#b) i told her multiple times it is to treat my fibro
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horrorsequel · 2 years ago
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psychology is such a crazy field just because of how often psychologists have been wrong just with regards to me + ppl i know directly and it had catastrophic results. like medical doctors have also been wrong sometimes and messed up and bad things happened but i can also at least point out times when they were correct/helped. psychologists/tangential psychological professionals r like 1 for 999 in my personal experience
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dwinineaped1985-blog · 6 years ago
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Initially, I massaged it every day morning and evening as a first cleanser to cleanse all the gunk in my pores and take off make up. I saw a lot of gunk from my pores get cleansed over the course of using the product. The first cleanse was amazing as I felt my skin was properly cleansed with all pores being able to breathe finally. As someone who has seen the Jurassic Park/World movies multiple times, the only good one is the first one. 2 shouldn exist, 3 is only second best by default, and the World series is ludicrous. Jurassic World 2 have the worst plot of all time. I never received effective help at all from doctors as they only ever wanted to put me on drugs that a) didn work or b) had horrible side effects. The chiros not only helped my pain tremendously, they also would talk to me about exercises and nutrition to help manage the fibro. Massage therapy too is a godsend. There were other high end places around that too but they started at $3500+ and increased in cost, though those were like Club Med of seniors housing with even more amenities and group trips and things. Blows my mind. I can imagine what it will cost when they need actual nursing care.. Recent testing suggest that it isn even a linear increase, we still have no idea what exactly it does, but it would certainly be a lot easier to test if we knew what we were looking for.That being said, individual luck as a selfish gear stat is really bad design in a coop game so I for one would be just as happy if it just disappeared along 하남출장샵 with the rest of the useless gear modifiers. I went Elf for Race to have access to Longbows. Spells are great, but there are a ton of grinding fights you don want to waste magic and Acid Splash + Sneak Attack is only mediocre. Anyway, I've been picking up on all of the continuity issues too after having watched the show like a billion times. There's actually a lot of them. Like reusing actors for different roles. So in less than a week I had to apply for my own job as a site manager and Sr. VR network engineer going from one company to it rival, got downgraded from a site manager and engineer to an entry level IT analyst, had the 하남출장샵 technology I was working on packed up and auctioned off, then got downgraded again to basic help desk support, supporting people less qualified than me to do their own tech support jobs. It came with four pay cuts and the team I supported immediately dumped their workloads onto me and started, "Working from home.". "He died of fever, didn't he?" muttered Carlier, stopping short. "Why," retorted Kayerts, with indignation, "I've been told that the fellow exposed himself recklessly to the sun. The climate here, everybody says, is not at all worse than at home, as long as you keep out of the sun. His pranks made people hate him, and us, to the point where there were businesses we couldn't go into or use because of how my father treated the proprietors when they were all in high school. My father tortured his siblings so much when they were children that to this day, he's marginalized and they're still not sure what he's capable of.Whatever my mother did or said (and she's sick in her own right) to keep him from leaving when he tried must have been pretty powerful because he made it obvious that he hated us and didn't love us. Now I realize that he's not capable of love in any normal way.shimmeringlake 3 points submitted 9 days agoMy mother has always believed in conspiracy theories and secret apocalyptic events or messages.
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roses-adventures · 4 years ago
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From my actual blog (originally an essay) regarding the dangers of misdiagnosis among people with chronic pain:
According to the Mightys' research shown by msn. Com, many people with fibromyalgia are misdiagnosed initially (n.p). This is partially due to the misunderstandings, discrimination and wide range of symptoms that fibromyalgia transmits. However much of a difficulty it is I believe that the medical industries disregard for fibromyalgia is potentially dangerous and many times involves continuous gas lighting from medical professionals because of this I believe that doctors should better educate themselves on the truth and new research on fibromyalgia.
          In order to understand why many may disregard fibromyalgia I’ll start by explaining what fibromyalgia is.Fibromyalgia is a fairly unclear medical condition. It’s not exactly known what causes the condition and whether it’s neurological or physical. Initially medical professionals believed it to be an almost mental condition that people with fibromyalgia thought they were in pain but in fact weren’t in pain. As medicine Improved it was thought that it is possibly both neurological and physiological, based on the symptoms it presents such as brain fog (also called fibro fog), widespread musculoskeletal pain and over a hundred other symptoms. To make matters worse fibromyalgia is different for every person who has it. It also has many related conditions that some have in addition to fibromyalgia. Some of those include but not limited to, lupus, multiple sclerosis and IV, I learned so much about fibromyalgia through years of research trying to understand the condition. The symptoms of fibromyalgia are varied and can change from person to person this can make it hard for doctors to diagnose.
         Typically these are also things that have overlapping symptoms of fibromyalgia. For some including me, fibromyalgia can present itself in childhood and be misread as pain amplification syndrome or even just growing pains. For me it was a lot of Balance issues, memory problems, and pain. Though my pain was not like it is today and I was told it was only growing pains. When I got into high school my junior year I went to an amusement park called wild waves, my brother who was young and very nervous asked me to ride the rollercoaster that was meant for small kids with him. I asked the attendant if it was okay and he even allowed other older people on the ride as well. We went around the ride and each of the four times it made the round my ribs slammed into the car. Hard. This caused instant and painful bruising. I went to see doctors and was assured it was only bruised and would heal in about six months. Well about five months later I got walking pneumonia and went to a respiratory specialist and a sports medicine doctor and later a physical therapist and a counselor for my mental health. Through this I was diagnosed with anxiety, depression and complex Post traumatic stress disorder. Even though these were my symptoms everyone has different ones and that means someone could have very different symptoms. Another thing that varies is that some like me have the major portions of fibromyalgia occur after a physical or emotional trauma.  health seemed to take a weird turn.
             Just as I began to think that my health couldn’t get any stranger, I was back in the hospital. I was trying to relax after a vacation to the beach and I then was poolside and swimming. I was still having every issue from the year before and I couldn’t help but try to find my own answers. Googling too try to find what I could be dealing with. I had come up with a couple of options based on my symptoms, one was fibromyalgia and the other was lupus. I noticed one day that I had a pea sized bump on my ankle. Thinking it was probably a mosquito bite I thought nothing of it. The next morning I was covered in hives we went to the ER and they told me it was just random hives, gave me Prednisone and discharged me by this point we realized it must be heat and stress related as when we reduced the heat and I stayed out of the sun and calm, my hives would go down a little bit. A day later I was completely swollen in my hands and feet, I couldn’t even hold a pencil or walk. I again went to the ER and they brushed it off and gave me more antihistamines and asked me to leave. The next day I went to the emergency room again for the third time. This time I had completely swollen lips, I couldn’t talk and my lips began to hurt. This time the ER nurse who had seen me all three days became worried. She had seen me all three days and realized I was getting worse and worse. She and the resident DR began to think that I had lupus, they sent me for tests and then referred me to a child’s rheumatologist since I was still under 18. Having a heat and stress rash is a less common symptom of fibromyalgia and when I mentioned it to doctors asking if that could be the cause they mostly dismissed it, however it’s common in lupus patients so doctors saw it as pretty obvious.
                 The rhumatologist I saw wasn’t too far from the hospital,  I will call them when I arrived at Dr. B' s office I was very disoriented. Between being swollen and on Prednisone and the extreme pain I was completely out of it. She bent my swollen joints back, I understand that she was checking my joint flexibility however she was very forceful and disregarded the pain I was in. She then got very frustrated with me when I was feeling disoriented. Even looking back on this memory is really foggy because I was so out of it it’s almost like looking through a  bubble, like it’s not me. We then talked about my blood test results. I was so ready to have a actual diagnosis however when she told me my results were clear I began to cry, it happened to be after I was told it wasn’t lupus. She turned to me and said “why are you crying, you don’t want lupus anyway”. My mom tried explaining that I was frustrated about lack of results. Dr. B talked to my grandma about fibromyalgia, which my grandma has and Dr. B told us that I probably have it however she’d loose her license if she diagnosed someone my age with fibromyalgia. She instead said I have hypermobility and pain amplification syndrome. I was given no treatment and told to wear knee braces, get expensive shoe inserts and exercise she told us pain amplification syndrome is the children version of fibromyalgia, and us not knowing any  different went along with it. In all actuality pain amplification syndrome is a condition that affects children essentially it’s having low pain tolerance and encourages using only exercise to make the pain tolerance higher. It is nothing like fibromyalgia. My reaction after was incredibly dissatisfied, I told my mom I was frustrated with her and that I didn’t feel like she was right. Now that I look back on it it’s so frustrating and upsetting, she had the perfect opportunity to help a kid who was in a lot of pain and instead she chose to tell them all they need is exercise and shoe inserts.
           So why is this a problem and why was I treated in this way? Well it’s a problem that people are often misdiagnosed because as I already stated being in pain chronically and having it go untreated because of misdiagnosis is potentially dangerous. According to a pain management
site called practical pain management states that they’ve seen an increase of death among people that have chronic pain that’s untreated (Tennant n.p ).What happens is that we have so much pain that is coursing through our body and people who are at risk can end up having sudden cardiac arrest. This condition is incredibly terrifying yet also extremely important to talk about yet this week is the first time I’ve ever heard of it. Aside from the medical issues this also causes psychological problems from being told you don’t have a condition or that the pain is in your head then it makes people feel like their pain is invalid. So why was I treated in this way and misdiagnosed? My age is a major factor. I was young seventeen almost eighteen and this causes controversies, it’s pretty difficult for people, both doctor and civilian alike, to understand that you can be any age and be in pain or sick unfortunately to me it seems to be similar regardless of education. It makes sense if we think about if we can even blame civilians for not knowing if doctors seem to think similar. Which means typically I get questions like “isn’t that something on older people get?” Or comments like “you don’t have that you’re too young to be in pain”. Then I have to explain that anyone can be in pain chronically. I believe that it’s really hard to look at children or young adults and believe that they may not be healthy because it’s something that’s not extremely common in communities. Another factor is that most doctors still believe that fibromyalgia isn’t real. According to pubmed they discuss how many doctors often dismiss and refuse to believe the condition is real. Especially older doctors I’ve realized have a more difficult time with the idea that this is a valid condition.
             I also believe another issue is that most women are often not taken seriously for their pain. This is often shown in many places and in so many woman’s personal stories and its very important to realize that this is also often why women begin to avoid going to doctors. This can be really dangerous for the women because leaving pain untreated can be really dangerous. Some of the accounts of things that women had endured regarding having their pain disregarded are written in Dr. Amy Millers post on practical pain management where she explores the different ways women’s pain is disregarded and how this can even effect if doctors look for adequate treatments for their illnesses.
             The last reason I believe I was treated like I was is my weight. It’s strange to say but this was not the first now last time I was shamed by my weight and told I’d be just fine if I were to exercise more. I’ve even been told by family that my condition is due to my weight. Unfortunately this isn’t uncommon for others in the fibromyalgia community many of the other people I talk to have similar stories of people who believe they’re helping but really theyre
hurting us by blaming weight as our only issue. My main argument against the idea that my condition is due to my weight is that before I ever got sick and even that entire junior year I was an active person, my sophomore year I was the top of my walking class even beating the athletes
 in the class, I hiked all through sophomore and junior year and only gained weight after being on Prednisone twice. My most recent doctor has told me that my weight is not my doing and that my body still hasn’t worked out all the Prednisone which is why I’ve been unable to lose it.
              I want people to learn from my story that fibromyalgia is real. It’s very real and pain is valid. Though pain may be different for all of us and fibromyalgia is different in most of us so you can’t tell if someone does or doesn’t have it. I also believe we need more and better research and medications, unfortunately the medical industry is still pretty uneven on what they believe which makes it hard to be properly diagnosed. I want people who are undiagnosed or feeling like they’re misdiagnosed to know that they should trust their instincts if something doesn’t feel right or like it’s working let your doctor know, and if you feel like the diagnosis is wrong, then it’s never a bad thing to get other opinions from other doctors and ask around to different groups on who they see and if they like them this is so helpful. I got my most recent doctor through my dad’s wife’s daughter who was having similar issues and he’s amazing so I definitely recommend getting other opinions. My last little thing I want people to understand is that what works for one person may not work for another, and exercise or that one special tea your great aunt’s brothers friend drinks to treat his fibromyalgia isn’t necessarily going to help someone else with fibromyalgia and actually can sometimes worsen their condition.  being misdiagnosed are huge problems right now and I hope that more doctors will begin to be   More open minded and take  it upon themselves to fully understand the condition itself as we begin to see more research come out towards the issue.
Work cited:
 
Tennant, F. (2019). Sudden, Unexpected Death in Chronic Pain Patients. [online] Www-practicalpainmanagement-com.cdn.ampproject.org. Available at: https://www-practicalpainmanagement-com.cdn.ampproject.org/v/s/www.practicalpainmanagement.com/amp/10608?amp_js_v=a2&amp_gsa=1&usqp=mq331AQCCAE%3D#referrer=https%3A%2F%2Fwww.google.com&amp_tf=From%20%251%24s&ampshare=https%3A%2F%2Fwww.practicalpainmanagement.com%2Fsudden-unexpected-death-chronic-pain-patients [Accessed 1 Mar. 2019].
Wyant, P. (2019). 16 Conditions People With Fibromyalgia Were Misdiagnosed With. [online] MSN. Available at: https://www.msn.com/en-us/health/medical/16-conditions-people-with-fibromyalgia-were-misdiagnosed-with/ar-AAxL38x [Accessed 1 Mar. 2019].
Bernstein, J. (2019). Not the Last Word: Fibromyalgia is Real. [online] PubMed. Available at: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4709307/ [Accessed 8 Mar. 2019].  
Miller phd, A. (2019). Gender Bias and the Ongoing Need to Acknowledge Women’s Pain. [online] Practical Pain Management. Available at: https://www.practicalpainmanagement.com/gender-bias-ongoing-need-acknowledge-women-pain [Accessed 8 Mar. 2019].
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