'm almost constantly freezing cold or at risk for heatstroke..

But like. I don't require yearly surgeries (that honestly sounds terrifying) I have had some really close calls where they thought my heart teared, but like...

heart warrior buddies?

(I've never met another person with a heart condition oml)

Oh this is so cool! Heart warrior buddies for sure! And yes, Logan does have my specific condition. I feel like he’d share a lot of my own frustrations with it haha.

And man oh man can I relate to the awfulness of the annual cardiology check-up. Do you get 24 hour EKGs? God, that must drive you crazy. I have to watch my activity level, too, so if you ever need to vent your frustrations, I’m your girl! Bothered the hell out of me when I was younger, got used to it over time. Ditto with the surgeries. I just got through with one and I’m more bored than anything else!

The cold, though, I never got used to. I’m constantly covered in blankets clutching a mug of coffee like it’s sub-zero temperatures haha.

I’ll stop rambling about heart stuff, but it’s so great to connect with another heart warrior 😊

[lobstronimous]

In honor of my son Milo. A strong fighter and heart warrior!

[rawritsamehh]

15 & 39

15. what time do you usually go to sleep & wake up? - I’m in bed by 8:30/9pm usually and up for the day around 5:30. I struggle with insomnia due to a medication + a child who also struggles with insomnia from medication and ends up in our bed, thrashing and kicking, so I’m typically awake around 3am. I read a lot of fics around this time 😅

39. what is something you’re excited for? - hmmm. There’s minor things, like seeing what tweets Phil gets for his birthday and being excited for the weekend. On a bigger scale, I guess Feb 14th. Not for Valentines though! It’s CHD Awareness Day 🥰 my youngest, Fin, has CHD (Congenital Heart Defect) so it’s a big day here.

[leannkelley]

My CHD Warrior! My Hero! My Sunshine! Be Aware!⠀ #CHD #CHDAware #CHDAwareness #HeartWarrior #LTGA #CCTGA #1in100 #Awareness #HeartMom #HeartMonth #Ivy #TeamIvy #MySunshine #Daughter #Warrior #Valentine #ValentinesDay #MyValentine⠀ #amwriting #LeAnnKelley #Iryvalya #Bloodlines #Nyrieve #Volnyri #TheTalesofIryvalya #FollowMeToIryvalya #PlotDragons #Elves #Fantasy #Fairies https://www.instagram.com/p/Bt3P7KOAZzt/?utm_source=ig_tumblr_share&igshid=1cxduqa0n9wqr

[callhimdude]

Unity Mantra Concert with Russian Artist Sati Kazanova . . . Makeup/Styling : @nuance_by_sandrina In frame (singer) : @satikazanova/@satiethnica Hair : @akshay_goteea x @callhimdude Designer : @fabienfauzou x @callhimdude Accessories : @pinkelephantaccesories Photographer : @stefanotiozxo . . . #Fashionhub #mauritius #russianTalent #russiawithlove #mantra #mantraconcert #fashiondesigner #dressmaker #callhimdude #chd #fabienfauzou #unique #diva #green #warrior #accessoriesDesigner #accessories #designers #ipreview via @preview.app (at University of Mauritius) https://www.instagram.com/p/CNkrQ23A5_I/?igshid=16140q6fpn3ty