#cerebral palsy compensation

[lovestruckficto]

SOBS...honestly im so glad i can make the other softie P03 simps come out of their shells

[dissociacrip]

this is okay to rb i think, especially if you have anything to add or any insight. idk. i'm tagging this the way that i am because i'm seeking community/connection(tm) or something

hypotonia is not like. a rare thing. not really. but i do remember my OT googling what it was.

low muscle tone/hypotonia may technically be a symptom rather than a diagnosis (barring benign congenital hypotonia, which afaik is controversial) but it's the closest thing to a "diagnosis" i've been given for some of this stuff because the potential cause of it hasn't been investigated and i guess it's not exactly urgent since my particular case isn't severe and doesn't seem progressive (hypotonia can be progressive & is involved in some progressive and degenerative conditions.)

but i wish it was talked about more and i wish more was known about it works and how it affects bodily function and i wish what we DO know about it was more accessible to the public when it comes to those who suffer from it. it's also kinda hard whether to KNOW you have it or not since its "signs" have so much overlap with other conditions that aren't related to muscle tone. it ranges a lot in severity too. and there's two different types (central and peripheral.) it's linked to dozens of diagnoses too which is why i say it's not uncommon.

but also i guess due to the complexity of how it affects the body and its lack of distinctiveness with most of its symptoms makes it kinda...hard to talk about? and i imagine w/ some people it's hard to distinguish the effects of hypotonia vs. their other problems. issues with chewing, writing, breathing, speaking, posture, coordination, etc. can be due to so many different things ranging from mental to physical. but it's not always something that can be lumped together w/ those other things because there's "my muscles don't work" in a terms of chronic muscular pain vs. "my muscles don't work" in terms of, like, they lack the ability to adequately support the body and bodily movement. if that makes any sense.

which ranges from someone like me where having to hold myself up sucks + mild motor skill/coordination impairments and mild developmental milestone delays, but others never meet those milestones or need assistance with things like breathing and ingesting food.

it's not a diagnosis but it can affect the body in complex ways like muscle shortening and stiffness due to our bodies having to compensate in weird ways for the lack of adequate tone (esp those of us who grew up with it), tibial torsion and femoral anteversion, flatfoot and knock-knees, reduced cervical lordosis sometimes leading to bruxism and occipital headaches, etc. PT centered around muscle strengthening to correct my "improper" movement and stuff.

and there's other stuff that can come with it that people like to consider """gross""" like drooling, constipation and other gastric, and pelvic floor dysfunction which can result in incontinence/problems with bladder control. muscles are involved in a lot of things. wild.

i'm rambling but i just wish more people talked about it. all i really have is that one interview that surestep did with meagan veracha, who has hypotonic cerebral palsy, about living with hypotonia as an adult.

maybe i wouldn't care all that much if i had a diagnosis that would "explain it" but "i might have gHSD/hEDS" doesn't rly do that for me because ppl in those communities obviously focus a lot on the joint dysfunction aspect (because those 2 conditions center around hypermobile joints so that's just natural, it's not a bad thing per-se, barring other problems that those communities have) but for me my case of symptomatic generalized hypermobility is secondary in how it impacts me vs. my muscles being bad at their job and my hypermobility might even be secondary to my hypotonia anyway.

dyspraxia/DCD (some people with it have hypotonia but not all - i thought i had it before i was told i was identified as having hypotonia when i was a kid...over two decades late) is another guess but again that centers more around coordination than things like "anything other than lying in bed is hard on me because my muscles don't support my body like they're supposed to."

maybe muscle tone is a complex medical concept that shouldn't really enter the public lexicon but i have no other language for it.

[petervintonjr]

Meet the unsung contributor to revolutionary breakthroughs in treating polio, cancer, HPV, and even COVID-19: Henrietta Lacks. Born in 1920 Roanoke, Virginia, Henrietta's mother Eliza died when she was only four, and she was ultimately raised by her maternal grandfather in Clover, Virginia. Henrietta worked as a tobacco farmer and attended a segregated school until the age of 14, when she gave birth to a son, Lawrence. A daughter, Elsie, was born three years later --to compound the family's difficulties, Elsie had cerebral palsy and epilepsy. Henrietta and her now-husband David Lacks moved to Turner Station (now Dundalk), Maryland where David had landed a job with a nearby steel plant. At the time Turner Station was one of the oldest African-American communities in Baltimore County and there was sufficient community support for the family to buy a house and produce three more children.

In 1951 at the age of 31, Henrietta died at Johns Hopkins Hospital of cervical cancer, mere months after the birth of the family's youngest son. But before her death --and without her or her family's consent-- during a biopsy two tumour cell samples were taken from Henrietta's cervix and sent to Johns Hopkins researchers. Hernietta's cells carried a unique trait: an ability to rapidly multiply, producing a new generation every 24 hours; a breakthrough that no other human cell had achieved. Prior to this discovery, only cells that had been transformed by viruses or genetic mutations carried such a characteristic. With the prospect of now being able to work with what amounted to the first-ever naturally-occurring immortal human cells, researchers created a patent on the HeLa cell line but hid the donor's true identity under a fake name: Helen Lane.

It is no exaggeration to state that in the 70 years since her death, Henrietta's cells have been bought, sold, packaged, and shipped by thousands of laboratories; with her cells being used as a baseline in as many as 74,000 different studies (including some Nobel Prize winners). Her cells have even been sent into space to study the effects of microgravity, and were instrumental in the Human Genome Project. While no actual law (or even a code of ethics) necessarily required doctors to ask permission before taking tissue from a terminal patient, there was a very clear Maryland state law on the books that forbade tissue removal from the dead without permission, throwing the situation into something of a legal grey area. However because Henrietta was poor, minimally educated, and Black, this standard was quietly (and easily) circumvented and she was never recognized for her monumental contributions to science and medicine ...and her family was never compensated. The family remained unaware of Henrietta's contribution until 1975, when the HeLa line's provenance finally became public. Henrietta had been buried in an unmarked grave in the family cemetery in Clover, Virginia but in 2010 a new headstone was donated and dedicated, acknowledging her phenomenal contribution. That same year the John Hopkins Institute for Clinical and Translational Research established a new Henrietta Lacks Memorial lecture series. A statue of Lacks was commissioned in 2022, to be erected in Lacks's birthplace of Roanoke, Virginia --pointedly replacing a previous statue of Confederate Gen. Robert E. Lee, which had been removed following nationwide protests over the murder of George Floyd.

Dive into The Immortal Life of Henrietta Lacks by Rebecca Skloot, originally published in 2011 and subsequently adapted into an HBO movie in 2017, starring Oprah Winfrey as Henrietta's daughter Deborah and Renee Elise Goldberry as Henrietta. (And yes, this book has been challenged and banned in more than one school district.)

[msfbgraves]

Konmari day 20: living your tidy life

Watched a Dutch show yesterday about tidying and appreciated the Konmari method even more.

The case study was a single mother with two teenage daughters, living on a boat they could no longer move in. The mother understood that fact, and asked for help tidying.

What she had asked for was a tidy space.

What the team took that to mean is that she had to be, somewhat harshly, woken up to the fact that she was a hoarder.

Now she was certainly getting something out of their interference: the boat was thorougly cleaned and patched up wherever possible.

And then they laid out all her things in an enormous space- they'd hired a warehouse - assuming that this would automatically mean she would take the things that spoke to her and donate the rest; possibly sell a few items.

But this woman, whose name escapes me, did not want to let go of a single thing.

Scoffing all around. She must understand that her boat was untidy because it was too full. The only way to tidy would therefore be to ruthlessly discard, how could she not see that?

Because this woman was terrified of poverty. Her motto was "I am going to sell all of this."

She was quite willing to let go of a lot of things, but not without at least some monetary compensation.

More scoffing. "If you were going to do that, dear, you would have done so already."

Perhaps, but if they'd actually worked with her, wouldn't that have been more respectful? When seeing that her only way of letting go of things was to sell them.... could they have not helped her do that? If they can hire cleaners, architects, builders - why not hire an ebay guru?

There's people making a tidy living upselling things, ask any pawn shop.

Another mistake I think the programme made was assuming they knew better than the protagonist what was good for her; practically trying to force her to discard. "What do you want to keep" is so much kinder. And Marie also does not handle your things for you. 1, it's less condescending, but two - she makes you hold every item you decide to keep. Physically touching it. Now, because she makes you start with items you love most, tiredness works for you. Every item that you touch is potentially slightly less dear to you. When you have been doing this for a couple of hours, while faced with the prospect of having to put everything you handle back your own damn self, you are far more likely to go: "You know what? I don't really love this. Honest I don't. Definitely not enough to put it all back. It can go."

I promise you, had this woman had to do this all herself, well, she would not have taken everything back. But since she knew others would put it back for her, why confront her fears about discarding anything?

And if, potentially, she really had not wanted to let go of one single item, because they all sparked joy: (which I think is nigh impossible, but strange things happen every day) Marie Kondo would have shown her how to store every single thing. She's shamelessly about you.

And there is enough shame to go around. I'm searching through a mountain of DIY tools my parents gifted me because you need those to tackle common household chores.

Still. I have cerebral palsy. My spatial vision, eye-hand coordination and fine motor skills are impaired. I'd love for all those things to be, um, paired, honest I do, but they're not and they are not becoming so in the forseeable future. So now I'm sitting here, sifting through 'normal' household items and feeling very disabled about it all. But practically, I am not going to move my own dryer, and I can expect the people I would have to hire to do that for me to own these tools themselves, so why keep those specialist tools for dryer moving? The only thing that is good for me to have on hand are a few things they might need in a pinch: a few extra types of screws, a spare screwdriver, tong, pincers, some measuring tape, some pencils, plastic to cover furniture.

Meanwhile, I will have to resort to adhesives in daily life, because I cannot use a drill and can barely manage a hammer.

There are no one-size-fits-all- solutions, and you can't shame people into them.

And again, slowly getting rid of things that make me feel inadequate, only to be surrounded by things I actually use - it feels good. Because now I'll be able to reach them easily, and that makes me happy.

[brightlotusmoon]

Me, looking up prevalence of trigeminal nerve pain as a cerebral palsy comorbidity:

What I found:

"Individuals with cerebral palsy (CP) experience impairments in the control of head and neck movements, suggesting dysfunction in brain stem circuitry. To examine if brain stem circuitry is altered in CP, we compared reflexes evoked in the sternocleidomastoid (SCM) muscle by trigeminal nerve stimulation in adults with CP and in age/sex-matched controls.

Increasing the intensity of trigeminal nerve stimulation produced progressive increases in the long-latency suppression of ongoing SCM electromyography in controls. In contrast, participants with CP showed progressively increased facilitation around the same reflex window, suggesting heightened excitability of brain stem pathways.

We also examined if there was altered activation of cortico-brain stem pathways in response to prenatal injury of the brain. Motor-evoked potentials (MEPs) in the SCM that were conditioned by a prior trigeminal afferent stimulation were more facilitated in CP compared with controls, especially in ipsilateral MEPs that are likely mediated by corticoreticulospinal pathways.

In some participants with CP, but not in controls, a combined trigeminal nerve and cortical stimulation near threshold intensities produced large, long-lasting responses in both the SCM and biceps brachii muscles.

We propose that the enhanced excitatory responses evoked from trigeminal and cortical inputs in CP are produced by heightened excitability of brain stem circuits, resulting in the augmented activation of reticulospinal pathways. Enhanced activation of reticulospinal pathways in response to early injury of the corticospinal tract may provide a compensated activation of the spinal cord or, alternatively, contribute to impairments in the precise control of head and neck functions.

NEW & NOTEWORTHY This is the first study to show that in adults with spastic cerebral palsy, activation of brain stem circuits by cortical and/or trigeminal afferents produces excitatory responses in anterior neck muscles compared with inhibitory responses in age/sex-matched controls. This may reflect a more excitable reticulospinal tract in response to early brain injury to provide a compensated activation of postural muscles. On the other hand, a hyperexcitable brain stem may contribute to impairments in the precise control of head and neck functions."

The new GP remarked that my cerebral palsy display is one of the more mild and subtle she's worked with. I'm used to hearing that. Let's see what happens when our next visit gets into excruciating detail!

(if we don't do our own fucking homework, the doctors won't either)

[rokhal]

All-New Ghost Rider: Corporation Rim AU

Alberto and Juliana lead a relatively comfortable life as colonists on a corporate-owned planet, working the standard 14-hour days for 9 days out of 10, making enough to afford shelter and food for their two children, and making interest payments on the loan they took out to pay for the extensive cranial augments Gabe needed to compensate for his cerebral palsy. Then little Robbie jumps off the roof and cracks his head open.

Alberto and Juliana go to an independent loan shark to get Robbie released from the hospital after his stay in the company med system, and to get Robbie his own set of extensive cranial augments to compensate for his brain damage and missing eye. Robbie is still recovering when negotiations with the loan shark turn sour and his parents disappear.

Flash forward thirteen years. Robbie is functional, if emotionally stunted and missing huge gaps from his memory. Gabe is physically alright due to his augments supporting his motor control, but still intellectually disabled; with specialized education he could learn to use his augments to compensate for some of his cognitive deficits, but that costs money Robbie doesn’t have, and he’s always going to need support. The responsibility for paying off Gabe’s augments has fallen on Robbie; if Robbie can’t do it, then Gabe will be transported to a mining planet as manual labor. (So would Robbie. And Robbie definitely does not develop a guilt complex about this.) So Robbie gets a job smuggling contraband (counterfeit goods, raw recycler stock, spyware-free datachips). His augments, since they’re unusually invasive and he got them so young, make him better at interfacing with shuttles than most other pilots, and he gets a reputation as “the kid who can fly anything.”

Our story begins when Robbie’s shuttle is hit by sentient, self-replicating, self-optimizing killware (virus designed to brick hardware and destroy artificial intelligences) deployed by a rival smuggling organization. This killware deletes Robbie’s shuttle’s bot pilot out from under him. Robbie is already linked in and he compensates quickly, but he doesn’t know what’s happening when the killware uploads itself to his augments.

This killware has existed in one form or another for decades, replicating and tinkering with itself, and it has become capable of emotions like curiosity and fear of its own death. Robbie’s augments offer it a rich organic sensorium that it likes very much. It decides to stay in Robbie’s head, hiding its presence from debuggers, and eventually figures out how to use Robbie’s feed interface to hack. Shuttles, bots, surveillance systems, anything. The killware’s style is a lot more smash-and-burn than Murderbot’s, and they rapidly start drawing attention.

The killware doesn’t like Robbie’s shit life any more than Robbie does, and when it eventually reveals its presence, it proposes that Robbie escape the colony planet and become a space pirate. After all, Robbie is a better host than some server sitting in a box on a smuggler’s space shuttle, and his augments extend into so many different brain regions that, given enough time, the killware could take over his body and assume his identity. Might as well make it an identity worth stealing. The only human the killware has ever encountered with a similar vulnerability...is Gabe.

[briamichellewrites]

31

Donna was woken up in the middle of the night by Goldie pawing at her. When she turned on the bedside lamp, she noticed he was looking at her. He whined as soon as he realised she was awake. She stood up because she sensed something was wrong. They entered Sheena's room. When she turned on the lights, she discovered she was having a seizure. She reassured her that everything was okay. By the end, she had become confused and exhausted. She showed a sad expression.

Donna continued to talk to her, attempting to calm her down. They were supposed to return home the same day. She would call her husband, Nathan, and explain what had happened. He did not want her to fly after having an epileptic seizure. She would also text Angel because she was going to drive them to the airport. Instead of returning home, they planned to spend the day resting.

She did eventually fall back asleep. Donna scratched Goldie's head and remarked, "Good boy." He was delighted to hear that! During his training, he learnt how to spot a seizure before it occurred. He had the ability to detect smells that humans could not. His nose contained trillions of neurones that assisted him in detecting odours. Sheena had a different odour just before she had a seizure. He used his training to seek assistance from another human being. As she fell back asleep, he remained on the bed beside her.

She woke up later than usual because she was exhausted. Donna entered the room and discovered her awake. She smiled as she approached her. While waiting for her to awaken, she called Nathan and Angel to inform them of what had happened. They were both in agreement that she should avoid flying. She promised to keep them up to date on her progress.

She assisted her with breakfast before discussing their plans. Sheena understood why they were staying for an extra day. Perhaps they should go for a walk. Even if they did not go outside, they could explore the first floor of the hotel. Donna thought that was an excellent idea. She did not want to go outside unless absolutely necessary because it was cold. They went into the bathroom, and she assisted her in brushing her teeth and hair. She also changed her diaper.

They enjoyed themselves while exploring the hotel. There was just so much to see! They said hello to the clerks at the front desk. Sheena smiled at them. The pool reminded them that they needed to purchase a life vest for their swim. She began participating in water therapy at the age of twelve to improve her muscle control. She had so much fun with it! She was permanently smiling after putting on her swimsuit.

The therapist had a wealth of experience working with children with cerebral palsy, autism, Down syndrome, and other conditions. She had the patience and positive energy they required. If they were concerned about their safety in the water, she did everything she could to reassure them. Sheena navigated the water using a flotation device. The temperature of the water was warm. It reminded her of being in a massive bathtub. They were unable to continue with the therapy due to financial constraints.

Sheena burst out crying when she heard the news. Nathan had lost his job as a welder, and they had to cover her medical bills. Their insurance and his unemployment compensation were insufficient. Angel got a part-time job at a neighbourhood grocery store. She gave them the money she earned to help them pay for their bills. It took him a year to find a new job.

He received higher pay and benefits than he did at his previous position. They contributed to the cost of his retirement plan and health insurance. This provided the family with more money to meet their needs. They considered moving away from Los Angeles and into a more affordable area. Perhaps somewhere in the south, like Kansas, Alabama, Nebraska, or Tennessee. Moving with a severely disabled child would not be easy. That is why they stayed. Despite everything, they had no ill will towards Sheena.

It was not her fault. She brought joy to their lives, and they would not give her up for anything. Seeing her happy made everything worthwhile. Angel made significant sacrifices for her younger sister. Instead of hanging out with her friends in high school, she was either caring for her sister or working. Their parents ensured that she continued to have a social life like any other teenager.

Her friends came over and invited her to join them in their activities. She became their younger sister as well. They enjoyed doing her hair and doing their homework alongside her. She cherished the opportunity to participate! They brought her along when they went shopping because they enjoyed hearing her opinions. She did not need to say anything to express her thoughts. Angel called home once a week to check on her sister after she moved to Salem for college.

Angel returned to the hotel after her nap. Even though she was still groggy, she smiled at her sister. She was feeling much better. It was simply another off day. Before entering the lavatory, she assisted her in getting into her wheelchair. Her long locks were brushed and pulled back into a braid. They also checked her diaper. It remained clean. She was hungry, so they went to find something to eat.

Henry was tired. It had been yet another long day. He went to see his daughter. The doctor intended to move her to the cardiology ward the following morning. He was asked to express his opinion. It sounded like a terrific idea. They were more knowledgeable about the heart. It was not safe for her to stay in the emergency room. She was more susceptible to infection. He sat down beside her bed. She gave him the thumbs up. He asked her jokingly how it felt to be unable to speak.

She gave them the thumbs down. They laughed.

Dave believed the whole world was conspiring against him. He and his brother, Joe, were visiting his mother when they learnt she had breast cancer. They talked about her diagnosis and treatment options. She was going to go through chemotherapy. He tried to keep his emotions under control so that he could be strong for her. Cancer was extremely frightening. She raised him and Joe on her own after divorcing his father. She never complained, despite how difficult things were.

She meant everything to him. He promised to accompany her to her first chemo session. Sheena and Bria would know why he was not there. Joe invited him outside to join him in getting a beer. Yeah, that sounded fantastic. He could really use a drink. They met at a local sports bar and took a seat at the bar. Joe sensed something was wrong and enquired as to what was going on.

He told him everything about Bria's hospitalisation and his feelings for her. Why did not he ask her out? Joe instructed him not to. He was receiving treatment for both anorexia and bulimia. Was she aware? No, he could not tell her because she would be furious at Joe.

He told him about their conversation. Yes, he knew there were other women out there. They were not Bria. Joe highly recommended he did something for himself. Everyone would understand. Yeah, he would do that. He could ask the other guys to go to the hospital while he took a nap. While talking, his phone went off with a text message from Donna. They would be flying out the following morning.

Sheena had a day without having a seizure, so she was confident she would be okay with flying. That gave him one less thing to worry about. He replied thanking her for letting him know.

@zoeykaytesmom @feelingsofaithless @alina-dixon

[ashokamarketing]

Best Maes Therapy in Hyderabad

Maes Therapy is a type of therapy developed by the Belgian therapist and researcher Dr. Peter H. Wilson Maes. It is designed to help children with neurological and developmental conditions such as cerebral palsy, developmental coordination disorder (DCD), and autism spectrum disorder (ASD).

Ashoka Rehab's Maes Therapy is based on the concept of Dynamic Systems Theory (DST), which suggests that the human body is a complex and dynamic system that is constantly adapting to changes in its environment. The therapy aims to stimulate and challenge the child’s nervous system to encourage the development of new neural connections and improve their motor skills, coordination, and overall function.

The therapy typically involves a combination of physical exercises, play-based activities, and sensory integration techniques, tailored to the specific needs and abilities of the child. The therapist works closely with the child and their family to set achievable goals and monitor progress over time.

While Ashoka Rehab's Maes Therapy is still a relatively new and evolving approach, some studies have shown promising results in improving the motor and cognitive function of children with neurological and developmental conditions. However, it is important to note that each child’s condition is unique, and the effectiveness of Maes Therapy may vary depending on individual factors. It is important to consult with a qualified therapist or medical professional to determine if Maes Therapy is appropriate for your child’s needs.

The Maes Therapy approach involves a combination of manual therapy, corrective exercises, and functional movement training. Therapists assess the individual’s movement patterns, muscle imbalances, and postural alignment, and then design a customized treatment plan to address these issues. The therapy is based on the principle that movement dysfunction and pain often arise from faulty movement patterns and compensations, and that correcting these patterns can alleviate pain and improve function.

We aim to help children overcome the delays or difficulties in their neurological development by providing a series of exercises and activities that stimulate specific areas of the brain and encourage the development of new neural pathways. These exercises may include activities such as crawling, rolling, reaching, and grasping, as well as exercises designed to improve balance, coordination, and muscle strength.

For more info visit our website: https://ashokamultispecialityrehab.com/index.php/maes-therapy/

[findinjurylaw]

Is your child in need of support due to medical malpractice or negligence?  Sometimes, cerebral palsy can result from a delayed C-section or a poorly managed birth. 

At Braude Injury Lawyers, we have close to 40 years of experience in helping people with birth injuries like Cerebral Palsy, Erb's Palsy, and other birth-related injuries to secure the maximum financial compensation by connecting them with the perfect lawyer for their situation. 

And here's the amazing part - our service is provided at no extra cost!

Ready to take the first step?  Don't hesitate - schedule a consultation now at https://www.findinjurylaw.com/birth-injuries/ to make a positive change for your family's future.

[disabledcharacters]

COMICS / MANGA: Hornet / Eddie McDonough (Marvel) - Cerebral Palsy

Eddie McDonough is an intelligent member of the Slingers who compensates for his palsied right arm with a knack for inventing. After obtaining the Hornet costume, he modifies it to be more powerful and resemble armor. After giving up their respective powers to save Black Marvel, Hornet and Prodigy retire from superheroics.

However, they eventually return to fighting crime together, during which Hornet is killed in a battle with Hydra. Years after his death, his teenage niece Melinda McDonough takes on the identity Red Hornet. [wiki]

--------------------

Join me as I celebrate and post about different Disabled Characters throughout the month. Tracking #dcotm

[creulsummer]

the thing about cerebral palsy is i can’t regulate my body temp so i get overheated just walking across the store and then instead of my body being normal and cooling down to a comfortable level when i get home it over compensates and makes my shiver like im in the fucking artic or something and it takes so so long to just level out

[buckleylawoffices]

Birth Injuries Attorney in Nashua, NH: Your Trusted Massachusetts Lawyers

Birth injuries are a heart-wrenching ordeal that can leave lasting physical and emotional scars on both the child and the family. If your child has suffered a birth injury due to medical negligence in Nashua, NH, it is crucial to seek the guidance of a knowledgeable and compassionate birth injuries attorney. At our Massachusetts law firm, we are dedicated to advocating for the rights of families affected by birth injuries.

Birth injuries can range from minor bruises to severe conditions such as cerebral palsy, Erb’s palsy, or brain damage. These injuries often result from medical malpractice, including improper use of delivery tools, delayed C-sections, or failure to monitor the baby's distress. Our experienced attorneys understand the complexities of these cases and work tirelessly to ensure that families receive the justice and compensation they deserve.

Navigating the legal process can be overwhelming, especially when dealing with the aftermath of a birth injury. Our Massachusetts lawyers provide personalized attention and a thorough investigation of your case. We collaborate with medical experts to establish negligence and build a strong case on your behalf.

Choosing the right attorney can make a significant difference in the outcome of your case. Our commitment to our clients is unwavering, and we strive to secure maximum compensation for medical expenses, ongoing care, pain, and suffering. If you are in Nashua, NH, and seeking a birth injuries attorney in Nashua, contact our Massachusetts law firm today for a free consultation. Let us help you find the justice and support your family needs during this challenging time.

[albertalice920]

Ataxic Cerebral Palsy: Symptoms, Causes, and Treatments

Among the various subtypes of cerebral palsy, Ataxic Cerebral Palsy is one of the less common, but distinct forms. Children with ataxic cerebral palsy struggle with a characteristic lack of coordination and balance, as well as problems with speech and motor skills. In this blog, we will explore ataxic cerebral palsy in detail, covering its symptoms, causes, management strategies, as well as the role of stem cell therapy, physiotherapy, and speech and language therapy in managing this condition.

Understanding ataxic cerebral palsy

Cerebral palsy (CP) is a non-progressive neurological condition that affects voluntary movement, muscle coordination, and posture.

Ataxic cerebral palsy is a subtype of CP, which refers to a group of neurological disorders that affect movement, muscle tone, coordination, and motor skills caused by damage or abnormalities in the developing brain. It typically occurs due to injury or infection before, during, or shortly after birth. 

Around 2.4% of CP cases are ataxic cerebral palsy. The word ‘ataxia’ is a Greek word that means ‘lack of order or coordination’. Children with ataxic cerebral palsy, therefore, experience problems with balance, gait, and coordination, most visibly in the arms and legs. The condition is long term, but treatment helps in improving control over movements and completing daily tasks more effectively.

Symptoms of ataxic cerebral palsy

Ataxic cerebral palsy tends to manifest first as hypotonia (lack of muscle tone) in the first six months to one year after birth. Children of this age may have unusually floppy limbs, which may improve as the child grows older but never reach fully normal levels. As they grow older, symptoms may manifest as delays in hitting developmental milestones such as rolling over, sitting up, standing, and walking. Common ataxic cerebral palsy symptoms to watch out for include:

Unbalanced, jerky gait

Walking with legs unusually far apart

Poor balance

Trouble bringing hands together

Difficulty with fine motor skills like writing

‘Intention’ tremors that kick in when attempting to reach out or perform a specific task

Difficulty with visual depth perception

Shakiness and tremors

Slow eye movements

Speech difficulties like scanning (speaking in a monotone and abnormal rhythm)

Difficulty chewing and swallowing

Impaired eye movement and control

Cognitive delays

Seizures (in some cases)

Causes of ataxic cerebral palsy

Ataxic cerebral palsy occurs due to damage to the cerebellum at, before, or shortly after birth. The cerebellum is responsible for balance and coordination as well as posture and communication, and fine-tunes movement commands for the rest of the body. When the cerebellum is damaged, motor signals cannot be relayed properly to the central nervous system and movement disorders ensue. Damage can occur due to:

Head trauma at the time of or shortly after being born

Maternal infections during pregnancy

Genetic conditions

Loss of oxygen to the brain of the fetus

Perinatal asphyxia

Fetal stroke, which can occur due to high blood pressure in the mother

Placental infections

Injuries due to negligence during the birthing process

Being shaken as a baby

Low birth weight

Multiple births (such as twins and triplets)

NoteL If the parent can prove that the ataxic cerebral palsy is due to negligence or malpractice on the part of the healthcare provider, they can potentially seek compensation in court.

Diagnosing ataxic cerebral palsy

There is no specific diagnostic test for ataxic cerebral palsy. In the case of premature birth or other prenatal / postnatal conditions that are known risks for CP, doctors may monitor them from an early age for signs.

If a child has been exhibiting symptoms, it is important to get a checkup immediately. The doctor will assess their abilities in the clinic setting, including muscle tone, reflexes, movements, and overall growth, and may run some general tests before recommending the patient to a specialist. The specialist will conduct a more detailed neurological test along with:

Magnetic Resonance Imaging (MRI) scan

Computed Tomography (CT) scan

Electromyography (EMG)

Electroencephalography (EEG)

The above tests check for signs of brain and/or muscle damage, and also help eliminate other conditions that may exhibit similar symptoms. Some specialists may recommend speech, hearing, and vision tests, as well as a visit to an orthopedic doctor for a more detailed examination of the child’s movements and reflexes.

Overall, most cases of ataxic cerebral palsy can be diagnosed within the first two years of life. It may sometimes take a while to confirm the diagnosis, though, so parents should be patient and not panic.

Treatment for ataxic cerebral palsy at Plexus

There are several treatment options the doctor can recommend based on the child’s symptoms. Treatment focuses on improving bodily coordination and improving the child’s proficiency at daily tasks. At Plexus, we offer customized regenerative rehabilitation programs for cerebral palsy that comprise a combination of:

Stem cell therapy for ataxic cerebral palsy

This is a revolutionary new treatment in which the patient’s own stem cells are used to grow healthy new cells and potentially reverse the brain damage that is caused by ataxic cerebral palsy. Stem cell therapy for ataxic cerebral palsy aims to improve coordination, balance, and fine motor skills. It also improves mobility and independence, allowing little children to better navigate their daily lives.

Physical therapy for ataxic cerebral palsy

This is among the most important components of ataxic cerebral palsy treatment. Physiotherapists will work with the child’s individual limitations and design personalized exercise programs that aim at improving muscle strength, flexibility, coordination, balance, as well as increasing overall mobility. Some of the most common physiotherapy techniques prescribed by our physiotherapists include:

Balance training, such as standing on one leg, walking on uneven surfaces, etc.

Hand-eye coordination drills, such as catching and throwing

Gait training with walking patterns to support independent and efficient movement

Strength training focusing on the muscles needed for walking, maintaining balance/posture, and standing

Stretching and range of motion exercises to alleviate joint stiffness and muscle tightness

Speech therapy for ataxic cerebral palsy

Low muscle tone can impair the child’s ability to speak and swallow correctly. Some of the most common speech characteristics of ataxic cerebral palsy include:

Dysarthria (slurred or imprecise speech)

Poor articulation

Voice modulation challenges

Rate control (inability to control the speed of speech)

At Plexus, our speech and language pathologists (SLPs) can teach safe swallowing techniques and help children with proper articulation. Below are some of the commonly used speech therapy techniques at Plexus:

Fluency exercises

Voice therapy

Articulation drills

Augmentative and Alternative Communication (AAC) systems, such as communication boards, and speech-generating devices

Our SLPs help children with ataxic cerebral palsy use appropriate non-verbal cues, and practice social interactions, by modeling turn-taking in conversations.

Occupational therapy for ataxic cerebral palsy

This focuses on helping children perform daily tasks like eating and getting dressed, while also improving their hand-eye coordination. Therapists will use a variety of exercises and games to accomplish this. Occupational Therapy can also help improve cognitive ability and depth perception, allowing children to be more effective at their schoolwork and in social environments. Occupational therapy can take place at the therapist’s office, at home, or at the child’s school as part of their routine.

Massage therapy

This can help to ease muscle hypotonia and improve circulation around any bone/joint injuries. This may include electrical stimulation or the application of heat to ease pain.

Assistive devices

Most children with ataxic cerebral palsy will have trouble walking as they grow older. Devices like leg braces, walkers, or wheelchairs can enhance mobility. Therapists will work with children to show them how to use these devices safely without injuring or chafing themselves.

Diet

Healthcare teams will often recommend special nutrition to encourage growth and fitness in a child with ataxic cerebral palsy. In general, a diet rich in fruits, vegetables, whole grains, and lean protein is ideal.

Medication

Certain medicines may be prescribed (depending on the severity of symptoms) to ease muscle stiffness or floppiness, as well as to treat any co-occurring conditions like epilepsy, Attention Deficit Hyperactivity Disorder (ADHD), or incontinence.

Parents and caregivers will need to help their child perform the exercises at home and ensure that the living space is adjusted as needed for the child’s safety. For instance, as children navigate poor coordination and unsteady gait, it might be a good idea to pad the floors with carpeting and cushion any hard edges on furniture so that the child doesn’t hurt themselves even if they fall.

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What kind of stem cells are in cord blood?

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Over the years, cord blood has gained attention for its rich source of stem cells that have the potential to treat various diseases and conditions. Cord blood is known to contain two main types of stem cells: hematopoietic stem cells (HSCs) and mesenchymal stem cells (MSCs). HSCs are responsible for producing all types of blood cells in the body, while MSCs have the ability to differentiate into a variety of cell types, such as bone, cartilage, and fat cells. Understanding the different types of stem cells present in cord blood is crucial for harnessing their therapeutic potential in regenerative medicine and beyond.

Types of Stem Cells in Cord Blood

To understand the types of stem cells present in cord blood, it is crucial to identify the two main categories: hematopoietic stem cells (HSCs) and mesenchymal stem cells (MSCs). These stem cells hold tremendous potential for regenerative medicine and research.- Hematopoietic Stem Cells (HSCs): These are responsible for creating all the blood cell types in the body. They are crucial in the treatment of various blood disorders and immune system deficiencies. - Mesenchymal Stem Cells (MSCs): Unlike HSCs, MSCs have the ability to differentiate into bone, cartilage, fat, and other connective tissues. They play a significant role in the repair and regeneration of damaged tissues and have promising therapeutic applications.Hematopoietic Stem Cells (HSCs)Any discussion of stem cells in cord blood would be incomplete without mentioning hematopoietic stem cells (HSCs). These multipotent stem cells have the unique ability to give rise to different types of blood cells, making them invaluable in various medical treatments.Mesenchymal Stem Cells (MSCs)Stemming from the umbilical cord blood, Mesenchymal Stem Cells (MSCs) hold great potential in regenerative medicine. This versatile type of stem cell can differentiate into a variety of cell types, including bone, cartilage, and fat cells, making them a valuable asset in tissue repair and regrowth.This versatility and regenerative capacity make Mesenchymal Stem Cells (MSCs) a promising option for potential therapeutic use in treating various diseases and injuries.

Characteristics and Potential of Cord Blood Stem Cells

Unique Properties of Cord Blood Stem CellsIt is widely recognized that cord blood is a rich source of hematopoietic stem cells, which can differentiate into various blood cell types. What sets cord blood stem cells apart is their immaturity, allowing for easier matching and lower risk of graft-versus-host disease compared to adult stem cells.Therapeutic Applications and ResearchWith ongoing advancements in the field of regenerative medicine, cord blood stem cells have shown great promise in treating a range of diseases, from leukemia and lymphoma to genetic disorders and autoimmune conditions. Clinical trials using cord blood stem cells continue to expand, providing hope for patients in need of life-saving therapies.Potential future applications of cord blood stem cells include the treatment of neurological disorders, such as cerebral palsy and traumatic brain injury, as well as heart disease and diabetes. Researchers are also exploring the role of these versatile stem cells in tissue engineering and immunotherapy, paving the way for innovative treatments and personalized medicine.

Collection and Storage of Cord Blood

Cord Blood BankingBlood collection from the umbilical cord is a safe and painless procedure that typically takes place immediately after the baby is born. The process is non-invasive and does not interfere with the birthing experience. Once collected, the cord blood is processed and stored in specialized facilities known as cord blood banks.Ethical and Legal ConsiderationsAn important aspect to consider when storing cord blood is the ethical and legal implications. It is crucial for parents to fully understand the consent process, ownership rights, and potential uses of the cord blood. Legal regulations vary by country and state, so it is advisable to seek guidance from healthcare professionals and legal experts before making a decision.For instance, some ethical considerations include the debate over whether it is ethical to commercialize the use of cord blood or whether it should be considered a public good. Additionally, there are concerns about the equitable access to cord blood banking across different socioeconomic groups. These complex issues highlight the importance of informed decision-making and transparency in the cord blood banking process.

Challenges and Future Directions

Limitations in Current UseYour understanding of the limitations in the current use of cord blood stem cells is crucial in assessing its full potential. The limited cell dose per collection, leading to challenges in treating adults, and the possibility of low engraftment rates post-transplant are primary concerns. Overcoming these limitations is vital for cord blood to become a more widely used source of stem cells.Advances in Research and TherapyResearch in cord blood stem cells continues to advance at a rapid pace, exploring their potential in regenerative medicine, immunotherapy, and gene therapy. These studies aim to uncover the full capabilities of cord blood stem cells in treating a range of diseases, including blood disorders, immune deficiencies, and neurological conditions. These advancements offer hope for the future of stem cell therapy.Therapy with cord blood stem cells holds promise in treating a variety of conditions, including leukemia, lymphoma, and inherited genetic disorders. Ongoing clinical trials are investigating the effectiveness of cord blood transplants in improving outcomes for patients. The therapeutic potential of cord blood stem cells continues to expand, offering new possibilities for personalized medicine and targeted therapies.

Final Words

With this in mind, it is important to understand that cord blood contains hematopoietic stem cells. These are the type of stem cells responsible for blood production and immune system regeneration. While cord blood does not contain pluripotent stem cells found in embryos, hematopoietic stem cells have the potential to treat a variety of diseases and conditions. Research into the therapeutic applications of cord blood stem cells continues to show promising results, making it a valuable resource for both current medical treatments and future therapies.Overall, cord blood stem cells provide a unique and valuable source of regenerative potential that can significantly impact the field of medicine. Read the full article

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Maes Therapy

Maes Therapy, also known as the Movement Analysis and Education Strategies (MAES) therapy, it is a holistic therapy approach that focuses on improving movement, posture, and function in children with developmental disabilities, particularly those with cerebral palsy.

The therapy is based on the idea that movement is the foundation of development and that it is essential for developing brain function, cognitive abilities, and social interaction. It uses a variety of techniques, including motor learning strategies, biomechanical analysis, and sensory integration to help children improve their movement patterns and achieve their developmental goals.

Maes Therapy, also known as the “Functional Neurology” or “Dynamic Neuro-rehabilitation” approach, is a type of therapy that focuses on the assessment and treatment of neurological and developmental disorders. This therapy was developed by Dr. Peter H. B. Maes, a Belgian physician and neurologist, who specializes in treating children with various neurodevelopmental disorders.

It is based on the principles of neuroplasticity, which is the brain’s ability to change and adapt in response to various environmental stimuli. It involves a holistic approach to treatment, including assessments of the child’s neurological function, motor skills, sensory processing, and cognitive abilities.

 They have been used to treat a wide range of neurological and developmental disorders, including autism spectrum disorder, cerebral palsy, attention deficit hyperactivity disorder (ADHD), and learning disabilities. It has been found to be particularly effective in treating children with complex and severe developmental disorders.

The therapy typically involves a combination of physical exercises, play-based activities, and sensory integration techniques, tailored to the specific needs and abilities of the child. The therapist works closely with the child and their family to set achievable goals and monitor progress over time.

While this therapy is still a relatively new and evolving approach, some studies have shown promising results in improving the motor and cognitive function of children with neurological and developmental conditions. However, it is important to note that each child’s condition is unique, and the effectiveness of Maes therapy may vary depending on individual factors. It is important to consult with a qualified therapist or medical professional to determine it is appropriate for your child’s needs.

 We aim to help children overcome the delays or difficulties in their neurological development by providing a series of exercises and activities that stimulate specific areas of the brain and encourage the development of new neural pathways. These exercises may include activities such as crawling, rolling, reaching, and grasping, as well as exercises designed to improve balance, coordination, and muscle strength.

It also known as the Functional Patterns Method, is a therapeutic approach that aims to improve movement patterns, posture, and overall functionality in individuals with neurological and musculoskeletal disorders. It was developed by Belgian physiotherapist, Lieven Maesschalck, who drew upon his experience working with elite athletes to create a holistic approach to therapy that focuses on functional movement and biomechanics.

The Maes Therapy approach involves a combination of manual therapy, corrective exercises, and functional movement training. Therapists assess the individual’s movement patterns, muscle imbalances, and postural alignment, and then design a customized treatment plan to address these issues. The therapy is based on the principle that movement dysfunction and pain often arise from faulty movement patterns and compensations, and that correcting these patterns can alleviate pain and improve function.

It is used to treat a wide range of conditions, including cerebral palsy, stroke, traumatic brain injury, spinal cord injury, Parkinson’s disease, and chronic pain. The therapy is typically performed one-on-one with a trained therapist, and the treatment plan is tailored to the individual’s specific needs and goals.

It is a type of therapy that focuses on improving motor skills and overall movement patterns in children and adults who have neurological and developmental disorders. It was developed by Peter H. Wilson and colleagues at the Neuro-Developmental Treatment Association (NDTA), and is named after Leuven-based pediatric neurologist and physiatrist, Guy Maes.

The therapy is based on the concept of “dynamic systems theory,” which emphasizes the complex interactions between different systems in the body, including the nervous, musculoskeletal, and sensory systems. It aims to improve movement patterns and function by addressing underlying neurological issues and promoting adaptive movement strategies.

It involves a variety of techniques, including manual facilitation, therapeutic exercises, sensory integration, and functional training. The therapy is tailored to the individual needs of each patient, and treatment goals are set based on their specific impairments and functional limitations.

Goal

The goal of Maes Therapy is to enable children with disabilities to participate more fully in daily activities and to improve their quality of life. It is often used in conjunction with other therapies, such as physical therapy, occupational therapy, and speech therapy, as part of a comprehensive treatment plan for children with developmental disabilities.

Overall, it is a specialized therapeutic approach that aims to improve the movement, posture, and function of children with developmental disabilities. It is based on the belief that movement is a fundamental aspect of development and that improving movement patterns can have a positive impact on overall development and quality of life.

However, it’s important to note that Maes Therapy is a controversial approach, and there is limited scientific evidence to support its effectiveness. It’s essential to discuss any treatment options with a qualified healthcare professional before proceeding with any therapy.

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Why is my mouth producing so much saliva suddenly?

Saliva, a vital fluid secreted by the salivary glands, plays a pivotal role in maintaining oral health and aiding digestion. However, the sudden onset of excessive saliva, also referred to as sialorrhea, hypersalivation, or excessive salivation, can pose a considerable discomfort for individuals.

What is hypersalivation?

Hypersalivation, or excessive saliva production, occurs when the body produces more saliva than necessary for regular functioning. This surplus can stem from a variety of factors, including underlying medical conditions and lifestyle choices.

Causes of Excessive Salivation

Several factors contribute to sudden excessive saliva production, ranging from oral health issues to neurological disorders:

Oral Health Issues: Conditions like gum disease, mouth infections, or ill-fitting dentures can stimulate the salivary glands to overproduce saliva as a defense mechanism against bacteria.

Medication Side Effects: Certain medications, including antipsychotics, antidepressants, and drugs for Parkinson’s disease, may inadvertently trigger an increase in saliva production as a side effect.

Teething: Babies experiencing teething discomfort may exhibit heightened salivation as their bodies attempt to alleviate gum pain during the eruption of permanent teeth.

Adverse Drug Reactions: Some medications, such as those used to manage nausea, psychosis, or epilepsy, can lead to an unwanted increase in salivation.

Pregnancy: Hormonal changes during pregnancy, particularly in the early stages, can result in heightened salivation, commonly known as Ptyalism, which tends to diminish as the pregnancy progresses.

Dietary Habits: Consumption of spicy or sour foods, along with rapid ingestion of large quantities of food, can stimulate the salivary glands, leading to an excess of saliva.

Chewing Gum or Candy: Activities like chewing gum or sucking on hard candies can stimulate saliva production, offering temporary relief from dry mouth but potentially leading to excessive salivation.

Alcohol and Smoking: Both alcohol consumption and smoking can irritate oral tissues, prompting the body to produce more saliva as a protective measure.

Digestive Disorders: Excessive saliva can be a symptom of gastroesophageal reflux disease (GERD), where the body attempts to neutralize stomach acid in the esophagus.

Neurological and Nervous System Disorders: Conditions like cerebral palsy, Parkinson’s disease, or stroke can disrupt the central nervous system's control over saliva production, resulting in excessive salivation.

Psychological Factors: Stress and anxiety can exacerbate hypersalivation, leading individuals to feel self-conscious or embarrassed about drooling excessively.

Allergies and Infections: Allergic reactions or respiratory infections can trigger increased saliva production as the body clears airways, while sinusitis and related illnesses can also lead to heightened salivation.

Nausea and Vomiting: The body may produce excess saliva as a protective mechanism against stomach acid during episodes of nausea and vomiting.

Mouth Breathing: Dry mouth caused by mouth breathing can prompt the body to compensate by producing more saliva, potentially leading to drooling.

Temperature and Humidity: High heat or humidity can cause dehydration, prompting the body to increase saliva production to maintain fluid balance.

Managing Excessive Salivation

Addressing sudden excessive saliva production involves identifying and addressing underlying causes. Lifestyle adjustments, proper oral hygiene, medication management, and seeking medical advice can help manage hypersalivation effectively.

In conclusion, sudden excessive saliva production can be distressing, but understanding its causes and implementing appropriate measures can alleviate discomfort and improve overall oral health and well-being. If experiencing persistent hypersalivation, seeking guidance from a healthcare professional is essential to tailor an effective treatment plan.

To know more in detail, visit: https://www.aligndentalcare.lk/why-is-my-mouth-producing-so-much-saliva-suddenly/