#anyway im having pink mountain dew fucka you
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#feelin anxious abt eds stuff#it just sucks that like they cant rlly. do anything abt it? at least here they dont#i technically dont even have a real diagnosis just doctors telling me i have it + everyone on my moms side of the family having it#bc theres no geneticist in british columbia that specializes in EDS. just a few doctors that know about it and like#essentially treat you for it under the table basically. heavy duty pain killers n referrals to specialists to help relieve Some of the pain#idek what type of EDS i have#it might be hypermobile and i HOPE its just hypermobile eds and not like. vEDS.#even if its vEDS which it Might be. a lot of my family members survived it for a Long While and got to live to be old despite like#all the complications#so idk#it just sucks that its not rlly soemthing thats. studied or whatever. or it at least feels like its not studied.#itd be nice to not feel pain tbh but i am getting used to it#its just scary and rlly isolating ig#esp knowing that a diagnosis does fuckn nothing. a lot of doctors here dont even bother referring ppl to genetisists bc like#they say theres nothing tht can be done rlly. ur body jsut kinda sucks at staying together and thats it#thats my experiences tho. and i have bad luck w the healthcare system here sometimes so HFSKDBDKDJ#frank.txt#anyway im having pink mountain dew fucka you#ask to tag
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