#arnold chiari

[lightasthesun]

@ my fellow purple ribbon friends... I've been going through the chiari reddit forum and I'm.. confused.

What kind of chronic pain do you experience? Are you only experiencing the debilitating chiari headaches or something else?

Because for me the pain pretty much radiates everywhere. The neck ofc is a given but my spine and especially my right hip/leg and left thigh are really bad and a daily occurrence.

Lately, as of the last five or so months my right shoulder and wrist have started hurting pretty much daily too.

Now I'm questioning... whether or not I should perhaps look into one of the other conditions commonly linked to chairi. Because from what I've read it seems most people are dealing with pain in the head/neck/shoulder area but that's it.

Advice?

[craykaycee]

man if I keep getting rattled every time I post art Imma get shaken baby syndrome

[missmamibee]

Hey guys. Little update on me. I never got to go to my sleep study because I was taken to the emergency room. After hours and hours of fiascos I was diagnosed with Cerebellar tonsillar ectopia and Arnold-Chiari malformation. I was warned that I might need brain surgery. 🤕

[maddisandy]

September is Chiari Malformation Awareness Month!

Hi yes hello! Since many people probably aren't aware of it, I wanted to bring attention to something we ourselves have called chairi malformation at the start of its awareness month! Its recognized with a purple ribbon usually with a zipper on it (for the zipper scars of those who've had Chiari surgery)

What is Chiari Malformation?

Chiari (key-arr-ee) Malformation is a brain malformation in which the brain is too large, skull is too small, or some combination on the both, causing the cerebellar tonsils (and in some instances the brain stem) to slip through the skull and into the spinal chord.

Chiari is most typically a congenital effect. There are two main types (though they aren't the only ones). The most common of the two us Chiari 1, in which only the cerebellar tonsils are descended through the skull. The second most common, Chiari 2 (also known as Arnold-Chiari malformation) has more tissue herniation in the cerebellar tonsils and even the cerebellum, as well as brain stem herniation as well.

(See Below, the Cerebellar tonsils are marked in red while the brainstem is marked in green and yellow. This is considered a normal MRI)

Chiari malformation is likely to occur in 1 in 1,000 people, making it uncommon but not rare. The statistics are likely to be slightly higher than that for Chiari 1, as many people don't present symptomatically (and many incidents are only found in cases where the person was receiving radiological imaging for other instances such as head injury, so many people are unaware they had Chiari to begin with).

The only way to diagnose Chiari is through radiological imaging (many arguing upright MRI specifically is the only proper way to view the real level pf herniation). Herniation is measured down from the McRae line to the lowest point on the cerebellar tonsils. Depending on the accuracy of the machine (and which imaging tool is used) herniation can appear at different levels at different times. (See below, my first MRI looks markedly less in comparison to my second MRI, which features a roughly drawn on McRae line. In the second image I was noted to have a 7-8mm herniation.)

Symptoms

Chiari is marked by a number of symptoms and commorbidities, even moreso depending on the type you have. Symptoms can occur at any level of herniation. Some people with Chiari can have a 3mm descent and have debilitating symptoms, while some may have a 15 mm descent and be completely asymptomatic. The most common of these is occipital headaches & migraines, ranging from mild to severe, but many more are possible. These range from...

Balance Issues

Dizziness & Vertigo

Neck & Shoulder Pain

Difficulty Swallowing

Sore Throat

Sleep Apnea

Nausea & Vomitting

Tinnitus & Hearing Loss

Blurred Vision, Visual Snow, & Vision Loss

Muscle Weakness

Numbness or Pins & Needles (Caused by Nerve Damage)

Poor Motor Skills

Fatigue

Cognitive Difficulties (including but not limited to Brain Fog, Memory Problems, Confusion, & Difficulty Speaking)

Insomnia

Photophobia/Light Sensitivity

Syncope, Fainting, & Drop Attacks

Seizures

Dysautonomia

Since the cerebellar tonsils block the opening to the base of the skull, Chiari can halt the proper flow of CSF (Cerebral Spinal Fluid) between the brain and the spinal chord. Because of this, Syringomylia (cysts filled with CSF formed on the spine called Syrinxs) is considered common with Chiari. Other common disorders with Chiari are Scoliosis, EDS & Cervicocranial Instability, POTS, Tethered Spinal Chord Syndrome, Spina bifida, & Hydrocephalus.

So What's the Solution?

Well, the only known solution for Chiari as of right now is surgery. This surgery is called posterior fossa decompression-- in which a small portion of the base of the skull is removed from the Chiari patient to relieve pressure and give more room for the brain. The surgeon can then do for sone patients a duraplasty, in which the dura (or opening of the brain) is cut open and a patch of tissue is sewed into the incision to make the dura bigger and give even more room for the brain. Surgery can also be done as a preventative measure against syrinxes for those without them. In the case the patient also has a syrinx, more surgical procedure can be done to drain the cyst. In patients with EDS, special procedures must be made to avoid surgical complications and making things worse.

Surgery is not guaranteed to completely alleviate symptoms, but typically helps with some. However, due to large misunderstanding and disagreement on proper diagnostic traits of Chiari from doctors (most typically neurologists and neurosurgeons) many may be denied surgery for a number of years, and Chiari Diagnosis can take on an average of 4 years to officially receive.

Some go years experiencing symptoms and having "low lying cerebellar tonsils" (or similar language, such as incidental tonsillar ectopia) noted on their radiology reports without doctors officially recognizing it as Chiari. In this time many are misdiagnosed with other disorders such as chronic headaches, multiple sclerosis, fibromyalgia, and more before finally finding a doctor who will listen. Many will brush off the radiological findings as just a difference in your brain being formed at birth before admitting the symptoms can be due to Chiari. It can take years of your own patient advocacy before someone finally listens.

This is why awareness to it is so important, in hopes of reaching other people and doctors and forming a stronger understanding of the condition from information found by experts on it and those with Chiari themselves. With more awareness comes more accessibility to treatment and surgery so those who are symptomatic can hopefully find some relief. So this month send a little love & luck to those with Chiari!

[creepyscritches]

Logging on in the morning and immediately having to find answers on Arnold-Chiari malformations is literally the way to feel like you've given yourself a concussion

[brookstonalmanac]

Holidays 9.28

Holidays

Banned Websites Awareness Day

British Home Child Day (UK)

Cabrillo Day (California)

Canterbury South Day (New Zealand)

Carrot Day (French Republic)

Carson King Day (Iowa)

Circassian Costume Day

Ethel Rosenberg Day of Justice (New York)

Fiesta of San Miguel (Mexico)

Fish Tank Floorshow Night

Flag Day (Thailand)

Frances Willard Day (Minnesota, Wisconsin)

Freedom From Hunger Day

Global Day of Student Prayer

Gold Lining Day

Gone-ta-Pott Day [every 28th]

International Day of Arnold Chiari Syndrome

International Day of Scientific Culture

International Day for Universal Access to Information (UN)

International Right to Know Day

International Safe Abortion Day

Marshmallow Twisters Day

National British Home Child Day (Canada)

National Chris Day

National Day of Awareness

National Day of Awareness and Unity against Child Pornography (Philippines)

National Good Neighbor Day

National Gordie Day

National Manufacturing Day (UK)

National North Carolina Day

National Penicillin Allergy Day

National Self Awareness Day

National Son’s Day (Canada)

National Talk Like Mr. Krabs Day (Aenopia)

National Traffic Door Day

NICU Staff Recognition Day

Popular Uprising of Naples Day (Italy)

Psoriatic Arthritis Awareness Day

Read a Child a Book You Like Day

Silver Lining Day

Teacher’s Day (Philippines, Taiwan)

World News Day

World Pet Day

World Rabies Day

Food & Drink Celebrations

Drink As Much Beer As Possible Day

Drink Beer Day

International Poke Day

National Drink Beer Day

Ohio Pint Day

Strawberry Cream Pie Day

World Marmite Day

4th & Last Thursday in September

Arthur's Day (Arthur Guinness) [4th Thursday]

National Fitness Day (Ireland) [4th Thursday]

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Remember Me Thursday [4th Thursday]

World Maritime Day [Last Thursday]

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Lucky & Unlucky Days

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Premieres

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Ballet Shoes, by Noel Streatfeild (Children’s Novel; 1936)

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The Dissent of Man, by Bad Religion (Album; 2010)

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Eldorado, by Electric Light Orchestra (Album; 1974)

Fallen Into the Pit, by Ellis Peters (Novel; 1951)

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I Heard It Through the Grapevine, by Gladys Knight & The Pips (Song; 1967)

Looney Lightning or Nuts and Volts (Rocky & Bullwinkle Cartoon, S6, Ep. 306; 1964)

Looper (Film; 2012)

Love Me Tender, by Elvis Presley (Song; 1956)

Mildred Pierce (Film; 1945)

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On Ice (Disney Cartoon; 1935)

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Pitch Perfect (Film; 2012)

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The Show Must Go On or Give “em the Acts (Rocky & Bullwinkle Cartoon, S6, Ep. 305; 1964)

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Songs in the Key of Life, by Stevie Wonder (Album; 1976)

Star Trek: The Next Generation (TV Series; 1987)

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Today is Also…

Day of Year: Day 271 of 2024; 94 days remaining in the year

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Season: Autumn (Day 5 of 89)

Zodiac: Libra (Day 5 of 30)

Calendar Changes

Shù (Month 10 of 12; J Calendar)

[littlebitofgoodness]

Arnold–Chiari malformation 📝

A condition in which brain tissue extends into the spinal canal, present at birth.

It occurs when part of the skull is abnormally small or misshapen.

[sajithaaurelia]

Apprenez à fermer vos bouches avant de juger sans vraiment connaître les gens et surtout connaître vraiment ce qu'on appelle le HANDICAP INVISIBLE . Car faut encaisser au quotidien déjà le handicap mais aussi le jugement des autres. 🤬

Déçu par les gens qui comprennent pas, on ne demande pas de se mettre à notre place mais au moins nous laisser tranquille ...

C’est triste de se sentir mal et s'entendre dire :

"Mais si tu es malade pourquoi tu fais ça ou telle chose ...

"C’est difficile de te croire..... Je le vois bien, tu n'as rien".

Mais personne ne connaît la lutte personnelle de chacun, et la force qu'il faut pour continuer à se lever tous les jours comme si de rien n'était...

Ça fait des années que je souffre de ces douleurs, et d'une quantité de changements en moi, sans raison apparente... Jusqu'à ce que le diagnostic tombe...

Il y a deux sentiments, celui de :

• Enfin tu sais ce que tu as

Et celui de :

• Maintenant comment je l'affronte ?

Le manque de courage, tous ces traitements qui te fatiguent encore plus.. Et les milliers de commentaires :

"Tu as grossi"... "Qu'est ce qui est arrivé à tes cheveux?"

"Et ces tâches, si beau qu’était ton visage, qu'est-ce qui t'es arrivé ?..."

"Ne pleure pas, retiens toi."

Les maladies silencieuses et invisibles existent !!!!!

Quand vous avez une maladie invisible, c'est difficile de faire face aux gens... Ils ne comprennent pas, jusqu'à ce que ça leur arrive. Et oui, la roue tourne…

Fatiguée d'entendre dire " Tu es allé chez le docteur ? Tu as essayé ça ? C'est parce-que tu es trop comme ci... ou pas assez comme ça....! "

Oui, j'ai déjà essayé et je continue à tout essayer 🙂

Les médecins disent que cette maladie est là pour toujours.

Que je ne guérirai pas.

Cependant, je n'abandonne pas, et je veux que les autres le voient. Chaque jour qui passe est une bataille gagnée ... 😛

Une sieste ne me guérira pas, mais si ça m'aide, je dormirai, et je sais que ce sera mal vu… Comment faire comprendre que ne suis pas paresseuse ?

• soit c'est parce que je prends des médicaments et ça me fait dormir,

• soit c'est la maladie en elle-même qui me cause de grosses fatigues,

Je me bats contre la douleur, les problèmes de mobilité, la fatigue, la fatigue extrême.

La partie la plus frustrante, c'est que les gens me regardent et disent : "ça ne peut pas être si mal, si grave, tu vas bien", malgré le fait que mon corps ressent une douleur insupportable partout...

Mais je fais semblant de rien. Je veux être comme les autres. J'essaie de me voir toujours bien, d'ignorer les kilos de trop ou les tâches et les cernes.

Tout est vrai !

La mienne est une maladie #silencieuse

Cette maladie me frappe physiquement, mentalement et émotionnellement.

J 'ai besoin de votre soutien, PAS DE VOTRE JUGEMENT !

Si je tombe, je n'ai pas besoin que tu me relèves, j'ai besoin que tu te battes avec moi jusqu'à ce que j'aie la force, envie et courage pour avancer.

Pourquoi les maladies rares auto-immunes ne se voient pas... Elles se sentent.

Elles sont là, attaquantes, rongeantes, silencieuses, insidieuses, douloureuses en profondeur.

Je regarde ceux qui prennent le temps de lire ce post jusqu'à la fin. Avec ce post, la demande suivante arrive 🙂

S'il vous plaît, en l'honneur de quelqu'un qui se bat contre :

Le syndrome Arnold chiari et syringomiélie

La fybromialgie

Hypothyroïdie

Hyperthyroïdie

Syndrome d’ovaire polykystique

Le syndrome Ehlers Danlos / HSD

La recto collite ulcéreuse..

La maladie de Crohn

Spasmophilie & Spasmophilie

Polyarthrite rhumatoïde

Douleur chronique

Thrombopénie

Endométriose

Pancréatite

Sclérose en plaques

Myélome

Neuropathies évolutive

Myasthénie grave

Hypertension pulmonaire

Syndrome de fatigue chronique

Diabète

Spondylartrite Ankylosante

Épilepsie

Maladie Coeliaque

Anxiété et dépression

Fibromyalgie, Lupus

Raynaud et sclérodermie

maladie de Ménière

Syndromes d'Evans

Nevralgie du trijumeau.

Névralgie d'Arnold.

Névralgie cervico brachiale

Syndrome de Sjogren.

Syndrome de Nutcracker

Syndrome de Cokett

Insuffisance Rénale

Pince aorto mesenterique

Migraine Hémiplégique

BPCO

Syndrome de l’hyper ventilation

La maladie de Verneuil

La maladie de lyme

L'insuffisance cardiaque

¶ ... ou toute autre maladie, qu'on ne voit pas ...

Copiez et collez.

Écrivez "fait" dans les commentaires et merci pour votre soutien.

J'aimerais voir cinq de mes amis publier ce message, sans obligation(ne pas partager), pour montrer que vous êtes toujours là si quelqu'un doit parler.

Je soutiens #maladiesinvisibles .

Un combat à vie ❤️

[brookston]

Holidays 9.28

Holidays

Banned Websites Awareness Day

Battle of Marathon Anniversary Day (490 BCE)

British Home Child Day (UK)

Cabrillo Day (California)

Canterbury South Day (New Zealand)

Carrot Day (French Republic)

Carson King Day (Iowa)

Circassian Costume Day

Ethel Rosenberg Day of Justice (New York)

Fiesta of San Miguel (Mexico)

Fish Tank Floorshow Night

Flag Day (Thailand)

Frances Willard Day (Minnesota, Wisconsin)

Freedom From Hunger Day

Global Day of Student Prayer

Gold Lining Day

Gone-ta-Pott Day [every 28th]

Grandmother’s Day (Moldova)

International Day of Arnold Chiari Syndrome

International Day of Scientific Culture

International Day for Universal Access to Information (UN)

International Right to Know Day

International Safe Abortion Day

Let Freedom Read Day

National British Home Child Day (Canada)

National Chris Day

National Day of Awareness

National Day of Awareness and Unity against Child Pornography (Philippines)

National Good Neighbor Day

National Gordie Day

National Manufacturing Day (UK)

National North Carolina Day

National Parks Free Entrance Day

National Penicillin Allergy Day

National Self Awareness Day

National Son’s Day (Canada)

National Talk Like Mr. Krabs Day (Aenopia)

National Traffic Door Day

NICU Staff Recognition Day

928 Day (Arizona)

Nuclear Industry Worker’s Day (Kazakhstan, Russia)

Popular Uprising of Naples Day (Italy)

Porsche 928 Day

Psoriatic Arthritis Awareness Day

Railway Day (Indonesia)

Read a Child a Book You Like Day

Silver Lining Day

Teacher’s Day (Philippines, Taiwan)

World News Day

World Pet Day

World Rabies Day

Food & Drink Celebrations

Drink As Much Beer As Possible Day

Drink Beer Day

International Poke Day

Marshmallow Twisters Day

National Drink Beer Day

Ohio Pint Day

Strawberry Cream Pie Day

World Marmite Day

Independence & Related Days

Czech Statehood Day (Czech Republic)

Nefaria (a.k.a. Timonoucitiland; Declared; 2019) [unrecognized]

Referendum Anniversary Day (Republic of Guinea; 1958)

4th & Last Saturday in September

American Frog Day [4th Saturday]

Cavan Day [4th Saturday]

Centzon-Totochtin Drunken Rabbit Day [Last Saturday]

European Mushroom Day [4th Saturday]

Everybody's Day Festival [Last Saturday]

Family Health and Fitness Day USA (Last Saturday]

Fish Amnesty Day [4th Saturday]

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National Colouring Day (Canada) [4th Saturday]

National Ghost Hunting Day [Last Saturday]

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National Public Lands Day [4th Saturday]

National Seat Check Saturday [4th Saturday]

National Wildlife Ecology Day [4th Saturday]

Nickelodeon’s Worldwide Day of Play [Last Saturday]

R.E.A.D. in America Day [4th Saturday]

Salacious Saturday [4th Saturday of Each Month]

Sandwich Saturday [Every Saturday]

Sausage Saturday [4th Saturday of Each Month]

Save Your Photos Day [Last Saturday]

Seat Check Saturday [4th Saturday]

Six For Saturday [Every Saturday]

Spaghetti Saturday [Every Saturday]

Splurge Saturday [Last Saturday of Each Month]

Stir-Fry Saturday [Last Saturday of Each Month]

World Cyanotype Day [Last Saturday]

World Day of Leukodystrophies [Last Saturday]

World’s Largest Pet Walk [Last Saturday]

Weekly Holidays beginning September 28 (4th Full Week of September)

National Alpaca Farm Days (thru 10.6) [Last Saturday]

Festivals Beginning September 28, 2024

Afton Apple Orchard Apple Festival (Hastings Area, Minnesota) [thru 9.29]

Alpaca Farm Days (Lincoln, Nebraska) [thru 9.29

Apple Fest (Winston-Salem, North Carolina)

Apple Festival (Media, Pennsylvania)

AppleUmpkin Festival (Wyoming, New York) [thru 9.29]

Banana Festival (Port of Hueneme, California)

BAROMETER International Bar Show (Kyiv, Ukraine) [thru 9.29]

BBQ Brews & Brats (Enumclaw, Washington) [thru 9.29]

Beef-A-Rama (Minocqua, Wisconsin)

Boston Veg Food Fest (Boston, Massachusetts) [thru 9.29]

Chili Challenge (Steamboat Springs, Colorado)

Chili Challenge (Waterville Valley, New Hampshire)

Chili-Chowdah Festival (East Bridgewater, Massachusetts)

Cornstock (Garnett, Kansas)

Country Applefest (Lebanon, Ohio) [thru 9.29]

Cumberland County Fair (Cumberland, Maine) [thru 9.29]

Fall Harvest Festival (Sherman, Connecticut)

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Festa Italiana Seattle (Seattle, Washington) [thru 9.29]

Flushing Harvest Festival (Flushing, Michigan)

Geneva Grape Jamboree (Geneva, Ohio) [thru 9.29]

Genoa Candy Dance (Genoa, Nevada) [thru 9.29]

Germantown Pretzel Festival (Germantown, Ohio) [thru 9.29]

Glenville Oktoberfest -(Glenville, New York)

Goleta Lemon Festival (Goleta, California) [thru 9.29]

Great Plains Renaissance & Scottish Festival (Wichita, Kansas) [9.29]

West Virginia Autumn Harvest Festival and Roadkill Cook-Off (Marlinton, West Virginia)

Hartford County Wine Festival (Bel Air, Maryland)

Harvest Festival and Roadkill Cook-off (Marlinton, West Virginia)

Homesteaders Day (Hardy, Arkansas)

Honey Bee Festival (Palo Cedro, California) [thru 9.29]

Hudson Valley Garlic Festival (Saugerties, New York) [thru 9.29]

Irish Italian International Festival (North Myrtle Beach, South Carolina)

Jack-O-Lantern Spectacular (Apple Valley, Minnesota) [thru 11.2]

Jelly Belly Candy Palooza (Fairfield, California) [thru 9.29]

Kelseyville Pear Festival (Kelseyville, California)

Kendal Torchlight Carnival (Kendal, United Kingdom)

Lenox Apple Squeeze (Lenox, Massachusetts)

Maine Lakes Brew Fest (Casco, Maine)

Maryland Microbrewery Festival (Westminster, Maryland)

My-Oh-My Apple Pie Weekend (Willcox, Arizona) [thru 9.29]

Naples Grape Festival (Naples, New York) [thru 9.29]

NC Muscadine Festival (Kenansville, North Carolina)

Nelson Farm Pumpkin Patch Festival (Litchfield, Minnesota) [thru 10.27]

Newport Oktoberfest (Newport, Rhode Island)

North Quabbin Garlic & Arts Festival (Orange, Massachusetts) [thru 9.29]

Northwest Tea Festival (Seattle, Washington) [thru 9.29]

Oktoberfest Weekend (Chester, New Jersey) [thru 9.29]

OkTUPPERfest (Tupper Lake, New York)

Plains Peanut Festival (Plains, Georgia)

PotatoFest (Ebensburg, Pennsylvania)

Pumpkin Festival (Rapid City, South Dakota)

San Juan Capistrano Greek Fest (San Juan Capistrano, California) [thru 9.29]

Saratoga Giant PumpkinFest Weigh-Off (Saratoga Springs, New York)

Seafood and Soul Festival (Stockton, California) [thru 9.29]

Sedona WineFest (Sedona, Arizona) [thru 9.29]

SeptOberfest (Wabasha, Minnesota) [thru 10.6]

South Toms River Food Truck & Craft Beer Festival (Toms River, New Jersey)

Smith Mountain Lake Wine Festival (Smith Mountain Lake, Virginia) [thru 9.29]

Sonoma County VegFest (Santa Rosa, California)

A Taste of Soquel (Soquel, California)

Treasure Coast Seafood Festival (Vero Beach, Florida)

Turkey Festival (Eldon, Missouri)

Valpo Brewfest (Valparaiso, Indiana)

Wichita Wagonmasters Downtown Chili CookOff (Wichita, Kansas)

Wing Dang Doodle Festival (Forest, Mississippi)

Yadkin Valley Pumpkin Festival (Elkin, North Carolina)

Yavapai Cattle Growers Annual Calf Sale & BBQ (Peeples Valley, Arizona)

Feast Days

Aaron of Auxerre (Christian; Saint)

Al Capp (Artology)

Alexandre Cabanel (Artology)

Annemund (Christian; Saint)

Cailleach An Dudean (Hag of the Mill-Dust Dance; Celtic Book of Days)

Confucius (Confucianism; Founder)

Conval (Christian; Saint)

Eustochium (Christian; Saint)

Exuperius (Christian; Saint)

Fast of Gedalia (Judaism) [3 Tishri]

Faustus of Riez (Christian; Saint)

Feast of Khepera (Egyptian Beetle God)

Festival of Wawatsari (God of Deer Peyote; Huichol, Mexico)

Fictional Character Day (Pastafarian)

First of San Miguel (Christian; Mexico)

Fred (Muppetism)

Hapi’s Day (Day of the Nile; Pagan)

Hazelwood Day (Church of the SubGenius; Saint)

John of Dukla (Christian; Saint)

Leoba (a.k.a. Lioba; Christian; Saint)

Lorenzo Ruiz (Christian; Saint)

Michaelmas Eve (Celtic)

Mme. de Staal (Positivist; Saint)

Paternus of Auch (Christian; Saint)

Richard Rolle, Walter Hilton and Margery Kempe (Episcopal Church (USA))

Simón de Rojas (Christian; Saint)

Simon Winchester (Writerism)

Tales of Kelp-Kori’s Second Visit (Shamanism)

Thesmophoria (Ancient Greece; Festival to Demeter)

Warja Lavater (Artology)

Wenceslas of Bohemia(Christian; Saint) [Bohemia, Czech brewers] *

Lucky & Unlucky Days

Prime Number Day: 271 [58 of 72]

Sakimake (先負 Japan) [Bad luck in the morning, good luck in the afternoon.]

Umu Limnu (Evil Day; Babylonian Calendar; 45 of 60)

Premieres

Aqua Duck (WB MM Cartoon; 1963)

…Baby One More Time, by Britney Spears (Song; 1998)

Ballet Shoes, by Noel Streatfeild (Children’s Novel; 1936)

Blackadder Goes Forth (UK TV Series; 1989)

Blonde (Film; 2022)

The Clock Store (Silly Symphony Cartoon; 1931)

Cool Hand Luke, by Donn Pearce (Novel; 1965)

DC Showcase: Green Arrow (WB Cartoon; 2010)

The Dissent of Man, by Bad Religion (Album; 2010)

Dr. Kildare (TV Series; 1961)

Eldorado, by Electric Light Orchestra (Album; 1974)

Fallen Into the Pit, by Ellis Peters (Novel; 1951)

The Great Friendship, by Vano Muradeli (Opera; 1947)

Greedy for Tweety (WB LT Cartoon; 1957)

Hearts in Atlantis (Film; 2001)

Hook, Line and Sinker (Terrytoons Cartoon; 1939)

Hotel Transylvania (Animated Film; 2012)

I Heard It Through the Grapevine, by Gladys Knight & The Pips (Song; 1967)

L’Histoire du Soldat, by Igor Stravinsky (Theatrical Work; 1918)

Looney Lightning or Nuts and Volts (Rocky & Bullwinkle Cartoon, S6, Ep. 306; 1964)

Looper (Film; 2012)

Love Me Tender, by Elvis Presley (Song; 1956)

Mildred Pierce (Film; 1945)

Minding the Baby (Betty Boop Cartoon; 1931)

Night School (Film; 2018)

On Ice (Disney Cartoon; 1935)

Papa Was a Rollin’ Stone, by The Temptations (Song; 1972)

Pitch Perfect (Film; 2012)

The Professor and the Madman (UK Title: The Surgeon of Crowthorne), by Simon Winchester (Book; 1998)

The Show Must Go On or Give “em the Acts (Rocky & Bullwinkle Cartoon, S6, Ep. 305; 1964)

Smallfoot (Animated Film; 2018)

Songs in the Key of Life, by Stevie Wonder (Album; 1976)

Star Trek: The Next Generation (TV Series; 1987)

Superman/Batman: Apocalypse (WB Animated Film; 2010)

Tales from Margarita, by Jimmy Buffet (Short Stories; 1989)

To Know Him Is To Love Him, by The Teddy Bears (Song; 1958)

Tom and Jerry: Robin Hood and His Merry Mouse (WB Animated Film; 2012)

Travels with My Aunt, by Graham Greene (Novel; 1969)

Ugly Betty (TV Series; 2008)

The Watchdog (Terrytoons Cartoon; 1945)

Welcome to the Jungle, by Guns N’ Roses (Song; 1987)

The Wild Life (Film; 1984)

A Wizard of Earthsea, by Ursula K. Le Guin (Novel; 1968) [Earthsea #1]

Zoolander (Film; 2001)

Today’s Name Days

Dietmar, Giselher, Lioba, Thekla, Wenzel (Austria)

Faust, Lovorko, Većeslav (Croatia)

Václav (Czech Republic)

Venceslaus (Denmark)

Lennart, Lenno, Leonhard, Linnar, Linnart (Estonia)

Arja, Lenni (Finland)

Venceslas (France)

Giselher, Lioba, Wenzel (Germany)

Heriton (Greece)

Vencel (Hungary)

Venceslao (Italy)

Gaita, Kaira, Lana, Sergejs, Svetlana (Latvia)

Saliamonas, Tautvydas, Vaclovas, Vacys, Vientautė (Lithuania)

Lena, Lene (Norway)

Jan, Laurencjusz, Luba, Lubosza, Marek, Nikita, Salomon, Sylwin, Wacław, Wacława, Wawrzyniec, Więcesław (Poland)

Hariton (Romania)

Václav (Slovakia)

Lorenzo, Wenceslao (Spain)

Lennart, Leonard (Sweden)

Baruch, Preston, Prior, Pryor, Wenzel (USA)

Today is Also…

Day of Year: Day 272 of 2024; 94 days remaining in the year

ISO: Day 6 of Week 39 of 2024

Celtic Tree Calendar: Muin (Vine) [Day 28 of 28]

Chinese: Month 8 (Guy-You), Day 26 (Yi-Wei)

Chinese Year of the: Dragon 4722 (until January 29, 2025) [Wu-Chen]

Hebrew: 25 Elul 5784

Islamic: 24 Rabi I 1446

J Cal: 2 Orange; Twosday [2 of 30]

Julian: 15 September 2024

Moon: 14%: Waning Crescent

Positivist: 20 Shakespeare (10th Month) [Richardson]

Runic Half Month: Gyfu (Gift) [Day 7 of 15]

Season: Autumn or Fall (Day 7 of 90)

Week: 4th Full Week of September

Zodiac: Libra (Day 6 of 30)

[lightasthesun]

What is Chiari Malformation?

View this post on Instagram

A post shared by The Chiari Community (@chiarimalformation)

View this post on Instagram

A post shared by The Chiari Community (@chiarimalformation)

[trekbec82]

When I was diagnosed with Chiari Malformation, my neurosurgeon was astounded that - as a retail employee - I'd not only heard of the condition, but also knew what it was, and how it's most often treated. One of my work colleagues was diagnosed with it several years before I was, and told me all about it when I asked. So when the doc said I had it my response was "oh I have Chiari?!" not "what's that?"

Since then I've seen a bunch of doctors about other medical conditions, and most of them had no idea what Chiari is. Explaining your medical condition to people who've studied medicine can be very entertaining, depending on the situation.

(Explanation of Chiari below the cut for anyone curious.)

If you've ever seen a human skull (thanks Hamlet!) you'll know there's a hole at the base of it, towards the back - the foramen magnum - which is how the spinal cord connects to the brain.

Many of you will have heard of the cerebellum - a part of the brain, located in the lower rear region. The base of the cerebellum is known as the cerebellar tonsils, and when they descend into the foramen magnum, that's Chiari Malformation, sometimes known as Arnold-Chiari Malformation.

There are three main subtypes, depending on the severity, with 1 being the least severe and 3 being the worst of the trio. A descent of 5mm is type 1, and can cause symptoms.

Some people with Chiari Malformation never develop any symptoms, so don't even know they have it unless they have an MRI of their brain for some other reason. Others develop symptoms from the Chiari alone, or develop either Hydrocephalus or Syringomyelia in addition, and some extraordinarily unlucky folks develop both.

Hydrocephalus is a build up of cerebrospinal fluid (CSF) in the ventricles (cavities) of the brain, while Syringomyelia is a cyst in the spinal cord. Both can be caused by the flow of CSF being disrupted by Chiari Malformation, and Hydrocephalus can sometimes cause Chiari. (Bodies are weird like that.)

My work colleague developed Syringomyelia, so she had the most common Chiari treatment - a decompression surgery, which removes a small section of the skull, with a special protective mesh inserted in its place, to give the brain more space.

I developed Hydrocephalus - my ventricles were very enlarged, and pushing the white and grey matter of my brain hard against my skull, causing agonising headaches 24/7. This being the case, I had a different surgery - a shunt was inserted to divert excess CSF, allowing my ventricles to return to a more normal size, and taking the pressure off my brain. As of my most recent MRI, my Chiari is now reduced as well.

(Apologies to @thebibliosphere that got away from me a bit.)

Sometimes I’ll read back a post where I’m casually explaining a really complex medical issue that most doctors struggle to grasp unless they’ve spent decades specializing in it, and then remember.

I have a liberal arts degree.

[noticlip]

Venezuela es pionera en cirugía fetal de espina bífida

Un equipo conformado por especialistas venezolanos realizó con éxito una cirugía fetal endoscópica a una niña con síndrome de Arnold Chiari II a las 25 semanas de embarazo, logrando que su nacimiento se diera sin complicaciones a las 36 semanas y 4 días de gestación. Carlos Bermúdez, médico obstetra y ginecólogo, lideró el procedimiento quirúrgico que se hizo, totalmente gratis, en el Centro…

[edenoi]

sometimes i like to blame arnold chiari personally for my problems. like i know he didn't personally mold my brain like khnum but it's funny to me

[kondavanelos]

Συριγγομυελία λόγω συνδρόμου Arnold-Chiari.

[brookstonalmanac]

Holidays 9.28

Holidays

Banned Websites Awareness Day

Battle of Marathon Anniversary Day (490 BCE)

British Home Child Day (UK)

Cabrillo Day (California)

Canterbury South Day (New Zealand)

Carrot Day (French Republic)

Carson King Day (Iowa)

Circassian Costume Day

Ethel Rosenberg Day of Justice (New York)

Fiesta of San Miguel (Mexico)

Fish Tank Floorshow Night

Flag Day (Thailand)

Frances Willard Day (Minnesota, Wisconsin)

Freedom From Hunger Day

Global Day of Student Prayer

Gold Lining Day

Gone-ta-Pott Day [every 28th]

Grandmother’s Day (Moldova)

International Day of Arnold Chiari Syndrome

International Day of Scientific Culture

International Day for Universal Access to Information (UN)

International Right to Know Day

International Safe Abortion Day

Let Freedom Read Day

National British Home Child Day (Canada)

National Chris Day

National Day of Awareness

National Day of Awareness and Unity against Child Pornography (Philippines)

National Good Neighbor Day

National Gordie Day

National Manufacturing Day (UK)

National North Carolina Day

National Parks Free Entrance Day

National Penicillin Allergy Day

National Self Awareness Day

National Son’s Day (Canada)

National Talk Like Mr. Krabs Day (Aenopia)

National Traffic Door Day

NICU Staff Recognition Day

928 Day (Arizona)

Nuclear Industry Worker’s Day (Kazakhstan, Russia)

Popular Uprising of Naples Day (Italy)

Porsche 928 Day

Psoriatic Arthritis Awareness Day

Railway Day (Indonesia)

Read a Child a Book You Like Day

Silver Lining Day

Teacher’s Day (Philippines, Taiwan)

World News Day

World Pet Day

World Rabies Day

Food & Drink Celebrations

Drink As Much Beer As Possible Day

Drink Beer Day

International Poke Day

Marshmallow Twisters Day

National Drink Beer Day

Ohio Pint Day

Strawberry Cream Pie Day

World Marmite Day

Independence & Related Days

Czech Statehood Day (Czech Republic)

Nefaria (a.k.a. Timonoucitiland; Declared; 2019) [unrecognized]

Referendum Anniversary Day (Republic of Guinea; 1958)

4th & Last Saturday in September

American Frog Day [4th Saturday]

Cavan Day [4th Saturday]

Centzon-Totochtin Drunken Rabbit Day [Last Saturday]

European Mushroom Day [4th Saturday]

Everybody's Day Festival [Last Saturday]

Family Health and Fitness Day USA (Last Saturday]

Fish Amnesty Day [4th Saturday]

International Lace Day [Last Saturday]

International Rabbit Day [4th Saturday]

Kiwanis Kids' Day [4th Saturday]

Museum Day (Smithsonian) [4th Saturday]

National Colouring Day (Canada) [4th Saturday]

National Ghost Hunting Day [Last Saturday]

National Hunting & Fishing Day [4th Saturday]

National Public Lands Day [4th Saturday]

National Seat Check Saturday [4th Saturday]

National Wildlife Ecology Day [4th Saturday]

Nickelodeon’s Worldwide Day of Play [Last Saturday]

R.E.A.D. in America Day [4th Saturday]

Salacious Saturday [4th Saturday of Each Month]

Sandwich Saturday [Every Saturday]

Sausage Saturday [4th Saturday of Each Month]

Save Your Photos Day [Last Saturday]

Seat Check Saturday [4th Saturday]

Six For Saturday [Every Saturday]

Spaghetti Saturday [Every Saturday]

Splurge Saturday [Last Saturday of Each Month]

Stir-Fry Saturday [Last Saturday of Each Month]

World Cyanotype Day [Last Saturday]

World Day of Leukodystrophies [Last Saturday]

World’s Largest Pet Walk [Last Saturday]

Weekly Holidays beginning September 28 (4th Full Week of September)

National Alpaca Farm Days (thru 10.6) [Last Saturday]

Festivals Beginning September 28, 2024

Afton Apple Orchard Apple Festival (Hastings Area, Minnesota) [thru 9.29]

Alpaca Farm Days (Lincoln, Nebraska) [thru 9.29

Apple Fest (Winston-Salem, North Carolina)

Apple Festival (Media, Pennsylvania)

AppleUmpkin Festival (Wyoming, New York) [thru 9.29]

Banana Festival (Port of Hueneme, California)

BAROMETER International Bar Show (Kyiv, Ukraine) [thru 9.29]

BBQ Brews & Brats (Enumclaw, Washington) [thru 9.29]

Beef-A-Rama (Minocqua, Wisconsin)

Boston Veg Food Fest (Boston, Massachusetts) [thru 9.29]

Chili Challenge (Steamboat Springs, Colorado)

Chili Challenge (Waterville Valley, New Hampshire)

Chili-Chowdah Festival (East Bridgewater, Massachusetts)

Cornstock (Garnett, Kansas)

Country Applefest (Lebanon, Ohio) [thru 9.29]

Cumberland County Fair (Cumberland, Maine) [thru 9.29]

Fall Harvest Festival (Sherman, Connecticut)

Festival of India (Richmond, Virginia) [thru 9.29]

Festa Italiana Seattle (Seattle, Washington) [thru 9.29]

Flushing Harvest Festival (Flushing, Michigan)

Geneva Grape Jamboree (Geneva, Ohio) [thru 9.29]

Genoa Candy Dance (Genoa, Nevada) [thru 9.29]

Germantown Pretzel Festival (Germantown, Ohio) [thru 9.29]

Glenville Oktoberfest -(Glenville, New York)

Goleta Lemon Festival (Goleta, California) [thru 9.29]

Great Plains Renaissance & Scottish Festival (Wichita, Kansas) [9.29]

West Virginia Autumn Harvest Festival and Roadkill Cook-Off (Marlinton, West Virginia)

Hartford County Wine Festival (Bel Air, Maryland)

Harvest Festival and Roadkill Cook-off (Marlinton, West Virginia)

Homesteaders Day (Hardy, Arkansas)

Honey Bee Festival (Palo Cedro, California) [thru 9.29]

Hudson Valley Garlic Festival (Saugerties, New York) [thru 9.29]

Irish Italian International Festival (North Myrtle Beach, South Carolina)

Jack-O-Lantern Spectacular (Apple Valley, Minnesota) [thru 11.2]

Jelly Belly Candy Palooza (Fairfield, California) [thru 9.29]

Kelseyville Pear Festival (Kelseyville, California)

Kendal Torchlight Carnival (Kendal, United Kingdom)

Lenox Apple Squeeze (Lenox, Massachusetts)

Maine Lakes Brew Fest (Casco, Maine)

Maryland Microbrewery Festival (Westminster, Maryland)

My-Oh-My Apple Pie Weekend (Willcox, Arizona) [thru 9.29]

Naples Grape Festival (Naples, New York) [thru 9.29]

NC Muscadine Festival (Kenansville, North Carolina)

Nelson Farm Pumpkin Patch Festival (Litchfield, Minnesota) [thru 10.27]

Newport Oktoberfest (Newport, Rhode Island)

North Quabbin Garlic & Arts Festival (Orange, Massachusetts) [thru 9.29]

Northwest Tea Festival (Seattle, Washington) [thru 9.29]

Oktoberfest Weekend (Chester, New Jersey) [thru 9.29]

OkTUPPERfest (Tupper Lake, New York)

Plains Peanut Festival (Plains, Georgia)

PotatoFest (Ebensburg, Pennsylvania)

Pumpkin Festival (Rapid City, South Dakota)

San Juan Capistrano Greek Fest (San Juan Capistrano, California) [thru 9.29]

Saratoga Giant PumpkinFest Weigh-Off (Saratoga Springs, New York)

Seafood and Soul Festival (Stockton, California) [thru 9.29]

Sedona WineFest (Sedona, Arizona) [thru 9.29]

SeptOberfest (Wabasha, Minnesota) [thru 10.6]

South Toms River Food Truck & Craft Beer Festival (Toms River, New Jersey)

Smith Mountain Lake Wine Festival (Smith Mountain Lake, Virginia) [thru 9.29]

Sonoma County VegFest (Santa Rosa, California)

A Taste of Soquel (Soquel, California)

Treasure Coast Seafood Festival (Vero Beach, Florida)

Turkey Festival (Eldon, Missouri)

Valpo Brewfest (Valparaiso, Indiana)

Wichita Wagonmasters Downtown Chili CookOff (Wichita, Kansas)

Wing Dang Doodle Festival (Forest, Mississippi)

Yadkin Valley Pumpkin Festival (Elkin, North Carolina)

Yavapai Cattle Growers Annual Calf Sale & BBQ (Peeples Valley, Arizona)

Feast Days

Aaron of Auxerre (Christian; Saint)

Al Capp (Artology)

Alexandre Cabanel (Artology)

Annemund (Christian; Saint)

Cailleach An Dudean (Hag of the Mill-Dust Dance; Celtic Book of Days)

Confucius (Confucianism; Founder)

Conval (Christian; Saint)

Eustochium (Christian; Saint)

Exuperius (Christian; Saint)

Fast of Gedalia (Judaism) [3 Tishri]

Faustus of Riez (Christian; Saint)

Feast of Khepera (Egyptian Beetle God)

Festival of Wawatsari (God of Deer Peyote; Huichol, Mexico)

Fictional Character Day (Pastafarian)

First of San Miguel (Christian; Mexico)

Fred (Muppetism)

Hapi’s Day (Day of the Nile; Pagan)

Hazelwood Day (Church of the SubGenius; Saint)

John of Dukla (Christian; Saint)

Leoba (a.k.a. Lioba; Christian; Saint)

Lorenzo Ruiz (Christian; Saint)

Michaelmas Eve (Celtic)

Mme. de Staal (Positivist; Saint)

Paternus of Auch (Christian; Saint)

Richard Rolle, Walter Hilton and Margery Kempe (Episcopal Church (USA))

Simón de Rojas (Christian; Saint)

Simon Winchester (Writerism)

Tales of Kelp-Kori’s Second Visit (Shamanism)

Thesmophoria (Ancient Greece; Festival to Demeter)

Warja Lavater (Artology)

Wenceslas of Bohemia(Christian; Saint) [Bohemia, Czech brewers] *

Lucky & Unlucky Days

Prime Number Day: 271 [58 of 72]

Sakimake (先負 Japan) [Bad luck in the morning, good luck in the afternoon.]

Umu Limnu (Evil Day; Babylonian Calendar; 45 of 60)

Premieres

Aqua Duck (WB MM Cartoon; 1963)

…Baby One More Time, by Britney Spears (Song; 1998)

Ballet Shoes, by Noel Streatfeild (Children’s Novel; 1936)

Blackadder Goes Forth (UK TV Series; 1989)

Blonde (Film; 2022)

The Clock Store (Silly Symphony Cartoon; 1931)

Cool Hand Luke, by Donn Pearce (Novel; 1965)

DC Showcase: Green Arrow (WB Cartoon; 2010)

The Dissent of Man, by Bad Religion (Album; 2010)

Dr. Kildare (TV Series; 1961)

Eldorado, by Electric Light Orchestra (Album; 1974)

Fallen Into the Pit, by Ellis Peters (Novel; 1951)

The Great Friendship, by Vano Muradeli (Opera; 1947)

Greedy for Tweety (WB LT Cartoon; 1957)

Hearts in Atlantis (Film; 2001)

Hook, Line and Sinker (Terrytoons Cartoon; 1939)

Hotel Transylvania (Animated Film; 2012)

I Heard It Through the Grapevine, by Gladys Knight & The Pips (Song; 1967)

L’Histoire du Soldat, by Igor Stravinsky (Theatrical Work; 1918)

Looney Lightning or Nuts and Volts (Rocky & Bullwinkle Cartoon, S6, Ep. 306; 1964)

Looper (Film; 2012)

Love Me Tender, by Elvis Presley (Song; 1956)

Mildred Pierce (Film; 1945)

Minding the Baby (Betty Boop Cartoon; 1931)

Night School (Film; 2018)

On Ice (Disney Cartoon; 1935)

Papa Was a Rollin’ Stone, by The Temptations (Song; 1972)

Pitch Perfect (Film; 2012)

The Professor and the Madman (UK Title: The Surgeon of Crowthorne), by Simon Winchester (Book; 1998)

The Show Must Go On or Give “em the Acts (Rocky & Bullwinkle Cartoon, S6, Ep. 305; 1964)

Smallfoot (Animated Film; 2018)

Songs in the Key of Life, by Stevie Wonder (Album; 1976)

Star Trek: The Next Generation (TV Series; 1987)

Superman/Batman: Apocalypse (WB Animated Film; 2010)

Tales from Margarita, by Jimmy Buffet (Short Stories; 1989)

To Know Him Is To Love Him, by The Teddy Bears (Song; 1958)

Tom and Jerry: Robin Hood and His Merry Mouse (WB Animated Film; 2012)

Travels with My Aunt, by Graham Greene (Novel; 1969)

Ugly Betty (TV Series; 2008)

The Watchdog (Terrytoons Cartoon; 1945)

Welcome to the Jungle, by Guns N’ Roses (Song; 1987)

The Wild Life (Film; 1984)

A Wizard of Earthsea, by Ursula K. Le Guin (Novel; 1968) [Earthsea #1]

Zoolander (Film; 2001)

Today’s Name Days

Dietmar, Giselher, Lioba, Thekla, Wenzel (Austria)

Faust, Lovorko, Većeslav (Croatia)

Václav (Czech Republic)

Venceslaus (Denmark)

Lennart, Lenno, Leonhard, Linnar, Linnart (Estonia)

Arja, Lenni (Finland)

Venceslas (France)

Giselher, Lioba, Wenzel (Germany)

Heriton (Greece)

Vencel (Hungary)

Venceslao (Italy)

Gaita, Kaira, Lana, Sergejs, Svetlana (Latvia)

Saliamonas, Tautvydas, Vaclovas, Vacys, Vientautė (Lithuania)

Lena, Lene (Norway)

Jan, Laurencjusz, Luba, Lubosza, Marek, Nikita, Salomon, Sylwin, Wacław, Wacława, Wawrzyniec, Więcesław (Poland)

Hariton (Romania)

Václav (Slovakia)

Lorenzo, Wenceslao (Spain)

Lennart, Leonard (Sweden)

Baruch, Preston, Prior, Pryor, Wenzel (USA)

Today is Also…

Day of Year: Day 272 of 2024; 94 days remaining in the year

ISO: Day 6 of Week 39 of 2024

Celtic Tree Calendar: Muin (Vine) [Day 28 of 28]

Chinese: Month 8 (Guy-You), Day 26 (Yi-Wei)

Chinese Year of the: Dragon 4722 (until January 29, 2025) [Wu-Chen]

Hebrew: 25 Elul 5784

Islamic: 24 Rabi I 1446

J Cal: 2 Orange; Twosday [2 of 30]

Julian: 15 September 2024

Moon: 14%: Waning Crescent

Positivist: 20 Shakespeare (10th Month) [Richardson]

Runic Half Month: Gyfu (Gift) [Day 7 of 15]

Season: Autumn or Fall (Day 7 of 90)

Week: 4th Full Week of September

Zodiac: Libra (Day 6 of 30)

[iianetwork]

What is Chiari Malformation? Did you know that Chiari Malformation, or Arnold–Chiari malformation, is a condition where the brain sags into the spinal canal? This rare condition comes in three types, each with its own set of symptoms. People with Chiari Malformation may not experience symptoms, especially with Type 1. Chiari Malformation is diagnosed with Imaging such as an MRI or a CT scan. Complications of Chiari Malformation include: Hydrocephalus, an accumulation of excess fluid within the brain, Syringomyelia, a cavity or cyst (syrinx) that forms within the spinal column, and Tethered cord syndrome in which the spinal cord attaches to the spine and causes the spinal cord to stretch. People with Chiari Malformation Type 2 usually have a form of Spina Bifida called Myelomeningocele. If Chiari Malformation presents symptoms it can be treated with pain and headache medications, and if needed surgery. In the most common surgery, the surgeon removes a small section of bone in the back of the skull, relieving pressure by giving the brain more room. Sources: MayoClinic.Org and NINDS.NIH.Gov [Image Description: Purple background with a black title that reads "Chiari Malformation", below reads " Chiari malformation, a condition in which the brain sags into the spinal canal. There are three types of Chiari malformation: Type 1 symptoms: headaches, neck pain, dizziness, and difficulty swallowing. Type 2 is present at birth and has a greater amount of brain sagging. Type 2 symptoms include: changes in breathing pattern, swallowing problems, quick downward eye movements, and weakness in the arms. Type 3 is present at birth. It is the most severe and the rarest. A portion of the lower back part of the brain or the brainstem extends through an opening in the back of the skull. This type has a higher mortality rate and can cause neurological problems."] recLWqMKjnvshsQFL, recsjHN43osLwQsZp