#but my eyes also get all crosseyed etc when wearing them half the time its annoying

[aemiron-main]

forcing myself to put my glasses on my own face like i’m trying to force a dog to take a pill. maybe i should wrap my glasses in a bit of salami

[weathernerdmando]

so i have a doctors appointment tomorrow with a new primary doctor and im going to get situated with them bc i need a place to get my adhd medication, but im also gonna ask if they could do at least a preliminary or whatever evaluation for elhers danlos or hypermobility spectrum disorder or something along those lines. and im hesitantly looking forward to that. bc i would really like some answers.

gonna put my reasonings behind a readmore (this is mostly for myself but also if anyone who’s offically diagnosed sees this and has thoughts on it you’re totally welcome to).

in short, something is wrong, even if it’s not ehlers danlos or hsd like i suspect right now.

Its not just bc of the joint issues that i want to look into it honestly. its the joints, yes, but its the Moderate to Severeish (i think i was borderline for surgery iirc, 40 degree curve lower back, 30 degree upper before treatment, its probably back to around close there bc i haven't been to the chiro in probably 6 months now?) scoliosis, the gi issues (fucked up hunger signals (rn, for example, i dont get them half the time even if i know i havent eaten in close to 24 hours, as well as just not feeling hungry but knowing i need to eat bc im shakey, irritated, anxious and unable to focus), constipation that feels like im getting stabbed that i just have to wait out, stretchy and soft skin, the heel lump thingies (can’t spell the offical term), i think the stretch marks, the high and crowded palate, the inability to write for longer than 2 minutes without severe cramps and pain (amongst other issues with my hands, apparently i dont just suck at using chopsticks, my fingers are straight up collapising and htey shouldn’t be. apparently.). i had a submucus cleft palate as a kid, which was surgically corrected (i dont have a uvula lol!) as well as at least one eye muscle surgery and at least one ear surgery for tubes (possibly two, i can’t remember). i still have really shitty vision (-6.5 in left, -3.5 in right, and they’re crosseyed when i take my glasses off. this is with corrective surgery and wearing a patch on my right to make my left eye stronger). as well as the back pain, the neck pain, etc.

I also have what i’d guess is a 4/5 ish to possibly a -8 out of 9 on the beighton. thumbs to wrist - check. elbows - check. i think my knees might actually hyperextend after all, but im not sure, what i do know is i dont think ive ever passed out bc my knees were locked/all the way back and ive stood in that position for a while before. If im standing with the kneecaps forwards but the feet angled, i think that’s where i can see it. The other thing is one of my pinkies is iffy (depends on the day, and i think it doesn’t quite go to 90), and the other i think is at 90 but im not sure, and that one also depends on the day. so at minimum, 4, at highest, 8 i think. 

My ribs also go under my hip on my right side if i just. Lean over. Fun to show people but that is most likely not fucking normal. My upper and lower ribs move and some of them Shouldn’t. If this gets me answers as to why sometimes it feels like something catches in my chest (one of my boobs, usually my left) and makes breathing Fucking Painful I’ll be thrilled. And my scapulas *definitely* move in a way they shouldn’t and I suspect my shoulders might actually too. As well as my ankles (what do you mean that ballerinas work to stretch like i can do normally?? also the ankle injuries and the growing-pains-that-might-not-be-growing-pains-especially-since-they’re-still-happening as a kid??) and i swear my right wrist either didn’t heal properly or something else is wrong bc a) it shouldn’t be clicking i don’t think and b) i dont think the bones are supposed to sit like they do. And also my hips. something is up with those but idk exactly what but i think you’re not supposed to be able to do what i can.

im autistic and adhd too which raise the chances Something is up bc they’re incredibly comorbid, as does having the scoliosis i think.

just hoping if they don’t know, they won’t say well nothing is wrong, but maybe “we dont know, lets refer you to someone who does” even if I can’t afford that yet.