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#I think I might have pots or something under the dysautonomia umbrella
andresmounts2 · 3 months
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Shoutout to the disabled people out there who know that something's wrong with them, but haven't gotten a diagnosis because it's inaccessible.
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tj-crochets · 12 days
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Hey does anyone else with one or more forms of dysautonomia* have a thing where if they have a moderate-to-severe physical stressor (like a severe allergic reaction, getting a vaccine, stuff like that), they get a new bonus dysautonomia for a few days to a few weeks? I thought it was a side effect of allergic reactions for me**, but this vaccine I had pretty much zero allergy symptoms but am having new issues, so I think it might be more general. A few times, I've had increased issues with low blood sugar for usually only a few days, but sometimes as much as a month or two after a severe allergic reaction. Once, I had waaaaay over-sensitive adrenaline reactions for a while (bad enough that I watched an episode of gamechanger and had to stop because I got too tense and my heartrate shot up). A few times, including this time, my thermoregulation seems to be very off. Like, it's not great in general, but now I am sweating so easily which is not normal for me (and not good with my salt issues) *my diagnoses that fall under that umbrella, more or less, include but are not limited to: salt wasting syndrome, POTS, possibly MCAS, tachycardia (separate from the POTS), and "something is weird about your endocrine system, maybe Addison's?" **I did bring this up with my allergist! He said "Allergies don't do that". I said "If it's not allergy related, then why does benadryl help?". He stared at me for a while, then said "I don't know. Allergies shouldn't do that"
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