#basically ive been really sad lately with my spoons becoming less and fearing i'm going to only be able to do 1-2 things a day again
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mejomonster · 3 days ago
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being sad because of chronic illness is like... go to therapist. therapist says "well don't be so negative! maybe you can go do X more!" and you're like "well no I physically can't." and then they go "well maybe your doctor could do more, have you checked X Y Z?" and you go "well I have 5 doctors, and saw 4 others, and they've ran a ton of tests and done surgeries for the past 5 years, and I was MUCH worse before so comparatively they've done a lot, and they don't intend to do more, this is as good as it gets, and this is how it is probably going to be for my whole life. So no, I don't think I'll have more energy/ability to do X more in a year." therapist "well, never say never, maybe in a year you will be better!" me "yes. but i will also feel pretty emotionally crushed if i plan to be perfectly healthy in a year, then i'm not and still can't do any of the things i made myself excited to do." therapist "well... focus on what you can do! what can you do today that you like?" and i'm like "well i had to work today, to keep my healthcare, and i had to sit up to see you, which also exhausted me so... either i'll use the rest of my spoons to shower and eat dinner, or watch 1 show episode and eat dinner..." therapist "oh well... maybe you can do something fun... on the weekend?" me "well if i don't grocery shop, i will probably have energy to see 1 friend for a few hours. i may try to do that." also me - just do not mention the nonstop nausea and pain even doing things i like because we will re-enter the beginning of the loop where the therapist asks why can't you take more medicine, isn't there more treatment options, and i have to very hopelessly remind myself that no actually there is no option i'm not already doing and this pain is just something i have to fucking live with and i'd really rather not RUMINATE on that depressing ass situation over and over again.
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