#I love how they wont actually treat me theyll just do halfassed ''management'' and then treat me like im crazy and too young to know what | Explore Tumblr posts and blogs

thatsanswitch · 2 years ago

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Okay but what if I don't want to feel like this? What if I want to live life and be productive? Oh, I need to see a new doctor? Okay. Oh, that doctor isn't seeing patients under 50 and they're the only specialist at my local hospital that actually knows what the hell might be going on with me? Oh, okay. You've found another doctor? Great! They're won't take my insurance? Great. You've found another? Awesome! Oh, but they're two hours away and therefore inaccessible to me. Lovely. So guess I'm just stuck like this :))))

#love having to explain over the phone to multiple people how right now I have no quality of life and how I literally cannot function in day #to day life because of my disability #I love how they wont actually treat me theyll just do halfassed ''management'' and then treat me like im crazy and too young to know what #the hell im talking about #im so tired I just want to live life i just dont want to feel like this #i dont want this to be all that there is for me #im nineteen and in so much pain and yet this is the best ill ever be #do you know how miserable that fact is?#chronic pain #EDS #hypermobilty syndrome #ehlers danlos syndrome #disability #actually disabled

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