#And the hemotologist looks at my results

[fictionplumis]

I just LOVE the way my health journey is going right now /s

Rheumatologist: This isn't my department, you need to see a dermatologist.

Dermatologist: This isn't my department, you need to see a cardiologist.

Cardiologist: This isn't my department, you need to see a hematologist.

Hematologist: This isn't my department, you need to see a rheuma-- oh, you already have? Then you need to see a gastroenterologist.

I see a gastroenterologist next Friday, but.

God.

I am tired.

[maximumsunshine]

Good luck tomorrow!!!! I hope you find the answers you're looking for, and whatever the issue is is manageable and resolved quickly! I believe in you!!!

Tests were today. Made the post late night and stayed up all night so I'm not sure when tomorrow became today.

ANYWAY

The tests went well. MRI results in my portal nut in medical speak. No Nuclear Med test results yet. That was an interesting test. "Hey we're going to IV you this med that is the equivalent of two really fatty meals so you are SUPER going to want to puke. Here is a puke bag. Try not to puke though just because we know puking sucks. And no we can't let you take your zofran because that sort of defeats the purpose. Sorry. But once the drug is administered you pretty much lose the going to puke feeling. So we just gotta get through this little bit if meds. It's a small amount but we administer it slowly because if given it too fast you will for sure puke. Wait. You mean if i let you lay down on your left side (I had been sitting up) and arrange your arms just so, you can probably completely even avoid serious nausea?! Give me a minute, I'll go find a gurney." And thus I avoided puking. AND THEN she pulled another syringe of meds out of a lead tube, incases it in a smaller lead shield, and then injected THAT directly into my veins. Lol. So yeah, I'm radioactive right now. Not sure when my system will flush that bit. But I find it funny. I watched her remove the syringe from this massive lead case and put it in a smaller lead shield and I'm just like, "Oh. It's RADIOACTIVE radioactive. Lol"

Anyway, no nuke test results in yet. And I don't understand the MRI results. But my doctor will be able to figure out what's up soon enough and will explain it so I can understand.

I sort of feel like I'm going crazy. Like maybe nothing is wrong. After years of doctors invalidating me telling me I'm just fat, maybe I'm really just fat. But my blood work does validate that something is going in. And that something started when my gallbladder was removed. And we KNOW my gallbladder pissed my liver off because it made the surgery much harder. And then my liver spewed bile just loose into my abdominal cavity for a month and i got sepsis and hadvto have a drain installed. Like we have all this evidence that even I can understand that my liver is fucked up and it ties into my gallbladder not being yoinked fast enough. And we know it took as long as it did for my gallbladder issue to even BE FOUND because when I told my old doctor i was feeling pain and pointed to roughly where my gallbladder was, she tolde it was just me being fat. Those words. Cramps from being fat. Doctors also blamed 5 years of severe anemia that led to many a blood transfusion on "me not making my own blood" because I was fat. And THAT was cancer. So yeah.

When a doctor dismisses a symptom as you just being fat, get a new doctor before you get a new symptom.

Anyway, I have a better pcp now who takes me seriously and doesn't call me fat. I have a better hemotologist oncologist who takes my cancer history seriously and does regular checks and has never called me fat. He was the one that found my liver numbers in his routine blood tests he orders fir me and sounded the alarm which explained the nausea and fatigue and got me into a great GI doctor. Who omg he listened to me talk and talk. He took fucking detailed notes on every word i said. He let me give him my full GI history and all my current symptoms. First visit lasted an hour and I left there with more blood work ordered and these two major tests ordered. He took me so seriously he ordered major tests in the first visit. I'm loves him. I love them all.

I settled for shit doctors that almost let me die from cancer all while promising me i didn't have cancer (literally) all while refusing to run any tests.

I went from wearing this to my hemotologist oncologist and him finding it funny.

To no longer needing it. Because all my new doctors take me seriously and run tests.

I knew i was dying. I was told I had the best hemotologist oncologist in Columbus. So what was the point in finding a different one? Yeah. Well the assessment of his abilities came from his coworkers at Ohio Health. All of that bullshit was Ohio Health. When I showed up in the ER with a hemoglobin of 4 and had my cancer found and removed within 2 days, that wasn't an Ohio Health ER. I didn't just fire a doctor or two. I fired an entire medical system.

Anyway that was an unexpected rant. But I have complicated feeling about medical shit. Like trying to reconcile years of medical abuse that ended in serious trauma just over a year ago. With the overwhelming change in quality of care I'm getting now. It's a full 180. I'm trying to catch my breath. Which, i guess will be easier when this liver bullshit is figured out and corrected.

Then i can focus my efforts on being retested for asthma. Maybe get care for that. Figure out my headaches. Need an mri on my neck for the constant pinched nerves in my shoulders. So much to move on to when the liver is figured out. But there is great comfort in knowing without a doubt my pcp has my back.

/end rant

Oh. That shirt is a 3xl and in good shape if anyone needs it. Cover shipping and it's yours. But, I'm begging you that if you're thinking you could use this shirt, to please just fire your doctor(s) and hire new ones. It could literally save your life! Anyway, hit me up if you want the shirt. Open offer to everyone who is losing patience with their doctor.

[purplesmartass]

Y'all I am UPSET

so I went to the hemotologist yesterday for the second time, and noticed a strange problem when I hit the scale. It said 125 lbs. Which no, isn't a lot I'm aware, but here's the thing: I've been noticeably losing weight, not gaining. My appetite is gone. Zero. Non-existent. I have the appetite to eat maybe 500-1,000 calories a day. And out of nowhere I gain 20 pounds?

I'm also there to get genetic testing since I have a mutation in my TS gene that was brought up by my epileptologist but not looked into past that. When scheduling it the staff said oh yeah we do that, that's no issue. When I showed up and explained that the Dr said "idk what to test for".. bruh.

He just ran a basic panel. He was like ah your blood count is fine so on a blood standpoint you're fine. I asked why I could be noticeably losing weight but the scale is going up. All he said was "buy a scale and weigh yourself everyday" then poked my legs to check for swelling.

I also have a history of thyroid issues so this is how that went down

Me: does thyroid issues just go away, I was on synthroid in high school. Every blood test after I took myself off it stated it was normal

Him: no it doesn't go away

Me: well then you tested mine last time I was here. Can I see the results

Him: no. I lost them. But I can test the blood taken today and call you in two days

Me: also my cholesterol is usually high, was the results high last time?

Him: I don't know. I can't find those results either.

That was such a "what the fuck just happened" doctors appointment, waste of damn time 🙄 doctors are a bunch of cucklord simps I tell ye

[daybyday47]

Mar 28/17

Not lots to tell as of yet. Had apt with surgeon on the 22nd. He was very impressed with how well I have reacted to treatment. He explained that the chemo actually turns the tumour to holy cheese. He has a slight English accent when he examined me he says I can’t feel a bloody thing lol. He mentioned a lumpectomy and would like to have meeting with plastics and whoever else on Friday 24 to see the best plan for me and then he would call me. Had ultrasound on blood clot arm on 23 of course have to wait to see hemotologist to get those results. Had last chemo on Friday 24 yayyy me made it past that step now onto next. Everything went good. Today the 28th I am in bed with the sore muscles and joints and tired which is normal and last time hopefully. Finally got cal back from surgeon today and they feel confident to do a lumpectomy and then plastics steps in and reconstructs with all my own tissue which is better and then also open other breast up and do a reduction so they semi even. Now I have apt Monday 3rd with plastic surgeon to explain everything and see if that’s the route I want to take and if I like her. Then hopefully maybe get surgery date. He did say it will be done in 4-5 weeks after chemo so by end of April I should be done surgery then 4 weeks after surgery start 5 weeks radiation. Hard to believe the end is nearing. Oh and it looks like I might lose a toe nail.