#and nobody with professionally diagnosed cfs will bat a single eye. we are in the same boat and all we have is each other
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the arguments against self diagnosing any illness sound very funny when you’re a chronically ill guy that’s been trying to get diagnosed for almost a decade with something 90% of doctors don’t even believe in or blatantly don’t care about and they will say directly to your face “yeah so you have all the signs of this and we’ve ruled out a lot of other things but we just don’t know enough about it so we cant diagnose you” and diagnosis wouldn’t even get you the resources you need because those resources barely exist in the first place slash we don’t know what would help because, see above, medical professionals deny the existence of this very real condition or set of conditions, and so there isn’t enough funding or research behind it. the ouroboros of a terrible healthcare system should not stop you from trying to determine what resources you need even if that means just saying you have the thing so you can move forward. if you need treatment for xyz symptoms, even if you do not necessarily have the condition most associated with those symptoms, you still need treatment. there is not a real house md out there cooking up the perfect diagnosis to your condition while violating many professional and ethical boundaries that i would absolutely let him violate if he could, you know, accurately diagnose and treat me. instead you have to do what you can do with what you have and if you disagree that it is necessary to “”play the system”” to get potentially life saving care, then you have never had the marginalized usamerican experience and i wouldn’t wish it on my worst enemy but if you keep insisting self diagnosis is the problem, instead of like, the horrors of capitalism, i wish you stuck in a doctors office for an hour and a half only for them to suggest you might feel better if you take a multivitamin or lose some weight.
#dr house would take one look at me and say ‘you have cfs. boring. get out of here’ and my life wouldn’t change at all#and i still wouldn’t have access to anything useful for this condition#it’s a perverse thought but i do think that long covid will actually revolutionize how we treat chronic fatigue. eventually.#and that’s only because doctors themselves can and do get long covid.#there is not a doctor on this planet with cfs (i would love to be proven wrong!) and if there were we would already have a million options#any ways#if you know a guy who can get me that diagnose DO tell. in the meantime i’ll just address my situation as it is#and nobody with professionally diagnosed cfs will bat a single eye. we are in the same boat and all we have is each other#continue to uplift chronically ill and disabled people with the time you spend trying to refute other peoples understanding of themselves#everything i’ve learned about how to treat my body better and mitigate my symptoms has been from disabled people/people with cfs#never has a doctor once helped me on this front. it’s only been the community. thank you community you are all we have#sp#fatphobia mention#only in the last bit but bc that’s genuinely such a pervasive inhuman thing doctors do i had to include it
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