#PPA understands tragedy. he understands loss
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sycamoretrees · 2 years ago
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i'm still thinking about this
AEW Dynamite 6.18.2021
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loud-snoring-os · 8 years ago
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5.0 out of 5 stars This is an incredible book for anyone dealing with dementia in their family.
5.0 out of 5 stars A HIGH-IMPACT STORY WE CAN ALL EASILY RELATE TO Coming to terms with the reality of a close family member who has been stricken with a debilitative ailment can be a harrowing experience. This is a heart-rending true story of just such a situation told by a well-known actress (the author) who most will easily remember. The story, about her own mother, is candid, well written and extremely introspective. It offers an insiders view that can be easily understood and related to by others. In spite of the tragedy this kind of circumstance can impart, the author has had the remarkable ability to find some positive. As American philosopher Napoleon Hill once said: "Out of every adversity comes the seed of an equivalent or greater good." Well done Kimberly. Go to Amazon
5.0 out of 5 stars A New Understanding I set out to read this because I am a Fan of all that is Paisley. Very quickly the words written began to have such a simarilarty to the lost of my own Mother. We lost her after a 2 year battle of stomach cancer almost 2 years ago. Gone was the fangirl. It was replaced with the love of a new found author. One who managed to write the words that I struggle to fine or even allow myself own. She brought comfort to me and hopefully others, that have no choice but to walk this path. Bravo Kim! You made me laugh, cry and yes even manage to love your family even more. Go to Amazon
5.0 out of 5 stars Excellent!! iI have never read a more honest, heartbreaking but hopeful book on early onset dementia. As my husband was diagnosed @ 50 with a type of early onset dementia, I have read quite a a few. It's refreshing to see someone truly telling her story the good and the bad on this topic while still offering hope and resources to those that suffer with the same decisions/options that she and the rest of her family had to make! Bravo Kimberly, for making those in this e seemingly hopeless struggle not feel alone. Go to Amazon
5.0 out of 5 stars A MUST READ FOR ANYONE GOING THROUGH DEMENTIA/ALZHEIMER'S If only I'd had this 12 years ago. I know my dad hid a lot of my mom's problems from me. He didn't know what was going on either. When we finally took her to the doctor for those "little tests ", the doctor came in with papers from the Internet. He NEVER said she had ALZ. I did. It still was very much a stigma in 2004. Don't wait or make a joke like we would when leaving my parents' house. It would be much better knowing you'd made a mistake than do nothing for as long as we did.It took a lot of courage, and putting yourself up for ridicule, Kim, by writing this. I was at the ALZ Forum last week when you spoke and received your award. You have written from the heart and said so much that so many of us wish we'd been able to say.Definitely read this book if you're going through this now or have "been there" like me. Also, become an advocate, like she said, for those who aren't able to talk for themselves. Tell your Senators and Congressmen how important research is and how the funding MUST be increased. Beg them to sponsor the HOPE Act, which provides information and education to medical personnel and caregivers. Give what you can to help with funding locally and volunteer for The Longest Day, Blondes vs Brunettes Football Games, and The Walk to End Alzheimer's. This is my passion because NO ONE should have to watch a family member go through this. It HAS to end and the only way it can is with YOUR help. Go to Amazon
4.0 out of 5 stars Greater focus on PPA is needed for funding the research into this horrible disease. This book is a step in the right direction. I am glad others have found this book helpful and I too appreciate the compassion expressed by the author. I am living with a loved one with Primary Progressive Aphasia (PPA), now Semantic Dementia, and the journey can be long, unbelievable at times, and always sad. I feel it's important to stress that Kim's mother was diagnosed with PPA, not Alzheimer's, and that the two diseases vary in a number of ways. A big difference is in the funding for research. Alzheimer's has sadly become close to a household word—almost everyone either knows someone who is affected by the disease, or is affected in some way themselves. Consequently, many charity events/drives and much advertising bring in money for Alzheimer's research. Not so with PPA, which is still considered a rare disease. A disease under the umbrella of Frontotemporal Dementia (FTD), PPA is characterized by onset at an early age, and often hits people well before they are considering retirement. Many people have young families, and so either Mom or Dad becomes both a "single" parent and a caregiver at the same time, while the family income is affected negatively in a flash, as comprehension often diminishes very rapidly. In other circumstances, the unaffected spouse is left as a young caregiver whose life is put on hold for 2, or 5, or 7, or as many as 15 years while caring for their loved one who will not get better, but rather will become progressively more and more childlike and unable to manage so many tasks of daily living. Along with the lack of comprehension and language come losses of motivation and empathy and so it is often an incredible challenge to find ways to occupy the person's day. So many with PPA are very noticeably young when they go to a senior day care program populated by elders with Alheimer's and dementia.Read more › Go to Amazon
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