#HOH2023

[invisiblewarrioradvocate]

Another Day

Well, this past week has been exciting. I was an advocate for Headache on the Hill (HOH). It was a unique day. Something I have never done before. I was glad to broaden my horizons some. As advocates we met with officials from the Senate and Congress. In all there were about 285 advocates, from 48 states, and approximately 300 meetings held.  It was an amazing day, meeting amazing people. The toll it takes mentally and emotionally, knowing there is only so much that you can do. Wishing you could truly get them to understand what it is like to live this way. They hear the words, but do they understand the gravity of the situations we live in? We may not die from having a migraine, but the issues that it causes; depression and anxiety are alone enough for some to want to end it all. 

So please if you don’t understand.... ask the questions? Do your own research. Feel free to understand that having a “severe migraine” can be more disabling than being a quadriplegia. 

I didn’t ask for this, nor do I want it, but since I have been given this opportunity to fight, that is exactly what I am going to do. I am going to use my words and my voice to stand up and fight for the injustices and the lack of knowledge I see so greatly around me.