#but only if i can find my sunscreen lol i burn exactly like my irish ancestors on sunny days

[gon-and-killuas-mother]

i am attempting "light therapy" to help fix my sleep schedule and i'm cranky about it

my aunt, who's a neuropsychiatrist (one of the few women in her field and fairly well known at this point, don't know if anyone's heard of Dr. Jo Cara Pendergrass but damn she's cool) was in town this week to look after her mom post-cataract surgery

Cara is probably the smartest person in the family, all things considered

(my brother and I give her a run for her money but neither of us intend on getting a goddamn PhD lol) (also my dad wouldn't appreciate me saying that, he is also pretty smart. but like. he's got intelligence, he's just lacking in wisdom)

ANYWAY. of all the people in the family, Cara is the person i rarely have to explain my illnesses to. usually, i have to tack on a brief description of it anytime i say "yeah i have EDS and fibromyalgia and IBS and--"

but last time i saw her over Christmas, i told her the diagnosis and had my script prepared to explain, but she just went "Oh yeah Ehlers Danlos -- wait. Oh."

her face did the thing where she was processing new info at light speed by blinking and cycling through several expressions as the pieces of the mystery that is my chronic ailments settled themselves in place

unfortunately i wasn't at the point where i was comfortable enough to tell anyone how miserable and in pain i was, that was something i put off another couple of months before i confessed to Nana that i'd become a grocery thief and was on my way to being homeless. that's also around when my brother asked my permission to share my story with the family, because he knows how difficult it is for me to admit how much i'm struggling.

i'm rambling tbh but only to keep me awake and sitting outside long enough

ANYWAY

so Cara was here this week. i went to visit the other night. we always have really interesting conversations about our brains and genes and family shite, i don't think anyone other than my brother and i can actually hold a conversation with her about that kind of shit.

i did NOT go there just for advice, but when i told her how much trouble i've had getting out of bed before evening, she gave me a couple of tips that i'm now trying out

1). the 24-hour sleep deprivation strategy

it sounds like a nightmare to me, but apparently has supporting evidence that, at least in the short term, resets your circadian rhythm.

if you've ended up awake hours past your desired bedtime, then instead of simply going to bed late, it's advised* to keep yourself awake throughout the rest of the day until the next bedtime.

( * WITH CONSULTATION OR SUPERVISION OF A DOCTOR)

the reason this is supposedly effective is that the longer you stay awake, the higher the sleep pressure becomes (sleep pressure is just your body's signal to go the fuck to bed, which is something i'm intimately familiar with as it's a constant companion of mine regardless of sleep hygiene). the higher the sleep pressure the easier it is to fall asleep and, ideally, the better your sleep becomes.

Cara did emphasize that as far as we know, it's only a short term strategy. either we haven't done enough studies or we haven't figured out how to apply it to a longer term solution.

2). Light therapy

i was already somewhat aware of this but not to the extent that Cara explained.

the trick here is to force yourself out of bed (if you're able) and sit outside. preferably on sunny days. she said this even works if you end up falling asleep outside anyway, you're still absorbing sunlight.

there's no immediate change, as it does take a few days or more to notice any improvements (this checks out, as i am still drowsy as fuck) but doing this daily or semi-daily gradually convinces the body and brain to be awake earlier.

it's one of those things that a lot of disabled folk like me, especially those with fucked up sleep, would hear and get annoyed with, because we've tried so many different strategies that have each failed one way or another. and hearing "go outside" just reminds me of my mother and every yoga enthusiast insisting on all natural medicine, which understandably raises my metaphorical hackles.

but Cara, again, is the smartest person i know. i'm much more willing to take the advice of a neuropsychiatrist over a yoga mom, despite them actually agreeing on something.

and also? i do miss the Sun, quite terribly.

so if, by sometime next week, i'm magically able to wake up earlier with less struggle, i will let y'all know. i'm gonna be cranky about it, especially if it actually WORKS, but as the neighborhood mascot of Sleep Deprivation i think i'm a pretty good indicator if something like this is legit or not.

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