#I'm like hecka impressed if you read all this

[drummergirl231-2]

Happy Autism Awareness/Acceptance Day 2020!

To me, true awareness and acceptance go hand-in-hand. I still don’t mind the word “awareness,” since most people, even people who think they’re spreading Autism awareness, aren’t totally aware of what it is or what it’s like. But I also love calling it Autism Acceptance Day, because that’s what we need more than anything. 

To spread some awareness, I’d like to address some misconceptions about Autism and share some other thoughts I wish people knew/understood.

1. Autists/Aspies do not lack empathy. 

I found this thing and it explains it super well so I’ll just leave it here:

Imagine a scenario where you say something totally innocent and it triggers the person you’re talking to. They start flying off the handle at you and you don’t know why. But because they’re angry, you are, too. But since you don’t know why they’re angry, you don’t know why you’re angry, either. It’s crazy overwhelming and confusing. And you want to fix whatever you did because you don’t want this other person to be angry or hurt, but you don’t know how, because their all-consuming rage makes it really hard to think and try to put yourself in their shoes. Also, you’re scared on top of it all.

That’s what having high affective and compassionate empathy and low cognitive empathy is like. It’s not that we don’t care. It’s that we care too much, and all the super specific nuances of socializing are things we have to learn one at a time, through either our mistakes or others’ mistakes. These things don’t come naturally to us, but it’s not like we can’t learn. If I were to compare math to socializing, it’s like you all have calculators or other doohickeys to do all the math for you and we just have paper and a pencil... and no eraser. 

2. Autism is not a mental illness to be “cured.”

Now don’t get me wrong, I am ALL FOR people finding ways to help us be able to deal with the world better, whether that’s a better diet, items to block out sensory stimuli or items that stimulate, or counselling that can help us navigate social situations and talk through anxiety and/or depression. But those things don’t “cure,” us because Autism isn’t a disease or something wrong with us. Autism gives us different challenges, sure, but neutotypicals have their own challenges. 

The symptoms typically associated with “low-functioning,” Autism don’t necessarily have to be a part of Autism. Many non-verbal kids grow up to be verbal. That doesn’t mean they stopped being autistic. There was a celebrity mom years ago who claimed to “cure” her son’s Autism with a gluten-free dairy-free diet. He’d been so trapped in his head, he couldn’t engage with the world around him. She altered his diet and one day he laughed at Spongebob, and that was a turning point. He became able to interact with people and react to things on TV. It was a huge breakthrough. But he was still autistic. If you were to have plopped me down on a rug as a toddler next to a toddler like this celebrity’s son before his altered diet, you wouldn’t think I was autistic at all by comparison. But I was, and I am.

Autism is a different neurological blueprint, and yes, brain-healthy diets and detoxes can do wonders for us because it seems like our brain type does make us more susceptible to negative effects from neurotoxins. But if you think someone has lost their Autism just because “the bad parts,” went away... no. That’s not how it works.

3. Not everyone is “a little autistic.” 

When I was newly diagnosed and trying to process it, someone told me something along the lines of, there there, we’re all a little autistic. But that’s not true. There are a lot of traits associated with this brain type, and yes, a neurotypical person can have a few of them. That doesn’t make them a little autistic. To be considered autistic at all, you’d have to have a large number of quirks plus social delays (not associated with excessive technology use), odd or repetitive behaviors, unusual and intense interests, communication struggles, and unusual sensory processing. Suppose you’re white. If you are white, this should be easy to imagine. Say an African American just told you about some of the challenges they’ve faced, whether it’s race-based bullying in school or racial profiling later on. Would it be appropriate to say, “There there, we’re all a little black?” NO. One, it’s false. Two, while all people struggle with stuff because to be human is to struggle sometimes, the struggles of different groups of people are totally different, and you can’t say you know exactly what it’s like or pretend everyone’s the same. We all have equal dignity and worth, but beyond that, everyone’s different. Don’t pretend differences don’t exist. Just value them.

4. Autism doesn’t have a “look.”

When I tell people I’m autistic, this is usually what I hear: “Wow! I wouldn’t have guessed! You don’t look autistic.”  ...What does that even mean??? Is it supposed to be a compliment? Because if it’s a compliment I “don’t look autistic,” then that’s kind of an insult to other autistic people. Or do they mean it like, “I don’t believe you’re really autistic because I have a preconceived idea of what an autistic person looks like and you don’t fit the bill so I’m not going to give you grace if you act weird?” I don’t know. Y’all say weird things too, sometimes, ya know? But Autism doesn’t have a look. There is a sort of distant intensity in our gaze sometimes... and I can legit see it when Jim Parsons plays Sheldon Cooper, but when I see an interview with him as himself, it’s gone. It’s not a fixed feature of our faces, and a talented NT could totally put it on.

5. Autism presents itself differently in boys and girls.

You know how not a lot of people know the symptoms of heart attacks in women because mainly people only talk about what a heart attack is like for men? It’s kinda like that with Autism, too. Typically when you hear about Autism, you’re hearing about the signs and symptoms in boys. Even most pediatricians only know to look for the way it presents in boys, which is how so many girls don’t get a diagnosis until later in life, if ever.  One difference is that, for whatever reason, girls tend to be better at nonverbal communication and taking hints. We’re mimics. Chameleons. We take on the mannerisms of those around us and who we see on TV as we force ourselves to adapt. Verbal boys might speak at unusual volumes or with an unusual voice, rhythm, or cadence, but verbal girls learn to mimic the speech patterns of others. Our special interests/obsessions aren’t typically seen as strange given our age and sex. For example, a six-year-old autistic boy might be fascinated by WWII. I was interested in fetal development. People thought, “What’s so weird about that? She’s a little girl who loves babies.” We often play with Barbies or other dolls long after our peers have stopped. It helps autistic girls process social situations. When I was shamed out of liking Barbies, I started writing stories in notebooks or in my head. Autistic boys usually struggle with social communication from an early age, but autistic girls usually don’t have any major communication struggles until adolescence, when relationships, platonic or romantic, get way more complicated.  Since little autistic girls can mimic their neurotypical peers, and since some doctors only know how to look for Autism in boys, we tend to fly under the radar, causing that huge gender gap in diagnoses.

6. Mental illness is common with Autism, but NOT part of it.

I read an article by an autist in the UK who struggles to get help for his anxiety or depression because therapists have brushed him off, saying “Well, that’s just part of being Autistic, so it can’t be helped.” NO! Just like neurotypicals can be mentally healthy or unhealthy, Autistic people can be mentally healthy or unhealthy. Just because something is common for us doesn’t mean it’s how it’s supposed to be, or that it’ll always be that way, or that it’s part of who we are and we need to embrace it. People with mental illnesses should be embraced (literally or figuratively, depending on what they’re comfortable with). Mental illnesses should not be embraced. Ever. Because autistic kids and adults often face abuse, bullying, discrimination, and are ostracized, anxiety (especially social anxiety) and depression are common for us. In more serious cases, especially in autistic teens and young adults, dissociative disorders can develop. What’s worse, it doesn’t take much looking to find the dark corners of the internet where people, autistic or not, are encouraged to embrace their developing dissociative thoughts and feelings. I once saw an interview with someone who found healing from a dissociative disorder, and she gets emails every day from others with the same disorder she had who regret some of the things they were talked into doing while living with the condition and  who want to find the healing she did. She said many of them are autistic and under the age of twenty-five. Autistic people with mental illnesses shouldn’t be talked into believing their mental illnesses are a part of them, or not mental illnesses at all, or something to celebrate and cling to. I reject the notion we should have to settle for being ill in any way. We deserve to be as healthy and whole as anyone else, and it makes me sick there are so many internet predators preying on us in this way, and that there are therapists who think Autism and mental illness has to be a packaged deal.

7. If LGBT people were treated the way autistic people are by the media, it’d lead to outrage. But it seems like no one is outraged on our behalf.

We’ve seen the news stories, haven’t we? A couple invites the news over to their house, upsetting their autistic child who then has a meltdown, the meltdown is filmed and aired, and the parents are just like, “This is what our life is like because of Autism. And it sucks. Pity us.”

There was one video I saw... I’m just so enraged by it, even after two years. A mother was praised for her open honesty as she vilified her autistic son and complained about how he ruined her life and how hard it is to go out and have people stare. I’m sorry, hard for WHO??? I don’t even want to go into the details. I know only sharing this much doesn’t make it sound like that bad of a video, it’s just... ugh. Guys. It’d be a whole separate post. I can’t deal with it right now. 

If parents went on the news after their kid came out to them as gay, and wept and begged for pity and said some of the things this woman said of her autistic son (wondering what she did wrong that made her deserve this or that led to this or saying she doesn’t believe in God but finds herself praying anyway that God’ll “fix him”), America would call them the worst parents ever. But parents of autistic kids who do this are praised for their openness and vulnerability as they publicly shame their child.

Another time, after a mass shooting carried out by a teenage boy, the news reported that he was autistic and that might have contributed to the attack (there they go, combining mental illness with Autism as one and the same again).

If a pedophile were arrested, and they said on the news, “And we just got word that he’s gay, so that may be why,” there’d be a riot. But the news can pin autists as mass murderers and no one bats an eye!

All of May last year working at a clothing store, I watched as various departments filled up with pride t-shirts to get ready for June, and I couldn’t help but think,

Where were the Autism acceptance t-shirts in March to get ready for April?

I probably shouldn’t be so surprised with the media painting us as life-ruiners and life-enders. 

I know it’s a vile and disgusting thing for me to be jealous of LGBT people in this way, especially since they have their own struggles, too. I just wish society had our backs and celebrated us instead of wanting us “fixed,” for their own convenience, ya know?

8. Almost all of us hate Autism Speaks, and those who don’t are probably just new. XD

I used to be all “Light it up blue!” as well (even though that seemed weird to me, given blue lights might be overwhelming to some people on the spectrum). But then I read something on their site that made me feel really betrayed, and down the line, I learned most autistic people hate them... some because they saw them say the opposite of what I saw they said. Basically we all have different opinions but Autism Speaks spouts whatever information their donors want them to (sellouts), and that donated money doesn’t go towards helping us, but toward more fundraising or research on how to prevent people with our brain type. I guess they’re not fond of the artistic and scientific advancements we bring to the table. They should change those puzzle pieces from blue or multi-colored to white with black specks because they want a world that’s vanilla. 

9. Some of us still like the puzzle pieces, even if we hate Autism Speaks.

I’ve talked about this in a fanfic, but I’d love it if we could redeem the puzzle pieces, because they’re still a good analogy if you assign a different meaning. Autists and NTs are puzzling to each other, no sense denying that, but the more time we spend together, the more we start to understand each other. Also, Autism does have a lot of pieces, and figuring out I was autistic was like solving the puzzle of my life. The missing pieces came together and things became clearer and made more sense. Also also, some autistic people are really good at puzzles. And then there are autists like me who aren’t necessarily good at puzzles, but get totally absorbed in working on them anyway (my parents have been doing some puzzles during the quarantine lol they’re traps! TRAPS I SAY!!!).

Nevertheless, I understand why other autistis don’t like the puzzle pieces and prefer the rainbow infinity symbol, and I quite like it, too. It’s very pretty, and the way the colors fade together is a nice symbol of how it’s a spectrum.

It’s a sign of the infinite possibilities in our lives when we’re empowered, because we can do and have done good and great things in the world.