#anyway OP if this isnt helpful feel free to send me an ask and ill move this to its own post
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caspercryptid · 11 months ago
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I just want to add on here because I had an experience with this that, while awful and stressful, ended up applicable to both my mental health journey and my physical health journey, if anyone is seeking formal diagnosis for whatever reason.
I have fibromyalgia. Fibromyalgia is what is called a Diagnosis Of Exclusion. That means there is no test for fibro. There is tests for everything but fibro, and you have to go to every fucking doctor imaginable getting every test imaginable until they all come back negative. This is Fucking Expensive, and it sucks. It involves a lot of x-rays and blood tests, which are even more expensive. Allergy tests, also expensive. It was painful and awful and at the end of all of it I ended up at a pain center and they went "we would love to help, genuinely, but we need a fibro diagnosis to start treating you for fibro and we don't do that here" and I looked at the nurse and I just. Broke. I explained everything I'd been through and I ended up saying, fairly explicitly, "can you give me a referral to a doctor that will diagnose me with fibromyalgia"
And they did.
At the end of all of that was me saying the words "I need you to send me to a doctor that will BE WILLING TO GIVE ME THIS DIAGNOSIS" was the fucking miracle worker. So. For everyone dealing with this with psychiatry and psychology. Unfortunately this is a nightmarish awful process, and this advice may not be helpful to people who don't have the money or insurance to switch doctors. But if your doctor gives you this shit, drop them. Sometimes the practice you're going to will have another doctor on staff who does the same thing, call in and ask to see them instead. I have had to do this for migraines and adhd too! Sometimes you have to sit down in front of a doctor and go "I have been experiencing these symptoms and I am seeking this diagnosis so I can pursue treatment" and some doctors will hear you! It can be scary but you gotta say Treatment and not mention medications and usually that stops them from thinking you're drug-seeking.
Something I've also found helpful is to get a doctor on your side that isn't the one that can give you the diagnosis. Your primary care doctor would get bitchy if you tried to self dx with the flu without a test, but they're more likely to nod along if you describe adhd symptoms and say you're seeking an adhd diagnosis, and if you can get them on your side, they can write you a referral that will vouch for you, and then you can go to the psychologist and say "my primary care doctor sent me here for adhd symptoms" and then it's not you saying you have adhd! It's your primary care doctor! And they wouldnt get mad at a primary care doctor, would they???
Self-advocacy is fucking Hard and Awful and the deck is stacked against you but I just wanted to offer my own experience to offer a few tips for people who have the resources and to say that sometimes you do everything right and do everything they tell you to do and they still won't listen to you until you get another doctor on your side. And sometimes doctors outside the field of specialty can be the ones that are the most helpful (my primary care doctor was fantastic, and my physical therapist is actually who first went "Hey your reactions feel like fibro to me")
Good luck everyone, hope this was helpful, sorry OP for the long rambling reply this just really struck a chord with me— I haven't sought a formal diagnosis for autism even though I Know I have it because it wouldn't be helpful to me but i remember going through this with adhd and fibro and I learned a lot.
a while ago i attended this lecture on autism. guy in the audience said he had many of the symptoms that were presented and asked what should he do to get treatment and possibly a diagnosis. instead of answering his question the psychologist went on a tangent about how “the clinic reigns all powerful over guesswork”, and how actually it has become a trend amongst little children on the internet to claim that they are autistic for cool points, and that this hurts real autistic people. no she didn’t tell him how to get his symptoms looked into, she just made it very clear that to her, aknowledging your own symptoms is bad and evil and hurts the poor real mentally ill people.
an ex-friend of mine, then a psychology major and by now probably a full psychologist, once lectured me on how horrible and bad it was that i told her “i probably have some sort of neurodivergency”, and that if i were her patient she would never give me a diagnosis because “you aren’t like this now, but i know that if you get a diagnosis you’ll use it as an excuse to start treating people badly. that’s just how mentally ill people are.”
same ex-friend was extremely disgusted when she found out that fans sometimes make neurodivergency headcanons for characters that have the same symptoms as they do, and that authors sometimes write books with neurodivergent protagonists in stories that don’t focus on that (ex: she seemed horrified that percy jackson has adhd?)
multiple psychologists i’ve seen on facebook agree that they should refuse to treat patients that say “i’m here because i have symptoms of a disorder and wonder if i have it”, and that a patient should arrive to a psychologist as a blank slate.
school psychologist asked me how i was feeling about my trauma situation and i told him i thought my friends would leave me. instead of addressing the issue he said that that no i didn’t, that i was lying, that i had searched “bpd symptoms” online and now i was faking symptoms because i wanted to have bpd, that he shouldn’t have told me he suspected i had a personality disorder because now look what was happening. no, i didn’t search bpd symptoms online. yes, my friends left me, it was a completely founded belief and not a symptom, let alone a faked symptom.
so the next time you hear someone saying they’re “anti self-diagnosis” i want you to understand what they’re saying. what they’re saying is:
- i don’t want people to be aware of their own symptoms
- i don’t think my patients should have access to any information that doesn’t come from me
- i don’t think neurodivergent people should learn how to cope with their symptoms and live “normal” lives
- i think neurodivergent people should be denied a diagnosis because the moment they get one they will become evil and dangerous
- i don’t think people who don’t look like a stereotype could possibly be neurodivergent, even if they have all the symptoms, so i think they are faking it for attention and should be denied treatment
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crystu-cii · 4 years ago
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XDD
I f e e l that pain in my soul-- my older sister uses cologne sometimes and it is sO STRONG AND WILL NOT STAY CONFINED TO HER ROOM-- AMD SOMETIMES SHED DO IT IN THE DOORWAY LIKE HELLO-- XDD
YEAH WH GET SOME SLEEP LEAVE THE STAYING UP TO US-- XDD
YES BABY JAIL, INTO THE UPSIDE DOWN LAUNDRY BASKET YOU KNIFE-WIELDING HEATHEN-- XDD oms XDD well I don't know them but I love them- YESSS THEYRE SO FLUFFY-- I'm actually curious what images pop up first imma check-- FLUFFY PUPPIES-- we've actually never owned ones that fluffy(those actually look more similar to shetland sheepdogs than the shelties we've had so far?? Very similar/similar enough where if someone doesn't know a sheltie we mention shetland sheepdogs), our current one is a purebred that we got for free(she was being given away bc her family never came back for her and the lady taking care of her couldn't afford the time to take care of a second dog long-term think) and she's got pretty short fur in comparison- still fluffy enough, but not quite so long of fur-- she's a blue merle(absolutely gorgeous fur, she's like 8 now with a lot of health problems but she's super loving still 💕💞) anyways about the fur, so long as you brush regularly you should mitigate most of that, and it mostly collects in corners- but like.. be prepared to eat and wear dog fur for the rest of your life-- (actually there's a thing called a fur zapper we bought recent that you put in with your clothes when you wash/dry them(I think it's dry but idk??) that's supposed to get a lot of hair off your clothes in that process? Also lint rollers are your best friend--) AND roombas are really helpful(we bought a knockoff one and rarely have to sweep ever so 👀) XDD WHEEZE I can't even imagine what you did-- but like you could ask for a budgie/parakeet /hj I mean, they aren't very expensive (actually they're pretty cheap) but they're very loud, need a lot of attention(especially if you want them to bond to you!) and you need to research into them a lot to make sure you're doing things right-- loads of vids online!! Loads of websites too!!! I'd know I have one- JUST A WARNING, FEATHERS AND SEED HULLS GET ALL OVER YOUR FLOOR XD p l u s like you have a friend who knows stuff about birbs :3 anyways ENOUGH RAMBLING FROM ME WOW THAT GOT LONG--
💕💕 I feel that XD OMS-- I WISH-- WHAT A D R E A M - s n a k - Awww but what a mood XD
XDDD oms YES-- EXACTLY-- XDDDD another good thing you should try eventually is SWEET POTATO CASSEROLE WHICH IS APPARENTLY DELICIOUS??? I TRIED IT FOR THE FIRST TIME(AT LEAST IN A WHILE) TODAY AND IT WAS SO FUCKIN TASTY????
H E A THEN-- XDD how cool of them to try tho :3 whEEZE Y 'A LL-- XDD
WHEEZE I SUCK WITH INSTRUMENTS SOOOO-- DAMN THA'S SOME BAD LUCK MY DUDE-- MAYBE YOU'RE CURSED DAMN-- oms wOWW--
Yesss-- ooh I've never played 👀 seen some stuff but never played-- (see: my computer sucks XD) I h a v e played Portal 1 and it is SO GOOD and SO SHORT and I WISH I HAD GOTTEN PORTAL 2 INSTEAD BUT THATS OKAY CRIES-- YESSSS THE SONGS SLAP--- ALSO THERE ARE ACTUALLY TWO WHOLE MORE CANON(PROBABLY KINDA MAYBE NOT?? IDK) SONGS, ONE FROM A LEG DIMENSIONS GAME("You Wouldn't Know") AND ONE THAT WAS CUT FROM PORT TWO("Don't Say Goodbye"(Harry101UK made an edit to make it Glados' voice!!)) THERE ARE ALSO A BUNCH OF GOOD FAN SONGS SO YEAH-- ALSO NOT TO BE A SIMP BUT GLADOS' VOICE? PERFECTION. I LOVE HER. ALSO I COULD LITERALLY DETAIL THE PORTAL LORE I AM INCREDIBLY EMOTIONALLY INVESTED IN THIS GAME-- ALSO THERES A CLIP THAT SOMEONE MADE USING A (VERY GOOD) GLADOS TTS TO HAVE GLADOS SAY TRANS RIGHTS AND ENBY RIGHTS AND IF I FIND IT AGAIN ILL SEND IT TO YOU-- YOU COULD PROBABLY FIND IT IF YOU LOOM UP GLADOS SAYS TRANS RIGHTS? IT HAS A VIDEO WITH TRANS FLAG COMPANION CUBES ACCOMPANYING IT-- ALSO YES THE PORT MODS(/ADD-ONS? MAYBE? THEY'RE COMMUNITY MADE I THINK BUT IDK ALL I KNOW IS THAT THEYRE COOL AF--) (also I apologize for all the screaming? XD it's like, four am and I was talking about portal so.. whoops?)
Right like wth???? I???? Okay but like December to February babies just fuckin DONT EXIST IN THIS GEN OR SOMETHIN-- CAUSE I FIND N O N E -- Maybe there are more December babies but there are definitely like NO January to February babies it is So Weird--
NEJFQOBGKW WOWW d an g like-p l e a se s t op over sp r aying-- xD and LEGITTTT LIKE- THAT WAS M Y ROLE TO STAY UP LATE- XDD
WHEHEHEZE- LAUNDRY BASKET TIME- G E T I N XDD anD YESS- any doggo is just such a cute doggo 😭💞💞 but for me- fLUFFY ONES ARE WHERE ITS A T- and ohhhh i see- FOR FREE?? W H A T A S T E A L XDD but awwww the poor doggg at least she's with you now ! ;0;; 💞💞😭 aaw such a lovable puppup 😭😭💞 and oHHH i see :00 but oh no- xD i also have a friend that has two dogs and whenever he would give me gifts- there would be dog hair on them no matter what- XDD and ooOhhh those sound really helpful! omg- i swear i dont have to have a pet for the need of a roomba- i already shed so much hair myself its so crazy-- xDD and oH MAN loud animals are really gon get my mom fired up- and OO birds just look so cuteee i always fantasize of having one- but then again- with the noise and all xD the more i think about it i dont think we are prepared to have a pet at all xD but i still dream of at least having one pet in my lifetime!
and OO that sounds awesome!! i have no clue if i even tried casserole before- man- sometimes i just eat food without even knowing wth it is XDDD but THAT SOUNDS so gooodddd :O
and LEGITT LIKE- TF IS HAPPENING WITH MY SCHOOL LIFE- XDD and oh my god- IT GETS WORSE- that year there was a FREAKINGG FIREEEEEEE- it wasnt that dangerous thank god- but it had to get a whole ass room renovated because of it- and guess what room it was- THE ORCHESTRA ROOM- AND GUESS WHAT M A D E I T W OR SE- that year- it was the first time the school replaced those 10+ year old instruments with new ones- NOW THEYRE B U R N T- and mind you that the school's budget isnt so- gr e a t- like oh my god i am still so bewildered over HOW MUCH chaos HAPPENED that year- and i thought that year was gon be the year- yknow? like UGH
and OHH MANN playing portal sounds awesome! but i just dont think the game would be worth my money cause i know the plot- and even with the mods and all my brain would be broken as i would possibly have no clue what to do- xDDD
and HOOOO MANNN game fan songs are just so AWESOMEEE- and those sound pretty cool! :OO and HOLY SHIT FUCK YEAH- GLADOS SAYS TRANS AND ENBY RIGHTS Y A LL- now im gonna look that up and let my ears be blessed by such words- XDDD and DONT WORRY BOUT SCREAMING ALOT- i scream a whole dam lot too XDD
and LEGITTT- finding someone's b-day in january and feb is so rare all of a sudden like wh a t - XDD
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